Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Last Round Of Chemo Done!


bonnie blue

Recommended Posts

bonnie blue Explorer

Good morning friends,

Well I am all done with my three rounds of cocktails, can I get a Woo Hoo!!! I am scheduled for the removal of my stomach on January 27th, so basically I have 23 days to eat all I want to eat, of course no gluten, lol. The doctors are so pleased with my progress and actually think I will have an easier time with the surgery and the new diet because I already know what my body can and cannot handle, what will cause the big D, make me sick, etc..... So thank you Celiac Disease!!!!!

Now dont get me wrong I know that this will not be easy, but I do feel pretty good going into this, I can look at this two ways, I am getting my stomach removed, ummmm ya that is not going to be fun, or I can look at it as I am getting rid of the organ that has the cancer so that I can move on and live my life, there will be major dietary changes but heck we have all been through that!!

It's kinda funny people say to me well at least you wont have Celiac Disease anymore, ummmm ya I will, I just laugh it off. People dont understand I dont mind having Celiac, its the Cancer that pisses me off, lol.

There are certain things I miss, you bet, but on the other hand I never feel like I am missing out on good food, I eat great food everyday!!!

So I just want to say to everyone we have Celiac Disease, Celiac Disease does not have us!!!

Oh and to let you know I got the cutest little blond wig and I am rockin that new hair, you know they do say blondes have more fun :D

Have a wonderful day everyone, thanks again for all the support and hugs, take care B)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Woo Hoo!

Jestgar Rising Star

woot.gif

You are amazing Miss Bonnie!

Darn210 Enthusiast

WooHoo!!!

You go, girl!!! Your positive attitude is inspiring!!!

My brother heard blondes have more fun and gave it a try . . . turned his hair orange . . . not quite the same.

AVR1962 Collaborator

YYYYYAAAAAYYYYY!!!!!!!!!! What a good spirit too! Good for you!!

lynnelise Apprentice

So glad to hear you are doing well! :)

Bubba's Mom Enthusiast

Yay for being done with chemo!!!

Your attitude is inspiring.'

Rock that blond wig! LOL :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



catsmeow Contributor

You have such a great attitude. I hope everything works out really well for you.

I hope you don't mind me asking for details. But I am curious about your surgery. Will they be removing most of your stomach and leaving a small amount for food intake, kind of like a Vertical sleeve Gatrectomy or will you have to have it all removed and be basically left with a bypass surgery? If they are leaving some of your stomach, do you know the percentage of stomach they are removing?

I cannot believe someone thought you wouldn't have Celiac's anymore...LOL....DUH!!!!

Here's one for you:

I've read so many times on here about people saying that other people would say to them, that they would kill themeselves if they couldn't eat bread/pasta. It has really offended many of the gluten challenged on this site. Well, glory be, it finally happened to me the other day. The cashier said it. I was delighted, because it took nearly 2 years for someone to say it to me, she said "I'm Italian and I would kill myself if I couldn't eat pasta" I had a good laugh and then told her about Tinkyada pasta, ending with "see you wouldn't have to kill yourself afterall" I said it sarcastically, but in a joking way that caused all around, even the cashier to burst out laughing. Sometimes we just have to find humor in things that really are not funny. I love your attitude and just thought that you would enjoy that liitle tale.

I'll be praying for you, and will add your name to the prayer basket at church on Sunday. I'll be praying that your surgery goes smoothly and safely and that the surgeon gets every bit of the cancer out of there and that you have no more cancer ever ever ever ever again...(((((hugs)))).

ravenwoodglass Mentor

Glad to hear the chemo is done. With your strength and good attitude, well I think you can beat anything.

((((((((((((((((((((((((((HUGS)))))))))))))))))))))))))))))))))))))

Skylark Collaborator

WooHoo!!!! So glad to hear you're staying upbeat through all this. I hope the surgery goes well. :)

IrishHeart Veteran

Here's your Whoohoo!!! and I'll throw in a "YOU GO, Girl"! :)

You are not only inspiring, but your courage just humbles me.

(I thought I was a warrior princess) ---well, honey, you are the QUEEN! ;)

Best wishes and a hug,

IH

beebs Enthusiast

You are really positive! That is great. I'm so glad for you Chemo is over and so glad that the next chapter of your *healthy* life is starting. Yayy!!

mushroom Proficient

Here's another WOO HOO!!! for you - the more the merrier. :D Keep that sunny outlook and the world will smile upon you.and keep you safe :)

mamaw Community Regular

Great to hear chemo is complete... Your spirit is amazing.. After you recover you need to take your spirit &journey on the road to helping others cope..you could be a lifesaver for so many with your positive attitude.. WAY TO GO>>>>>>>>

blessings mamaw

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.