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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- knitty kitty replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
4 Years and very little progress
Welcome to the forum, @maylynn, I had similar symptoms. I was anemic, lost a lot of weight, felt full after three bites. I was deficient in vitamins and minerals, especially Thiamine B1. Thiamine converts our food to energy so our body can function properly. While deficient in thiamine, the appetite can disappear (not enough thiamine to digest... -
- badastronaut replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19
Still unsure.....
hmm, I only had a colonoscopy. Would be interesting to have an endoscopy done then I guess. -
- Beverage replied to badastronaut's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms19
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- trents replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
4 Years and very little progress
Welcome to the forum @maylynn! Have you had a follow-up endoscopy/biopsy of the small bowel to check for healing of the villous lining? If not, it's about time one was done. As Scott mentioned, I also wonder if you have food intolerances in addition to gluten. Oats (even gluten free oats), dairy, soy, corn and eggs are some of the most common ones in... -
- Scott Adams replied to maylynn's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease3
4 Years and very little progress
Is your gluten-free diet strict? Do you eat out in restaurants? If so, you could be getting contamination, and over time that can slow recovery. You may want to get a follow up celiac disease antibody panel done to make sure that your levels have gone down since your last tests. Also, have you had various nutrient levels checked via a blood test, and...
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