Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Why Am I So Sad?


Jen85

Recommended Posts

Jen85 Rookie

So i was glutened by accident.....I should of known not to touch anything at the family reunion camping trip. Anyways i got my normal symptoms....stomach pain, the big D, itchy, fatigue etc. But now for the last 2 days i am unbelievable clumsy...running in to everything, dropping all kinds of things, falling. I am a mess. On top of that im super sad and feel like i am in a fog. It's driving me nuts. I was trying to do my normal job today and i got so over whelmed i had to walk away. I have cried about anything and everything today. I feel like i am losing it. My husband just keeps asking me if I am ok because he has no idea what to do either. Is this related to the accidental gluten intake? if so, does it last long??? if not, is something else wrong with me???i mean i have always been kind fo clumsy but not this bad. This is horrible. Any advice would be great.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Adalaide Mentor

That type of response would be normal for me. The GI symptoms come first. Afterward comes utter exhaustion which I simply must sleep through for a several days. Then comes the rest. I do the same running into everything, acquiring all manner of bruises and bumps, and yes, even falling. I won't shower if I am home alone for at least a month after I have been glutened for fear I will fall. (It has happened before.) I also get extremely emotional. Not just that I'll cry at anything, like being out of eggs or milk, but I'll fly off the handle at the dumbest crap. I'm a complete basket case.

 

Everyone has a different timeline for how long it takes to feel better. Just let your body get the rest it needs, lots of healthy foods and plenty of fluids and have patience with yourself while you heal. Also maybe find some home remedies for bruises. :lol:

KatieZ Newbie

It's a foggy brain syndrome thing. Many people call it "leaky gut" in that certain things that should be barred are actually leaking into your gut. The more I stay away from gluten the stronger my intestines, etc. It gets tough when I am lax and have something like a slice of pizza ugh!!  There are products you can take to strengthen them. They are pretty "earthy" tasting - mine is at home right now or I would tell you what it is....and it does totally help!! I will try and log back on later and tell you what it is.

notme Experienced

i get 'quarrantined'  :ph34r:  because i am a raving b!+ch   :o   - it's one of my "oh, crap, what got me?!"  signs.  luckily, it's been awhile (last glutened in february!  yay!)  so, after 3 years, i am pretty good at avoiding a hit :)

AlwaysLearning Collaborator

Gluten is an opioid pectin that messes with the opiate sensors in the brain in addition to the damage it does to the digestive system. The brain fog is just part of the withdrawal symptoms, and though it lasts for a couple days minimum, is normally the last symptom to get through before returning to normal, so you are close.

dilettantesteph Collaborator

For me, depression and a lack of ability to handle much of anything is a big part of a glutening.  I was fairly non functional upon diagnosis from depression as well as other symptoms.  Some days I barely got out of bed.  I can't say if it is normal for you.  How long have you been gluten free?  Does this not usually happen to you?  It could indicate another problem.  In my case, it goes away after a couple of days with removal of gluten contamination.  

  • 1 month later...
Jen85 Rookie

So when I first became a member on here whenever someone would post on my topic I would get an email. I didn't realize that didn't happen anymore after two months I just thought no one responded to me. So I am so sorry I never answered any of you. I actually just put a new topic on yesterday because all of these problems are still bothering me but I feel like the emotional problems are getting worse adn I have had gluten in months. I'm an emotional basket case and my husband is starting to get worried that it's something more then just the Celiac. I am starting to think I need some medication or something. UGH!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Celtic Queen Explorer

Yeah, I've said this before the but the mental issues that come with glutening are the worst for me.  They last for weeks afterward.  I get so apathetic and moody and depressed.  Hang in there.  It will get better.

1desperateladysaved Proficient

So when I first became a member on here whenever someone would post on my topic I would get an email. I didn't realize that didn't happen anymore after two months I just thought no one responded to me. So I am so sorry I never answered any of you. I actually just put a new topic on yesterday because all of these problems are still bothering me but I feel like the emotional problems are getting worse adn I have had gluten in months. I'm an emotional basket case and my husband is starting to get worried that it's something more then just the Celiac. I am starting to think I need some medication or something. UGH!!!

If you follow your own topic by going up to the top and far right, it will notify you by e-mail when there is a reply.

 

  Hang in there; try to get some down time.  Realize that the hard time after the glutening will not last forever.  Sometimes my hardest day is right before feeling better than ever yet.

kareng Grand Master

So when I first became a member on here whenever someone would post on my topic I would get an email. I didn't realize that didn't happen anymore after two months I just thought no one responded to me. So I am so sorry I never answered any of you. I actually just put a new topic on yesterday because all of these problems are still bothering me but I feel like the emotional problems are getting worse adn I have had gluten in months. I'm an emotional basket case and my husband is starting to get worried that it's something more then just the Celiac. I am starting to think I need some medication or something. UGH!!!

like D said, go to the top and " follow" topics. Check in your profile and see if you have selected notifications by email. To do this, click on your picture, then towards the upper right is " edit profile". Then on the left will be " notification options". If your email has changed, you will need to fix it, too.

eers03 Explorer

i get 'quarrantined'  :ph34r:  because i am a raving b!+ch   :o   - it's one of my "oh, crap, what got me?!"  signs.  luckily, it's been awhile (last glutened in february!  yay!)  so, after 3 years, i am pretty good at avoiding a hit :)

You are always good for a laugh when I need it most!  Thanks for this.

eers03 Explorer

Hey!  So sorry you're feeling down.  It's not an easy road and it can totally get one down.  It sure did me.  I blame some of that on malnutrition--being underweight and all the anxiety and weird aches, pains, and thought processes that come with it.  The other part of the puzzle was me!  Even now, I still have moments where I will see an article, or hear something in conversation or on tv that just startles me and will send me into a puzzling funk for the rest of that day.  I thought about anti-depressants but managed without and still am.  

 

For me, my frustrations arise from doing menial tasks that end up pulling a tendon or making me sore.  For instance, I went out and changed the cabin air filter in my car...  Both of my pinky fingers had a weird ache in about the same place the rest of the night.  I didn't understand why...  AHA!  It was turning the screwdriver...  A motion my hands aren't used to everyday.  In my opinion, I should be able to do that without event.  This morning, I wake up and its gone.  Weird.

 

I went for a light jog last week...  Couldn't walk barefoot without limping for 4-5 days.  Then my foot pain moves from the arch to the part of the foot I was shifting my weight to.  Then my calf was sore because of my limping around.  ANNOYING!  Its so strange because a week ago I waxed 3 cars in the driveway over two days.  Hands and arms were fine.  What?!

 

Anyhow, back to you....  The busier you can stay...  The more you get out of the house...  The cleaner your house...  The better you might feel.  When I started forcing myself to do things-getting out-being with friends-visiting family-cleaning my place-the more I found myself with a purpose that kept me too busy for thinking about the things that sadden me.  It helped me, a lot.  Hang in there!  It's not just you.

KMMO320 Contributor

Yeah, I've said this before the but the mental issues that come with glutening are the worst for me.  They last for weeks afterward.  I get so apathetic and moody and depressed.  Hang in there.  It will get better.

same for me! My stomach only bothers me if I am glutened more than one day, in a row. Otherwise, it is all head stuff. I know within 10-15 mins if I have ingested gluten because I get sort of a woosy feeling and then a sort of nagging headache, then finally I start stuttering and feel all out of it. 

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    5. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,084
    • Most Online (within 30 mins)
      7,748

    bigwave
    Newest Member
    bigwave
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.