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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- oyea replied to Lions31's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease33Neuropathy still after 4 months gluten-free.. help
I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns... -
- barb simkin posted a topic in Related Issues & Disorders0celiac, chocolate and alcohol
Anyone bothered by chocolate and alcohol. Found I cant drink alcohol or eat chocolate Anyone else -
- dixonpete commented on dixonpete's blog entry in Pete Dixon3Hookwormed status report
I should add that hookworms aren't a cure for celiac disease. Some people, and I couldn't tell you how many, stop evincing the symptoms of celiac disease while their hookworm colonies are healthy. Others have a reduction in the severity of their reactions to gluten, but should still stay well away from it. And other people don't seem to be helped much at...- 1
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- Jmartes71 replied to numike's topic in Food Intolerance & Leaky Gut9is my celiac disease gone?
This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30... -
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I was not diagnosed with celiac disease, but am gluten-intolerant. I have been gluten free for almost 10 years. In April of this year (2025), I got a steroid shot. I have been able to eat sourdough bread before with no problems. After the steroid shot, I developed gluten-neuropathy, and I could no longer eat sourdough bread, and now the neuropathy returns with small amounts of gluten. I also get POTS (Postural Orthostatic Tachycardia Syndrome) when I eat gluten. My heart beats so fast in the middle of the night I can't sleep. I'm usually up for hours.
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By barb simkin · Posted
Anyone bothered by chocolate and alcohol. Found I cant drink alcohol or eat chocolate Anyone else -
This is my current exhausting battle with the medical field. As Ive mentioned in past I was diagnosed in 1994 by colonoscopy and endoscopy and was told i was celiac and to stay away from wheat and Ill be just fine.NOPE not at all in fact im worse thanks to being disregarded and my new word that was given that fits perfectly medically gaslight for over 30 years.I was not informed by anyone about the condition other than its a food allergy. Long story short if it wasn't for this website.I would be so much worse. I have been glutenfree since 1994 and was diagnosed with many other foods in 2007. I have stayed away from those items, except dairy sometimes I'll cheat when I know I'll be home a few days.My work history is horrible thanks to my digestive issues. I had my past primary for 25 years and everything im going through, he danced around celiac disease. My last day of employment was March 08, 2023 I was a bus driver and took pride in that.I get sick easily and when covid hit me and I stopped taking tramadel to push to give my bloated body a break, I haven't " bounced " back.Though not that well before but worse now.I applied for disability because yet again I was fired solely on health, which by the way seems to be legal because no lawyer wants to help.I was denied and my primary stated let me fluff it up a bit.FLUFF IT UP A BIT?He has been my doctor for 25 years! All that Im going through was basically ignored and not put together. I switched primary doctor and seeing new gi and its EXTREMELY EXHAUSTING because they are staying all my test came back clean, good, its normal. Except THANKYOU LORD JESUS HLA DQ2 is positive that Itty bitty tiny little test of positive FINALLY VALIDATION RIGHT.No, Im still struggling and fighting its not fair
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Since medical insurance is not affected directly by celiac disease on an ongoing basis (i.e. medication, medical devices, daily monitoring, home care nursing, etc), I rather doubt anyone would be denied a policy for having it as a pre-existing condition. I’ve certainly never been and I have two pre-existing conditions that are managed with diet alone and both are long-well-known by my doctors and via medical testing and procedures. Insurance is all about risk management, not health.
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Yes. And then it will become part of her medical record, which was my point.
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