Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Omg...i Might Be On To Something


Rachel--24

Recommended Posts

Green12 Enthusiast
Some upset tummies today, but so far nothing real bad.

Hopefully you and Rachel will get some answers from the pee test.

Good Andrea, I hope it doesn't get any worse than that for you all.

evie- I didn't get the chance to say how much I love your new picture, so good to finally put a face to your name!!

Chelse- head down to the Rachelville 2 thread! And you too were useful. We learned a lot about your gluten challenge and anemia, and and...how instrumental out purple glittery bats are.

I might try some polenta. Thanks for the suggestion Leah and miamia

Also thanks Leah for the post on the lime in the tortillas. I am not suppose to have citrus either and all corn tortillas have a trace of lime, I seem to do ok with them so your post makes sense.

As far as the corn bread goes, I think soda and baking powder are fine, I have a list that says small quantities of eggs in a baked product is usually tolerated for a low histamine diet. The liquid might be a problem...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 33.4k
  • Created
  • Last Reply
Rachel--24 Collaborator

Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

queenofhearts Explorer
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

There was just a thread on this! I'm a water advocate, myself, but there was some dispute...

Green12 Enthusiast
I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Yes you should drink more water. Some scientificness:

Drinking water helps nearly every part of the human body function. Considering that our flesh vessels are almost 50-80% water, depending on how much body fat you have, understanding its important role in our lives can be a fountain of health. Water makes up more than 75% of your brain, 80% of your blood and 70% of lean muscle. Absolutely every system in the human body depends on water. H2O regulates body temperature, removes wastes, carries much-needed oxygen and nutrients to your cells, helps cushion your joints, prevents chronic constipation, alleviates the burden on your already-stressed kidneys and liver, helps reduce headaches and dizziness, aids in digestion and dissolves vitamins, minerals and other nutrients so you can utilize them better.

Rachel--24 Collaborator

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

queenofhearts Explorer

I completely agree. Here's the thread:

Open Original Shared Link

Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

Wow, you even "Rachel" water!

Green12 Enthusiast
Yeah...and I actually do feel better when I make a consious effort to drink more. Well....except for when I drink massive amounts all at once and disturb the alien baby....then I dont feel so good. :(

:lol::lol::lol::lol::lol:

That's the thing about drinking water, not too little, not too much. A happy medium, imo at least.

Oooh I found some more scientificness about histamine and uticaria (hives) and angioedema:

Urticaria and angioedema symptoms result primarily from the physiological actions of histamine. Some individuals with urticaria have a decreased ability to degrade dietary histamine before it enters the circulation. Foods high in histamine, such as fermented foods, may exacerbate urticaria and angioedema in these individuals. Certain food additives may increase endogenous release of histamine and urticaria and angloedema symptoms

Plasma histamine, an important mediator of urticaria (hives) and angioedema, may be increased by diet through two mechanisms. First, under normal conditions, dietary histamine is degraded in the intestine by mucosal diamine oxidase enzyme (DAO); this prevents histamine's entry into the circulation. However, in chronic urticaria, DAO activity is decreased (1) and dietary histamine may increase plasma histamine (2). Second, certain foods and food additives may increase the endogenous release of histamine (3,4); this results in increased plasma histamine.

All very interesting to me since I have angioedema, but you know how many posts I come across on this board about people having hives/uticaria? It all has to relate somehow to the digestive process, lowered/heightened immunity, multiple food intolerances/allergies ...

And another thing, through my research I found out that meds for heart burn/reflux/GERD are mostly H2 blockers, as in histamine 2 blockers.

Duh, duh, duh....


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rachel--24 Collaborator
Wow, you even "Rachel" water!

ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

CarlaB Enthusiast
ROFLMAO!!

That almost made me spit out the water you guys have inspired me drink now. :lol::lol:

Ummm...no I dont usually pull a Rachel with the water...it was a requirement for my ultrasound. I had to do it twice so far. They want you drinking 40 oz. of water an hour before the test. Then you have to hold it for over an hour until they let you relieve yourself. Not fun I tell you. <_<

Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

queenofhearts Explorer
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Hey, she had an alien baby!

morganb Newbie
Hey, she had an alien baby!

lol :lol:

Canadian Karen Community Regular
Wait till the day comes when you have to do that and you have a baby in there kicking your bladder!!! :D

Got that right - only try twins!!!!! :blink:

queenofhearts Explorer
Got that right - only try twins!!!!! :blink:

Hey, Karen, I have twin boys too! They're 19 now... but I remember that feeling!

Leah

VydorScope Proficient
Well, I only add bulk and nothing useful, so I'm leaving the thread.

Hope you all feel better!

:(:(:( Your welcom here!!!

Rachel--24 Collaborator
Got that right - only try twins!!!!! :blink:

I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

queenofhearts Explorer
I dont know how people do it...carrying around 2 and even 3 or 4 babies all at once??? :blink:

I would like mine one at a time please. :D

Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Rachel--24 Collaborator
Actually I was really sick when I was pregnant & when they told me it was twins, my first thought was "Thank God, I'll never have to go through this again!" (I really wanted 2 kids.) Of course the extreme nausea was probably from my undiagnosed Celiac.

Yeah...I used to think it would be the greatest thing...having twins. Not so much anymore though. One please. :D

That'll be fine for me.....two at once would wear me out for sure.

miamia Rookie
Ok...so its almost the end of the day and my big orange jug is soooo not full....as predicted. In fact....I barely reach the lowest measuring line on the jug. <_<

I hope this is gonna be enough for them to find all the histamines. :unsure:

Miamia, is yours half way full? The directions say drink less than normal...I hardly drink anything while I'm at work so I'm actually drinking more today than normal and still...I got a near empty jug.

I really should drink more water. I can never do it though. 8 glasses a day...maybe I would feel better??

Ok Rachel-

I just had my blood work done and dropped off my orange jug o'pee . Mine was pretty full. I drink alot during the day normally. You should too. the best thing to do is to drink water beween meals, but less with meals becasue if you drink alot while you eat you wash away the enzymes and acids you need for digestion and we now you and i don't have the best digestive systems as is.- Hope this is helpful.

Miamia

Canadian Karen Community Regular

Your urine collection reminds me of the hell I went through last year doing the stool collection in a paint can! When the doctor said to me to collect everything in a paint can (which they so generously provide), I said "Ah, I think I need more than one paint can". He didn't believe me, but said to pick up two anyway. Sure enough, 24 hours later and 1 and 1/2 cans later, I proved him wrong! Man, I really, really felt sorry for whoever worked in that lab and had to open up those cans! Can you spell T-O-X-I-C?????

Anyway, when I went back to see him, he said that the volume of diarrhea that I had was almost double what the maximum normal amount usually is......... I refrained from saying "I told ya so........." :rolleyes:

elisabet Contributor

Rachel,

It is very intresting ,the histamine test,so if you have elvevated histamine level,(I guess ,you would)

what is the next step.? do you have any plan?

by the way your idieas and theories are wonderful.

elisabet

Jean-Luc Rookie

Drive-by posting?????

Penguin -- you're leaving the thread ----- :(:(:( Why?

Weekend went well, dad seems normal, but tells me he is in a lot of pain.

I have too many pages to catch-up on. What is this about a Rachelville 2 thread?

Jean-Luc Rookie

Ok, I had a pre-mature post --- :lol:

I found the other thread.

Guest Robbin

:) Hi All! I am recovering from the trip. Not good at all. Celia, your post/quote was so beautiful, it made me cry.

Rachel, you have helped me so much on this thread and I am sorry, I was one of the culprits who was a little too wacky and didn't stay on topic enough. :(

I have had so many "aha" moments on here. I would be forever questioning my own sanity had it not been for others who, to my astonishment, have the same or similar symptoms as I do. Corn, sweet potatoes, beans, tapioca, some waters, etc. have all been problems for me and when I read that someone else has the same problems and is looking for the answers too, well it is like finding a long lost sister (or brother). It makes you feel not so alone, miserable and nutty.

I am so glad to know all of you.

Celia, the coffee--I have been so sick the past three days, but a cup of coffee and (sorry) a nicotine fix along with immodium has kept me from wanting to end it all, (kidding only a little :blink: )

Mia, and Rachel, the pee jug is also used for kidney function testing-diabetics regularly have these too. Half my family at one point or another has a pee jug in the 'fridge, lol.

Judy -when you had your pee experience, they probably gave you a diuretic of some sort. I am sorry it was so miserable for you, but honestly it made me laugh and dear one, I NEED all the laughs I can get right now.

This whole miserable disease has got me so low I can see worm belly. It is also a non-fun dysfunctional-fam thing type depression thingy that I will survive :blink: (lots of wordage there, lol)

Thank you for the prayers for the safe trip. All I can say is the angels must have been watching over us, cause we had so many near misses. I vow to stay home for a good long time, lol.

Love, R

rinne Apprentice

Good morning everyone, I haven't been able to post on this thread for a couple of days, from my computer, and this is a test.

AndreaB Contributor

Hi Rinne,

Do you know about Rachelville 2 thread?

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    3. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    4. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      42

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    5. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,387
    • Most Online (within 30 mins)
      7,748

    LizzieE
    Newest Member
    LizzieE
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Thanks for the thoughtful reply and links, Wheatwacked. Definitely some food for thought. However, I would point out that your linked articles refer to gliadin in human breast milk, not cow's milk. And although it might seem reasonable to conclude it would work the same way in cows, that is not necessarily the case. Studies seem to indicate otherwise. Studies also indicate the amount of gliadin in human breast milk is miniscule and unlikely to cause reactions:  https://www.glutenfreewatchdog.org/news/gluten-peptides-in-human-breast-milk-implications-for-cows-milk/ I would also point out that Dr. Peter Osborne's doctorate is in chiropractic medicine, though he also has studied and, I believe, holds some sort of certifications in nutritional science. To put it plainly, he is considered by many qualified medical and nutritional professionals to be on the fringe of quackery. But he has a dedicated and rabid following, nonetheless.
    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.