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Hello From A Newbie!


playtowin123

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playtowin123 Newbie

Hi out there. I wanted to introduce myself to everyone. I've been

searching the web for info about celiac disease and found this board.

I've never thought about joining a board before, but after reading through

some posts, i'm happy I did. I just want to say thanks to everyone for the

support you offer eachother here.


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dlp252 Apprentice

Hello and welcome! Yes, it's a pretty nice place to come to! :)

jerseyangel Proficient
Hi out there. I wanted to introduce myself to everyone. I've been

searching the web for info about celiac disease and found this board.

I've never thought about joining a board before, but after reading through

some posts, i'm happy I did. I just want to say thanks to everyone for the

support you offer eachother here.

Hello and welcome! :)

I'm glad you decided to join. If there's anything we can do for you, just ask.

katrinamaria Explorer

WELCOME! :D

so glad you decided to join. and i'm sure you'll soon find out that you're glad you did too! :)

Corkdarrr Enthusiast

Welcome! Glad you found the board. I hope you find it as helpful and supportive as I have.

Courtney

Laurad- Apprentice

Hi! B)

VegasCeliacBuckeye Collaborator

Welcome!

Ask anything you want...


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lonewolf Collaborator

Welcome! Feel free to jump right in!

Creative-Soul Newbie

Glad that you decided to join us! This is a wonderful place to be...I have found that there are great, supportive people here!

missy'smom Collaborator

Welcome!

tarnalberry Community Regular

Welcome! This place is a fabulous resource!

Ursa Major Collaborator

Welcome to our board! I hope you'll find the help and support you need here.

babygirl1234 Rookie

welcome :)

kevsmom Contributor

Welcome!

I know that you will find this board as helpful as I have. When you have a question, just ask. Someone will find out the answer for you.

Cindy

happygirl Collaborator

playtowin:

I never thought I'd join a forum either! I read for months before I finally joined---I was too scared! This was my first one and I must admit, this is one of the best out there!

We are happy you have found us. Hope to see you on here often!

Laura

Carriefaith Enthusiast

Welcome :)

kbtoyssni Contributor

Welcome!

Guest LJannise

Hi!! Nice to see you here.

Rebecca47 Contributor

Hello and welcome ;)

Ask away and remember there are no dumb questions. So what ever it is you want to know just ask.....

Lots to learn, and there are very knowledgable people on the board. :rolleyes:

Also very nice people, who welcome you with open arms........

playtowin123 Newbie

Thanks everyone!! I was doing some research and I found this site called realhealth.tv which has a great video. I think everyone here would really like watching this film b/c it was really nice hearing and watching someone talk about their difficulties and how they cope. I wanted to share this with everyone here, hoping It would help you guys too. Here is the link: Open Original Shared Link

Keep strong everyone!

SchnauzerMom Rookie

Hi and welcome. I'm glad you decided to join. I don't post a lot but I come here almost everyday just to read and learn.

playtowin123 Newbie
Hi and welcome. I'm glad you decided to join. I don't post a lot but I come here almost everyday just to read and learn.

Thanks SchnauzerMom! I hope you liked that video!

blueeyedmanda Community Regular

Welcome! You will find a lot of support and advice here, I know it has helped me.

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    • xxnonamexx
      very interesting thanks for the info  
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      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
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      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
    • cristiana
      Hi @Charlie1946 You are very welcome.   I agree wholeheartedly with @knitty kitty:  "I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants." I had a type of tingling/sometimes pain in my cheek about 2 years after my diagnosis.  I noticed it after standing in cold wind, affecting  me after the event - for example, the evening after standing outside, I would feel either tingling or stabbing pain in my cheek.   I found using a neck roll seemed to help, reducing caffeine, making sure I was well-hydrated, taking B12 and C vitamins and magnesium.  Then when the lockdowns came and I was using a facemask I realised that this pain was almost entirely eliminated by keeping the wind off my face.  I think looking back I was suffering from a type of nerve pain/damage.  At the time read that coeliacs can suffer from nerve damage caused by nutritional deficiencies and inflammation, and there was hope that as bodywide healing took place, following the adoption of a strict gluten free diet and addressing nutritional deficiencies, recovery was possible.   During this time, I used to spend a lot of time outdoors with my then young children, who would be playing in the park, and I'd be sheltering my face with an upturned coat collar, trying to stay our of the cold wind!  It was during this time a number of people with a condition called Trigeminal Neuralgia came up to me and introduced themselves, which looking back was nothing short of miraculous as I live in a pretty sparsely populated rural community and it is quite a rare condition.   I met a number of non-coeliacs who had suffered with this issue  and all bar one found relief in taking medication like amitriptyline which are type of tricyclic anti-depressant.   They were not depressed, here their doctors had prescribed the drugs as pain killers to address nerve pain, hence I mention here.  Nerve pain caused by shingles is often treated with this type of medication in the UK too, so it is definitely worth bearing in mind if standard pain killers like aspirin aren't working. PS  How to make a neck roll with a towel: https://www.painreliefwellness.com.au/2017/10/18/cervical-neck-roll/#:~:text=1.,Very simple. 
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