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"newbies" How Did You Find This Website?

par18

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par18 Apprentice
par18
Posted

Just curious how you found this site. Also did recent publicity on CBS, USA and CNN have anything to do with searching for it? Also welcome aboard!

Tom

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dlp252 Apprentice
dlp252
Posted

I actually found out through a co-worker, never had heard of it before.

OOOPSSS, I see that you asked newbies, lol...although sometimes I still think of myself as one. Sorry! :P

par18 Apprentice
par18
Posted
  • Author
I actually found out through a co-worker, never had heard of it before.

OOOPSSS, I see that you asked newbies, lol...although sometimes I still think of myself as one. Sorry! :P

No apology necessary. Actually anyone can answer. I myself found it by searching my symptoms shortly before my diagnosis last year. I just did not find it soon enough.

Tom

Sweetfudge Community Regular
Sweetfudge
Posted

I was told by my nutritionist. I actually think she referred me to the celiac.com site, and I found the forum from there :) Glad I did too!

Looking for answers Contributor
Looking for answers
Posted

Googled gluten intolerance and found the site! B)

gadgetgirl Newbie
gadgetgirl
Posted

After reading Brostoff's Food Allergies and Food Intolerances book, I was looking for tests to supplement what I was trying to accomplish with a food elimination diet. Found the Enterolab website and then was googling to find out what people had to say about their tests and that is what led me here!

i canary Rookie
i canary
Posted

I'm not a newbie either, but my doctor told me about the website. Her daughter had celiac disease.

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jerseyangel Proficient
jerseyangel
Posted

Well, since you don't have to be a newbie...

I stumbled onto the board about 4 months after I was diagnosed. I was researching an ingredient in my digestive enzymes, and came upon a discussion about it here. :)

Adelle Enthusiast
Adelle
Posted

I did an internet search for celiac support groups. This one looked cool and loaded on my sidekick (I don't have a computer) easily. Thank you google! Lol!

marciab Enthusiast
marciab
Posted

I was googling wheat free bread recipes, found the word gluten, googled gluten and wala ... I have been here ever since ... Love this board ... :) I would have never figured out this diet without this board ...

Marcia

super-sally888 Contributor
super-sally888
Posted

Hi,

Googled celiac. This site came up.

Sally

SchnauzerMom Rookie
SchnauzerMom
Posted

I was searching the Net for info on celiac disease and gluten free diets and this site came up. I am very glad that I found it. It has helped a lot.

mamazoocrew Newbie
mamazoocrew
Posted

My mom saw the CBS show and she called me. She told me it what she saw mimiced much of what my daughter and I have been going through for years! We have had bloodwork done and sent to promethius labs and are still waiting for results! I found your site via the web when I began my research.

Yenni Enthusiast
Yenni
Posted

I did a search about gluten intolerance on Google and this place came up. I started reading some and found a lot of good information and VERY friendly people. So I signed up. I think I wouldn't have done half as well without this place. :)

georgie Enthusiast
georgie
Posted

I found it talked about on a Thyroid yahoo list.

Peta Explorer
Peta
Posted

Was curious to know more about Celiac since my son was told their was a strong possibility he had it.

I "Googled" and found this site.

It's wonderful...and SOOOOO informative!!!

Peta

Guest nini
Guest nini
Posted

since you don't have to be a newbie to answer...

I found this site when I was ordering food from the Gluten Free Mall, I was looking around the web site and noticed Message Board links... and since I am a message board junkie I thought, hmmmmm I just HAVE to check THIS out!

I found the Gluten Free Mall through Google.

prinsessa Contributor
prinsessa
Posted

I found this site after googling "Celiac Disease". My mom mentioned I might have it since I was having chronic diarrhea. I think she might have it too, but she doesn't seem to want to get tested (not that testing always works).

CarlaB Enthusiast
CarlaB
Posted

I found celiac.com when I googled celiac disease.

I'm really wondering whether some of our current newbies are here as a result of any of the recent publicity on celiac disease.

kbtoyssni Contributor
kbtoyssni
Posted

I found the site by googling celiac.

Rebecca47 Contributor
Rebecca47
Posted

I found it by accident lookig on celiac.com and just go down and clicking on everything in the index. YAHOOO!

Now I can't get off of it.

rebecca :rolleyes:

AndreaB Contributor
AndreaB
Posted

If I remember correctly I was searching for gluten intolerance info. I found celiac.com and later clicked on the message board.

Can't get me off of here now. :)

linds Apprentice
linds
Posted

my nutritionist directed me to celiac.com and told me that I could finda message board there that would be a great deal of help.

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      What's your daily meals? Protein bars?

      By xxnonamexx · Posted

      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
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      Labs ? Awaiting in person follow up with my GI

      By trents · Posted

      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
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      Labs ? Awaiting in person follow up with my GI

      By Seabeemee · Posted

      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
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      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
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