Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Needed!


Saz36

Recommended Posts

Saz36 Newbie

Hey, I am kinda hoping you guys can help out here, I am intolerant to gluten/dairy/soy/corn/egg and now think fructose is causing problems. I am totally bewildered as to what to eat that won't make me feel really ill, if i stick to meat and limited veg i have no energy and struggle to work ( which is fairly active) and can't concentrate. On many occassions i resort to chocolate just to get me through the day then seriously regret it by the evening. Is there anyone here who has the same allergies or has any suggestions i am desperate!!!!!!!!!!!!!!! I look forward your help


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jststric Contributor

I'm so sorry. I also have multiple intolerances including glutens, dairy, eggs, nuts, beans, rice. But I get most of my staying power from meat. I have to have it to function my best. Have you found what is your NEEDED thing? Its a challenge when you are still trying to figure out just what things are your nemeses. Sometimes I get so tired of plain, whole foods and just want to rip out something if I don't get something creamy. I have found a few alternative items that I can make my own versions of things. It takes awhile to experiment and find something thats acceptable. To find new items I would suggest going to someplace like Whole Foods....I go to Better Health, when you have LOTS of time to meander and look at EVERYTHING and read labels. Its how I found some of my best pantry-fillers. If you like or need to snack while at work, there are a few good things like Glutino's pretzels. Best wishes. It all takes time.

missy'smom Collaborator

I am intolerant to gluten/dairy/soy/corn/egg...

Well, I also am free of gluten, dairy, soy and don't eat corn because of the carbs and therefore also mostly, if not free of all corn-starch etc. because of the carbs, as for eggs, I can't stand them so only rarley have a bit in soy-free mayo or one egg as a binder in a batch of ground meat. I also avoid all fruits because of their impact om my blood sugar.

So, basically I live on meats, nuts, seeds, vegetables and fats. When you are not consuming the carbs you body burns fats as fuel so it's important to get enough fat. That may be part of your energy problem. Nuts, seeds, nut or seed butters, avacado, coconut milk, oil etc., olive oil, plus meat fat are important parts of my diet. I don't like my sald swimming in dressing and can easily eat plain steamed veg. but I have to make an effort to add sufficient fat to my meals. I don't bother with trying to replace baked goods anymore. You can make muffins with almond meal as the flour. I tried replacing the eggs with flax meal egg replacer-eliminated 2 or 3 of the 4 eggs and it worked well. You could try replacing all the eggs. Directions for the replacer can be googled and recipe for the muffins by searching low-carb almond muffins. Earthbalance makes a soy-free, dairy-free "margarine" that is good and works well in baking. I drink the So Delicious coconut beverage(unsweetened for me)-comes in a "milk" carton as well as shelf stable cartons.

Maybe adding in a multi-vitamin would help too.

burdee Enthusiast

I have diagnosed allergies (and obvious gastro reactions) to gluten, dairy, soy, eggs, cane sugar, vanilla and nutmeg. So I eat fruits, vegies, nut butters, nut based milk (hazelnut, esp.), gluten free grains, legumes, vegetable source fats (olive oil, avocado, etc.) I currently LOVE DAIYA vegan cheeses (I'm making my first pizza with their mozzerella flavor tonight).

However, even after I abstained from all my diagnosed allergies, I continued to suffer gastro symptoms, because I had a series of intestinal infections (overgrowths?) from 5 different bacteria, 2 different parasites and candida (all diagnosed by stool tests). Right now I'm fighting the dientamoeba fragilis parasite and the helicobacter pylori bacteria. Even the treatment meds for those gut bugs can cause IBS-like side effects, esp. if the drug contains any of your allergens. Some drugs (and herbal treatments) have uncomfortable side effects, even w/o allergy reactions.

So don't assume you have developed a new 'intolerance' or food allergy without getting another allergy test. Especially consider getting a stool test for intestinal bugs (parasites, pathogenic bacteria or fungus like candida). Also taking probiotics can increase your good bacteria to outnumber potential bad bugs in your gut.

Chronic stomach (not intestinal) digestive symptoms (slow digestion, feeling full after small amounts) led me to a clinic which tests stomach acid production. Excess stomach acid production is rare. Many people have low stomach acid which can allow those bad bugs to travel straight to their intestines and cause IBS symptoms. My results showed hypochloridia or low stomach acid, which explained why I continued to get intestinal bug infections. I encourage anyone with a history of intestinal bugs or digestive difficulties to get a Heidelberg capsule test for stomach acid production.

GFinDC Veteran

Hey, I am kinda hoping you guys can help out here, I am intolerant to gluten/dairy/soy/corn/egg and now think fructose is causing problems. I am totally bewildered as to what to eat that won't make me feel really ill, if i stick to meat and limited veg i have no energy and struggle to work ( which is fairly active) and can't concentrate. On many occassions i resort to chocolate just to get me through the day then seriously regret it by the evening. Is there anyone here who has the same allergies or has any suggestions i am desperate!!!!!!!!!!!!!!! I look forward your help

Hmmm, what chocolate are eating that is dairy and soy free?

Someone mentioned Glutino pretzels, which are a no no due to soy also.

Wylde pretzels are soy free.

Can you do rice and veggies? Maybe some chicken or beef thrown in?

Quinoa is another option instead of rice.

Saz36 Newbie

Thanks for all your help guys, i will try some of he sugestions and see how i get on, although nuts and seeds are a no no as well as coconut which assumed was down to the soya and corn allergies. There is no chocolate that is dairy and soya free but i figured it had the least uncomfortable side effects Currently i am on day 3 of only eating meat/fish/poultry and green veg with olive oil and stomach is calming down so its worth it, i have a brolem with brown rice but once i feel relatively normal i will give white rice a try.

thanks again for yourhelp it helps knowing others are in the same boat.

quote name='GFinDC' date='26 June 2010 - 08:23 PM' timestamp='1277583789' post='619658']

Hmmm, what chocolate are eating that is dairy and soy free?

Someone mentioned Glutino pretzels, which are a no no due to soy also.

Wylde pretzels are soy free.

Can you do rice and veggies? Maybe some chicken or beef thrown in?

Quinoa is another option instead of rice.

Jestgar Rising Star

Open Original Shared Link

I really like it, it's kind of grainy without the soy to emulsify.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



missy'smom Collaborator

I've been eating Lindt 85% dark chocolate and Kalari(sp?) 85% dark both dairy and soy-free. Some folks here don't like Lindt because of their allergen statement about their lower percentage chocolates but it doesn't cover the higher percentage ones and I haven't noticed problems. I can't have much sugar so my choices are based on nutrition info. not what tastes best ;)I have to make compromises.

GFinDC Veteran

You might find that you feel more even and energetic if you stay strictly off the soy and dairy. Especially the soy.

I think Hershey's cocoa powder is ok, although I haven't really researched it. That would let you make your own chocolate treats it if were. You could also try guacamole, just make sure to use a soy free mayo. Hellman's canola oil cholesterol free is soy free. They only have that one version that is soy free though, all the others have soy. All the Kraft mayos have soy as far as I know. Avocadoes have good protein and they are supposed to be good for thyroid function.

I suggest you cut out most caffeine also, as it can make your body bounce back and forth energy wise.

Saz36 Newbie

You might find that you feel more even and energetic if you stay strictly off the soy and dairy. Especially the soy.

I think Hershey's cocoa powder is ok, although I haven't really researched it. That would let you make your own chocolate treats it if were. You could also try guacamole, just make sure to use a soy free mayo. Hellman's canola oil cholesterol free is soy free. They only have that one version that is soy free though, all the others have soy. All the Kraft mayos have soy as far as I know. Avocadoes have good protein and they are supposed to be good for thyroid function.

I suggest you cut out most caffeine also, as it can make your body bounce back and forth energy wise.

thanks guys, for the most part i do stay off soy as the side effects are quite severe and take days to calm down, i am gonn strugglwith caffeine tho that seems to be the main staple of my energy, i don't understand why i seem to have soo many food issues when he celiac was picked up within a year of me starting to feel ill but i guess everyone is different. I will check out the mayo's and oils alhough i have been reluctant so far to eat anything wih more than one ingredient in.

jenngolightly Contributor

I've found the joy of honey. It satisfies my sweet tooth because I don't eat table sugar or processed foods. Try adding it to some of the foods you can eat - rice and squash?

T.H. Community Regular

Have you taken a look at some of the allergy sites for the foods your intolerant to, especially the corn? There may be some of these you are getting while unaware of it, which could make it difficult for you to get better, yes?

The corn, especially, is very difficult to avoid. It is in all iodized salts to stabilize the iodine, for example, so you'd be getting it everyday if you are using iodized salt. It is also often used in packaging, like between paper plates and paper cups, so you can get some that way. This was a problem for me when I started reacting to corn until a dietician mentioned the salt issue to me. I'm free of all the ones you listed as well. Phew - it IS hard, isn't it?

As for the energy, I'd worry about nutrition levels. I kind of hyper-reacted to things myself and ended up down to a diet of less than 10 foods, and it definitely has caused problems. Calcium, iodine, vitamin D, fatty acids, and carbs have all been a challenge to get.

Hmmm, have you been tested for vitamin D levels? That would make you feel very tired and have some of these difficulties, too. If you are not getting out into the sun enough during the day, your body won't synthesize enough vitamin D for you. And since you aren't eating processed foods with vitamin D added, that may be part of the issue.

Can you have any grains? Quinoa and amaranth might be good ones to try, if you're reacting to a lot of grains. They aren't in the same family as the rest of them, as they are actually seeds and not grains. Buckwheat is also not in the wheat/rice/corn family, so you might react less to it. :-)

How about sweet potatoes? If you bake one, puree it, and then mix it with ground meat to bake, it makes a plain, slightly sweet meatloaf.

Avocado is a good veggie to have, if you can. A bit more fat, lots of vitamins, mixes well with things.

Hey, I am kinda hoping you guys can help out here, I am intolerant to gluten/dairy/soy/corn/egg and now think fructose is causing problems. I am totally bewildered as to what to eat that won't make me feel really ill, if i stick to meat and limited veg i have no energy and struggle to work ( which is fairly active) and can't concentrate. On many occassions i resort to chocolate just to get me through the day then seriously regret it by the evening. Is there anyone here who has the same allergies or has any suggestions i am desperate!!!!!!!!!!!!!!! I look forward your help

Saz36 Newbie

Have you taken a look at some of the allergy sites for the foods your intolerant to, especially the corn? There may be some of these you are getting while unaware of it, which could make it difficult for you to get better, yes?

The corn, especially, is very difficult to avoid. It is in all iodized salts to stabilize the iodine, for example, so you'd be getting it everyday if you are using iodized salt. It is also often used in packaging, like between paper plates and paper cups, so you can get some that way. This was a problem for me when I started reacting to corn until a dietician mentioned the salt issue to me. I'm free of all the ones you listed as well. Phew - it IS hard, isn't it?

As for the energy, I'd worry about nutrition levels. I kind of hyper-reacted to things myself and ended up down to a diet of less than 10 foods, and it definitely has caused problems. Calcium, iodine, vitamin D, fatty acids, and carbs have all been a challenge to get.

Hmmm, have you been tested for vitamin D levels? That would make you feel very tired and have some of these difficulties, too. If you are not getting out into the sun enough during the day, your body won't synthesize enough vitamin D for you. And since you aren't eating processed foods with vitamin D added, that may be part of the issue.

Can you have any grains? Quinoa and amaranth might be good ones to try, if you're reacting to a lot of grains. They aren't in the same family as the rest of them, as they are actually seeds and not grains. Buckwheat is also not in the wheat/rice/corn family, so you might react less to it. :-)

How about sweet potatoes? If you bake one, puree it, and then mix it with ground meat to bake, it makes a plain, slightly sweet meatloaf.

Avocado is a good veggie to have, if you can. A bit more fat, lots of vitamins, mixes well with things.

I haven't had my vitamin levels checked or anything for a couple of months alothough i am back at the hospital next week. As for vitamin D i walk the dogs everyday so getting fresh air isn't a problem and i have an exercise plan designed for me down the gym. Honey is a definate no no as it contains soya and fructose. I seem to have lots of lists of all the foods i can't tolerate and i have as far as i know been quite strict and i don't use salt but i can't seem to find any lists of all the foods i can eat other than fresh meat,fish and vegetables but thanks for suggesting ideas for carbs i will definately check them out. Thanks for your responsesd

  • 2 weeks later...
lucia Enthusiast

I'm the same nowadays as you all: no dairy, soy, and corn (as well as gluten).

I definitely recommend experimenting with grains, especially quinoa (which has a lot of protein, as well as carbs) and amaranth.

I don't think anyone mentioned almond milk or (my new favorite thing) coconut milk. You can even get cans of coconut milk from Goya. I like to use coconut milk for smoothes, especially with avocado. Packed with fats and very filling.

GFinDC Veteran

Open Original Shared Link

I really like it, it's kind of grainy without the soy to emulsify.

Thanks Jeatgar,

That Taza chocolate sounds pretty good. I think I'll give it a try. :)

  • 2 weeks later...
T.H. Community Regular

A thought on the vitamin D just occurred to me, figured I'd add to my last reply!

For the vitamin D, sometimes you can be getting plenty of sun, and your body will still not synthesize it properly, so if you at all suspect a lack of this, might be worth getting tested, still. That's my issue, currently. I live in an area with tons of sun, I go out every day for at least 15-30 minutes with lots of exposed skin, no sunblock, and I am still dropping in vitamin D levels. We couldn't figure out why. Seems that docs don't know much about how the synthesis really works, so sometimes they just don't know what's going wrong. But if a person has thyroid, liver, or kidney issues, studies have shown you may have problems making your own vitamin D.

I just mentioned in case you have any issues with that. :)

I haven't had my vitamin levels checked or anything for a couple of months alothough i am back at the hospital next week. As for vitamin D i walk the dogs everyday so getting fresh air isn't a problem and i have an exercise plan designed for me down the gym. Honey is a definate no no as it contains soya and fructose. I seem to have lots of lists of all the foods i can't tolerate and i have as far as i know been quite strict and i don't use salt but i can't seem to find any lists of all the foods i can eat other than fresh meat,fish and vegetables but thanks for suggesting ideas for carbs i will definately check them out. Thanks for your responsesd

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Lotte18 commented on Scott Adams's article in Diagnosis, Testing & Treatment
      9

      A Future Beyond the Gluten-Free Diet? Scientists Test a New Cell Therapy for Celiac Disease (+Video)

    2. - knitty kitty replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    3. - trents replied to McKinleyWY's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    4. - McKinleyWY posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      Accuracy of testing concerns

    5. - trents replied to Teaganwhowantsanexpltion's topic in Introduce Yourself / Share Stuff
      4

      A little about me and my celiac disease

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,239
    • Most Online (within 30 mins)
      7,748

    Y. Chan
    Newest Member
    Y. Chan
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      Welcome to the forum, @McKinleyWY, For a genetic test, you don't have to eat gluten, but this will only show if you have the genes necessary for the development of Celiac disease.  It will not show if you have active Celiac disease.   Eating gluten stimulates the production of antibodies against gluten which mistakenly attack our own bodies.  The antibodies are produced in the small intestines.  Three grams of gluten are enough to make you feel sick and ramp up anti-gluten antibody production and inflammation for two years afterwards.  However, TEN grams of gluten or more per day for two weeks is required to stimulate anti-gluten antibodies' production enough so that the anti-gluten antibodies move out of the intestines and into the bloodstream where they can be measured in blood tests.  This level of anti-gluten antibodies also causes measurable damage to the lining of the intestines as seen on biopsy samples taken during an endoscopy (the "gold standard" of Celiac diagnosis).   Since you have been experimenting with whole wheat bread in the past year or so, possibly getting cross contaminated in a mixed household, and your immune system is still so sensitized to gluten consumption, you may want to go ahead with the gluten challenge.   It can take two years absolutely gluten free for the immune system to quit reacting to gluten exposure.   Avoiding gluten most if the time, but then experimenting with whole wheat bread is a great way to keep your body in a state of inflammation and illness.  A diagnosis would help you stop playing Russian roulette with your and your children's health.      
    • trents
      Welcome to the celiac.com community, @McKinleyWY! There currently is no testing for celiac disease that does not require you to have been consuming generous amounts of gluten (at least 10g daily, about the amount in 4-6 slices of wheat bread) for at least two weeks and, to be certain of accurate testing, longer than that. This applies to both phases of testing, the blood antibody tests and the endoscopy with biopsy.  There is the option of genetic testing to see if you have one or both of the two genes known to provide the potential to develop celiac disease. It is not really a diagnostic measure, however, as 30-40% of the general population has one or both of these genes whereas only about 1% of the general population actually develops celiac disease. But genetic testing is valuable as a rule out measure. If you don't have either of the genes, it is highly unlikely that you can have celiac disease. Having said all that, even if you don't have celiac disease you can have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms as celiac disease but does not involve and autoimmune reaction that damages the lining of the small bowel as does celiac disease. Both conditions call for the complete elimination of gluten from the diet. I hope this brings some clarity to your questions.
    • McKinleyWY
      Hello all, I was diagnosed at the age of 2 as being allergic to yeast.  All my life I have avoided bread and most products containing enriched flour as they  contain yeast (when making the man made vitamins to add back in to the flour).  Within the last year or so, we discovered that even whole wheat products bother me but strangely enough I can eat gluten free bread with yeast and have no reactions.  Obviously, we have come to believe the issue is gluten not yeast.  Times continues to reinforce this as we are transitioning to a gluten free home and family.  I become quite ill when I consume even the smallest amount of gluten. How will my not having consumed breads/yeast/gluten for the better part of decades impact a biopsy or blood work?  I would love to know if it is a gluten intolerance or a genetic issue for family members but unsure of the results given my history of limited gluten intake.   I appreciate the input from those who have gone before me in experience and knowledge. Thank you all!
    • trents
      I know what you mean. When I get glutened I have severe gut cramps and throw up for 2-3 hr. and then have diarrhea for another several hours. Avoid eating out if at all possible. It is the number one source of gluten contamination for us celiacs. When you are forced to eat out at a new restaurant that you are not sure is safe, try to order things that you can be sure will not get cross contaminated like a boiled egg, baked potatos, steamed vegies, fresh fruit. Yes, I know that doesn't sound as appetizing as pizza or a burger and fries but your health is at stake. I also realize that as a 14 year old you don't have a lot of control over where you eat out because you are tagging along with others or adults are paying for it. Do you have support from your parents concerning your need to eat gluten free? Do you believe they have a good understanding of the many places gluten can show up in the food supply?
    • Peace lily
      Okay went online to check green mountain k cups .It was said that the regular coffees are fine but they couldn’t guarantee cross contamination.with the flavors. im trying to figure out since I eliminated the suyrup so far so good. I’m hoping. thanks it feels good to listen to other people there views.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.