Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Grain Free Diet?


w8in4dave

Recommended Posts

w8in4dave Community Regular

I was reading this site and it was saying how Grain causes inflammation , Grain and sugar I guess , and some Celiacs go on a Gluten free, Grain free diet. Anyone here grain free? I am actually thinking of going Grain Free. It's kinda towards the bottom half of the article. 

 

Here is the link:

 

https://www.celiac.com/articles/22275/1/Contamination-of-Naturally-Gluten-Free-Grains/Page1.html

 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



BelleVie Enthusiast

I'm considering it too! But I love the full feeling that I get from eating grains. I feel like eating veggies never makes me feel as satisfied as a bowl of veggies AND rice. 

1desperateladysaved Proficient

I am grain free.  Lately I am using nut flours which help give me a full feeling.  I make muffins, pancakes, or wraps with them.  I make wild rice in place of rice.  I guess it isn't a grain.

 

I had withdrawal symptoms when I stopped eating rice, and buckwheat (which isn't a grain, but is used like one).  Recently I tried to take a supplement which contained rice powder, I noticed some swelling.  After I quit taking it, I had yeast withdrawal symptoms.  Yeast may be part of my struggle.  My doctors are hoping that in time my body may settle down a little bit and not be so irritable.

 

One more idea for the full feeling.  Have some butter, oil, or coconut oil with each meal.  Just shy of a tablespoon should help your tummy feel full, up your energy, and keep you fuller longer.  If you worried about that making you fat, I am not and I have been doing it for years.  I don't know how it will go as I am absorbing more.

 

I don't eat sugar either.  I have small quantities of honey.  I have had to up the carbs since avoiding grain.  I am eating a  more fruit and adding a tbsp. of honey to my smoothies.

 

I am feeling more and more satisfied.  Of coarse I can't tell for sure what all has helped as there are so many factors involved.

 

D

w8in4dave Community Regular

Yes !! Alot of factors ... I just bought a 25 lb bag of Rice!! Pfftttt Maby I can give it to friends. I am not 100% sure I am going to do this. I may quit eating potatoes 1st. I have that sore in my mouth , and it was almost gone. I ate some fried potatoes at lunch and low and behold it started getting sore again. So maby it is the legumes ???? I have more research to do. before I decide... What to do what to do...

I am never to worried about a full feeling, meat seems to give me a full feeling so I really wonder if I can get away with meat veggies and fruits ... 

  • 2 weeks later...
nvsmom Community Regular

I consider myself "grain-lite", I have a small amount of grains once or twice a week (ex. 1/4 rice, coconut muffin). I do feel better eating that way, but I seem to have issues with starches so that could be it for me.

 

BTW, I get sores in my mouth too. They seem to appear when my immune system is acting up, I'm over tired or stressed, or (occasionally) when I'm fighting off a virus. Funnily enough, those are the times when I crave starches/comfort foods... could it be coincidence for you?

w8in4dave Community Regular

Coconut isn't considered a grain. Is it aggravating ? Or you talking a rice coconut Muffin? My mouth sores have since cleared. It is Lichen Planus. I can feel the lil lines they talk about. But they are even almost gone. I am assuming it is because of lack of vitamins of some sort. I don't know. My gut must be healing if my sore is going away!! No to get this yeast stuff taken care of. toes nails falling off , now my finger nails are getting weird ridges in them ... Ughhh sucks to have all this but at least it can be taken care of! 

1desperateladysaved Proficient

Coconut isn't considered a grain. Is it aggravating ? Or you talking a rice coconut Muffin? My mouth sores have since cleared. It is Lichen Planus. I can feel the lil lines they talk about. But they are even almost gone. I am assuming it is because of lack of vitamins of some sort. I don't know. My gut must be healing if my sore is going away!! No to get this yeast stuff taken care of. toes nails falling off , now my finger nails are getting weird ridges in them ... Ughhh sucks to have all this but at least it can be taken care of! 

Anyone know what the finger ridges show a deficiency of?  I don't.

 

My nutrient levels went down somewhat before they went up.  Hang in there!  Progress is great!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GF Lover Rising Star

Vertical nail ridges are fairly common and typically of no concern.  Horizontal nail ridges can indicate an underlying disease.  Horizontal white lines can indicate a nutrient deficiency or problems with the liver. 

 

Colleen

Salax Contributor

I am grain free on and off and I have to say that the inflammation I get in my intestines goes away being grain free. I love cooking with coconut, almond and tapioca flours. I use it for "breading" as well like on chicken which I cook in evoo. I highly recommend it if you have chronic inflammation. When I am not grain free I usually eat rice products. And some of those processed gluten-free foods just irritate the heck out of my insides.

 

If you get hungry because your not eating grains, or lack that full feeling, you can eat more protein OR try some protein shakes with fruit. Fruits are considered a carb in the diet world and yes they have sugar, but sugar occurring in nature I think is fine for us.

  • 2 weeks later...
cap6 Enthusiast

We are turning towards the grain free life, just learnings more about it.  All i can say is that a month into it and we both feel better.  Been using coconut oil and mostly all organic meats & veggies.  I found a great book full of paleo recipes and it's been fun.  This morning we had pumpkin pancakes with eggs.  Good stuff and no grains!

w8in4dave Community Regular

Thanks for all the responses :) it sure feels good to have people just like me to talk to!! Now since I have posted this I have also figured out I am having a problem with corn. I posted a thread about corn. Anyhoo so I am going to try and go Corn free and see what happens. I eat fresh meats and veggies so it shouldn't be too much of a problem for me. Someone posted a link on my corn thread I have got to read up on. But I am thinking one thing at a time! 1st thing was Gluten, 2nd thing corn. We will see. 

The sores in my mouth seem to come and go. When the come they are not as bad, they are gone more than anything. I am not sure if stress is causing anything or if it is corn or grains or anything eles. I consider myself to be sooo new to this all and still learning so much every time I turn around there is more I am learning! So this corn intolerance is the next thing on my list of things to avoid .. 

 

I would like to ask is anyone knows , Is it an intolerance? Or is it hurting me like Gluten? Gluten damages my body! What about corn? I get pain bloating and gas!! Is it also causing damage? 

BelleVie Enthusiast

Thanks for all the responses :) it sure feels good to have people just like me to talk to!! Now since I have posted this I have also figured out I am having a problem with corn. I posted a thread about corn. Anyhoo so I am going to try and go Corn free and see what happens. I eat fresh meats and veggies so it shouldn't be too much of a problem for me. Someone posted a link on my corn thread I have got to read up on. But I am thinking one thing at a time! 1st thing was Gluten, 2nd thing corn. We will see. 

The sores in my mouth seem to come and go. When the come they are not as bad, they are gone more than anything. I am not sure if stress is causing anything or if it is corn or grains or anything eles. I consider myself to be sooo new to this all and still learning so much every time I turn around there is more I am learning! So this corn intolerance is the next thing on my list of things to avoid .. 

 

I would like to ask is anyone knows , Is it an intolerance? Or is it hurting me like Gluten? Gluten damages my body! What about corn? I get pain bloating and gas!! Is it also causing damage? 

 

Agreed. :) 

 

Lately, I have found myself drawn more and more to the paleo diet, and it really does seem to be helping. It naturally eliminates a lot of the foods that people have intolerances/allergies to, and I have found that it just makes my life so much more simple. So you could try paleo! That will cut the gluten (of course!), corn, etc. Are you dairy free as well? 

 

As I am typing this, I am remembering that this entire thread was originally about grain free diets. Geeze! It's early. I am only on my first cup of coffee.  :rolleyes:

 

Anyway, let us know how it goes, w8in4dave. I'm off to caffeinate myself so that I can speak coherently today.  :D

  • 3 weeks later...
w8in4dave Community Regular

Vertical nail ridges are fairly common and typically of no concern.  Horizontal nail ridges can indicate an underlying disease.  Horizontal white lines can indicate a nutrient deficiency or problems with the liver. 

 

Colleen

Actually my liver enzymes are up so this makes alot of sense to me ...... I have gotten results back from my toe nail. I had to have it sent in for results. (Sorry Know it is gross) it is not a fungus or yeast. I have to go see a dermatologist to find out what the problem is.

w8in4dave Community Regular

Agreed. :)

 

Lately, I have found myself drawn more and more to the paleo diet, and it really does seem to be helping. It naturally eliminates a lot of the foods that people have intolerances/allergies to, and I have found that it just makes my life so much more simple. So you could try paleo! That will cut the gluten (of course!), corn, etc. Are you dairy free as well? 

 

As I am typing this, I am remembering that this entire thread was originally about grain free diets. Geeze! It's early. I am only on my first cup of coffee.  :rolleyes:

 

Anyway, let us know how it goes, w8in4dave. I'm off to caffeinate myself so that I can speak coherently today.  :D

I have not gone grain free altho I have thought about Paleo and grain free I have not done either. I have stopped eating corn or corn by products. Thats kinda hard!! But doable, speaking of being caffeinated I guess I should go and get some myself.

GF Lover Rising Star

Actually my liver enzymes are up so this makes alot of sense to me ...... I have gotten results back from my toe nail. I had to have it sent in for results. (Sorry Know it is gross) it is not a fungus or yeast. I have to go to see a dermatologist to find out what the problem is.

 

Well, one more piece of the puzzle, at least you know it's not fungus or yeast.  Keep on top of the Derm guy, they can be dismissive or too general. 

 

Good Luck,

 

Colleen

ItchyAbby Enthusiast

I went grain free/Paleo when I had to go low-iodine - it just kind of made sense. It was rough for the first bit. I was craving carbs like crazy (apparently this is normal - our body gets used to burning carbs for fuel and it takes a while for it to switch to burning fat instead). I am now grain-lite - I will eat a little rice or masa harina once or twice a week. If I bake, I use coconut flour, almond/other nut flours, tapioca, arrowroot and potato starch.

 

I feel pretty good without grains. I don't get bloaty after meals, even big meals. My sugar cravings are greatly diminished (though I have also cut out refined sugars so that makes sense). My digestion is great on account of all the vegetables I eat. (I eat MOUNTAINS of veggies daily).

 

Beware when starting Paleo: a lot of people start out just eating tons of meat and nuts. I did this in the beginning and felt just ugh. It is not Atkins, where you eat only meat and fat! You need to include lots of veggies.

 

Sample menu (this is what I ate yesterday):

Breakfast:

red cabbage braised with apples

homemade sausage patties

almond flour biscuit (my adaptation of the bun in the bowl - still a work in progress)

tea with hemp milk

Lunch:

squash soup

shredded chicken

celery sticks with almond butter

Snack:

1/2 avocado with lime juice

Dinner:

homemade beef stew

roasted carrots and parsnips

sauteed kale

big salad

 

So everyone will be a little different - it depends on what your goals are. Those trying to lose weight will want to limit the starches. Those trying to add weight will want to up the healthy fats. I am fairly active and my weight is fine so this amount of food works well for me. I also have found that my weight is much more steady grain free. The more grains I include the quicker my weight tends to creep up. Without grains I rarely step on the scale. If anything I tend to drop weight really quickly when I eat totally Paleo.

 

When I no longer need to eat LI, I will be having dairy again. I miss cheese!

w8in4dave Community Regular

Patients is a virtue :) Dr apt is Jan 6th. Argggggggggggg!! 

w8in4dave Community Regular

I went grain free/Paleo when I had to go low-iodine - it just kind of made sense. It was rough for the first bit. I was craving carbs like crazy (apparently this is normal - our body gets used to burning carbs for fuel and it takes a while for it to switch to burning fat instead). I am now grain-lite - I will eat a little rice or masa harina once or twice a week. If I bake, I use coconut flour, almond/other nut flours, tapioca, arrowroot and potato starch.

 

I feel pretty good without grains. I don't get bloaty after meals, even big meals. My sugar cravings are greatly diminished (though I have also cut out refined sugars so that makes sense). My digestion is great on account of all the vegetables I eat. (I eat MOUNTAINS of veggies daily).

 

Beware when starting Paleo: a lot of people start out just eating tons of meat and nuts. I did this in the beginning and felt just ugh. It is not Atkins, where you eat only meat and fat! You need to include lots of veggies.

 

Sample menu (this is what I ate yesterday):

Breakfast:

red cabbage braised with apples

homemade sausage patties

almond flour biscuit (my adaptation of the bun in the bowl - still a work in progress)

tea with hemp milk

Lunch:

squash soup

shredded chicken

celery sticks with almond butter

Snack:

1/2 avocado with lime juice

Dinner:

homemade beef stew

roasted carrots and parsnips

sauteed kale

big salad

 

So everyone will be a little different - it depends on what your goals are. Those trying to lose weight will want to limit the starches. Those trying to add weight will want to up the healthy fats. I am fairly active and my weight is fine so this amount of food works well for me. I also have found that my weight is much more steady grain free. The more grains I include the quicker my weight tends to creep up. Without grains I rarely step on the scale. If anything I tend to drop weight really quickly when I eat totally Paleo.

 

When I no longer need to eat LI, I will be having dairy again. I miss cheese!

Ty for yor post!! Paleo is looking better and better .....

1desperateladysaved Proficient

I have a problem with corn and get similar bloating, but no way of really knowing what is happening in the small intestine.  Would be nice to be able to check some gage to find out.  This gage could say, "Corn is causing me a pain." or "Everything is fine in here!"  My gage would need to tell me a gluten reaction or other reaction also.

cap6 Enthusiast

Check out some of the paleo cookbook.  I bought two different ones and have been having sooo much fun making different things (and I have never been into cooking...at all!).   The books I have rely heavily on spices for kick and I have my partner in total awe at some of my creations!   

w8in4dave Community Regular

I bought my Daughter the Paleo Cook book last year.. I should borrow it ... I know she does pretty good on Paleo But she says it is a pricy diet ... I had a starter paleo book but I don't have a clue where it is...

mamafish Newbie

My story with grain-free/paleo... I think it *really* depends on the person.  We have tried several different approaches all trying to figure out the best diet for my son.  I went through a lot of them with him because I nursed him for 3 years.  We've also tried some different things since then. 

 

End result, he does very well grain free, so long as he gets lots of squash and sweet potatoes.  Adding in things like rice isn't a problem, but he could happily be largely carnivorous.

 

I feel like *hell* eating that much protein, meat protein in particular.  And if I eat too many nuts (and too many for me is more than about 1/8c a day), I get roaring estrogen dominance problems (already an issue, but nuts have a ton of plant estrogens, and 1/4 c of nuts a day for a month changed my very regular cycle from 30 days to 19.  19!!, and raving emotional/mood swings.  Went back to normal immediately when I went off the nuts, and recurred when I tried again because I'm a scientist and an idiot).  So for me, nut flours aren't a good replacement for grains.  Fats are good, but too much, and I think my fat digestion gets overloaded.  And if I use veggies to fill up all that food space, I still need to be careful about estrogen load.  Bottom line, for me it's a lot easier to have at least some grains, and I feel better eating them.

I am all for people experimenting with diet, because I think the right one can have a really profound effect on quality of life.  But after my own experience, I really resist the idea that any diet is a fit for everyone.

Renaye Contributor

I wonder if going grain free would help with constipation?  I am already off of eggs, gluten, peanuts and dairy. 

 

Renaye

w8in4dave Community Regular

Hmmmm I know I kinda have a problem with constipation once in a while so I use Nuts. But if your already eating alot of them... I don't know! 

 

Mamafish,

I thought Rice was a grain. But then I have no clue... Really I don't lol 

mamafish Newbie

 

I thought Rice was a grain. But then I have no clue... Really I don't lol 

 

 

It totally is :).  One that makes me feel much better to eat, and seemed optional for my kiddo.  I think it really varies person to person.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748

    tmperrella
    Newest Member
    tmperrella
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.