Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast
Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

Good Andrea, I hope it doesn't get any worse than that for you all.

evie- I didn't get the chance to say how much I love your new picture, so good to finally put a face to your name!!

Chelse- head down to the Rachelville 2 thread! And you too were useful. We learned a lot about your gluten challenge and anemia, and and...how instrumental out purple glittery bats are.

I might try some polenta. Thanks for the suggestion Leah and miamia

Also thanks Leah for the post on the lime in the tortillas. I am not suppose to have citrus either and all corn tortillas have a trace of lime, I seem to do ok with them so your post makes sense.

As far as the corn bread goes, I think soda and baking powder are fine, I have a list that says small quantities of eggs in a baked product is usually tolerated for a low histamine diet. The liquid might be a problem...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator

Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

queenofhearts Explorer
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

There was just a thread on this! I'm a water advocate, myself, but there was some dispute...

Green12 Enthusiast
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Yes you should drink more water. Some scientificness:

Drinking water helps nearly every part of the human body function. Considering that our flesh vessels are almost 50-80% water, depending on how much body fat you have, understanding its important role in our lives can be a fountain of health. Water makes up more than 75% of your brain, 80% of your blood and 70% of lean muscle. Absolutely every system in the human body depends on water. H2O regulates body temperature, removes wastes, carries much-needed oxygen and nutrients to your cells, helps cushion your joints, prevents chronic constipation, alleviates the burden on your already-stressed kidneys and liver, helps reduce headaches and dizziness, aids in digestion and dissolves vitamins, minerals and other nutrients so you can utilize them better.

Rachel--24 Collaborator

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

queenofhearts Explorer

I completely agree. Here's the thread:

Open Original Shared Link

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

Wow, you even "Rachel" water!

Green12 Enthusiast
Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

:lol::lol::lol::lol::lol:

That's the thing about drinking water, not too little, not too much. A happy medium, imo at least.

Oooh I found some more scientificness about histamine and uticaria (hives) and angioedema:

Urticaria and angioedema symptoms result primarily from the physiological actions of histamine. Some individuals with urticaria have a decreased ability to degrade dietary histamine before it enters the circulation. Foods high in histamine, such as fermented foods, may exacerbate urticaria and angioedema in these individuals. Certain food additives may increase endogenous release of histamine and urticaria and angloedema symptoms

Plasma histamine, an important mediator of urticaria (hives) and angioedema, may be increased by diet through two mechanisms. First, under normal conditions, dietary histamine is degraded in the intestine by mucosal diamine oxidase enzyme (DAO); this prevents histamine's entry into the circulation. However, in chronic urticaria, DAO activity is decreased (1) and dietary histamine may increase plasma histamine (2). Second, certain foods and food additives may increase the endogenous release of histamine (3,4); this results in increased plasma histamine.

All very interesting to me since I have angioedema, but you know how many posts I come across on this board about people having hives/uticaria? It all has to relate somehow to the digestive process, lowered/heightened immunity, multiple food intolerances/allergies ...

And another thing, through my research I found out that meds for heart burn/reflux/GERD are mostly H2 blockers, as in histamine 2 blockers.

Duh, duh, duh....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Wow, you even "Rachel" water!

ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

CarlaB Enthusiast
ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

queenofhearts Explorer
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Hey, she had an alien baby!

morganb Newbie
Hey, she had an alien baby!

lol :lol:

Canadian Karen Community Regular
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Got that right - only try twins!!!!! :blink:

queenofhearts Explorer
Got that right - only try twins!!!!! :blink:

Hey, Karen, I have twin boys too! They're 19 now... but I remember that feeling!

Leah

VydorScope Proficient
Well, I only add bulk and nothing useful, so I'm leaving the thread.

Hope you all feel better!

:(:(:( Your welcom here!!!

Rachel--24 Collaborator
Got that right - only try twins!!!!! :blink:

I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

queenofhearts Explorer
I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Rachel--24 Collaborator
Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Yeah...I used to think it would be the greatest thing...having twins. Not so much anymore though. One please. :D

That'll be fine for me.....two at once would wear me out for sure.

miamia Rookie
Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Ok Rachel-

I just had my blood work done and dropped off my orange jug o'pee . Mine was pretty full. I drink alot during the day normally. You should too. the best thing to do is to drink water beween meals, but less with meals becasue if you drink alot while you eat you wash away the enzymes and acids you need for digestion and we now you and i don't have the best digestive systems as is.- Hope this is helpful.

Miamia

Canadian Karen Community Regular

Your urine collection reminds me of the hell I went through last year doing the stool collection in a paint can! When the doctor said to me to collect everything in a paint can (which they so generously provide), I said "Ah, I think I need more than one paint can". He didn't believe me, but said to pick up two anyway. Sure enough, 24 hours later and 1 and 1/2 cans later, I proved him wrong! Man, I really, really felt sorry for whoever worked in that lab and had to open up those cans! Can you spell T-O-X-I-C?????

Anyway, when I went back to see him, he said that the volume of diarrhea that I had was almost double what the maximum normal amount usually is......... I refrained from saying "I told ya so........." :rolleyes:

elisabet Contributor

Rachel,

It is very intresting ,the histamine test,so if you have elvevated histamine level,(I guess ,you would)

what is the next step.? do you have any plan?

by the way your idieas and theories are wonderful.

elisabet

Jean-Luc Rookie

Drive-by posting?????

Penguin -- you're leaving the thread ----- :(:(:( Why?

Weekend went well, dad seems normal, but tells me he is in a lot of pain.

I have too many pages to catch-up on. What is this about a Rachelville 2 thread?

Jean-Luc Rookie

Ok, I had a pre-mature post --- :lol:

I found the other thread.

Guest Robbin

:) Hi All! I am recovering from the trip. Not good at all. Celia, your post/quote was so beautiful, it made me cry.

Rachel, you have helped me so much on this thread and I am sorry, I was one of the culprits who was a little too wacky and didn't stay on topic enough. :(

I have had so many "aha" moments on here. I would be forever questioning my own sanity had it not been for others who, to my astonishment, have the same or similar symptoms as I do. Corn, sweet potatoes, beans, tapioca, some waters, etc. have all been problems for me and when I read that someone else has the same problems and is looking for the answers too, well it is like finding a long lost sister (or brother). It makes you feel not so alone, miserable and nutty.

I am so glad to know all of you.

Celia, the coffee--I have been so sick the past three days, but a cup of coffee and (sorry) a nicotine fix along with immodium has kept me from wanting to end it all, (kidding only a little :blink: )

Mia, and Rachel, the pee jug is also used for kidney function testing-diabetics regularly have these too. Half my family at one point or another has a pee jug in the 'fridge, lol.

Judy -when you had your pee experience, they probably gave you a diuretic of some sort. I am sorry it was so miserable for you, but honestly it made me laugh and dear one, I NEED all the laughs I can get right now.

This whole miserable disease has got me so low I can see worm belly. It is also a non-fun dysfunctional-fam thing type depression thingy that I will survive :blink: (lots of wordage there, lol)

Thank you for the prayers for the safe trip. All I can say is the angels must have been watching over us, cause we had so many near misses. I vow to stay home for a good long time, lol.

Love, R

rinne Apprentice

Good morning everyone, I haven't been able to post on this thread for a couple of days, from my computer, and this is a test.

AndreaB Contributor

Hi Rinne,

Do you know about Rachelville 2 thread?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

    2. - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    3. - Colleen H posted a topic in Coping with Celiac Disease
      0

      Methylprednisone treatment for inflammation?

    4. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      15

      Ibuprofen

    5. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,877
    • Most Online (within 30 mins)
      7,748

    Christian Konig
    Newest Member
    Christian Konig
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
    • Colleen H
      Hi all !! Did anyone ever get prescribed methylprednisone steroids for inflammation of stomach and intestines?  Did it work ??  Thank you !! 
    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.