Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Most Ridiculous Gluten Comment I've Heard


C-Girl

Recommended Posts

BlessedMommy Rising Star

It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it.  :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 89
  • Created
  • Last Reply
Georgia-guy Enthusiast

It's pretty ridiculous and far fetched. Even if some wheat contamination could get into the water supply (which I doubt), it would surely dilute it down to about 0.00000000000000000000000001 PPM by the time that people actually drank it. :P

Well that just destroyed my excuse for my boss. Darn. Gotta drink water now.

BlessedMommy Rising Star

LOL! :)

chocominties Rookie

I've heard the whey thing (thanks, Mom), and had a classmate gasp in horror when I ate a Snickers bar. 

 

When I was in Japan, the M&Ms did contain wheat starch.  That was annoying. 

 

The gluten line I'm most tired of is:

 

"What are you eating?"

"Cupcake."

 

"You mean, a gluten free cupcake?"

 

"... yes."

 

If I'm eating it and it's a baked good, then it is a gluten free baked good.  I shouldn't have to qualify this every-single-time.

 

"What did you have?"

 

"Bread and butter."

 

"Oh, you mean ..."

 

There's something weirdly ostracizing about it. 

LauraTX Rising Star

"You mean, a gluten free cupcake?"

 

"... yes."

Haha, yes!  One time early into my dx my husband asked me why soy sauce was on my grocery list.  I just started at him with that face until he got it, LOL!

Georgia-guy Enthusiast

"What are you eating?"

"Cupcake."

"You mean, a gluten free cupcake?"

"... yes."

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Pegleg84 Collaborator

I had an argument with a dude at the healthfood store the other day who thought barley didn't contain gluten, but was like oats in that its usually ccd. Ummm... Not the last time I checked, dude. Nice try.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Waitingindreams Enthusiast

Lol. I was at mellow mushroom one night and someone I know that is aware I have celiac came in and saw me eating a pizza. She sat there looking at me funny for a minute, then walks over and this is the convo:

Her: I thought you have celiac?

Me: I do...

What are you eating then?

Ummm....some pizza?

Doesn't it have gluten?

Not this one...this is one of the gluten free ones YOU told me about

**face palm**

Omg! Almost the same thing happened to me at work a few months ago. I ordered a sandwich for lunch on a gluten free roll.

 

Coworker: (Confused) "I thought you couldn't have gluten?" 

 

Me: I can't..this is a gluten free roll. (Derp  :P)

 

He was surprised at how much it looked like a "regular" roll. I'm pretty sure it was Udi's, but I'm not positive. 

C-Girl Contributor

I had this glorious dream yesterday morning... I went into a pizzeria, the kind with the big wood-fired ovens and concrete floors (stems from a conversation I had w/ a local chef who is opening a wood-fired grill). I could smell the pizzas. A man came up and asked to take my order, I said, sadly, "I can't have pizza". He looked sad, and asked why, so I told him. He said, "no problem. I can make it". He proceeded to go to a shiny metal table and scrub it clean, taking out all new bowls and mixing up the dough. He carefully arranged all the ingredients on the top. He was in the midst of putting it in the oven when my husband woke me up...

 

Damn it. I really wanted to try that pizza.

nvsmom Community Regular

LOL  :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.  :P

beth01 Enthusiast

I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food. 

IrishHeart Veteran

LOL   :D

 

My mom is another that always thinks I can't have soy but I have to give her points for trying.  I think she realizes that I can't have most soy SAUCE and somewhere it got scrambled into it that all soy is bad for celiacs.

 

I'm trying to cut down on my soy intake anyways.   :P

 

 

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"....

 

Open Original Shared Link

nvsmom Community Regular

You probably should, according to Mary Shomon, the mama of all things thyroid.  :)

 

"Soy can, however, still interfere with absorption of your thyroid hormone replacement medication, so be sure to take your medication at least three hours apart from soy foods"....

 

Open Original Shared Link

 

So true! So true.   :)

 

I eat very little soy as it is. It shows up in my processed treats once in a while, that's about it for me.

psawyer Proficient

I was at a cookout a few weeks ago and someone asked me if I could have a burger.  I said yes but they would have to clean the grill first.  The response " don't worry the grill is hot enough, it'll kill the gluten".  Err no it wont or I could eat all cooked food.

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.
LauraTX Rising Star

Actually, if you bring the grill to 600F or higher, and hold it there for 30 minutes, it will destroy the proteins on the grill. But if you have anything on the grill while you do that, it will no longer be edible. The clean cycle of a self-cleaning oven will do the same thing, burning off any gluten. FWIW.

Thats correct! 

 

At a restaurant one time I asked if there was a shared fryer, the nice girl there said yes, and even though a lady told her one time that she is a nurse and the hot oil burns off the gluten, she doesn't think it is safe.  I commended her for having some sense, and then told her that.  At the end I added, "Since the smoke point of the frying oil is well under 600 degrees, the gluten would only go away if the restaurant burned down."  Got a laugh out of that.  She still works there and I try to go on the days I know she usually works.   :)

 

 

Edit: Bad grammar

  • 2 weeks later...
kayoung4 Collaborator

I was at a GNC booth before a race and asked numerous questions about all the samples before taking one.  One guy handed me a cup of energy drink and started by saying its gluten free so I took a sip, then proceeded to say "it's made from barley" -- I handed that back faster than you can say NOT GLUTEN FREE.  I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.  The common theme for me is that they're all white/pale foods - potatoes, yogurt, vanilla ice cream, etc.  Maybe it reminds people of bread/flour!  I'd much rather people be overly safe than tell me something is gluten-free when its not though.  I just smile and say that's safe....after double-checking the ingredient list.

Georgia-guy Enthusiast

I've also heard the gamut of "you can't have that, right?" of things that don't naturally contain gluten.

I get the a lot from someone I know only because she knows what her mom (celiac and about 20 other food allgergies/intolerances) can't have and she tends to get it mixed up occasionally why her mom can't have it, whether it's got gluten or something else her mom can't have. (She is a blonde though, so that might be part of the reason she gets confused ;):P )

beth01 Enthusiast

Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

Georgia-guy Enthusiast

Or she just has brain fog from undiagnosed celiac and it has nothing to do with blonde hair...lol

I've had that convo with her...she has a full panel done every year. So far she has lucked out.
ConnieT Newbie

I have a co-worker who, despite my efforts to explain what Celiac truly means, still thinks I am on a fad diet. She regularly asks me if I have lost any weight! (I wish-you would think that giving up bread would help in that regard :wacko: )

BlessedMommy Rising Star

The fad diet comments are pretty ridiculous for someone who's gluten-free for medical reasons, especially if they've been on a gluten-free diet long term.

 

I've been gluten-free for 4 1/2 years.  I'm pretty sure that if it was a fad, I would've quit by now. ;)

w8in4dave Community Regular

But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar! Thats what I was told at a party. LOLOLOL yea coming from someone who has no idea!! Absolutly no idea!!! Obviously!! 

Georgia-guy Enthusiast

But you can be Celiac and still eat some Gluten, you know , diabetics can still have sugar!

That is when I would look at them and use the peanut comparison..."would you give someone with a peanut allergy just 1 peanut, it won't kill them right?"
LauraTX Rising Star

I use the peanut comparison, too.  I will start busting into science talk and it usually makes people look confused and walk away.  LOL

Georgia-guy Enthusiast

I use the peanut comparison, too. I will start busting into science talk and it usually makes people look confused and walk away. LOL

I had someone look at me like I was crazy when I used the peanut line (turns out they are allergic to peanuts, go figure). They told me that they would be stupid to eat even a "skin" from a peanut. I quickly explained "well, you go into anaphylactic shock with a trace amount of peanuts. I go into (insert rather detailed symptom list here) with trace amounts of gluten." They got the point.

Most people are aware of the severity of peanut allergies, so I think it's the easiest way to get people to understand.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Ginger38's topic in Coping with Celiac Disease
      6

      The Struggle Has Overtaken Me

    2. - cristiana replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    3. - CC90 replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    4. - Wheatwacked replied to CC90's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      11

      Coeliac or not coeliac

    5. - Wheatwacked commented on Scott Adams's article in Origins of Celiac Disease
      19

      Do Antibiotics in Babies Increase Celiac Disease Risk Later in Life? (+Video)

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,192
    • Most Online (within 30 mins)
      10,442

    LINDA ZIEL
    Newest Member
    LINDA ZIEL
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Wheatwacked
      Hi @Ginger38, By now you know that these things improve without gluten. I once saw an interview with a corporation executive where he proudly declared that his wheat products are more addictive than potato chips. Dr Fuhrman (Eat to Live) said find foods that are friendly to you to be friends with.  
    • cristiana
      Hi @CC90 Ah... that is very interesting.  Although it is very annoying for you to have to go through it all again, I would say that almost sounds like an admission that they didn't look far enough last time?   I could be wrong, but I would not be at all surprised if they find something on the next attempt.  Coeliac damage can be very patchy, as I understand it, so that's why my own gastroenterologist always likes to point out that he's taken lots of samples!  In the kindest possible way (you don't want to upset the person doing the procedure!) I'd be inclined to tell them what happened last time and to ask them in person to take samples lower down, as  if your health system is anything like the one in my country, communication between GPs, consultants and hospitals isn't always very good.  You don't want the same mistake to be made again. You say that your first endoscopy was traumatic?  May I ask, looking at your spelling of coeliac, was this done at an NHS hospital in England?  The reason for the question is that one of my NHS diagnosed friends was not automatically offered a sedative and managed without one.  Inspired by her, I tried to have an endoscopy one time, in a private setting, without one, so that I could recover quicker, but I had to request sedative in the end it was so uncomfortable.    I am sorry that you will have to go through a gluten challenge again but to make things easier, ensure you eat things containing gluten that you will miss should you have to go gluten free one day. 😂 I was told to eat 2 slices of normal wholemeal bread or the equivalent every day in the weeks before , but I also opted for Weetabix and dozens of Penguin chocolate biscuits.  (I had a very tight headache across my temple for days before the procedure, which I thought was interesting as I had that frequently growing up. - must have been a coeliac symptom!)  Anyway, I do hope you soon get the answers you are looking for and do keep us posted. Cristiana  
    • CC90
      Hi Cristiana   Yes I've had the biopsy results showing normal villi and intestinal mucosa.  The repeat endoscopy (requested by the gastro doc) would be to take samples from further into the intestine than the previous endoscopy reached.      
    • Wheatwacked
      Transglutaminase IgA is the gold-standard blood test for celiac disease. Sensitivity of over 90% and specificity of 95–99%. It rarely produces false positives.  An elevated level means your immune system is reacting to gluten.  Non-Celiac Gluten Sensitivity (NCGS) does not typically cause high levels of tTG-IgA. Unfortunately the protocols for a diagnosis of Celiac Disease are aimed at proving you don't have it, leaving you twisting in the wind. Genetic testing and improvement on a trial gluten free diet, also avoiding milk protein, will likely show improvement in short order if it is Celiac; but will that satisfy the medical system for a diagnosis? If you do end up scheduling a repeat endoscopy, be sure to eat up to 10 grams of gluten for 8 - 12 weeks.  You want  to create maximum damage. Not a medical opinion, but my vote is yes.
    • trents
      Cristiana asks a very relevant question. What looks normal to the naked eye may not look normal under the microscope.
×
×
  • Create New...