Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Wonderful Story


happygirl

Recommended Posts

happygirl Collaborator

I was in my best friend's wedding this past weekend in PA. Something awesome happened and I had to share:

Many of you on the board know that I am having post-Celiac/non-Celiac related health problems as of recently (February), with my problems increasing in the past few months. I have lost a great deal of weight and my parents have moved in with me to help me out (just moved to take a new job and husband has not moved yet). I have given up much in my life but refused to give up this wedding. I've been friends with Meg since I moved to PA when I was 16 and she was the maid of honor in mine...and I was the matron in hers.

At the reception, after I gave the toast and dinner started (I brought my own food because of my multiple food reactions), I found out that Meghan and Brian had done something for me as a surprise. Instead of using money to buy favors for the wedding guests, they instead chose to make a donation to the Celiac Disease Foundation in my name. They said they wanted to do something for me, since they know what I have been going through, and thought it was the best way to honor me. They had a write up about it (didn't mention me by name because they didn't want to call attention to me) and placed it in a 5x7 frame that was on the main table for everyone to see when they came in (to get the name and table assignment).

They didn't tell me until after my toast because they didn't want to have me start crying...but my parents were there and had seen me, and finally told me....my mom cried, then I cried, then I found Meghan and Brian, and she cried, and etc etc etc. Apparently the whole wedding party knew but hadn't told me so I could get through my toast...and wanted it to be a surprise. Talk about the best surprise and the most thoughtful thing anyone has ever done for me...and in honor of Celiac and my health....makes it all the more special.

I just had to share, because the world in general, is not accepting or necessarily supportive of Celiac...but there are people out there who are wonderful and good-hearted! What a great weekend it was!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Aerin328 Apprentice

That's an awesome story!

jmengert Enthusiast

Just reading that brought tears to my eyes; what a wonderful best friend you have, and what a great story!

Guest nini

now that is heartwarming! thanks for sharing

TinkerbellSwt Collaborator

Wow.. that is such a great story. I too have tears in my eyes. They must be such special friends.. what a touching thing to do.. you are a very lucky woman to have such great people in your life. Sounds like they are truly blessings..

tarnalberry Community Regular

That is really awesome of them! I'm glad you were able to make it to the wedding.

happygirl Collaborator

Honestly, I wish everyone could've been there to see it. It was so overwhelming and wonderful. They had done so many things to try to make the weekend easy for me and this was just the icing on the cake. I even took a picture with the frame (which they sent home with me). Her family and his family was so supportive of me. Apparently, Meg and Brian had told them all of what I have been going through recently, so I had people that I had never met (parts of his family) were coming up and telling me they were praying for me to find answers, and they hoped that I got better, etc. It was honestly just an amazing night....I am so lucky to have friends and family like that!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



i canary Rookie

Thanks for sharing your wonderful story. I've gotta go find a kleenex, my eyes are leaking....

Guhlia Rising Star

Yup, me too... A little misty over here. What an awesome story and an even MORE awesome friend.

Guest zoomom

You must have some wonderful friends!

Thanks for sharing,

Robin

SchnauzerMom Rookie

What kind and thoughtful friends you have. Thanks for sharing with us.

Lisa Mentor

Laura, keep those special people close. :)

Judyin Philly Enthusiast

Laura

you sure deserve all the kindness shown by your dear friends.

So happy you had such a great tribute and good time at the wedding.

thanks so sharing with us this wonderful story.

hugs

judy

Ursa Major Collaborator

Wow, now you made me cry, too. :rolleyes: How wonderful.

jayhawkmom Enthusiast

Woops.... my eyes are leaking now too!!

What wonderful friends, you are certainly a lucky person to have such kind and caring friends.

I just loved reading this!!!

daffadilly Apprentice

Thank You for posting this, now that is what I call a real friend.

I read your allergy list, I used to have a list about like that, mine is almost all gone except for a few, so hang in there, I think it will get better for you.

Saz Explorer

That is so nice of them.

I've recently being trying to go gluten-free again after to long of been really bad. One of my friends has sent me recipies, info and websites, that she says she has been given or accidently come across. I'm not sure if she if this was the case or if she looked for them delibratly, but its nice that shes been so supportive.

mamaw Community Regular

That is beyond friendship, that is thick as blood. What special people you all are...Hang on to that friendship , it is so awesome.

What part of Pa do you reside???

blessings

mamaw

2kids4me Contributor

What a wonderful gift to you! With friends like that, you will get through anything! :)

I had to wait til I stopped tearing up after reading your wedding story.

Thanks for the gift to us in sharing it...

Sandy

AndreaB Contributor

Such a beautiful thing to do for a wonderful person. You have wonderfuls friends and parents too. :)

Nantzie Collaborator

Another cryer here... Give them extra hugs and thanks from us for being such wonderful people.

Nancy

casnco Enthusiast

Now there is a real friend. Thanks for sharing a positive.

GFinVA Newbie

Laura - I'm glad to hear that you had such a great weekend! Looking forward to catching up soon :)

Alison

happygirl Collaborator

This is why I had to share---I knew YOU guys would appreciate it and know what it really meant. Its amazing when your friends become like family and support you through anything.

Luckily, I have great friends all around---just today I had 9 of my best girlfriends from Penn State send me roses (sick from undiagnosed but non-Celiac related issues....long story.)

Imagine if yall teared up over this---what I was like at the reception! And I'm a crier anyways! You should have seen my mom and I- it was pathetic, but in a good way. :)

mamaw-my dad is military and so we moved around a lot. I lived in philly for two years, then moved to mechanicsburg, outside of harrisburg. my parents have kept them home there, and my parents have split their time between PA and VA. After graduating from high school in Mech, I went to Penn State for four years, moved to Auburn for my graduate degree, moved to Virginia Beach for a year (first job) and just moved to Northern Virginia last month for my dream job. Sigh. That makes me tired just thinking about it. Wedding was in Camp Hill (town next door to M-burg) and reception was in hershey.

Alison-hey girl. I'll write you an email, hopefully tomorrow :)!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    2. - SilkieFairy replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      IBS-D vs Celiac

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,338
    • Most Online (within 30 mins)
      7,748

    Erica Johnson
    Newest Member
    Erica Johnson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
    • SilkieFairy
      Thank you both for the replies. I decided to bring back gluten so I can do the blood test. Today is Day #2 of the Challenge. Yesterday I had about 3 slices of whole wheat bread and I woke up with urgent diarrhea this morning. It was orange, sandy and had the distinctive smell that I did not have when I was briefly gluten free. I don't know if it's a coincidence, but the brain fog is back and I feel very tired.   
    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.