Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

This May Be A Stupid Question

ebrbetty

By ebrbetty
in Coping with Celiac Disease

Recommended Posts

ebrbetty Rising Star
ebrbetty
Posted

most of us are lactose intolerant because of the damage to the villi...my Dr told me its ok to have dairy if I take a lactose pill. I do eat a little dairy, mostly Kraft Cheese [lactose free] and once in awhile I have Romano but if the reason I can't tolerate dairy is because of the damage to my stomach am I keeping myself from healing or cont. to cause more damage when I eat it?

its the gluten that did the damage..so I guess its ok?????

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

If lactose causes you problems, don't go there. If you have damage to your villi, it will take quite some time to heal. It has taken me almost 6 months to start the healing process and to know when I am glutened or just healing.

I am just now beginning to know the difference. Hope this will be helpful. Be patient

I am not lactose intollerent and don't feel that I am in the minority.

Know your body and respond to what you react to.

Lisa

Lisa Mentor
Lisa
Posted

PS: There are no stupid questions here. :)

lovegrov Collaborator
lovegrov
Posted

I agree about no stupid questions. I don't think the majority of people with celiac are lactose intolerant, but if you are, lay off it for a while. Most people who ARE intolerant solely because of celiac can eventually tolerate dairy again. Not all, but many.

richard

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thank you both

lisa, do you mean it took 6 months to start feeling better? I've been gluten-free about 2 months and get so upset that my belly still hurts everyday, better though

lovegrov Collaborator
lovegrov
Posted

Everybody is so different. I never had the hurting belly and rarely had the diarrhea, but I was extremely anemic and was basically dying of malnutrition. It was 10 weeks before I had the energy to return to work at a desk job and months before I was close to "normal."

richard

nettiebeads Apprentice
nettiebeads
Posted

No, the diary you ingest isn't damaging your intestines. It's your body's reaction to gluten that does it. I was in the normal catagory of celiac (I think I just made that up) anyhow, after your villi heal, they will start to produce the lactic acid needed to digest diary. But I think it's very individualistic as to how much healing and how long it takes and how much diary you'll be able to tolerate afterwards. I cut out dairy for 3 months, then tried it, still had a little problem with it, but not the severe stomach cramps like before. I still don't eat as much of it as I used to, but when I do ingest diary, I'm fine. (Can't live w/o Blue Bunny ice cream)

Annette

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I do agree with richard, which I usually do, everyone is different.

I only had the sharp, knife pains before diog., after going gluten free (or as best as I was able.), I had the D issue. It was months before I would go out of town. Living in a very small town, sometimes I could not make it to the Post Office. Worse yet, standing on my back porch, the bathroom was 20 seconds away, I got there in 25 seconds. Celiac can be a very humbling experience. I have thrown out 2 pairs of my favorite jeans and two of the best lipsticks that I did not have the will to retrieve.

This is the best week that I have had in a long time. I am getting the feel for this. I really don't miss much. I didn't like bread, pizza, beet, pasta. I think that my body was always telling me something.'

So the lesson to this story is to, always listen to your body. It will tell you what it needs.

Be patient, and diligent.

Hope th is will be helpful. - Lisa

ebrbetty Rising Star
ebrbetty
Posted
  • Author

thanks again guys.. :D

penguin Community Regular
penguin
Posted

The reason most celiacs are lactose intolerant is because the villi are flattened, and the villi produce lactase, which is the enzyme that breaks down lactose.

Lactaid pills (and milk) are full of lactase to help you digest the lactose. If it bugs you, don't eat it.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

well I knew that villi produce lactase and that they get damaged from celiac disease I was just wondering if eating dairy continues to damage the villi or should I say keep it from healing.

sorry if my question bugged you..was just curious if eating it will do more damage

penguin Community Regular
penguin
Posted
well I knew that villi produce lactase and that they get damaged from celiac disease I was just wondering if eating dairy continues to damage the villi or should I say keep it from healing.

sorry if my question bugged you..was just curious if eating it will do more damage

Sorry if I misinterpreted your quuestion, the saltines made me pretty stoned

ebrbetty Rising Star
ebrbetty
Posted
  • Author

no problem...you just seemed a bit upset by my question

have a great night :D

penguin Community Regular
penguin
Posted
no problem...you just seemed a bit upset by my question

have a great night :D

Not bugged, upset, or otherwise bothered by your question. :lol::lol:

It's just that all of my wit has gone to my tummy to try to digest my stupidity :blink:

jerseyangel Proficient
jerseyangel
Posted

Betty, The way I understand it is, when we have damaged villi, we can not digest the lactose in the milk or dairy products. I don't believe that consuming the dairy will continue to harm the villi or impede healing. I think it's more a matter of stopping it for a while to give the system a chance to heal and settle down a bit, and then if you can tolerate it, it's ok. If it's a lactose problem, there is no resulting damage.

ebrbetty Rising Star
ebrbetty
Posted
  • Author

Chelsea I hope your belly feels better very soon!!

patti, thanks, thats what I wanted to know..as I said I eat a little dairy and the lactose pills I got from England work great. I just didn't want to mess myself up more than I already am lol

loraleena Contributor
loraleena
Posted

What many people don't know is that a lot of people are lactose intolerant due to the pasterization and homogenization of dairy. This kill all the enzymes we need to digest it. 50 years ago when dairy was not pasterized lactose intolerance was almost unheard of. Please go on the net and read about the benefits of raw dairy. I eat only raw cheese with no problems. But give me regular dairy and my stomach acts up. You can get raw cheese at whole foods - does not taste different - actually better. Raw milk can be found at local farms. Look on the net.

penguin Community Regular
penguin
Posted
What many people don't know is that a lot of people are lactose intolerant due to the pasterization and homogenization of dairy. This kill all the enzymes we need to digest it. 50 years ago when dairy was not pasterized lactose intolerance was almost unheard of. Please go on the net and read about the benefits of raw dairy. I eat only raw cheese with no problems. But give me regular dairy and my stomach acts up. You can get raw cheese at whole foods - does not taste different - actually better. Raw milk can be found at local farms. Look on the net.

In the US, it's hard to find raw cheese, because it's illegal to sell cheese that is aged less than 60 days. Stupid USDA <_<

Raw milk is legal to sell in a little over half the states...

Here's a site with a listing: Open Original Shared Link

ebrbetty Rising Star
ebrbetty
Posted
  • Author

you can get the raw cheese at whole foods? what is the brand name?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    2. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weeke...
    3. knitty kitty
      0

      Dairy and Celiac: studies

    4. Scott Adams
      - Scott Adams replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      how long does it take for the genetic blood test for celiac to come back?

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, ...
    5. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      22

      Pain in the right side of abdomen

      @Heatherisle, You're not a bother at all. What "Vitamin B medication" is she taking? Is it just B12 and folate? All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients. All the B vitamins work together. Just supplementing one or two...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,667
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hasn’t been given folic acid as GP says vit b and folic acid can’t be given together which I find strange cos any time I did venepunctures B12 and folate were always grouped together? Her folate level was 2.2, just below the normal level
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi Thanks for your input. Don’t know which exact medication she’s on, keep asking but she keeps forgetting!!! I still think her Vitamin D levels might be low cos she had the back pain and tingling last year( around March /April) and levels were low so she had 3 month course then and it helped. She’s coming home next week (as in to ours) for a long weekend so hopefully some TLC from mum and dad will help!!!    
    • Scott Adams
      how long does it take for the genetic blood test for celiac to come back?

      By Scott Adams · Posted

      Genetic testing for celiac disease (the HLA-DQ2 and HLA-DQ8 genes) usually takes about 3–10 days to come back, depending on the lab your doctor uses, though some places may take up to two weeks. The test itself doesn’t diagnose celiac disease—it only shows whether you carry the genes that make celiac possible. About 30–40% of people have one of these genes, but only a small percentage actually develop celiac disease. However, if the test is negative for both genes, celiac disease becomes extremely unlikely, which is why your doctor mentioned possibly canceling the endoscopy if the result is negative. If it’s positive, it just means celiac remains a possibility and further testing, like a gluten challenge followed by endoscopy, helps confirm it. Since you have an identical twin, it’s definitely useful information to share if the genes are present, because twins share the same genetic risk. It sounds like you found a very thorough GI doctor, which is great, especially since she’s also monitoring nutrients and looking at the whole picture.
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, You're not a bother at all.   What "Vitamin B medication" is she taking?  Is it just B12 and folate?   All eight B vitamins, Vitamin D and other vitamins and minerals need to be supplemented because the malabsorption of Celiac disease affects all the nutrients.  All the B vitamins work together.  Just supplementing one or two can throw the other B vitamins out of balance causing worsening deficiencies in other B vitamins.  Doctors are undereducated about nutrition.  Heavy sigh. This is worrisome.  These are all symptoms of Gastrointestinal Beriberi caused by Thiamine deficiency.   An Erythrocyte Transketolace Activity Assay needs too be done to check her Thiamine level.  But because this test is so expensive and takes so long for the results to come back, it's much simpler to administer 500 mg Thiamine Hydrochloride several times a day for several days and look for health improvement (WHO recommendation).  Doctors can administer Thiamine Hydrochloride by IV along with a "banana bag" with all the B vitamins in it.  (Riboflavin gives it the yellow color.).  I've experienced vitamin deficiencies which my doctors didn't recognize.  When thiamine and B12 deficiencies started affecting my brain function, my doctors wrote me off as a depressed hypochondriac.  I had Gastrointestinal Beriberi myself.  I took over the counter thiamine hydrochloride at home and had health improvement within an hour.  High doses (500 mg) of Thiamine are needed to "jump start" the body into proper functioning.   Apologies if I was curt.  I get very frustrated because the nutritional deficiencies that occur with Celiac disease are not addressed properly.  All I can do is tell people about what I learned on my Celiac journey.  Have you visited my blog?  Tap on my name, look for pull down menu Activities and go to blog.   I do hope your daughter can get the nutritional support she needs.  I'm very worried.  Please keep us updated!
    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi  Thank you, will tell her to do that
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.