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mommida

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by mommida

  1. That is the "normal" way of getting diagnosed for Celiac when you are eating gluten. All the Celiac genes are not identified yet. (They were asking for volunteers for genetic testing a few years back. It could have been 11 years ago by now. ) If you have figured out eating gluten makes you sick, just don't eat it. If you need a label, you are...
  2. Did you happen to use any spray starch in the sewing room? Haven't used spray starch in years to even check if wheat starch is in the ingredients. What about getting a glass top for the coarse wood table? (If it is a special order size piece of glass, don't forget to get the edges polished. You are fully adopted part of the family here now. You...
  3. The top 8 allergens are the most complex protein chains to digest. Learning to cook gluten free and egg free is quite challenging. I noticed a lot of gluten free cooking relies on the eggs to build more texture. There are a lot of ways to replace eggs in baking, but keep in mind what you are replaces the egg for. Texture (light and fluffy), taste...
  4. Ummm.. Look at your daughter's throat. Are the tonsils enlarged? Are there creamy spots on the tonsils, back of throat, or tongue. Does her breath/ throat/mouth have a bad smell? You may have found an "allergen" for her, but what exactly is the reaction she is having? If there is any sign of the above you seriously need to look at information...
  5. It's now or never for the endoscopy. Putting your child back on gluten for testing in the future would be cruel and dangerous. (sometimes reactions after starting a gluten free diet can be more severe, and this can lead to dehydration in young children -life threatening situation that requires an IV) There are reasons to do an endoscopy at this point...
  6. You could be having issues with high fat. If your gut has not healed from recently diagnosed Celiac. Or keep an eye on your gall bladder.
  7. I don't think I am the best at explaining test results. Kind of guessing at your test question. ANA is Antinuclear antibodies level. This is a count of abnormal antibodies that can be attacking normal body tissue indicating an auto immune disease. There is such a thing as gluten withdrawal. In some individuals there can be an opiate like reaction when...
  8. I end up posting this a lot. You really find out who your friends are when Auto immune issues like Celiac show up. The nasty details of physical symptoms Celiacs deal with make it hard to discuss face to face. We find out family and people you thought were your friends can't be bothered by going to the restaurant with a gluten free menu. It is one of the...
  9. Have you looked into 4H student exchange? 4H works with colleges and universities extension. It is more common for farming communities to be involved with, and does not as much as other organizations. Good luck.
  10. I recently had my cholesterol level checked. No surprises there, it is always high. So I listened to my lecture and really tried to make some diet changes. Well how exactly do I cut out more carbs when I've been on a gluten free diet for over 10 years?Years of pasta and bread making me sick, I really don't indulge that often on gluten-free replacements...
  11. Are the areas of numbness cold? Do you have any other signs of poor circulation. (fine "mushy" hair, messed up fingernails, cold feet/hands that turn blue/purpleish)?
  12. Eosinophilic reactions are like Celiac symptoms a hundred times-fold. Celiac is your immune system attacking your body tissue, an eosinophil is the top of the line immune defense white blood cell complete with a small shaft/spear of destruction. Even the weakest eosinophil continues to cause damage for up to 12 days. You need more time to heal. I strongly...
  13. Your spleen is a "mysterious" part of your immune system. They don't know the exact amount of control it contributes to your immune system, but it is part of it. Severe stress does wreck havoc on your immune system. A recent mono infection, could still be taxing your immune system too. Calm down. Stress doesn't do anything good to your body.
  14. You can continue the beer hobby, if you make it gluten free yourself. That being said, oh my God, if someone would just start making some good gluten free beer!!? You'll make a fortune if you can do it!
  15. I don't have a label to read, so I can only say most times caramel apples (plain) don't have gluten. I have just read an article on caramel apples being a risk for Listeria. The apple juice released from being pierced with the stick can grow the bacteria under the layer of caramel. (even refrigerated caramel apples grew ~lesser amount of~ bacteria. So caramel...
  16. bump
  17. Do you know how many people could not get a diagnoses in a timely manner from doctors? Articles ten years ago put an average of 10 years for Celiac diagnoses. 10 YEARS! Doctors don't get paid by the insurance company if they don't write in a diagnoses. So they write in in IBS as a diagnoses. I won't even go into what a sad excuse for a doctor screwed up...
  18. A gluten challenge can be dangerous for young children. My daughter ended up hospitalized for dehydration. (She was 16 months old.) The panel was drawn. She had 2 positives. The scope was not done at that time because she was so sick. (Diagnosed as probable Celiac positive genetic testing for DQ2 and DQ8 along with improvement on a gluten free diet...
  19. No offense, but I'm gonna guess it's stress. I believe someone suggested probiotics would be a good place to start. Scott just posted an article that shows negative gut bacteria and a greater link to Celiac. Keep a food journal to help track down a food intolerance.
  20. I had mono without knowing I had mono. Why don't you start looking into gluten free recipes/ healthier eating? When testing is over give the gluten free diet a try, especially if you get an IBS diagnoses.
  21. I have to assume your son was tested for Eosinophilic Gastrointestinal Disorders (EGID). The doctor would have to order the testing from the pathologist on the samples from the endoscopy. The number of eosinophils (white blood cells usually reserved for fighting parasites ~ as there is a small spear like part of the cell to attack foreign bodies) My daughter...
  22. You need to add oats to the list.. Oats (unless certified gluten free)
  23. Keep a food journal. Include your activities to find a possible airborne allergen, like horse back riding. If you are trying a new food, like the soy milk, small amounts~ in pure form~ for 3 days as a challenge. Keep note of your reactions, symptoms, and B.M.s. I don't really have much faith in allergy testing, but it may be something for you to consider...
  24. If you are having excessive bruising with no explanation from deficiencies, please go back in for further testing. Or at least further explanation of the values of the test results. As an example (some what bogus because I can't remember the true numbers) vitamin B12- patient result 500- normal range 500 ~ 1500. Celiac savvy doctor gave a vitamin B12...
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