Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Round Of Chemo Done!


bonnie blue

Recommended Posts

bonnie blue Explorer

Good morning friends,

Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the new diet because I already know what my body can and cannot handle, what will cause the big D, make me sick, etc..... So thank you Celiac Disease!!!!!

Now dont get me wrong I know that this will not be easy, but I do feel pretty good going into this, I can look at this two ways, I am getting my stomach removed, ummmm ya that is not going to be fun, or I can look at it as I am getting rid of the organ that has the cancer so that I can move on and live my life, there will be major dietary changes but heck we have all been through that!!

It's kinda funny people say to me well at least you wont have Celiac Disease anymore, ummmm ya I will, I just laugh it off. People dont understand I dont mind having Celiac, its the Cancer that pisses me off, lol.

There are certain things I miss, you bet, but on the other hand I never feel like I am missing out on good food, I eat great food everyday!!!

So I just want to say to everyone we have Celiac Disease, Celiac Disease does not have us!!!

Oh and to let you know I got the cutest little blond wig and I am rockin that new hair, you know they do say blondes have more fun :D

Have a wonderful day everyone, thanks again for all the support and hugs, take care B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Woo Hoo!

Jestgar Rising Star

woot.gif

You are amazing Miss Bonnie!

Darn210 Enthusiast

WooHoo!!!

You go, girl!!! Your positive attitude is inspiring!!!

My brother heard blondes have more fun and gave it a try . . . turned his hair orange . . . not quite the same.

AVR1962 Collaborator

YYYYYAAAAAYYYYY!!!!!!!!!! What a good spirit too! Good for you!!

lynnelise Apprentice

So glad to hear you are doing well! :)

Bubba's Mom Enthusiast

Yay for being done with chemo!!!

Your attitude is inspiring.'

Rock that blond wig! LOL :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



catsmeow Contributor

You have such a great attitude. I hope everything works out really well for you.

I hope you don't mind me asking for details. But I am curious about your surgery. Will they be removing most of your stomach and leaving a small amount for food intake, kind of like a Vertical sleeve Gatrectomy or will you have to have it all removed and be basically left with a bypass surgery? If they are leaving some of your stomach, do you know the percentage of stomach they are removing?

I cannot believe someone thought you wouldn't have Celiac's anymore...LOL....DUH!!!!

Here's one for you:

I've read so many times on here about people saying that other people would say to them, that they would kill themeselves if they couldn't eat bread/pasta. It has really offended many of the gluten challenged on this site. Well, glory be, it finally happened to me the other day. The cashier said it. I was delighted, because it took nearly 2 years for someone to say it to me, she said "I'm Italian and I would kill myself if I couldn't eat pasta" I had a good laugh and then told her about Tinkyada pasta, ending with "see you wouldn't have to kill yourself afterall" I said it sarcastically, but in a joking way that caused all around, even the cashier to burst out laughing. Sometimes we just have to find humor in things that really are not funny. I love your attitude and just thought that you would enjoy that liitle tale.

I'll be praying for you, and will add your name to the prayer basket at church on Sunday. I'll be praying that your surgery goes smoothly and safely and that the surgeon gets every bit of the cancer out of there and that you have no more cancer ever ever ever ever again...(((((hugs)))).

ravenwoodglass Mentor

Glad to hear the chemo is done. With your strength and good attitude, well I think you can beat anything.

((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))

Skylark Collaborator

WooHoo!!!! So glad to hear you're staying upbeat through all this. I hope the surgery goes well. :)

IrishHeart Veteran

Here's your Whoohoo!!! and I'll throw in a "YOU GO, Girl"! :)

You are not only inspiring, but your courage just humbles me.

(I thought I was a warrior princess) ---well, honey, you are the QUEEN! ;)

Best wishes and a hug,

IH

beebs Enthusiast

You are really positive! That is great. I'm so glad for you Chemo is over and so glad that the next chapter of your *healthy* life is starting. Yayy!!

mushroom Proficient

Here's another WOO HOO!!! for you - the more the merrier. :D Keep that sunny outlook and the world will smile upon you.and keep you safe :)

mamaw Community Regular

Great to hear chemo is complete... Your spirit is amazing.. After you recover you need to take your spirit &journey on the road to helping others cope..you could be a lifesaver for so many with your positive attitude.. WAY TO GO>>>>>>>>

blessings mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    2. - Russ H replied to Ginger38's topic in Related Issues & Disorders
      27

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - GFhappygirl commented on Scott Adams's blog entry in Gluten Busters: Gluten-Free Product Alerts by Celiac.com
      7

      Simple Mills and Made Good Foods Products May Contain Gluten Levels Above the FDA's Allowable Limit of 20 ppm

    4. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

    5. - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      28

      Pain in the right side of abdomen

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,709
    • Most Online (within 30 mins)
      7,748

    Michelle Tampakis
    Newest Member
    Michelle Tampakis
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Russ H
      Shingles vaccination also provides some protection against dementia: https://www.nihr.ac.uk/news/major-study-finds-new-shingles-vaccine-could-lower-risk-dementia
    • knitty kitty
      @Heatherisle, You have good reason to worry.   Ask the doctors to do an Erythrocyte Transketolace Activity Assay to test for Thiamine B1 deficiency.  Thiamine deficiency is frequently found in B12 deficiency.  Deficiencies in all the B vitamins are common with malabsorption due to Celiac disease.  Thiamine can run out in as little as three days.   Thiamine deficiency symptoms can be mistaken for other diseases such as MS and Guillian-Barre Syndrome.  Thiamine deficiency symptoms include pain in legs and abdominal pain as well as depression and gastrointestinal symptoms. Thiamine B1, Pyridoxine B6 and Cobalamine B 12 together relieve nerve pain. References and Interesting Reading: Wernicke’s encephalopathy mimicking multiple sclerosis in a young female patient post-bariatric gastric sleeve surgery https://pmc.ncbi.nlm.nih.gov/articles/PMC8462913/ Thiamine Deficiency Masquerading As Guillain-Barré Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11872742/ Dry Beriberi Due to Thiamine Deficiency Associated with Peripheral Neuropathy and Wernicke’s Encephalopathy Mimicking Guillain-Barré syndrome: A Case Report and Review of the Literature https://pmc.ncbi.nlm.nih.gov/articles/PMC6429982/ Is there a Link between Vitamin B and Multiple Sclerosis? https://pubmed.ncbi.nlm.nih.gov/28875857/ Thiamine Deficiency and Neurological Symptoms in Patients with Hematological Cancer Receiving Chemotherapy: A Retrospective Analysis https://pmc.ncbi.nlm.nih.gov/articles/PMC8559079/ The Effects of Vitamin B in Depression https://pubmed.ncbi.nlm.nih.gov/27655070/ Thiamine Deficiency Neuropathy in a Patient with Malnutrition due to Melancholic Depression https://pmc.ncbi.nlm.nih.gov/articles/PMC10942818/ Myopathy in thiamine deficiency: analysis of a case https://pubmed.ncbi.nlm.nih.gov/16920153/ Neurologic complications of thiamine (B1) deficiency following bariatric surgery in adolescents https://pubmed.ncbi.nlm.nih.gov/38705013/ B Vitamins in the nervous system: Current knowledge of the biochemical modes of action and synergies of thiamine, pyridoxine, and cobalamin https://pubmed.ncbi.nlm.nih.gov/31490017/ Neurological, Psychiatric, and Biochemical Aspects of Thiamine Deficiency in Children and Adults https://pmc.ncbi.nlm.nih.gov/articles/PMC6459027/ B Vitamin Deficiencies and Associated Neuropathies https://pmc.ncbi.nlm.nih.gov/articles/PMC12855320/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Update on Safety Profiles of Vitamins B1, B6, and B12: A Narrative Review https://pmc.ncbi.nlm.nih.gov/articles/PMC7764703/  
    • Heatherisle
      Hi  There’s been no mention of her adrenal glands as far as I know
    • Theresa2407
      Have they checked her Adrenal glands.    
    • Heatherisle
      Just an update on my daughter. She is still in hospital and getting quite depressed about everything. She had a CT scan of head and chest to rule out stroke in view of her symptoms. Thankfully there is no evidence of that so they now want to do an MRI to rule out MS so this is freaking her out and it’s not doing me much good either!!!They’re also going to do further blood tests to check vitamin levels. My husband and I are trying to reassure her the best we can that hopefully it’s just her body’s reaction to having the Vitamin B medication and it’s affecting her nervous system etc. Think the tingling has subsided but still having some lower back and pelvic pain and some leg pain. Thanks for reading and my apologies if I sound paranoid.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.