Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Annoying Mouth Problems

Kim27

Recommended Posts

Kim27 Contributor
Kim27
Posted

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ksymonds84 Enthusiast
ksymonds84
Posted

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

I don't get them as often now but would mostly get them on my tongue and around the sides of my tongue which as you know made it very painful to eat. Before my celiac diagnosis I got them all the time, now just once in awhile. Very acidic stuff like Franks hot sauce, pineapples, limes ect will sometimes cause them for me as well.

Gemini Experienced
Gemini
Posted

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

Nope...not weird at all! I got them on the sides of my mouth and on the sides of my tongue also. My dentist actually freaked out and thought I had mouth cancer because one of them would not heal. That was right before I was diagnosed and when I went gluten-free, all sores disappeared, never to return. The dentist, along with myself, got quite an education and I told her not to assume that a mouth sore=cancer and scare the crap out of people. Now, when she see's other patients with the problems I had, she talks to them about Celiac Disease first.

Tina B Apprentice
Tina B
Posted

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

I used to get them at least once a month but haven't had any since I have been gluten free...so 20 years.

jerseyangel Proficient
jerseyangel
Posted

I used to get them often--mostly on the inside of my cheeks. Now, if I get into cross contamination, they reoccur.

Skylark Collaborator
Skylark
Posted

I got them most often on the inside of my lower lip, or the inside of my cheeks where my teeth can catch. They went away after I was gluten-free for a while. It's so weird to bite the inside of my mouth and have it heal normally! If I eat gluten I'll often get one again.

Kim27 Contributor
Kim27
Posted
  • Author

Thanks for all the comments everyone! I was under the impression most people got them on the inside of their lower lip. I am glad to hear I'm not the only one with tongue problems. I used to get them more often than I do now, but I have a huge one on the side of my tongue now and it's really bothering me. I get them whenever I bite myself as well and sometimes it seems like they pop up for no reason, those are always on the sides of my tongue. Not fun.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


i-geek Rookie
i-geek
Posted

Mine are always on the sides of the tongue, right where my tongue bumps up against my molars. They're pretty much gone after 7 months gluten-free but flare up a bit if I'm CCed.

kimann79 Apprentice
kimann79
Posted

I've gotten them regularly since I was five. All over my tongue, my cheeks, inside my lips and sometimes down my throat. Very painful. I would miss school because of it.

I found that eliminating caffeine and artificial sweeteners reduced my outbreaks but I still get them fairly often- about once or twice a month. Right now my cheeks are a mess and I have a couple on the back of my tongue. My husband thinks I'm addicted to Chloraseptic (is that gluten free? I should check.)

Kim27 Contributor
Kim27
Posted
  • Author

Get your dentist to give you liquid dexamethasone. It works wonders! If I swab it a few times a day, mine will generally be gone in 1-2 days.

Ruthie13 Rookie
Ruthie13
Posted

yep, I get them too, along the side of my tongue...soooo painful. Got one now after getting cc'd...argh not fun. Thought it was weird but clearly its not. Thanks for helping me feel a little more normal :)

Smarts Rookie
Smarts
Posted

Mine seemed to pop up pretty much anywhere, sides of my tongue, side of my mouth where there is a crease and behind my lips or on my gums over my teeth.

My ulcers always seemed to come in clusters, but I never gave it much thought as the doctors and dentists were never interested. Hadn't had one for quite a while - but after my first month of being gluten free I ate some gluten crackers this week - and voila I now have 2 beauties behind my lower lip!!

  • 2 weeks later...
Lori2 Contributor
Lori2
Posted

My daughter has a major canker sore problem. Her physician finally sent her to Mayo Clinic for evaluation. They diagnosed her as having an iron absorbtion problem. As long as she can keep her iron levels up (difficult to do) she is free of canker sores. But I wonder if she actually has a gluten problem which is interferring with her iron absorbtion.

Emsstacey Rookie
Emsstacey
Posted

I have had a lifelong problem with mouth sores. I even get them on my throat and soft palate. Last year, I read an article stating that over 90% of sufferers no longer had mouth sores after taking 1000mcg B12 sublingually. I started taking it and rarely ever have a mouth sore now.

I think mine were/are related to B12 deficiency most likely celiac related. I have had other neuro symptoms that have improved as well.

naiiad Apprentice
naiiad
Posted

I had really bad mouth sores before going wheat-free. I'd have 5-7 at a time, usually on the roof of my mouth, or on the same side of my tongue. When it got really bad, I'd even find a painful few in my nostrils, and even more painful ones, well, on (okay inside) my butt (hole). D:

Two days after going wheat free, I stopped getting new sores, and within a week all the sores healed completely.

I think its pretty common to get sores in the same area. Not sure why. I'd suggest tea tree oil or salt water to treat them ^^

missceliac2010 Apprentice
missceliac2010
Posted

My 11 year old son gets these mouth sores an awful lot, and I just put him on the Celiac diet last week...suspecting he got his Mom/Grandpa's genetics, and has it too. I chose to not "get him officially tested", as false negatives are just too frequent, and why put the kid through anything potentially traumatic and unnecessary?!

My little man has a severe heart defect and has had 2 open heart surgeries. He continues to struggle with heart problems and has to go through a sedated cardiac MRI this Thursday at Stanford hospital in Palo Alto, CA, to plan the timing of his next surgery to replace a cow valve that was placed in 2006 and is now non-functioning. So you see why putting him through even a simple blood draw and/or an upper GI test is not high on my list of things to do!

Anyway, I had no idea that his canker sores were Celiac related. This is just another symptom that makes me feel more comfortable in my decision to just put him on the diet, without any official testing. So another thank you is in order here. Thanks! :0)

He is doing great btw, and I even managed to get my ex-husband (we share 50/50 custody of our kids) on board with the diet for him. He went out yesterday and bought him some gluten-free food at the local grocery store that has an awesome health food/gluten-free section. I am supplying Dad with homemade bread to give to him, since I bake it 4 loaves at a time anyway and it's my son's favorite. His D and bad gas is slowly going away, and he feels like a million bucks! Yay!

Again I'll say it, gluten is terrible stuff! (At least for many members of my family!)

Hey Everyone!

I am having annoying problems with mouth sores...what I would call a canker sore or an ulcer. I know this can be associated with Celiac disease (which I have)... To my point--- I am just curious to find out if you all get sores in different places in your mouths or do they tend to happen in just one part of your mouth, i.e., inside of lips, cheeks, or tongue. Mine always tend to be on the sides on tongue and I am wondering if this is weird or not?

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,918
    • Most Online (within 30 mins)
      7,748
    Dizzyma
    Newest Member
    Dizzyma
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Newly diagnosed mam to coeliac 11 year old

      By trents · Posted

      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Newly diagnosed mam to coeliac 11 year old

      By Dizzyma · Posted

      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      Fermented foods, Kefir, Kombucha?

      By xxnonamexx · Posted

      very interesting thanks for the info  
    • Florence Lillian
      gluten free cookie recipes

      By Florence Lillian · Posted

      More cookie recipes ...thanks so much for the heads-up Scott.  One can never have too many.  Cheers, Florence.
    • Russ H
      Severe severe mouth pain

      By Russ H · Posted

      Hi Charlie, You sound like you have been having a rough time of it. Coeliac disease can cause a multitude of skin, mouth and throat problems. Mouth ulcers and enamel defects are well known but other oral conditions are also more common in people with coeliac disease: burning tongue, inflamed and swollen tongue, difficulty swallowing, redness and crusting in the mouth corners, and dry mouth to name but some. The link below is for paediatric dentistry but it applies to adults too.  Have you had follow up for you coeliac disease to check that your anti-tTG2 antibodies levels have come down? Are you certain that you not being exposed to significant amounts of gluten? Are you taking a PPI for your Barrett's oesophagus? Signs of changes to the tongue can be caused by nutritional deficiencies, particularly iron, B12 and B9 (folate) deficiency. I would make sure to take a good quality multivitamin every day and make sure to take it with vitamin C containing food - orange juice, broccoli, cabbage etc.  Sebaceous hyperplasia is common in older men and I can't find a link to coeliac disease.   Russ.   Oral Manifestations in Pediatric Patients with Coeliac Disease – A Review Article
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.