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Coping with Celiac Disease
Share stories, techniques, and information to help others deal with the disease and the gluten-free diet.
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Recent Activity
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- xxnonamexx replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease54Supplements for those Diagnosed with Celiac Disease
Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin... -
- Florence Lillian posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Gluten-Mimicking Proteins that can affect some Celiac individuals.
Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting... -
- Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease54Supplements for those Diagnosed with Celiac Disease
@Margaret Wheatley Thank you and welcome to the forum. -
- Margaret Wheatley replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease54Supplements for those Diagnosed with Celiac Disease
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the... -
- Jmartes71 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease0Nateral remedies
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any...
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Posts
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By xxnonamexx · Posted
Hi Florence- This forum has been a wealth of knowledge on supplements. I am always weary of brand names as well. What I found through Consumerlabs which independently tests for metals, digestive breakdown of supplements and if what the packages states is indeed what is in the product I have found the number one for super B complex is Kirkland and for multivitamin for Men and woman 50+ Natures made multivitamin for her as it gives the right amount needed for both men and women as the mens has too much. For Probiotics ALign came out on top the 5x and the one for bloating. Knitty Kitty provided me good supplement brands as well. -
By Florence Lillian · Posted
Hi all: I have had Celiac for 47 years. I have not seen much info on the following, and 3 of these affect me. In case this info helps someone else, I offer the following: Gluten-like proteins is a topic I want to share, as they have added bad reactions to my Celiac condition. Reactions can range from Gut discomfort such as Diarrhea, Nausea, Vomiting, and inflammation causing a feeling of being very warm to hot. The following are considered Gluten-Mimicking Proteins: Corn (Zein protein) (this causes inflammation with me). Millet Panicin protein) Sorghum (Kafirin protein). Potato (Patatin protein, is NOT considered a Gluten-Mimic, nor is Oats (Avenin) but they do cause reactions in some Celiac people... I eat potato and I vomit, and get diarrhea. gluten-free Oats causes me to have Nausea, and Corn causes me Inflammation. I hope this helps someone. Wishing the very best to all. Florence. -
By Wheatwacked · Posted
@Margaret Wheatley Thank you and welcome to the forum. -
By Margaret Wheatley · Posted
I have been diagnosed with Refractory Celiac disease Type 2. Which is quite a shock because my Gastroenterologist has been performing gastroscopy & colonoscopy's - 4 in 2025 & a gastroscopy on the 20/3/26 and they didnot tell me how bad my Celiacs disease is and has been. It was my haematologist that checked more of my symptoms and came up with the result. So I am trying hard to get some nutrition into my body. All of this info on supplements and nutritional diets is very helpful. Regards Margaret. -
Im very big on nateral remedies and just read that my go to herb is a no no and was wondering if factual or fiction. I read on Google, I know don't read or take to heart, however it stated that Echinacea isn't good for those with compromise autoimmune because it can cause inflammation. Has anyone else heard of this?Ive been battling sibo so wondering if any connection though haven't been religious on my vitamins these last several months because of testing ect.Sibo medications im allergic,the last few prescribed. Gi dr dropped me but took me back.Im frustrated too but its the autoimmune part .
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