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trents

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Everything posted by trents

  1. trents
    Did your ENT do any radiology workup? Xrays, CT scan? Perhaps you have a deviated septum that inhibits drainage of your sinus cavities. Perhaps you have turbinate hypertrophy that needs to be corrected surgically so your sinuses can drain. The turbinates are the fleshy organs that line the nasal passages. They serve to warm and humidify the air we breathe...
  2. trents
    I noticed lately that I have to type in my full email address to log in whereas I used to just enter my user name (which happens to be the first part of my email address). Has there been a change in that regard to the operation of the forum or has something changed in my personal settings? Steve
  3. trents
    Karen, Of course you know that celiac disease involves an autoimmune reaction, not an allergic reaction, and an autoimmune reaction that takes place specifically in the gut. That would explain why your wheat gluten and wheat bran scores are lower than you expected. I had the skin prick allergy testing done several years ago (this was well after the onset...
  4. trents
    I had a CT done of the chest and abdomen early in September and then again about a month ago as a follow-up. At the time of the first CT, I was in the process of being dx with pneumonia/plurisy. Anyway, the CT showed a "nodule" in my lung, and a couple in the abdomen. It kind of worried me so my PCP ordered the repeat in November. None of them had grown...
  5. trents
    I had a CT of my abdomen recently with contrast, i.e., had to drink the barium milkshake. I inquired about it containing gluten on the day I scheduled the appointment. The radiology tech researched it and the next day had the info that it was gluten free. So, make sure you ask and get them to check it out. Steve
  6. trents
    The frustrating thing to me is I still have most of the muscle strength I d id 20 years ago and enough aerobic capacity left to still exercise vigorously but my bones and joints are beginning to let me down. I pay for it later with osteopathic discomfort. I want to stay in good shape but I'm losing the ability orthopedically to sustain it. Steve Steve
  7. trents
    Have you had a bone density scan done yet? I am a 55 year old male with celiac disease that went undiagnosed for at least 13 years. When I finally got a dx I had a bone density scan done and found out I have osteopenia. I, too, get bone pain now in my shoulders, hips and mid back. I wonder if its due to the Fosamax I'm taking. I also am finding the pain is...
  8. trents
    Yes, but if the protein is modified it may not be toxic anymore to celiacs. Did you read the research article some forum contributor linked the other day that outlined a recent invitro study done with an heirloom (before hybridization) variety of wheat? It didn't produce the antibody production characteristic of celiac disease. It suggested that some old...
  9. trents
    Thanks for the clarification nini and zansu. What you said makes sense to me since it does not separate celiac disease from villous atrophy. Steve
  10. trents
    I certainly agree with those of you who point out that gluten intolerance can have many facets and that one of them MAY NOT BE villous atrophy. That is exactly my point. If it's not damaging the mucosa of the small bowel, we shouldn't call it celiac disease. Historically, the terms sprue and celiac were applied to villous atrophy in the small bowel caused...
  11. trents
    My understanding from what my GI doc told me and what I have read is that it is the other way around. That is, the presence of positive antibodies from the blood work is not necessarily conclusive since there can be false positives - and that - the definition of Celiac disease is villous atrophy in the small bowel caused by autoimmune reaction to gluten over...
  12. trents
    Why do you say that you already knew that your girls have celiac disease, despite negative biopsies? My understanding is that the positive biopsy has always been the gold standard of celiac diagnosis. Do your girls have other symptoms that you have definitely connected to gluten consumption? Steve
  13. trents
    Try 1/4 teaspoon of baking soda in 8 oz. of water. Works better than any over the counter antacid. Might not be a good idea if you have high blood pressure because of the sodium content, however. Steve
  14. trents
    Yeah, I was going to suggest gall bladder problems too. Either not having one or one that is nonfunctional. Have you had your gall bladder tested. They do an ultra sound to check for stones (blockage) and something called a hideascan to check for poor ejection factor. Steve
  15. trents
    Several of those conditions she has have been linked to Celiac disease. Just do a search in Google for "Celiac disease and thyroid, Celiac disease and ulcers, Celiac disease and fibromyalgia, " etc. Steve
  16. trents
    Wait a minute. This whole thing seems screwy to me. Are you making a distinction between gluten intolereance/sesnitivity and celiac disease? Steve
  17. trents
    Have you had her checked for other food allergies/sensitivities? They can often cause headaches and celiacs tend to develop sensitivities to other foods that don't contain gluten. It comes with the territory. The damage to the intestinal mucosa allows incompletely digested food molecules into the bloodstream where they ae interpreted by the body's immune...
  18. trents
    Not sure but I think Crohn's is further down in the GI tract than celiac disease. It is also and autoimmune disease but the trigger is not known. Steve
  19. trents
    No, not the same test. The IGg and IGA tests are specific tests for celicac disease/gluten sensitivity, I believe. Steve
  20. trents
    Does the nontwin daughter also have celiac disease? If not, I would not think the ADHD is related to celiac disease but I would think there is a strong genetic predisposition for ADHD in your family. How old is the nontwin daughter? Even if she doesn't have celiac disease now, with two siblings who have it, she may yet develop it. Steve
  21. trents
    Welcome, Jazzy. You have been on the gluten-free diet for over a year now. I would think your body has had time to adjust to that. Have you had any general food allergy/sensitivity testing done such as the ALISA test? It is very common for celiacs to develop numerous food allergy/sensitivity problems. The reason is thought to be related to the damage done...
  22. trents
    Lisa, How'd your allergy testing go yesterday? Hope it was a good experience for you. Give us an update when you can. Steve
  23. trents

    ARCHIVED B12 Levels

    trents replied to elaine33's topic in Related Issues & Disorders

    To convert mcg to mg divide by 1000. Thus, 500 mcg is .5 mg. You really weren't taking very much. Are you a celiac? Steve
  24. trents

    ARCHIVED B12 Levels

    trents replied to elaine33's topic in Related Issues & Disorders

    How much were you taking? People who have B12 deficiencies usually have absorption problems (as in pernicious anemia) or are vegetarians and unless mega oral does are used (say 4 mg) so it might not impact your levels.
  25. trents
    The only thing you can do to determine if the generic drug is gluten free is to ask the pharmacy to contact their supplier for info about the inactive ingredients it contains.
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