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Celiac Disease Pre-Diagnosis, Testing & Symptoms
If you haven't yet been diagnosed this is the place you can discuss your symptoms and any test results that may indicate that you might have the disease.
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Recent Activity
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- Scott Adams commented on Scott Adams's article in Latest Research3Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
Your story is a testament to the critical importance of an early and accurate diagnosis. It's tough to read about what you had to endure, including multiple surgeries and hospitalizations, all while the root cause—celiac disease—remained undetected for so long. Your experience highlights the consequences of medical ignorance surrounding this condition and...- burden
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- Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications7
Guinness, can you drink it?
This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger... -
- Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease7
Related issues
I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune... -
- Donna Moxley commented on Scott Adams's article in Latest Research3Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)
I was not a well child and on my own would stop eating certain foods when a stomachache occurred. As I got older, I began more and more anemic and ended up unable to hold food down at all. Once an endoscopy occurred, doctor said I had an obstruction in my stomach but nothing said about Celiac Disease. Dr. did stomach bypass surgery, removed a 1/3 of my...- burden
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By Scatterbrain · Posted
Hello, I was newly diagnosed in January of this year (2025). Since then I have been strict about staying gluten free and only cooking at home. I started feeling better in July while gradually resuming close to my normal routine of activities and athletics. September and October were extremely stressful due to a new home build being finished and moving. My spouse and I take care of his mom who has advanced dementia and have been since 2021. We did all the moving as well as get the other house on the market for the month of October. Since earlier this month I feel like I did back in the early stages of my diagnosis. Almost all of my symptoms have come back except for the bad abdominal issues. I haven’t changed my diet or supplements since January and wonder if the stress has caused a set back? Any thoughts are helpful. Thanks -
By Scott Adams · Posted
This is why Daura Damm can be a sponsor here--at 3ppm or less it is gluten-free, and it's doubtful that anyone with celiac disease would ever have issues with such levels. Some people may be reacting to the yeast in the beer, but I seriously doubt that such beers could trigger elevated antibodies or villi damage--the science says such levels won't trigger celiac disease issues. -
By Scott Adams · Posted
I have to express some significant skepticism about the drclark cleansing programs you've mentioned. The claim that a specific, three-part parasite and organ cleanse is a universal solution for chronic health issues is a major red flag, as it oversimplifies the immense complexity of the human body and conditions like Celiac disease, which is an autoimmune disorder, not a parasite infection. Regarding your Celiac disease, the reaction you describe, while real to you, does not necessarily confirm a diagnosis; a delayed reaction is common with various digestive issues, and a definitive diagnosis typically requires specific blood tests and an intestinal biopsy, not just a provider's acceptance of symptoms. Furthermore, your mention of approaching mayors seems to misunderstand the role of local government versus federal policy; the deduction for gluten-free food is a federal tax law, and a mayor has no jurisdiction to implement widespread Celiac screening, which is a medical and public health decision far beyond a municipal leader's purview. It sounds like you are navigating a difficult health journey, but I would strongly advise consulting with qualified medical specialists and registered dietitians over relying on unverified online cleansing programs. -
When I have had what I think are episodes of this (I've never had a formal diagnosis for PF) it seems to be triggered by bloating caused by something I've eaten - a friend had an episode of this after eating too many apples, for me corn and rice cakes seemed to give me IBS and trigger this. I am not a medical person but it seemed like the extra pressure down there perhaps added pressure to already sensitised pelvic and rectal muscles. Coeliacs can suffer from bloating when they are first diagnosed due to the inability to digest food properly. Lactose for me caused a lot of bloating and when I came off it temporarily after diagnosis it helped reduce bloating. Iron supplements and the timing of taking them also caused discomfort and I had to experiment a bit with type and timing before my gut felt comfortable. Maybe something to think about? Some coeliacs suffer from constipation - again, just a thought, but perhaps if you had issues with that it might be a contributor.
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At a family wedding in Italy last year I was drinking gluten free Peroni which was fine for me. From the Daura Damn website ... " Our guarantee less than 3ppm: each batch is analyzed and certified by the CSIC using the R5 Competitive ELISA test before hitting the market. This way, we ensure that its gluten content is always below 3ppm "
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