Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Oh Man...three Months Of Thinking I Was gluten-free...


MauriceGreene

Recommended Posts

MauriceGreene Rookie

Arg, I just found out that a good amount of spices I was using in my everyday cooking had WHEAT FLOUR and WHEAT STARCH in them. Stuff like ginger and pepper. WHY WOULD YOU PUT WHEAT INTO GINGER :angry::angry::lol:

My question is, is it enough to still make one feel sick? Can it be attributed to my only 50% improvement of symptoms??? Was it just as bad as not going on the gluten free diet?

Thanks in advance...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



brendygirl Community Regular

Don't be surprised about the "little" amounts of gluten that can make us sick. Lots of us are even worried about gluten in shampoo and soap since that can get into your mouth when you rinse yourself.

Yep, it's a sneaky world. Don't worry, you'll get it. When you know better, you do better!

Lisa Mentor

MG:

Yup, any ingestion of gluten will cause damage and slow the healing process. Often, gluten is in the last place that you would look. :blink:

I generally buy McCormicks spieces, as they will always list and their natural species generally will have no gluten. But, as always, read the labels.

Once you get a handle on reading lables, it's down hill from there. (And always remember, ingrediences change. So what you bought a year ago, may not be the same as today). That is something that I have to constantly remind myself.

Make a small change and get to that 100% :)

kbtoyssni Contributor

Yes, that will be enough to make you sick. At least you realized your spices have wheat in them now rather than later. I screwed up a lot in the first six months so you're certainly not alone.

I agree that it's silly for spices to have gluten in them. Most spices are gluten-free, you must have just gotten unlucky with your brand.

Sweetfudge Community Regular

Such a pain I know! I was diagnosed in June, and I just found out last month that vanilla flavoring has gluten in it. lol!! Lame cuz I'd used it a lot in baking! That nasty gluten is hiding just about everywhere!

NoGluGirl Contributor
Such a pain I know! I was diagnosed in June, and I just found out last month that vanilla flavoring has gluten in it. lol!! Lame cuz I'd used it a lot in baking! That nasty gluten is hiding just about everywhere!

Dear Sweetfudge,

According to Amanda's Mommy's Blog, Durkee's liquid extracts and food colorings are all gluten -free. Her blog has helped me a lot. :) I love to bake, so it is a must to know about these things! I have only been gluten -free for about three months. Poor Maurice, I can relate to his situation. Calling manufacturers is the best way to know for sure. When in doubt, do not eat it! k

Sincerely,

NoGluGirl

darlindeb25 Collaborator

Sweetfudge, real vanilla doesnt have gluten.

Also remember that McCormick spices are gluten free, but not their mixture spices--such as the seasoning spices. Be careful with that--keep your spices simple.

The one thing I always tell people to help them understand how much gluten it takes to make us ill: one piece of bread broken into 1000 crumbs and it only takes 1 crumb, 1/1000th of a slice of bread to make us ill. So yes, the tiniest amount of gluten will keep you from recovering.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eKatherine Apprentice
WHY WOULD YOU PUT WHEAT INTO GINGER :angry::angry::lol:

So it won't get hard lumps in it.

Guest nini

McCormicks Vanilla Extract is also gluten-free, so is Flavorganics brand extracts and Publix brand Vanilla Extract.

I use mostly Simply Organic Spices, or McCormick's spices. The spice blends I use are from The Gluten Free Pantry.

jaten Enthusiast
Arg, I just found out that a good amount of spices I was using in my everyday cooking had WHEAT FLOUR and WHEAT STARCH in them. Stuff like ginger and pepper. WHY WOULD YOU PUT WHEAT INTO GINGER :angry::angry::lol:

My question is, is it enough to still make one feel sick? Can it be attributed to my only 50% improvement of symptoms??? Was it just as bad as not going on the gluten free diet?

Thanks in advance...

Which brand?....I want to double-cherck my spice rack!

Mtndog Collaborator

Maurice- First of all Welcome! I'm sorry that this happened to you. The learning curve on the diet can seem brutal at first. I got glutened by Tropicnana lemonade 6 months into the diet....now I ask you, what is wheat doing in lemonade? Ugh! It's a lot of reading labels, research etc. but I bet you will start to feel better once you get rid of those spices.

Like others here, I stick with Mccormick plain spices (not mixes), Simply Organic and Morton and Basset. For spice mixes, I make my own or buy gluten-free Pantry. But it's esay enough to replicate their mixes.

Again, sorry this happened to you and hope you're feeling better soon! B

PS Jaten- I am still so in love with your pup! What a beauty!

MauriceGreene Rookie
Which brand?....I want to double-cherck my spice rack!

Masterfoods, i dont know if its in the US though...Thanks all for the replies, this feels like a kick in the teeth. But yes hopefully I will really start feeling better now. Thanks.

Aerin328 Apprentice

I had a similar experience recently. I was at the grocery store and I saw a beautiful tray of hot yummy lemon peppercorn chicken. I asked the cook about the gluten, they said it was gluten-free. Regardless, I asked if I could check the ingredients list on the spice they used... the list looked OK to me, so I promptly purchased and consumed the chicken whole-heartedly. OMG. D, brain fog, malaise, ICK! Lesson to be learned : don't trust generic looking spice mixes!

I feel like I'm on a never ending witchhunt! Only been gluten-free about 4 months, and I'm definitely still learning.

Judyin Philly Enthusiast

i USE MC CORMIC GRINDERS ESP THE GARLIC PEPPER ONE AND THOUGHT SURE IT WAS gluten-free BASED ON A CALL I MADE.

I'VE ALSO NOTICE ALOT OF PRODUCTS SINCE THE 'LABELING' LAWS HAVE ADDED SOY POWER THAT WAS NEVER IN THEM BEFORE....OR WILL SAY OIL (SUNFLOWER, SOYBEAN,CANOLA..YADAYA...AND LISTS 10)

CALLED AND THEY SAID, 'WELL WE DON'T KNOW WHICH SUPPLIER WILL BE THE BEST BUY EVERY WEEK SO WE LIST THEM ALL AS DON'T KNOW WHICH ONE WE WILL BE USING.." :blink: SO WE'RE STILL DOING 'RUSIAN ROULETTE" RIGHT..GRRRRRR. :ph34r:

JUDY

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to lmemsm's topic in Gluten-Free Recipes & Cooking Tips
      13

      gluten free cookie recipes

    2. - Russ H replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

    3. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      15

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,915
    • Most Online (within 30 mins)
      7,748

    DRIZZE
    Newest Member
    DRIZZE
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      very interesting thanks for the info  
    • Florence Lillian
      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
    • Scott Adams
      We just added a ton of new recipes here: https://www.celiac.com/celiac-disease/gluten-free-recipes/gluten-free-dessert-recipes-pastries-cakes-cookies-etc/gluten-free-cookie-recipes/
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.