Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help, Please! I Don't Know How To Eat Out Or If I Can?


shiffy k

Recommended Posts

shiffy k Newbie

I am going out of town here in a couple of days, and I will not have access to a kitchen. I was diagnosed today, so I have very little experience. I have a list of gluten free menus that I have printed out, but are these menus safe. Can I eat out? What should I tell wait staff at restaurants? Any and all tips are greatly appreciated! Thank you for all of your support.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cyclinglady Grand Master

Are you driving or flying?  

 

The car's easy.  Just bring an ice chest (yeah, haul it into your hotel room) and fill it with gluten-free food.  Enough to last the length of your trip or you can replenish.  Keep a few non-perishable things in your purse or bag in case you can not find safe food.  You can always just order a drink if you don't think you can find safe restaurant food.  

 

Flying, pack a collapsible cooler in your luggage and fill it with zip locks of ice from the hotel and store a few items in it to keep in your rental car or room.  We always can find a supermarket! 

 

Eating out?  Try the app "Find me Gluten Free".  Talk to the head chef or manager.  Do not rely on wait staff to keep you safe.  Try to pick restaurants that cater to celiacs.  Look for reviews that are written by celiacs or NCGI folk -- not the gluten free dieters who think gluten-free is healthy or a means to lose weight!  

 

You can do this! 

shiffy k Newbie

Thanks. Can I trust gluten free menus from places like outback steakhouse and similar chains?

Alwayssomething Contributor

We travel a lot, and this is something we really enjoy.   When I was diagnosed I didn’t want this disease to define me and or control my life and I decided then I would not change this aspect of my life.  In fact I was diagnosed in August/September and had a vacation booked for October.   In all my trips I have been glutened once.    That  first October trip.   Here is what I do, this works for me, but everything is a personal choice for everyone, so someone else may not do it this way. 

 

I go online to Tripadvisor and Find Me gluten free and google “gluten free in *Ussomewhere*”  then I look at their menus online.  I contact everyone I am interested in via email and specifically ask at that time if the “Chicken and rice” or whatever I think I would like is gluten free and then more specific questions about preparation area and things. 

 

I then print those and carry them with me on my trip, now I have choices, I know who and where around the area and I ask to speak to the person who sent me the email.

 

This has worked for me all over the US as well as Aruba, but I have not been anywhere else.  

Only once have I done all that and then when I arrived the person on the email wasn’t there and the manager on duty was CLUELESS.  Told me to just avoid pasta and bread….I did get up and leave that  restaurant.  

Judy3 Contributor

Outback I would trust.. other's not sure.   Mexican food is good when you are in a strange place.    ALWAYS tell the waitstaff that you have Celiac.   I know don't want to broadcast but it will help believe me.    Recently, I've been asked is it a choice or an allergy when asking for gluten free.. I'm always upfront and blunt.   Celiac disease, allergy if you must classify it that way, extremely sick if you don't . please be careful!!    Haven't had a problem with my nice but blunt response.   :)    One local restaurant cook even don's gloves to make my breakfast on Saturday mornings   :)       It's doable - I've been at this 5 yrs and at first it seems daunting but it will get easier.. On your trip good luck.   Some of the places I have eaten at when traveling   Outback, Longhorn Steakhouse, Olive Garden, local or chain Mexican (think corn tortillas) , Indian food (just skip the bread), and if at a diner type it's a crapshoot so be careful there.  Oh and last but not least Red Robin!!! 

GF Lover Rising Star

Thanks. Can I trust gluten free menus from places like outback steakhouse and similar chains?

 

Hi Shiffy.  Having the menu's before hand is great.  You can decide what you want before you get there.  BUT, you still MUST talk to the Chef or Kitchen Manager.  I usually go to the kitchen after we are seated, Going to the kitchen yourself also shows how serious this is for you and will cut out distractions for you and the Chef.

 

Things you need to ask are:

 

Do they use a dedicated Gluten Free fryer.  You cannot eat from a shared fryer

Do they use seasonings or sauces on the grill.  If so they need to clean an area or use foil on the grill.

Do they change gloves or have a dedicated preparation area.  Use you best judgement on this one.

 

Always have them double check dressings, sauces and seasonings for gluten.  Never accept a salad with croutons.  You can't just pick them off.  I was surprised once when whipped cream actually had wheat in it. 

 

Remember, Menu's are 'Gluten Friendly' and just a guide.  You can go to any nice restaurant, gluten-free menu or not if you stick with your questions.  Always keep some food with you in your purse.  You may run into a situation where they cannot meet celiac standards and you are stuck with a plain salad.

 

Good luck on your trip :D

 

Colleen

mfarrell Rookie

I want to thank all of you for sharing.... I too am going on a trip, first long one since being diagnosed April.  I went to New Orleans for a weekend trip and was please to find two restaurants that had gluten free menus and they were very accomadating.  In case anyone is going to New Orleans- Dragos and Muriels are the restaurants.  And I am so glad shiffy k asked the question... 


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

To the national chain list  add PF CHangs, Pei Wei, most Brazilian Steak Houses, &  Bone Fish, 

 

Probably all Self-serve frozen yogurt places (No toppings), Dairy Queen soft serve, Wendy's Frostys - cause we need desserts.

cap6 Enthusiast

To the safe chain list add Red Robin, BJ Brewery. Because so many places now offer gluten free menus I make sure the server knows that I am gluten free but Not by choice, I am celiac. I discovered that some places actually prepare the foods differently if you are eating g.f. by choice as opposed to Not by choice!

  • 2 weeks later...
Nikki2777 Community Regular

I eat out a lot - but I'm lucky I live in a city with a lot of options.  I don't usually bring a cooler along when we travel, but I admit that means I'm sometimes stuck eating potato chips and kind bars from the 7 - 11 on the road.  If you have healthier aspirations, bringing your own is a good idea.  

 

Just wanted to add that as a few have mentioned Mexican as a safe option - Yes, it is, but not everyplace fries their corn tortillas in a separate fryer, or they don't know if their supplier does, so that's a question you need to ask.  

 

I also find Indian very easy (I generally get chicken tikka masala, though I always ask first to make sure the sauce isn't thickened with flour) and carry my own packets of gluten-free soy sauce in case we get stuck at a non PF Changs Chinese place - I just use it on plain rice or rice and steamed string beans.  I think you can get the packets  on minimus.com.  If ordering Gluten Free pasta, you want to make sure they boil it in its own water.

 

Oh and Fine Me Gluten Free is a great app.  We've discovered many out of the way excellent places on road trips this way.

 

Good luck - it's really tough at first, but gets much much easier.  And then you feel better, so it's worth it.

shiffy k Newbie

Thank you all so much. All of your responses that are filled with support are very helpful. I have learned so much from this forum. This post has really saved me as I travel frequently. Getting started on all this is so stressful. I am so thankful for you all!

psawyer Proficient

Eating out is always a challenge. It is one that you will eventually have to face. I am fifteen years into the celiac journey and it remains a concern where I ask a lot of questions if I don't know that the resto is celiac friendly. But many are, as previous posters have noted. Places where the kitchen prepares your meal to order are obviously better than places like Applebee's where they may just heat prepackaged meals.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,243
    • Most Online (within 30 mins)
      7,748

    Dorfor
    Newest Member
    Dorfor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.