Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Still Having Major Problems


Kimeran

Recommended Posts

Kimeran Newbie

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lynnelise Apprentice

I have some Hall's sore throat drops and they are supposed to be gluten free. However, they do have glucose syrup in them which can be derived from wheat starch but supposedly has so little ppm of gluten that it isn't supposed to cause reactions. Nonetheless, I've heard people say they have reacted to glucose syrup so it could be the drops for your sore throat.

T.H. Community Regular

So sorry for you!

Well, re: the gluten? Could be the splenda or the throat drops, because unfortunately 'gluten free' does not actually mean 'no gluten.' It just means less than a certain amount of gluten (and that amount is determined by country), and there are varying levels of sensitivity to gluten, so some people will still react to some products that are 'gluten free.'

In the studies that I've read, they've looked at some people, eating very gluten free, who have refractory celiac disease. A number of them improved when they lowered their gluten level even further.

Also, we've experienced something that I know a few others have, namely that our reactions get worse the longer we're off of gluten. Now, I don't know if you get more sensitive to gluten, too, sometimes, or if the reactions being worse just let you know that something is not good for you, but I DO know that both my daughter and I have foods now that we can't eat that we ate without noticing a problem a few months ago (we've only been gluten-free for a little over a year, now)

We try to eat them now, we get really sick. So...might want to try and drop the sweetener and cough drop and see how it goes. Couldn't hurt, anyway! :)

ksymonds84 Enthusiast

Splenda gives me stomach cramps and other digestive problems

jerseyangel Proficient

Splenda gives me stomach cramps and other digestive problems

It does to me also, plus migraine headaches.

GFinDC Veteran

I avoid any artificial sweetners now. I had problems with them also.

Marilyn R Community Regular

What I've found, after being on a fairly restricted (but not total elimination diet) is that you have a reaction to food intolerances roughly 10-24 hours after injesting it, and the after effects last longer. Food allergy reactions occur quicker, are more immediately severe, but don't last as long. That's my body, not sure if anyone else is the same.

Some of the attacks sneak up on you, some of them pounce. It makes this all so confouunding at times.

I'm so very sorry that you were sick during your honeymoon, and wish you good health!

I'd try to eliminate soy before eggs, but you never know until you try! Good luck...and I wish you a long and happy marriage!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



GlutenFreeManna Rising Star

hey all. just got back from my honeymoon where i was sick for most of the trip regardless of avoiding dairy and gluten.

today i am still feeling extrememly sick with severe stomach pain and nausea and i have not had any gluten or dairy.

all i had today was a scrambled egg with some leftover steak for breakfast. I am 100% positive that this had no CC as i do not even keep gluten in the house.

I also had some hot tea as I have a soar throat. THIS and the splenda used to sweeten it was double checked to make sure there was no gluten.

THE only other thing that could be a problem is the throat drops for my soar throat. THIS Was also double checked to have no gluten.

I have not idea what it could be and I don't think this is normal. DOEs anyone have any suggestions?

Where did you go on your honeymoon and what did you eat? Any chance of food poisioning instead of gluten?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,201
    • Most Online (within 30 mins)
      7,748

    Elisa Stutsman
    Newest Member
    Elisa Stutsman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
    • RMJ
      To evaluate the TTG antibody result we’d need to know the normal range for that lab.  Labs don’t all use the same units.  However, based on any normal ranges that I’ve seen and the listed result being greater than a number rather than a specific number, I’d say yes, that is high! Higher than the range where the test can give a quantitative result. You got good advice not to change your diet yet.  If you went gluten free your intestines would start to heal, confusing any further testing,
    • Bev in Milw
      Scott is correct….Thank you for catching that!      Direct link for info  of fillers.    http://www.glutenfreedrugs.com/Excipients.htm Link is on 2nd page  of www.glutenfreedrugs.com   Site was started by a pharmacist (or 2) maybe 15-20 yrs ago with LAST updated in  2017.  This makes it’s Drug List so old that it’s no longer relevant. Companies & contacts, along with suppliers &  sources would need to be referenced, same amount effort  as starting with current data on DailyMed      That being said, Excipient List is still be relevant since major changes to product labeling occurred prior ’17.           List is the dictionary that sources the ‘foreign-to-us’ terms used on pharmaceutical labels, terms we need to rule out gluten.    Note on DailyMed INFO— When you look for a specific drug on DailyMed, notice that nearly all of companies (brands/labels) are flagged as a ‘Repackager’… This would seem to suggest the actual ‘pills’ are being mass produced by a limited number of wholesaler suppliers (esp for older meds out of  patent protection.).      If so, multiple repackager-get  bulk shipments  from same supplier will all  be selling identical meds —same formula/fillers. Others repackager-could be switching suppliers  frequently based on cost, or runs both gluten-free & non- items on same lines.  No way to know  without contacting company.     While some I know have  searched pharmacies chasing a specific brand, long-term  solution is to find (or teach) pharmacy staff who’s willing help.    When I got 1st Rx ~8 years ago, I went to Walgreens & said I needed gluten-free.  Walked  out when pharmacist said  ‘How am I supposed  to know…’  (ar least he as honest… ). Walmart pharmacists down the block were ‘No problem!’—Once, they wouldn’t release my Rx, still waiting on gluten-free status from a new supplier. Re: Timeliness of DailyMed info?   A serendipitous conversation with cousin in Mi was unexpectedly reassuring.  She works in office of Perrigo, major products of OTC meds (was 1st to add gluten-free labels).  I TOTALLY lucked out when I asked about her job: “TODAY I trained a new full-time employee to make entries to Daily Med.’  Task had grown to hours a day, time she needed for tasks that couldn’t be delegated….We can only hope majorities of companies are as  conscientious!   For the Newbies…. SOLE  purpose of  fillers (possible gluten) in meds is to  hold the active ingredients together in a doseable form.  Drugs  given by injection or as IV are always gluten-free!  (Sometimes drs can do antibiotics w/ one-time injection rather than 7-10 days of  pills .) Liquid meds (typically for kids)—still read labels, but  could be an a simpler option for some products…
×
×
  • Create New...