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Are Blood Tests The Only Way To Dx


harley1200

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harley1200 Newbie

I went to the doc with the tests that were suggested here. I was told that I should have a colonoscopy (I am 50 and they keep pushing that). Since my symptoms are mostly systemic (swelling, rash, constipation) I declined the colonoscopy. My doc was not familar with the testing and suggested I see an allergist.

 

If I go to the allergixt I am sure they will do the pin prick stuff...will that show a gluten intolerance? My other option was for a referral to a GI specialist...but I would have to wait a few months to get in to see the GI guy since I am not in serious distress.

 

Any advice? My other option is to have a lab order the tests and pay myself. Is there any lab out there that does these?


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shadowicewolf Proficient

No, for celiac there is also the endoscopy where they do a biopsy and in addition to that there is a gene test, however, this one can't diagnosis by itself.

 

There are no 'official' tests for an intolerance, outside of a diet change to see if that is whats causing it.

 

As for labs, i don't know.

kareng Grand Master

Why won't he order your blood work? The colonoscopy has nothing to do with Celiac but is still a good idea over 50. They could do the endoscopy ( for Celiac) at the same time. I know several people who have gone for the routine colonoscopy at 50 with no symptoms and found pre- cancerous polyps. If left, they would likely become cancer in a few years.

celiac is not an allergy and neither is non- Celiac gluten intolerance. At the current time, there is no test for NCGI.

nvsmom Community Regular

Ditto the others.

 

The blood tests for celiac disease are:

tTG IgA and tTG IgG

DGP IgA and DGP IgG

EMA IgA

total serum IgA

AGA IgA and AGA IgG (older and less frequently used)

 

Make sure you are eating gluten in the weeks prior to testing.  Good luck.

 

Oops... editted to add that I saw you already knew the blood tests. Sorry.

cyclinglady Grand Master

I went to my doc to have my thyroid re-checked and I suggested the colonoscopy since I'm 51.  The gastro prior to the procedure recommended an endoscopy since I was anemic and had thyroiditis.  Blood test was positive and endoscopy showed moderate to severe damage.  My colonoscopy was normal.   :D Lucky for me, my gastro was Celiac savy (he must have just went to a conference!)  

 

An allergist can only test you for an allergy -- which is fine (I've got plenty of allergies to boot).  But I'd make the appointment for the gastro doc.  

 

I would have gone gluten-free right after the blood test, but 1) I needed the colonoscopy anyway and I'd be prepped for the endo and 2) a definite diagnosis would benefit my family.  

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    • Samanthaeileen1
      thank you RMJ! That is very helpful advice. Good to know we aren’t crazy if we don’t do the endoscopy. We are going to try the gluten free and see how symptoms and levels improve.    thank you Wheatwacked (love the username lol) that is also reassuring. Thankfully she has an amazing and experienced pediatrician. And yesss I forgot to mention the poop! She has the weirdest poop issues.    How long did it take y'all to start seeing improvement in symptoms? 
    • Wheatwacked
      My son was diagnosed when he was weaned in 1976 after several endoscopies.  Given your two year old's symptoms and your family history and your pediatrition advocating for the dx, I would agree.  Whether an endoscopy is positive or negative is irrelevant.   That may happen even with endoscopy.  Pick your doctors with that in mind. In the end you save the potential trauma of the endoscopy for your baby.   Mine also had really nasty poop.  His doctor started him on Nutramigen Infant because at the time it was the only product that was hypo allergenic and had complete nutrition. The improvement was immediate.
    • RMJ
      So her tissue transglutaminase antibody is almost 4x the upper end of the normal range - likely a real result. The other things you can do besides an endoscopy would be: 1.  Genetic testing.  Unfortunately a large proportion of the population has genes permissive for celiac disease, but only a small proportion of those with the genes have it. With family history it is likely she has the genes. 2.  Try a gluten free diet and see if the symptoms go away AND the antibody levels return to normal. (This is what I would do). Endoscopies aren’t always accurate in patients as young as your daughter. Unfortunately, without an endoscopy, some doctor later in her life may question whether she really has celiac disease or not, and you’ll need to be a fierce mama bear to defend the diagnosis! Be sure you have a good written record of her current pediatrician’s diagnosis. Doing a gluten challenge for an endoscopy later in life could cause a very uncomfortable level of symptoms.   Having yourself, your husband and your son tested would be a great idea.  
    • Samanthaeileen1
      here are the lab ranges.  Normal ranges for tissue transglutaminase are: <15.0 Antibody not detected > or = 15.0 Antibody detected normal for endomysial antibody is < 1.5. So she is barely positive but still positive. 
    • JoJo0611
      I have been diagnosed with coeliacs disease today after endoscopy, bloods and CT scan. I have also been diagnosed with Mesenteric Panniculitis today. Both of which I believe are autoimmune diseases. I have been told I will need a dexa scan and a repeat CT scan in 6 months. I had not even heard of Mesenteric Panniculitis till today. I don’t know much about it? Has anyone else got both of these. 
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