Is Nausea A Symptom Of Celiac?

[spaz-bubble]

Hi everyone,

Newly diagnosed as Celiac as of last friday! So I've been on the gluten-free diet since sat, so five days now!

The reason I am posting is because my main symptom is constant nausea. My GI specialist said that the nausea could be explained by the celiac disease, but then my GP said that nausea wasnt a symptom and that it must be attributed to something else.

I just wanted to know if anyone else out there had constant nausea, and if it improved when they went on the gluten-free diet! I am dying to feel healthy again, its been soooooooo long!

How long till I can expect to start feeling better?

~Sarah~

[veggf]

Hi,

Welcome to the world of Gluten Free! I think you will find that you feel better soon.

I believe that nausea is a symptom. I had frequent nausea before dx, and I also have it when I accidently eat gluten now that I'm gluten-free.

Just to be on the safe side though, see if you can get your GI and GP docs to communicate with eachother on the nausea. It may seem hard to get them to talk but if you push it they usually will, and that way you can rule out another issue. Better to be safe than sorry.

Best of luck!

[Guest talsop]

Welcome

I have been gluten free for 4 weeks now and nausea was one of my worst symptoms. I was sick everyday but never could never throw up, I was eating nausea pills like candy. I have been gluten free for 4 weeks and I have not been sick for the last 2 weeks. So I am convinced that it was all the gluten I was eating. I was really depressed when I found out that I had to go on a gluten-free diet but after reading all these post and the people in here are very helpful and very kind, it all helped me realize that I'm not alone.

I can't offer much advise cause I am still learning myself. I have bought a couple books and have done alot of research. Also I love to cook so I have been experminting my own recipes LOL.

Just remember when things get rough just come in here and express your concerns and someone will always help you.

Edited November 24, 2004 by talsop

[Guest talsop]

I think I double posted sorry

Edited November 24, 2004 by talsop

[dbuhl79]

Sarah,

One of my symptoms was Nausea also. I am sure it can be considered one on the list of Celiac. It seems as though children are affected by this disease by getting sick to there stomach.

My symptoms would progress, by beginning with Nausea. Any morning I woke up feeling nauseated I knew I ws going to have a bad day. I'd be in the bathroom with diarrhea, and have abdominal pain all day. It was the jumping point to all my other symptoms.

Now I'm not officialy doctor diagnosed but since being gluten free after day # 3 I feel 100% better!

Good luck and I hope going gluten-free will help with your nausea because I know it can be a real difficult symptom to deal and function with.

[llj012564]

I had nausea all the time as well. I used to tell people it was like having the flu everyday for months. Been gluten-free since Feb04 and I can at least say that I dont feel like I have the flu everyday now. Still have the fatigue issue but hope that will get better soon

[celiac3270]

Nausea is a symptom...I've had it, as well........accompanied with abdominal pains, vomiting, gas, bloating, diarrhea, and low weight....

[tom]

Incredible to me that the GP could possibly claim nausea wasn't a celiac symptom.

It was constant and unrelenting for me for a very long time.

It got 30x better when I 1st went 100% gluten-free, and then nearly disappeared when I also went dairy-free. (not just lactose, even alleged 'non-dairy' creamers have a milk derivative)

It wasn't until I started dairy-free that it felt good to be alive again.

[darlindeb25]

as a rule--i think most celiacs have nausea, many have diarrhea daily, and some of us celiac3270--have weight problems i couldnt lose weight while eating gluten--my man used to ask me how i kept the weight on when i was eating next to nothing --he loved me then and still loves me 60# lighter i think there are as many symptoms for celiacs as there are celiacs deb

[Canadian Karen]

When I first read this thread's title, celiac3270, of course, you came to mind immediately.

Nausea thankfully has not been one of my symptoms. But I want to caution you to make sure that if you are continuing to take nausea medication, make sure you check on its gluten free status. There are quite a lot over the counter medications that are NOT gluten free. I made that mistake already (only for me it was with Gas-X as my second main symptom is gas, my first one being chronic diarrhea). I was also eating them like candy. I was continuing to get glutened, and after some sleuthing, found it was the Gas-X doing it.....

Welcome to the forum and you will find a bunch of really knowledgeable and helpful people here.....

Karen

[stef-the-kicking-cuty]

Hi there,

i believe nausea is one symptom of celiac. When i had my beer accident couple of weeks ago i felt so gaggy, it wasn't even funny anymore. The first day it was so bad, that i thought i had to through up every time i left bed. I almost crawled to the toilet.

Stef

[beelzebubble]

nausea/vomiting was one of my symptoms. since going gluten-free it's gone, barring an accident. be aware that most doctors know very little about celiac. it's not touched on much in medical school from what i understand, and it's not the kind of thing that requires much in the way from doctors after diagnosis. i would do your own research.

bubble

[Robert63]

On 12/1/2004 at 3:32 PM, darlindeb25 said:

as a rule--i think most celiacs have nausea, many have diarrhea daily, and some of us celiac3270--have weight problems i couldnt lose weight while eating gluten--my man used to ask me how i kept the weight on when i was eating next to nothing --he loved me then and still loves me 60# lighter i think there are as many symptoms for celiacs as there are celiacs deb

Edited March 9, 2017 by Robert63

[Robert63]

How Long on a Gluten-Free Diet Before You Began to Feel Back to Normal?

I have not been diagnosed with Celiac yet.  Still waiting.  But after reading this topic and your contributions, I am convinced this must be the case.  

I light of this post, I have so many questions.  

I too suffer with nausea, fatigue, light headedness, slight headache and body aches.   This has been going on for 6 weeks.  I do not suffer from any diarrhea.    

I just recently underwent an Endoscopy  and Colonoscopy.  My gastro discovered a hiatal hernia in addition to some small intestine observations, for which I am still waiting on blood test results.  I also learned that I have a slow digestive tract.  This was discovered during my colonoscopy.  

I took it upon myself to go gluten free.  I have been gluten free for 5 days now.  Today was not a good day.  My nausea was more consistent all day.   It usually comes in waves.

My one question to the community is....how long were you on a gluten-free diet before you began to feel back to normal?

I would appreciate and look forward to sharing stories.   

Regards.

_Robert

[cyclinglady]

17 minutes ago, Robert63 said:

I have not been diagnosed with Celiac yet.  Still waiting.  But after reading this topic and your contributions, I am convinced this must be the case.  

I light of this post, I have so many questions.  

I too suffer with nausea, fatigue, light headedness, slight headache and body aches.   This has been going on for 6 weeks.  I do not suffer from any diarrhea.    

I just recently underwent an Endoscopy  and Colonoscopy.  My gastro discovered a hiatal hernia in addition to some small intestine observations, for which I am still waiting on blood test results.  I also learned that I have a slow digestive tract.  This was discovered during my colonoscopy.  

I took it upon myself to go gluten free.  I have been gluten free for 5 days now.  Today was not a good day.  My nausea was more consistent all day.   It usually comes in waves.

My one question to the community is....how long were you on a gluten-free diet before you began to feel back to normal?

I would appreciate and look forward to sharing stories.   

Regards.

_Robert

Welcome!  

First, you need to be on a gluten diet in order for any celiac testing to be valid.  You should ask your doctor if in fact, he tested you for celiac disease.  These are the tests (University of Chicago's celiac website):  

http://www.cureceliacdisease.org/screening/

Going gluten-free for as little as two weeks can impact the  tests.  A blood panel should have been ordered and at least four or biopsies should have been taken during the endoscopy.   Please get copies of all your lab results!  This is a good habit to get into.  Honesty, many GI's fail to properly test for celiac disease.  Make sure your GI is celiac-savvy.  

Most people who have celiac disease can take weeks, months or years (yes, years) to recover.  Remember this is an autoimmune disorder, like lupus except the trigger for "flare-ups" is known -- gluten.  It is the only AI disorder that has a known trigger and there are about 100 AI disorders.  So, while there is no cure for celiac disease, it can be managed.   Most members here report some improvement within six weeks, but everyone heals differently and we each have different damage as celiac disease goes beyond the gut.  

I wish you well!

The gluten-free diet has a steep learning curve.  There are plenty of set-backs along the way, but eventually the diet can be mastered and health can improve.  

[Robert63]

On 3/8/2017 at 10:50 PM, cyclinglady said:

Welcome!  

First, you need to be on a gluten diet in order for any celiac testing to be valid.  You should ask your doctor if in fact, he tested you for celiac disease.  These are the tests (University of Chicago's celiac website):  

http://www.cureceliacdisease.org/screening/

Going gluten-free for as little as two weeks can impact the  tests.  A blood panel should have been ordered and at least four or biopsies should have been taken during the endoscopy.   Please get copies of all your lab results!  This is a good habit to get into.  Honesty, many GI's fail to properly test for celiac disease.  Make sure your GI is celiac-savvy.  

Most people who have celiac disease can take weeks, months or years (yes, years) to recover.  Remember this is an autoimmune disorder, like lupus except the trigger for "flare-ups" is known -- gluten.  It is the only AI disorder that has a known trigger and there are about 100 AI disorders.  So, while there is no cure for celiac disease, it can be managed.   Most members here report some improvement within six weeks, but everyone heals differently and we each have different damage as celiac disease goes beyond the gut.  

I wish you well!

The gluten-free diet has a steep learning curve.  There are plenty of set-backs along the way, but eventually the diet can be mastered and health can improve.  

 

Thank you so much for the feedback.  I am on my second GI doctor.    I hope to get my arms around this soon.  When I say soon, I plan to give it a few months.  The new GI is wanting to do more test to rule out any other bugs or parasites.  

[Sickcutie]

Hi, 

my name isTaylor and I have had celiacs for maybe 4 years now. I always nauseous. Even meat sometimes make me sick as well. I have to eat slow and drink juice only after the meal. I think it's a product of OCD as well as celiac. But I'm not diagnosed on the OCD just the celiac. I have a very hard time with my gluten free diet. But I have been living without a diet for so many years. I just follow my OCD steps and know how to work it. But now it's getting worse I get these migraines and vomiting at least everyday.Most time the vomiting last at least from night til morning. I don't understand before I knew about celiac I was fine. But now that I know I'm twice as sick. I'm scared that I'm dieing because I can't do the diet. And I don't understand why it's worse. But after I found out I didn't check with a doctor again. I just went home. I have been dealing with it myself. Just like my OCD. I deal with is by myself but I think it's killing me.

[Ennis-TX]

9 hours ago, Sickcutie said:

Hi, 

my name isTaylor and I have had celiacs for maybe 4 years now. I always nauseous. Even meat sometimes make me sick as well. I have to eat slow and drink juice only after the meal. I think it's a product of OCD as well as celiac. But I'm not diagnosed on the OCD just the celiac. I have a very hard time with my gluten free diet. But I have been living without a diet for so many years. I just follow my OCD steps and know how to work it. But now it's getting worse I get these migraines and vomiting at least everyday.Most time the vomiting last at least from night til morning. I don't understand before I knew about celiac I was fine. But now that I know I'm twice as sick. I'm scared that I'm dieing because I can't do the diet. And I don't understand why it's worse. But after I found out I didn't check with a doctor again. I just went home. I have been dealing with it myself. Just like my OCD. I deal with is by myself but I think it's killing me.

You have probably developed another food sensitivity or have a enzyme/acid issue. Do you vomit soon after meals, if so then I would think it is a sensitivity.https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life.I get this with tons of foods and after a gluten exposure odd new ones crop up and I have to only eat a few whole foods blended and a bland diet for awhile. Do keep a food diary, stop using spices/sauces and go to eating only 1-3 whole foods a meal see if it becomes easier (soft cooked or blended food is best)  If you vomit hours after a meal it could be a gastric dumping issues, enzyme deficiency (https://www.celiac.com/forums/topic/119919-digestive-enzymes/), or a issue with your stomach acid not being strong enough to break down the foods. Either of these can cause the food to sit in your stomach and start to ferment/rot til you get sick. DO NOTE  apple cider vinegar , and some other juices contain a acid that slows down stomach emptying and can lead to this.
If your on PPI, or acid reducers the can also cause these issues.

 

[cyclinglady]

@Sickcutie

Welcome!  

A celiac must be gluten free in order to heal.  Can you tell us why it is hard for you to follow the gluten free diet?  Do you worry about missing your favorite foods?  Do you have access to medical care?  

Your doctor should be able to help you.  Perhaps talking with a dietitian would be helpful or join a local celiac support group.  

You need help!  We can help, but we need more information.  

 

[Leslea]

On 12/1/2004 at 5:25 PM, Canadian Karen said:

When I first read this thread's title, celiac3270, of course, you came to mind immediately.

 

Nausea thankfully has not been one of my symptoms. But I want to caution you to make sure that if you are continuing to take nausea medication, make sure you check on its gluten free status. There are quite a lot over the counter medications that are NOT gluten free. I made that mistake already (only for me it was with Gas-X as my second main symptom is gas, my first one being chronic diarrhea). I was also eating them like candy. I was continuing to get glutened, and after some sleuthing, found it was the Gas-X doing it.....

 

Welcome to the forum and you will find a bunch of really knowledgeable and helpful people here.....

 

Karen

oh no Gas-X contains gluten??

[Maggyanne]

I have been feeling nauseous for months, I’ve also had a myriad of digestive problems,  loose pale stools, dark tarry  stools, abdominal cramps unexplained weight loss, dizziness. Eventually I went to the doctor and had some bloods ran.  They came back abnormal, my amylase levels were high and my MCV low (I was anaemic).   My doctor fearing a pancreas problem ordered more blood tests (which I’m still awaiting the results of).  Last week I ordered an on line home coeliac test which claims 97% accuracy,  and it shows I have antibodies for gluten intolerance.  I know I shouldn’t cut out gluten yet until my diagnosis is confirmed, but things take so long and I don’t want to do any more damage to my gut so I have done.  I now find any gluten at all and I will be full of gas and feel nauseous.  I also suspect I’m acquiring a sensitivity to diary.   What on earth is there left for us to eat.  

[Ennis-TX]

1 hour ago, Maggyanne said:

I have been feeling nauseous for months, I’ve also had a myriad of digestive problems,  loose pale stools, dark tarry  stools, abdominal cramps unexplained weight loss, dizziness. Eventually I went to the doctor and had some bloods ran.  They came back abnormal, my amylase levels were high and my MCV low (I was anaemic).   My doctor fearing a pancreas problem ordered more blood tests (which I’m still awaiting the results of).  Last week I ordered an on line home coeliac test which claims 97% accuracy,  and it shows I have antibodies for gluten intolerance.  I know I shouldn’t cut out gluten yet until my diagnosis is confirmed, but things take so long and I don’t want to do any more damage to my gut so I have done.  I now find any gluten at all and I will be full of gas and feel nauseous.  I also suspect I’m acquiring a sensitivity to diary.   What on earth is there left for us to eat.  

Keeping on gluten til they finish getting doctors blood test and a biopsy will ensure you have it on your medical records...that can be a god send. Imagine something happens and you end up hospitalized and the official diagnosis is not on your charts? You will be fed gluten food and your "Preferences" for gluten free will be ignored as they will not take it as serious. Also helps in many other areas.
You will probably be getting a scope soon so be sure they get the biopsies and check for damage when they do, tarry stool and anemia is often a sign of something more and bleeding in the upper GI tract. I am no doctor just something I picked up on. Just hold out a bit longer.

The dairy thing is very common, you see your villi in your small intestines produce the enzymes to break down dairy, when they are damaged by celiac you lose the ability to digest it til they heal. Heck most humans slowly stop producing the enzymes as they age as humans are not supposed to be drinking breast milk as adults anyway so that is why many people develop issues with lactose as they age. Do not think of it as a great loss they make dairy free everything now days >.< I been dairy free over a decade and still eat cheese and milk daily in other forms. Consider this a rant from someone who was forced to give up years ago and has a harsh bitter sentiment about having to rationalize it.

Foods to eat, whole foods, meat, fish, eggs, veggies, nuts, seeds, fruit, etc. Heck I live paleo and keto, still eat stuff just made with different ingredients and even made a catering business and small bakery out of it. A whole foods diet will be easier to manage at first and easy on the gut, but til testing is done try to eat 1-2 slices of wheat bread a day, The rest stick to simple meals to make it easier, I found lower carb diets to reduce gas and bloating. Think eggs, baked meats, steamed vegggies, soups, stews, etc. Heck been doing a bunch of crock pot roast and chicken meals as of late.

 

 

[Maggyanne]

Has anyone else on here had raised amylase on the FBC.   My doctor told me mine was slightly raised, initially pointing to a problem with the pancreas. 

[Lordsplodge]

Before I got my diagnosis I often  felt really nauseous during the night. Waking up between 1-3AM. Cold sweats, feeling dizzy, feeling like I need to pass a stool. 
 

That stopped almost immediately after giving up gluten. 
 

now if I accidentally I jest gluten I will feel the above symptoms. 
 

I had a half pint of ale once when I was testing my limits. Let’s just say that was the last time. I was violently sick. 

[Awol cast iron stomach]

Heck yes, nausea at nauseum! 

During my gluten challenge I had to pull over just transporting it home in my car to "poision" myself with it. Open the door and lean out worst resort....

I failed at a 12 week challenge, the two week too for that matter!

I still can get nauseous If I go to the bank atm and burger king next door is pumping out ode  de ala whopper ? The olfactory and nervous system know...

Welcome and hope you feel better soon...