Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Got A Scare About Non-Gluten Grains Containing Gluten! Help...

Lighthouse42

Recommended Posts

Lighthouse42 Newbie
Lighthouse42
Posted

Hello all this is my first post here and I have been following a completely gluten free diet for about 4 months now, took me a long time to get there. Now I have done tons of research and found some gluten free products can be cross contaminated and to be cautious about eating out. I am even on a candida cleanse to clean myself out. Now I know or thought I knew what grains were gluten free but I found more information and don't know if I should be scared and revamp my whole kitchen/fridge. I hear millet, quinoa, and even brown rice could contain gluten themselves. This is the first I've heard of all this. I already avoid oats completely because it is an iffy topic.

TRUE Gluten Free Diet Guidelines – Avoid All of These…

  • Wheat
  • Barley (malt)
  • Rye
  • Oats
  • Sorghum*
  • Millet*
  • Teff*
  • Triticale
  • Spelt
  • Durum (semolina)
  • Einkorn
  • Emmer
  • Corn (maize)* 
  • Rice (does not include wild rice varieties but does include brown rice)*
  • Groat
  • Graham
  • Amaranth***
  • Buckwheat***
  • Quinoa***

This came from Gluten-Free Society.

 

I eat tons of brown rice & quinoa. Is this just scary or is this true?

this website is saying since there hasn't been much research on celiac disease that they are missing all the small traces of gluten in these products. I have been so good for so long I want to continue to grow and heal but ignorance isn't bliss when it comes to this. Thank you for all your advice and help. Blessings

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

I will answer this assuming you are really asking this question.  This group spams a lot of Celiac websites.

 

Remember, this website you are linking to is there to sell people things.  The name makes them sound like they are a national celiac group but they are  a fancy internet store.  I would urge you to get your info from reputable websites like:

 

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

 

Open Original Shared Link

Gemini Experienced
Gemini
Posted

These are just scare tactics put out by people who think that everything is contaminated.  They fear food.  If these grains were contaminated, then millions of Celiacs who eat them would not heal and gain their health back.  It is always a smart thing to make sure that the grains you do buy come from a reputable and good gluten-free source but you can eat gluten-free grains and not worry that they are harming you.  Unless, of course, you have an additional allergy to them.

nvsmom Community Regular
nvsmom
Posted

If you are really worried about amaranth, quinoa,and buckwheat, you could purchase them from companies that produse gluten-free products. they will most likely be 100%gluten-free so no contamination could happen. These should usually be safe though.

 

I thinks oats is the grain that this happens the most to. It can be quite easily cc'ed with gluten from what I have heard.

notme Experienced
notme
Posted

a TRUE gluten free diet can be maintained without eliminating several of these.  somebody is trying to mis-inform you.  :(  

1desperateladysaved Proficient
1desperateladysaved
Posted

I can't eat corn, rice, or buckwheat.  I keep thinking that some people do need to eliminate them.  I do plan to give rice a test when I am up to it.  I have dealt with this website and talked with the doctor and have received help from it.  I found them helpful.  If you are avoiding grains, their website contains many recipes that are helpful.

dilettantesteph Collaborator
dilettantesteph
Posted

In my opinion, that site does not provide scientifically accurate information.  I have done some reading on it.  I looked up and read references that were given to support certain points, such as corn containing gluten, and the references did not support the point that they were being used for.  For example, corn was used as the control, like when you give someone a medicine in a study and then you give a sugar pill to someone else as the control.  That says that corn does not contain the gluten that is in wheat, not the opposite.  That was some time ago and I don't know what's on there now.

 

There is a very good study done by Tricia Thompson of gluten contamination of gluten free grains.  Open Original Shared Link

 

That says that these can contain gluten, not that they always do.  Most important for you is, do you think that you may be reacting to what you are eating?  You can try to find out by eliminating things for a week and then reintroducing them.

 

Different celiacs are sensitive to different levels of cc.  Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,855
    • Most Online (within 30 mins)
      7,748
    Tara M
    Newest Member
    Tara M
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      Knowing what to do when feeling unwell.

      By Me,Sue · Posted

      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
    • Francis M
      The Happy Tart review

      By Francis M · Posted

      Thanks. Since the back and forth and promises of review and general stalling went on for more than six months, the credit company will no longer investigate. They have a cutoff of maybe six months.
    • Scott Adams
      The Happy Tart review

      By Scott Adams · Posted

      Is this the same restaurant? https://www.facebook.com/TheHappyTartFallsChurch/ Is it too late to take this up with your credit card company? Normally you have a few months to do a chargeback with them. It seems very odd that they are taking this approach with someone who is likely to be a regular customer--not a good business-minded way of handling things!
    • Scott Adams
      Stomach burning and neuropathy

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.        
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.