Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This May Be A Stupid Question

ebrbetty

By ebrbetty
in Coping with Celiac Disease

Recommended Posts

ebrbetty Rising Star
ebrbetty
Posted

most of us are lactose intolerant because of the damage to the villi...my Dr told me its ok to have dairy if I take a lactose pill. I do eat a little dairy, mostly Kraft Cheese [lactose free] and once in awhile I have Romano but if the reason I can't tolerate dairy is because of the damage to my stomach am I keeping myself from healing or cont. to cause more damage when I eat it?

its the gluten that did the damage..so I guess its ok?????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

If lactose causes you problems, don't go there. If you have damage to your villi, it will take quite some time to heal. It has taken me almost 6 months to start the healing process and to know when I am glutened or just healing.

I am just now beginning to know the difference. Hope this will be helpful. Be patient

I am not lactose intollerent and don't feel that I am in the minority.

Know your body and respond to what you react to.

Lisa

Lisa Mentor
Lisa
Posted

PS: There are no stupid questions here. :)

lovegrov Collaborator
lovegrov
Posted

I agree about no stupid questions. I don't think the majority of people with celiac are lactose intolerant, but if you are, lay off it for a while. Most people who ARE intolerant solely because of celiac can eventually tolerate dairy again. Not all, but many.

richard

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thank you both

lisa, do you mean it took 6 months to start feeling better? I've been gluten-free about 2 months and get so upset that my belly still hurts everyday, better though

lovegrov Collaborator
lovegrov
Posted

Everybody is so different. I never had the hurting belly and rarely had the diarrhea, but I was extremely anemic and was basically dying of malnutrition. It was 10 weeks before I had the energy to return to work at a desk job and months before I was close to "normal."

richard

nettiebeads Apprentice
nettiebeads
Posted

No, the diary you ingest isn't damaging your intestines. It's your body's reaction to gluten that does it. I was in the normal catagory of celiac (I think I just made that up) anyhow, after your villi heal, they will start to produce the lactic acid needed to digest diary. But I think it's very individualistic as to how much healing and how long it takes and how much diary you'll be able to tolerate afterwards. I cut out dairy for 3 months, then tried it, still had a little problem with it, but not the severe stomach cramps like before. I still don't eat as much of it as I used to, but when I do ingest diary, I'm fine. (Can't live w/o Blue Bunny ice cream)

Annette

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I do agree with richard, which I usually do, everyone is different.

I only had the sharp, knife pains before diog., after going gluten free (or as best as I was able.), I had the D issue. It was months before I would go out of town. Living in a very small town, sometimes I could not make it to the Post Office. Worse yet, standing on my back porch, the bathroom was 20 seconds away, I got there in 25 seconds. Celiac can be a very humbling experience. I have thrown out 2 pairs of my favorite jeans and two of the best lipsticks that I did not have the will to retrieve.

This is the best week that I have had in a long time. I am getting the feel for this. I really don't miss much. I didn't like bread, pizza, beet, pasta. I think that my body was always telling me something.'

So the lesson to this story is to, always listen to your body. It will tell you what it needs.

Be patient, and diligent.

Hope th is will be helpful. - Lisa

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks again guys.. :D

penguin Community Regular
penguin
Posted

The reason most celiacs are lactose intolerant is because the villi are flattened, and the villi produce lactase, which is the enzyme that breaks down lactose.

Lactaid pills (and milk) are full of lactase to help you digest the lactose. If it bugs you, don't eat it.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

well I knew that villi produce lactase and that they get damaged from celiac disease I was just wondering if eating dairy continues to damage the villi or should I say keep it from healing.

sorry if my question bugged you..was just curious if eating it will do more damage

penguin Community Regular
penguin
Posted
well I knew that villi produce lactase and that they get damaged from celiac disease I was just wondering if eating dairy continues to damage the villi or should I say keep it from healing.

sorry if my question bugged you..was just curious if eating it will do more damage

Sorry if I misinterpreted your quuestion, the saltines made me pretty stoned

ebrbetty Rising Star
ebrbetty
Posted
  • Author

no problem...you just seemed a bit upset by my question

have a great night :D

penguin Community Regular
penguin
Posted
no problem...you just seemed a bit upset by my question

have a great night :D

Not bugged, upset, or otherwise bothered by your question. :lol::lol:

It's just that all of my wit has gone to my tummy to try to digest my stupidity :blink:

jerseyangel Proficient
jerseyangel
Posted

Betty, The way I understand it is, when we have damaged villi, we can not digest the lactose in the milk or dairy products. I don't believe that consuming the dairy will continue to harm the villi or impede healing. I think it's more a matter of stopping it for a while to give the system a chance to heal and settle down a bit, and then if you can tolerate it, it's ok. If it's a lactose problem, there is no resulting damage.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

Chelsea I hope your belly feels better very soon!!

patti, thanks, thats what I wanted to know..as I said I eat a little dairy and the lactose pills I got from England work great. I just didn't want to mess myself up more than I already am lol

loraleena Contributor
loraleena
Posted

What many people don't know is that a lot of people are lactose intolerant due to the pasterization and homogenization of dairy. This kill all the enzymes we need to digest it. 50 years ago when dairy was not pasterized lactose intolerance was almost unheard of. Please go on the net and read about the benefits of raw dairy. I eat only raw cheese with no problems. But give me regular dairy and my stomach acts up. You can get raw cheese at whole foods - does not taste different - actually better. Raw milk can be found at local farms. Look on the net.

penguin Community Regular
penguin
Posted
What many people don't know is that a lot of people are lactose intolerant due to the pasterization and homogenization of dairy. This kill all the enzymes we need to digest it. 50 years ago when dairy was not pasterized lactose intolerance was almost unheard of. Please go on the net and read about the benefits of raw dairy. I eat only raw cheese with no problems. But give me regular dairy and my stomach acts up. You can get raw cheese at whole foods - does not taste different - actually better. Raw milk can be found at local farms. Look on the net.

In the US, it's hard to find raw cheese, because it's illegal to sell cheese that is aged less than 60 days. Stupid USDA <_<

Raw milk is legal to sell in a little over half the states...

Here's a site with a listing: Open Original Shared Link

ebrbetty Rising Star
ebrbetty
Posted
  • Author

you can get the raw cheese at whole foods? what is the brand name?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy. Benfotiamine and other forms of Thiamine do not bother me at all. There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes. The sulfur in thiamine is in a ring which does not trigger sulfa allergy...
    2. Wheatwacked
      - Wheatwacked replied to Jmartes71's topic in Coping with Celiac Disease
      8

      Related issues

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped. It sounds more like you are suffering from malnutrition. Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here. Malnutrition...
    3. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      8

      My only proof

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well. I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given...
    4. Wheatwacked
      - Wheatwacked replied to Scatterbrain's topic in Sports and Fitness
      4

      Feel like I’m starting over

      Hello @Scatterbrain, Are you getting enough vitamins and minerals. Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D. By the way you should get your mom checked for celiac disease. You got it from your mom or dad. Some studies show that following a gluten-free diet can stabilize or improve symptoms...
    5. Scott Adams
      - Scott Adams replied to Kirita's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Recovery from gluten challenge

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,291
    • Most Online (within 30 mins)
      7,748
    DottieLyn
    Newest Member
    DottieLyn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @NanceK, I do have Hypersensitivity Type Four reaction to Sulfa drugs, a sulfa allergy.  Benfotiamine and other forms of Thiamine do not bother me at all.  There's sulfur in all kinds of Thiamine, yet our bodies must have it as an essential nutrient to make life sustaining enzymes.  The sulfur in thiamine is in a ring which does not trigger sulfa allergy like sulfites in a chain found in pharmaceuticals.  Doctors are not given sufficient education in nutrition (nor chemistry in this case).  I studied Nutrition before earning a degree in Microbiology.  I wanted to know what vitamins were doing inside the body.   Thiamine is safe and nontoxic even in high doses.   Not feeling well after starting Benfotiamine is normal.  It's called the "thiamine paradox" and is equivalent to an engine backfiring if it's not been cranked up for a while.  Mine went away in about three days.  I took a B Complex, magnesium and added molybdenum for a few weeks. It's important to add a B Complex with all eight essential B vitamins. Supplementing just one B vitamin can cause lows in some of the others and result in feeling worse, too.  Celiac Disease causes malabsorption of all the B vitamins, not just thiamine.  You need all eight.  Thiamine forms including Benfotiamine interact with each of the other B vitamins in some way.  It's important to add a magnesium glycinate or chelate supplement as well.  Forms of Thiamine including Benfotiamine need magnesium to make those life sustaining enzymes.  (Don't use magnesium oxide.  It's not absorbed well.  It pulls water into the intestines and is used to relieve constipation.)   Molybdenum is a trace mineral that helps the body utilize forms of Thiamine.   Molybdenum supplements are available over the counter.  It's not unusual to be low in molybdenum if low in thiamine.   I do hope you will add the necessary supplements and try Benfotiamine again. Science-y Explanation of Thiamine Paradox: https://hormonesmatter.com/paradoxical-reactions-with-ttfd-the-glutathione-connection/#google_vignette
    • Wheatwacked
      Related issues

      By Wheatwacked · Posted

      Your goal is not to be a good puppet, there is no gain in that. You might want to restart the ones that helped.  It sounds more like you are suffering from malnutrition.  Gluten free foods are not fortified with things like Thiamine (B1), vitamin D, Iodine, B1,2,3,5,6 and 12 as non-gluten free products are required to be. There is a Catch-22 here.  Malnutrition can cause SIBO, and SIBO can worsen malnutrition. Another possibility is side effects from any medication that are taking.  I was on Metformin 3 months before it turned me into a zombi.  I had crippling side effects from most of the BP meds tried on me, and Losartan has many of the side effects on me from my pre gluten free days. Because you have been gluten free, you can test and talk until you are blue in the face but all of your tests will be negative.  Without gluten, you will not create the antigen against gluten, no antigens to gluten, so no small intestine damage from the antigens.  You will need to do a gluten challange to test positive if you need an official diagnosis, and even then, no guaranty: 10 g of gluten per day for 6 weeks! Then a full panel of Celiac tests and biopsy. At a minimum consider vitamin D, Liquid Iodine (unless you have dermatitis herpetiformis and iodine exasperates the rash), and Liquid Geritol. Push for vitamin D testing and a consult with a nutritionist experienced with Celiack Disease.  Most blood tests don't indicate nutritional deficiencies.  Your thyroid tests can be perfect, yet not indicate iodine deficiency for example.  Thiamine   test fine, but not pick up on beriberi.  Vegans are often B12 deficient because meat, fish, poultry, eggs, and dairy are the primary souces of B12. Here is what I take daily.  10,000 IU vitamin D3 750 mg g a b a [   ] 200 mg CoQ10 [   ] 100 mg DHEA [   ] 250 mg thiamine B1 [   ] 100 mg of B2 [   ] 500 mg B5 pantothenic acid [   ] 100 mg B6 [   ] 1000 micrograms B12 n [   ] 500 mg vitamin c [   ] 500 mg taurine [   ] 200 mg selenium   
    • NanceK
      My only proof

      By NanceK · Posted

      Hi…Just a note that if you have an allergy to sulfa it’s best not to take Benfotiamine. I bought a bottle and tried one without looking into it first and didn’t feel well.  I checked with my pharmacist and he said not to take it with a known sulfa allergy. I was really bummed because I thought it would help my energy level, but I was thankful I was given this info before taking more of it. 
    • Wheatwacked
      Feel like I’m starting over

      By Wheatwacked · Posted

      Hello @Scatterbrain, Are you getting enough vitamins and minerals.  Gluten free food is not fortified so you may be starting to run low on B vitamins and vitamin D.   By the way you should get your mom checked for celiac disease.  You got it from your mom or dad.  Some studies show that following a gluten-free diet can stabilize or improve symptoms of dementia.  I know that for the 63 years I was eating gluten I got dumber and dumber until I started GFD and vitamin replenishment and it began to reverse.  Thiamine can get used up in a week or two.  Symptoms can come and go with daily diet.  Symptoms of beriberi due to Thiamine deficiency.   Difficulty walking. Loss of feeling (sensation) in hands and feet. Loss of muscle function or paralysis of the lower legs. Mental confusion. Pain. Speech difficulties. Strange eye movements (nystagmus) Tingling. Any change in medications? Last March I had corotid artery surgery (90 % blockage), and I started taking Losartan for blood pressure, added to the Clonidine I was taking already.  I was not recovering well and many of my pre gluten free symptoms were back  I was getting worse.  At first I thought it was caused a reaction to the anesthesia from the surgery, but that should have improved after two weeks.  Doctor thought I was just being a wimp. After three months I talked to my doctor about a break from the Losartan to see if it was causing it. It had not made any difference in my bp.  Except for clonindine, all of the previous bp meds tried had not worked to lower bp and had crippling side effects. One, I could not stand up straight; one wobbly knees, another spayed feet.  Inguinal hernia from the Lisinopril cough.  Had I contiued on those, I was destined for a wheelchair or walker. She said the symptoms were not from Losartan so I continued taking it.  Two weeks later I did not have the strength in hips and thighs to get up from sitting on the floor (Help, I can't get up😨).  I stopped AMA (not recommended).  Without the Losartan, a) bp did not change, after the 72 hour withdrawal from Losartanon, on clonidine only and b) symptoms started going away.  Improvement started in 72 hours.  After six weeks they were gone and I am getting better.  
    • Scott Adams
      Recovery from gluten challenge

      By Scott Adams · Posted

      Hopefully the food she eats away from home, especially at school, is 100% gluten-free. If you haven't checked in with the school directly about this, it might be worth a planned visit with their staff to make sure her food is safe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.