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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Scott Adams replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease14Refractory Celiac disease - what to do
Your doctor is most likely correct here, and if you had high tTg-IGA and villous atrophy you likely have celiac disease and need to be gluten-free. If regular small amounts of gluten get in your diet, it will prevent recovery. Eating out in restaurants is the primary source of such contamination. -
- Scott Adams replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease30
Supplements for those Diagnosed with Celiac Disease
Mostly trial and error and noticing the effects of the supplements over time. It's important to look at the bottom of my original post in this thread to see nutrients that can be toxic in higher does, especially over long periods of time. -
- Scott Adams replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease14
Refractory Celiac disease - what to do
As @trents mentioned, removing gluten if you have celiac disease would be key to villi recovery, and if you still are having issues trying to identify other triggers would be the next step, even though the additional intolerances will not likely contribute to villi recovery. This study indicates that a majority of celiacs don't recover until ... -
- trents replied to ehb's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease14Refractory Celiac disease - what to do
Well, it certainly seems reasonable to get checked for Crohn's since you have a family member with it and SIBO. You might also consider talking to your physician about a trial on an immunosuppressant, like prednisone, to see if numbers go down and symptoms subside. Sometimes, just interrupting the inflammatory cycle can effect a reset and put you on the road... -
- ehb replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease30Supplements for those Diagnosed with Celiac Disease
I am wondering how you developed this supplementation regimen? Was it just through trial and error? Did you base this trial and error on blood tests or symptom improvement? It cost me $300 for the blood tests, so I would prefer not to do those regularly
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By Scott Adams · Posted
Your doctor is most likely correct here, and if you had high tTg-IGA and villous atrophy you likely have celiac disease and need to be gluten-free. If regular small amounts of gluten get in your diet, it will prevent recovery. Eating out in restaurants is the primary source of such contamination. -
By Scott Adams · Posted
Mostly trial and error and noticing the effects of the supplements over time. It's important to look at the bottom of my original post in this thread to see nutrients that can be toxic in higher does, especially over long periods of time. -
By Scott Adams · Posted
As @trents mentioned, removing gluten if you have celiac disease would be key to villi recovery, and if you still are having issues trying to identify other triggers would be the next step, even though the additional intolerances will not likely contribute to villi recovery. This study indicates that a majority of celiacs don't recover until 5 years after diagnosis and starting a gluten-free diet: Mucosal recovery and mortality in adults with celiac disease after treatment with a gluten-free diet However, it's also possible that what the study really shows is the difficulty in maintaining a 100% gluten-free diet. I suspect that if you looked closely at the diets of those who did not recover within 2 years might be that their diets were not 100% gluten-free. Perhaps they ate out more often, or didn't understand all of the hidden ingredients where gluten can hide. Either way, it shows how difficult recovery from celiac disease can be for most people. According to this study: This article explores other causes of flattened villi: -
Well, it certainly seems reasonable to get checked for Crohn's since you have a family member with it and SIBO. You might also consider talking to your physician about a trial on an immunosuppressant, like prednisone, to see if numbers go down and symptoms subside. Sometimes, just interrupting the inflammatory cycle can effect a reset and put you on the road to health.
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I am wondering how you developed this supplementation regimen? Was it just through trial and error? Did you base this trial and error on blood tests or symptom improvement? It cost me $300 for the blood tests, so I would prefer not to do those regularly
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