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Celiac Disease Pre-Diagnosis, Testing & Symptoms

If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.


19,259 topics in this forum

  1. CanadianSnowflake
    boysmom
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  2. Massy76
    sb2178

    Am I?

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  5. Hummingbird4
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    salmonyellow
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    k2626
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  8. Deimos
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  9. alissar
    WheatChef
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  10. kimann79
    mdchaser
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  12. Tamar Ann
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  13. kimann79
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  14. kel72
    Nilnala
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  15. passionfruit877
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  16. winterwolfes
    WheatChef
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  17. LisaGF
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  18. miaryan
    kellykay
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  19. MNS
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  20. Humphry1
    mommida
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  21. ktwms
    psawyer
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  22. shepgs
    ravenwoodglass
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  23. amandanoelle889
    wschmucks
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  24. Strineski
    buffettbride
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  25. MNS
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  26. DebbieM
    ravenwoodglass
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  27. sunnybabi1986
    gf-soph
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  • Recent Activity

    1. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Struggling to get into a good pattern

    2. - lmemsm replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      38

      Supplements for those Diagnosed with Celiac Disease

    3. - lmemsm posted a topic in Gluten-Free Recipes & Cooking Tips
      0

      bread

    4. - Scott Adams replied to MMeade's topic in Coping with Celiac Disease
      6

      Gluten Allergy

    5. - Rejoicephd replied to Rejoicephd's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Struggling to get into a good pattern


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  • Posts

    • Rejoicephd
      You called it @knitty kitty.  I went to another health care provider for another opinion, and based on some tests they did, they suggested I might also be dealing with a fungal issue (candida and/or mold).  I saw that you mentioned before in this chain that some people on this forum also get Candida infections.  So it seems that I am possibly dealing that issue in my gut as well. I think some of the symptoms that I've been not able to understand now make a lot of sense within this context (such as why eating dairy and sugar sometimes causes me to get headaches, joint pain, chills, feel like I have the flu... if these things are making the candida infection worse by feeding the candida, and then my body responds by trying to fight it off, then I basically am fighting off an infection, which is exactly what it feels like).  The flu-like reaction that I get when I eat dairy is a distinct reaction than the one I get from getting glutened (which is also bad, but different: headache, sharp abdominal pains, gas, diarrhea). That's what made me think there was something else at play. 
    • lmemsm
      I'm concerned about calcium.  I don't think I'm getting enough especially since I ended up having to get off dairy when I went gluten free.  However, if you have too much calcium, it can deposit in the wrong places and you can get thinks like bone spurs.  I'd like find a decent supplement for that.  Was thinking of looking into the algae based calcium supplements since they're more natural than some of the others available, but seem rather expensive.  When possible, I try supplement with food sources.  One or two Brazil nuts usually have the full RDA for selenium.  One Barbados cherry has the daily RDA for vitamin C.  I also use seaweed to help supplement iodine since I don't use iodized salt.
    • lmemsm
      Wanted to tell someone, I finally made an edible gluten free bread.  It took me several hours to make and it didn't taste like what I was trying to make, but it did taste like a bread.  Was looking all over for bread machine recipes and I ran across this one on the Internet:  https://www.snapcalorie.com/recipes/gluten_free_oat_challah_bread_machine.html  Used it as a starting point, but I swapped out the tapioca with arrowroot and the xanthan gum with guar gum and glucomannan.  I also made it using the gluten-free pizza mode on my Panasonic bread machine and then took the batter out and put it in a bread mold to give it some shape.  I let it rise another 20 minutes and baked it at 350 degrees Fahrenheit for 20 minutes in the oven.
    • Scott Adams
      The concept of "over-methylation" as a common clinical condition is not supported by mainstream medicine. While methylation is a crucial biochemical process, the idea that people frequently become "over-methylated" and that this is linked to B6 deficiency is a speculative theory, not an established fact. 
    • Rejoicephd
      Oh cool! We have similar stories! I’m a microbiologist with an interest in metabolism. Been getting more and more fascinated by nutrition in recent years.    I will check out your blog . Thanks !
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