Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Poll


L.A.

Recommended Posts

L.A. Contributor

Hi: I ate at a so called "safe" restaurant once...the owner had celiac's so the staff was suppose to have the whole gluten free thing down pat--not! They put regular croutons on my salad. Now I'm afraid to eat out. I read a number of posts where people are being glutened at restaurants even though the food should have been safe. So my question is--who eats out and who doesn't and why? Thanks! L.A. :P


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



7-cody Apprentice
Hi: I ate at a so called "safe" restaurant once...the owner had celiac's so the staff was suppose to have the whole gluten free thing down pat--not! They put regular croutons on my salad. Now I'm afraid to eat out. I read a number of posts where people are being glutened at restaurants even though the food should have been safe. So my question is--who eats out and who doesn't and why? Thanks! L.A. :P

I don't eat out as much anymore. And if I do, it's either Outback, Roadhouse or Chili's. Sometimes I go to other restaurants with my friends, if I do, I get plan lettuce with chicken salad or something.

kabowman Explorer

I eat out but the number of places I trust is very limited. I run into problems when we travel but don't always do too bad.

tarnalberry Community Regular

I eat out, but at a limited number of places. I'll go out and not eat at many places, but there are only a few places at which I'll eat. I just crossed one of those off my list from uncertainty, actually - Mediterranean Kitchen is supposed to be gluten free, but my stomach hasn't been quite happy two of the four times after I've eaten there. There isn't a whole lot of room for contamination, and it's very rich food, so it's hard to compare against the non-standard-for-me symptoms, but I've ruled it out as I'm unsure.

kbtoyssni Contributor

I think I'm in the minority, but I eat out more post-diagnosis than I did pre-diagnosis. I'm sure part of that is my symptoms of glutening aren't that bad so if someone does screw up, I'm at least still mostly functional. I have places I trust that I go to a lot, and I've gotten good at asking for things that will be safe and knowing what ingredients to question. It's risky, but I also want to live my life. I live alone in a completely gluten-free house, so eating out is my only risky behavior.

Jestgar Rising Star

Limited places. I only go somewhere new if I'm prepared for a hassle (which doesn't always happen).

Which reminds me that I need to plug a Seattle restaurant.

SillyBoo Newbie

I don't eat out at all. Ever. I tried it 3 times - same place, same thing all 3 times. It's a restaurant where our local Celiac support group goes for meals. But the 3rd time I got so sick, and I haven't been back since (that was at least 6 months ago). I also rarely eat anything at someone else's house, or that someone else made. The consequences are too serious for me - I'm unable to think clearly or function really for more than a week afterward.

The good news is that I really like my own cooking, and I have always tended toward basic whole foods made from scratch.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Green12 Enthusiast

I do not, with my additional intolerances it's just too risky for me.

I have had Chipotle, chicken and rice bowl, a few times with little problems but I don't feel 100% sure about it to do it very often.

jerseyangel Proficient

I don't order food out at all. Just too many things I have to watch out for, and I'm so sensitive to gluten that it isn't worth it for me.

We do go to a couple of places where my husband can buy a meal and I can bring my own food. I also go to Starbucks for tea.

gdobson Explorer

We only eat out on special occassions like birthdays. And then it's only Outback and PF Changs that I am confident in. I've had too many mishaps. Definitely not worth the risk.

But I do miss it sometimes! :(

alamaz Collaborator

i eat out but only at places i trust and rarely try a new place. and i definitely don't eat out as much as i did pre diagnosis. it's very challanging for me to eat at other peoples homes as well. last weekend we were at my sisters. they did steaks on the grill. something told me not to eat it and stick to the food i brought. in the middle of the night my husband, who is gluten intolerant and doesn't get glutened very easily, was up with the big D. :( i'm soooo glad i didn't eat off that grill! three weeks ago i went out to a higher end restuarant and too honest with you- i cook better tasting food at home. and this was a very popular place with gluten free menu. it just didn't do anything for me like it used to. but i definitely have my days when take out sounds heavenly!

codetalker Contributor

I avoid eating out as much as possible, mostly due to additional intolerances.

WW340 Rookie

Prior to diagnosis, we ate out all the time. Now we rarely ever eat out, because I almost always get sick if we do and I stay sick for about 2 weeks.

It was a big adjustment for us, but hubby is the one that finally said that it wasn't worth it.

Besides, now that I have to eat at home I have become a really good cook :D

~alex~ Explorer

I haven't eaten out since being diagnosed but I am really starting to want to. My fiance and I used to go out for supper with friends every other Friday and I really miss that. I've been contemplating trying either the Outback or the Keg but I'm scared. I don't seem to have too many other foods that bother me so maybe it wouldn't be too hard. If I do decide to eat out it will probably be infrequently, only on special occasions.

DingoGirl Enthusiast

I also live alone in a gluten-free house, so I do eat out with regularity. I had problems a couple of times in the very beginning, but not any more. I usually go to the same restaurants adn have gotten to know the staff, and if f I go to a new place, I speak quietly and privately to the chef or kitchen manager, and they have always been surprisingly adept at figuring things out or are already pretty knowledgeable. Also - I find that small, private bistros are the best way to go, using fresh, pure ingredients.

But - gluten is my only intolerance, nothing else, so it's not that bad.....

MySuicidalTurtle Enthusiast

I love eating out but mostly stick to my regular places. I am a vegan, too, so that can always be an issue. Sometimes you just have to try until you find a place that is right!

Centa Newbie

I don't eat out much but when I do I nearly always get a salad.

Poached things, occasionally...I'd probably risk roasted things, if they spit roasted them and the basting passed muster.

I learned about P.F. Chang from this site...it turns out that we have one, so I'll be checking it out

HouseKat Apprentice

I eat out quite a bit. I go to a Japanese restaurant for sushi, and I take along my own gluten-free soy sauce. I get chili, baked potatoes, and salads from Wendy's. We have a great Mexican restaurant that uses 100% corn chips, and I ask them to substitute corn tortillas for any dishes usually made with flour tortillas. Once or twice a month a vegetarian friend and I go to a Chinese restaurant where he is friends with the owner and the staff, so they are great about taking care of our special dietary needs.

aikiducky Apprentice

I eat out very seldom but mostly I've been fine. I always talk to either a manager or the chef.

The only reason I ever do it though is for the company, I like my own cooking much better than most things I've ever had at a restaurant.

Pauliina

lmvrbaby Newbie

I usually make foods at home or my husband cooks as I work 4 evenings a week. I am the only one in the house that is gluten free as my hubby and two kids at home are not. If there is something that I can not have that they are having I make myself something I can have. I have been looking for fast pre made items such as soups or microwave dishes, and have come across Thai foods. Not all but a few are and say gluten free on the package and I also check ingredients.

When I go out with friends, one friend in particular, always says we need to go somewhere where "Lisa" can eat at which is nice, as I don't have to sit and watch them or eat just a salad. Those are the kind of friends everyone should have.

The more people who know of Celiac or gluten free the more ask if anyone has allergies and such before a group of us go out to eat. Nothing like going out with friends to enjoy yourself and not being able to have input on where you go. Everyone should be able to enjoy themselves and not a select few.

So I go out when possible, between being able to afford it, work and schedules.

L.A. Contributor

Thanks for the input--you guys are great. I guess I need to find a place that offers gluten-free items and perhaps go in and talk to the staff to get a good comfort level and give it a try--what have I got to lose...my dinner? :lol: L.A.

missy'smom Collaborator

I'm not a big meat eater. I don't enjoy a good steak so that limits my choices. I get very sick from CC and it's just not worth the risk. I spent so many years of my life feeling sick. I want as many good days as I can. I don't try new places often. My support group is starting to go into restauraunts in our area that they think will work and teach them how to do gluten-free and setting up dinners out with a choice of 3 entrees. That way we can expand our options. They also have a list of restaurants and members recommendations on their website.

There are 4 restaurants that I will eat at. Three have gluten-free menues and have consistantly provided me with safe meals and where mistakes if made are readily visible(crouton, garnish..) The last one is a local Indian restaurant run by a family, that serves very simple all-natural curries. I eat there almost every weekend. For some reason their food feels better in my body than the meals that I cook at home(not a gluten thing)!

Good luck in finding something that works for you. :)

bakingbarb Enthusiast

This is so new to me that eating out is scary. BUT my daughter and I used to go out to eat for some us time so out we went. That was 2 days ago and yesterday I paid for it. Lettuce, tomato and chicken breast. I explained and they were fine with trying but forgot and put packages of crackers on my plate :huh: It was amusing to say the least. I mean here they run back and forth trying to find a salad dressing I can eat but put the packaged crackers on my plate! I cannot say what it was that got to me but I won't quit trying. We are going downtown Seattle on Saturday and we will be eating! On the way there we can stop at Open Original Shared Link The following weekend we are going to Oregon, just east of Portland. At best I am going to try and plan ahead where we will be eating and call or email ahead. That somewhat takes the fun out of how we have always lived our lives though, we loved to go out and eat. I am trying to not be afraid of everything though so just going to go ahead and go for it. My symptoms put me in the bathroom and were mild compared to what I went through before but I don't want it to happen often or be worse.

oceangirl Collaborator

I never eat out, but miss it. I'm too afraid of CC as I'm incredibly reactive. However! I am thinking of going out to the restaurant my daughter works at and ordering a boiled lobster! (This is silly, of course, because my son, brother and former husband are all lobstermen and they happily give them to me!) BUT! Just to have that lovely pleasure of going out again I may get brave and try it!

lisa

Mr. Pep'r Contributor

I still eat out and talk to the manager or chief and they seem to be very helpful. We have gotten the blank stares "what is gluten". Not what I want to hear.

I thought I was being safe but the past few weeks I have been "gluten'd" a few times. But this will not keep me from eating out.....I just have to be extra careful.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

    2. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

    3. - trents replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      IBS-D vs Celiac

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
    • SilkieFairy
      After the birth of my daughter nearly 6 years ago, my stools changed. They became thin if they happened to be solid (which was rare) but most of the time it was Bristol #6 (very loose and 6-8x a day). I was on various medications and put it down to that. A few years later I went on this strict "fruit and meat" diet where I just ate meat, fruit, and squash vegetables. I noticed my stools were suddenly formed, if a bit narrow. I knew then that the diarrhea was probably food related not medication related. I tried following the fodmap diet but honestly it was just too complicated, I just lived with pooping 8x a day and wondering how I'd ever get and keep a job once my children were in school.  This past December I got my yearly bloodwork and my triglycerides were high. I looked into Dr. William Davis (wheat belly author) and he recommended going off wheat and other grains. This is the first time in my life I was reading labels to make sure there was no wheat. Within 2 weeks, not only were my stools formed and firm but I was only pooping twice a day, beautiful formed Bristol #4.  Dr. Davis allows some legumes, so I went ahead and added red lentils and beans. Nervous that the diarrhea would come back if I had IBS-D. Not only did it not come back, it just made my stools even bigger and beautiful. Still formed just with a lot more width and bulk. I've also been eating a lot of plant food like tofu, mushrooms, bell peppers, hummus etc which I thought was the cause of my diarrhea before and still, my stools are formed. In January I ran a genetics test because I knew you had to have the genes for celiac. The report came back with  DQ 2.2 plus other markers that I guess are necessary in order for it to be possible to have celiac. Apparently DQ 2.2 is the "rarer" kind but based on my report it's genetically possible for me to have celiac.  I know the next step is to bring gluten back so I can get testing but I am just not wanting to do that. After suffering with diarrhea for years I can't bring myself to do it right now. So that is where I am!   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.