Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Little Guy's Been Published!

elye

By elye
in Publications & Publicity

Recommended Posts

elye Community Regular
elye
Posted

Well, I cannot help myself, I'm just so proud of my young son that I have to share his published letter that he wrote to our local newspaper. Jack wanted to get the word out about his experience eating gluten-free, and I really hope that it's noticed and read by all the parents who are unknowingly dealing with these issues in their own kids.....

Open Original Shared Link

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

WOW!!! You should be proud!! What a great article, hopefully it will reach many, many people and help them.

RiceGuy Collaborator
RiceGuy
Posted

Fabulous! I think it really packs a punch when it comes from an 11 year old! Kids listen to kids too. Wonderful article!

kbtoyssni Contributor
kbtoyssni
Posted

That's a great article! It's what I wish all celiac articles could be - the mention of the negative tests but positive dietary response, the non-traditional symptoms, and the positive outlook at the end!

elye Community Regular
elye
Posted
  • Author
That's a great article! It's what I wish all celiac articles could be - the mention of the negative tests but positive dietary response, the non-traditional symptoms, and the positive outlook at the end!

Yes, exactly! This is why I was SO hoping they would choose to publish it, as it is not only a letter about celiac, but a letter about the surprising, little-known yet all-too-common things about the illness. I only hope that the two paediatricians and the gastro who all said, "Ah...negative blood work...no gastrointestinal symptoms....thriving growth...nope. He has no trouble woth gluten", will see it.

Lisa Mentor
Lisa
Posted

Way to go Jack! Bet he'll have a fan club in no time Emily.

Jack gets the Advocacy Award for the Month. (bronze chin socks) :rolleyes: . Congratulations.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

WOW WOWWOW!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elye Community Regular
elye
Posted
  • Author
Way to go Jack! Bet he'll have a fan club in no time Emily.

Jack gets the Advocacy Award for the Month. (bronze chin socks) :rolleyes: . Congratulations.

:lol::lol: Lisa!

Sweetfudge Community Regular
Sweetfudge
Posted

how great!!!

jerseyangel Proficient
jerseyangel
Posted
Jack gets the Advocacy Award for the Month. (bronze chin socks) :rolleyes: . Congratulations.

:lol: Lisa! :lol:

Yep--Jack sure wrote a winning article! Very well-rounded and the kind of publicity that we need--lot of people and kids will be able to relate :)

Dyan Rookie
Dyan
Posted

I'm proud of him and he's not even mine. You deserve to show his article off.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Tell him congrats!

kenlove Rising Star
kenlove
Posted

Congrats! it's really great.

Does he plan on more writing? He did great!

\

Well, I cannot help myself, I'm just so proud of my young son that I have to share his published letter that he wrote to our local newspaper. Jack wanted to get the word out about his experience eating gluten-free, and I really hope that it's noticed and read by all the parents who are unknowingly dealing with these issues in their own kids.....

Open Original Shared Link

lonewolf Collaborator
lonewolf
Posted

That's great! You have every reason to be proud. He did a fantastic job writing his letter.

Phyllis28 Apprentice
Phyllis28
Posted

He did a super job.

home-based-mom Contributor
home-based-mom
Posted

Good for him! Very well written. Let me suggest that you print out copies (making sure to show that it was a published letter) and mail them to all the clueless doctors with explicit instructions that it is to be included in his file! ;)

jerseyangel Proficient
jerseyangel
Posted
Good for him! Very well written. Let me suggest that you print out copies (making sure to show that it was a published letter) and mail them to all the clueless doctors with explicit instructions that it is to be included in his file! ;)

That's a fantastic idea! ;)

ravenwoodglass Mentor
ravenwoodglass
Posted

This young man has a future as a journalist. His letter was very well written and brought up some very important points in a short, concise easy to understand manner. Great work.

elye Community Regular
elye
Posted
  • Author
This young man has a future as a journalist. His letter was very well written and brought up some very important points in a short, concise easy to understand manner. Great work.

:):) I've just shown Jack all of your responses. What a thrill for a boy to get such praise! Especially since he hasn't had it easy the last couple of years - - his health, and bullying issues. This is just what he needed!

jerseyangel Proficient
jerseyangel
Posted
:):) I've just shown Jack all of your responses. What a thrill for a boy to get such praise! Especially since he hasn't had it easy the last couple of years - - his health, and bullying issues. This is just what he needed!

:D

Ursa Major Collaborator
Ursa Major
Posted

You have every reason to be proud of your son, he sounds like an amazing kid. My oldest daughter lives in Kanata (for anybody who doesn't know, it is part of Ottawa). She and her five children are all gluten-free without any testing, with great results for most of them. I e-mailed her a link to your son's letter.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,199
    • Most Online (within 30 mins)
      7,748
    Andrea Spencer
    Newest Member
    Andrea Spencer
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By Scott Adams · Posted

      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By xxnonamexx · Posted

      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By cristiana · Posted

      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Increased intraepithelial lymphocytes after 10 yrs gluten-free

      By trents · Posted

      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

      By Scott Adams · Posted

      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.