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For Those Of You With Physician Diagnosis

JBaby

By JBaby
in Coping with Celiac Disease

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JBaby Enthusiast
JBaby
Posted

When you started the diet were you hungry all the the time? Did you lose weight in the beginning?

I am hungry like every hour. Lost 3 lbs in 3 weeeks first time i did the diet. When I ate the bad gluten in everythong, i was never ever hungry because i was always ill. 1 week on the diet now, and I am hungry alot. Does this sounf like celiac or is it something else?

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athewinn Newbie
athewinn
Posted

I was diagnosed just over a month ago, and it's been the best month of my life. Yes, I think I am hungry a bit more, and I just let myself eat anytime I want. Now I'm eating a ton of fruit througout the day (esp. grapes, cherries, plums, and strawberries) and I eat them whenever I want to. A peice of fish I may have eaten half of before, I will inhale all of now.

But it seems like everything tastes better - I'm sure it's just because I feel so much better... I find joy in food I didn't have before, been trying new recipies etc. I haven't limited my intake at all (besides gluten free obviously) and I lost 8 lbs the first month.

Hopefully you'll find the same thing. I think if you make fruits and veggies your main "in between meal" thing you'll be fine - although I guess that's always true, huh?

lovegrov Collaborator
lovegrov
Posted

I was ravenous all the time but I didn't lose weight.

richard

athewinn Newbie
athewinn
Posted
I was ravenous all the time but I didn't lose weight.

richard

Did you gain weight when your symptoms started? 10 years ago, when things were getting bad, I blew up from 145 lbs to 210 lbs in one year - so maybe because it had something to do with the weight loss it starts to get better when you remove the gluten?

I'm totally making that up though, I have no idea if that could factually make sense at all.

chasbari Apprentice
chasbari
Posted

Dx'ed in February and still starving. Lost 40 pounds and whenever I eat really good food I am even hungrier. That lets me know I am feeding my body food that is allowing me to heal as I am getting healthier by the day. Of course, for two decades I was not hungry because there was so much swelling and damage to the gut that I just ate out of habit. Now I know what real hunger feels like again and it is good.

shendler Rookie
shendler
Posted

Before I was diagnosed I was always hungry and was losing weight. Now I'm hardly hungry and I'm still losing weight. I'm still having such a hard time finding foods that I like that I hardly eat. I've always been the type that if I can't have something I won't use the subsitute. Like, I would have gone without mayo than have fat free mayo. I'd rather go without bread,pasta, cookies and more than have the gluten free version.

Karrin Rookie
Karrin
Posted

I think I've lost a pound or two after starting the diet, just because toward the end (before I was diagnosed) I was so sick to my stomach I was eating nothing but bread and crackers, which I thought would ease my nausea (ouch!). I have noticed things taste good again and I am hungry more, probably because I'm not sick to my stomach anymore and my appetite is back. I've also been eating plenty of fresh veggies and fruit again and am unable to eat most junk foods, so that probably helps to keep me at a stable weight. :)

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elle's mom Contributor
elle's mom
Posted

For me it was always hungry before starting the gluten-free diet.....only been two months, but much less feelings of starvation.

JesikaBeth Contributor
JesikaBeth
Posted

After I initially went gluten-free I was always hungry, like Ravenous hungry :o

That did go away, but it took a good two months or so for it to even out... My hunger/fullness cues went normal though :)

Now I've been gluten free for the majority of the last year, but the times I have eaten gluten I get ravenous hungry within an hour of eating, aslmost as though I had not eaten at all !

JillianLindsay Enthusiast
JillianLindsay
Posted

STARVING for the first week or two, now on week four and still eat a lot more (but healthier, LOTS of fresh fruit, veggies, etc) and have lost a few pounds. Others have said the constant hunger subsides but right now your body is healing and is soaking up all the nutrients it can get that it wasn't able to absorb before. So enjoy lots of healthy, gluten-free foods :D

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    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

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