Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

First Party Bringing My Own Food


FruitEnthusiast

Recommended Posts

FruitEnthusiast Enthusiast

Today was the first party I've been to bringing my own food, and the first party I've been to in 3 years - that's how long it's taken for me to feel well enough to go to a social event since my food intolerances began - quite a milestone!!! I've been seeing a new Nutritionist who has helped me get there. I'm going to post more info about that in another topic.

 

Now I understand what all of you were talking about when you shared your party stories. The host, my friend (who knows about my food limitations) couldn't seem to understand when I turned down everything she offered me. She was even surprised when I didn't want a piece of her homemade cake that had several things in it that I don't eat - gluten/grains, dairy, eggs, sugar, etc. She seemed hurt that I couldn't enjoy something special she had made, it was hard to disappoint her.

 

She was uncomfortable seeing me not eating or drinking anything, so I took out the water and food I brought. Then people were upset that I was eating out of plastic baggies. It didn't bother me. I was surprised that everyone was so concerned, I'm so used eating with no frills.

 

Next time I'll bring my food in containers or put it on a plate before I eat it, so the others will feel more convinced that I'm enjoying myself :) Or if anyone has suggestions on how I can blend in better next time, and not stand out so much, I'd love to hear them.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac sharon Apprentice

Some of takes time and education for your friends. Friends who are worth, will learn to get it When we have work parties there are efforts by my friends to include safe foods. I always bring my own safe contribution. Everyone is used to me reading every label so they will actually save labels for me. They also let me fill my plate first to avoid my risk of cross contamination, then I just don't have seconds. It takes time, but good friends will accomadate

gilligan Enthusiast

I don't know what I do differently, but I just have not had that problem (yet).  If your friend is hurt, maybe you should ask her why she's so concerned about what you do/do not eat.  Friendship isn't based on food choices.  I have been passed over for lunch and coffee outings.  When I found out that a couple of friends wanted to meet me at the theatre instead of picking me up because they were going to have lunch first, I'll admit I was upset.  I had to tell them that I didn't want to go if I was not invited to lunch with them like in the "old days".  

BlessedMommy Rising Star

Does she know why you're gluten free? My friends are usually not offended, because I make it clear that staying gluten free is a matter of life and death for me--it's not a fad diet.

nvsmom Community Regular

I find it helpful to remind people that I'm at the party for the people and the fun, and not the food.  People usually can appreciate that.

 

I too usually bring extra food, and more than what most would bring.  My youngest son did a play last week and they had a potluck after.  He's 7 and doesn't like to feel left out.  Most people brought one dish but I brought strawberries, brownies, cookies, crackers and cheese dip (all gluten-free).  That way he could have options.... I think only one person commented on it and I just told them that we eat food that isn't the norm so I brought extra.  No problems at all.  :)

 

Glad you had fun at the party and stayed safe.  :)

julissa Explorer

I am glad to hear you were able to make the move to go and bring your food.

 

it's a complete mystery to me why anyone would care at all what you are eating. I go everywhere and bring my own food. why should anyone have anything to say?   to me, it's their problem. I go to people's houses, restaurants etc, and ask no permission or apology. 

FruitEnthusiast Enthusiast

I don't think I explained this quite right. My friend wasn't giving me a hard time, she just felt bad for me because I couldn't enjoy the things others could. It was my first time at her house and a very small gathering, mostly just her family. They were all so nice and wanted to make sure I was having a good time.

 

My family knows about my restrictions and they don't make a big deal about it, but I think some of them feel uncomfortable eating things in front of me that I don't eat. I just try to keep it as light as possible and let people know it's no biggie, I'm just happy to feel good.

 

I think it's just awkward for me when it seems like people are feeling sorry for me and wish I could skip the conversation about food altogether and just blend in like everyone else.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



notme Experienced

it cracks me up, anymore, when people feel sorry for me because i'm so 'deprived' lolz - the last party i went to i brought oysters bienville (mardi gras) people were amazed they were gluten free - i told them don't cry for me, peoples.  i'm not living on baloney sandwiches, trust me ;)  

 

then, there is my husband, who buys mcd's filet o fish (two of them!  jerk!) and eats them very joyously in front of me, lip smacking and all..... <_<   LOLZ i guess we are beyond it...  :P  ^_^

BlessedMommy Rising Star

What I usually do is make up some food for the party and put it in a glass pyrex portables dish. If it's hot, I can keep it hot in a thermos. 

FruitEnthusiast Enthusiast

Next time someone gives me that look of pity I'm going to say, I like to eat healthy because it makes me feel great, like I'm in my twenties again.

 

I don't think I'm going to say anything at all about what I "can't" have. I'm going to make my food choices all about being healthy as if I have decided to eat that way by choice. I'm going to turn it into a positive.

 

I will say I eat Paleo, bring some fun containers, utensils and yummy things to eat, like organic raspberries. I won't be the one to feel sorry for, but the one to be inspired by!!!! Yes!

julissa Explorer

glad to hear they weren't giving you a hard time.. yes, that pity can be quite annoying. I hear you loud and clear 

BlessedMommy Rising Star

I like the way you think....organic raspberries are definitely a treat! :)

FruitEnthusiast Enthusiast

Thanks guys, good to know I'm not alone!

MomBTired Newbie

We kind of went through something like this. My son's best friend got married and she was upset he wouldn't be able to have wedding cake. I mean, it was stressing out the bride. I told her I would go get him a cupcake to bring. Then life was all good :)  As far as his parties go, he's 19 so at the moment he just brings snacks they all can eat. Most Frito Lay is gluten free so he pretty much goes everywhere with a bag of Ranch Doritos

cap6 Enthusiast

Those first few times of bringing your own food are almost more uncomfortable for others than for us! I have been doing it for so long that now our friends just ask if I need to warm anything up. I usually take my stuff, plate it (so I look like everyone else) and maybe warm it in their micro. And like a couple of others said I always remind people that I am there to enjoy them!

BlessedMommy Rising Star

I went out with my homeschool co-op friends to a restaurant the other day. I ordered a glass of juice, then pulled a bunch of grapes and a banana out of my purse. They thought that it was cool that I had goodies in my purse! People just get used to it after awhile.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748

    tmperrella
    Newest Member
    tmperrella
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.