Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Also Avoid Soybean Products?


GlutenFreeManna

Are you gluten free and also avoiding soy?  

43 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

GlutenFreeManna Rising Star

With Betty Crocker adding soy flour to their gluten-free mixes I was just curious how many celiacs/gluten intolerant people here also have to avoid soybeans in any form. It's a pretty straight forward poll, but just to clarify choose yes if you avoid any gluten-free type of soy, even if you don't avoid soybean oil or soy lectin. Choose no if you use gluten-free soy sauce and don't worry about soy in other forms at all. Obviously we ALL should be avoiding the non-gluten free soy sauce. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I think there are quite a few of us, at least from what I have read here on the board. It did take me quite a while to realize it was an issue for me. I thought for a long time that I was getting CC'd until I started keeping a food and reaction diary. Enterolab then confirmed my suspicions.

jerseyangel Proficient

I voted a quick "yes" yesterday but had to run. I react to soy (even the oil) with cramping and D. I've also noticed that a soy sensitivity doesn't seem to be unusual amongst Celiacs.

sa1937 Community Regular

While I voted no, I have no idea if I have a problem with soy or not. I do still have some issues and am still trying to figure out how sensitive I might be to a lot of ingredients.

But if given a choice among products, I would choose the one without soy just knowing it causes a lot of problems for many. For example, Earth Balance, which comes in both versions. Damn, our local Wal-Marts have quit carrying it.

shopgirl Contributor

Sort of. I haven't eaten any soy in about a month as a trial. No change so I assume I'm okay with it. There's nothing I particularly want to eat right now that actually contains soy so I'm just carrying on as I am. At some point, I'll reintroduce it but I want to finish my soy-free Earth Balance first. :P

chasbari Apprentice

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

lisa25 Rookie

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pac Apprentice

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

RideAllWays Enthusiast

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

julandjo Explorer

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.

Ditto!

Pac Apprentice

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

I use Tamari - one that doesn't have any warning about cc (took me long time to find it). There's not many meals left that I can eat with soy sauce anyway - I'm crossreacting to rice so it's hard to get noodles for my stir-fry. (there are one in vietnamese shop that say arrowroot in english, rice in czech and tapioca or something else in slovak, not brave enough to try those. :ph34r: They look quite yummy though.)

Estella Newbie

Have Hashimoto's so soy was out of my diet long before gluten. Several years later I found dairy gave me problems so dropped that. Then a number of years later gluten reared it's ugly head. So far I'm not noticing any other things causing issues...fingers crossed!

Cypressmyst Explorer

I've been sort of avoiding soy for years because it interferes with my thyroid meds. But now I avoid it because I read up on it and the processing makes me want to :blink: in addition to the thyroid issue.

Marz Enthusiast

I avoid soy - bad stomach pain, nausea, running to the loo for a whole day afterward - it's just no good for me :( Thank goodness I don't react to soy lecithin!

I realised it was soy after eating gluten-free "Ensure" - it's a powder mix with milk, soy and maize/corn proteins. Upset my stomach so badly... and I know I'm fine with milk and maize.

Then I tried soy milk that should have also been gluten-free, immediate sore stomach - I call it a "gut-punched" feeling, because I hunch over like I've been punched from the pain, hehe.

GlutenFreeManna Rising Star

Wow, the number of people on this board avoiding soy is much higher than I was expecting. I avoid soy because hypothyroidism runs in my family and I have noticed when I eat soy my joints hurt more and I feel run down. Also soybean oil gives me migrains sometimes. I only cheat with soy lecthin in chocolate and when I go out to a restaurant. I don't worry too much about whether they cook with soybean oil--gluten free is much more important than soy free to me, but I will ask if I'm getting something like a gluten free pizza crust if it has soy flour and I won't get it. I found out the hard way that Uno's gluten-free crust has soy flour in it and so I won't get pizza there anymore. The soy flour really does me in. I'll hurt for a week after having soy flour.

Skylark Collaborator

I am looking suspiciously at corn right now, but soy does not seem to be a problem for me.

wheeleezdryver Community Regular

I try to avoid soy when I can, but can eat it (at least in small doses) with no apparent issues. Yes, I have thyroid problems, but none of the 'bad' thyroid foods ever seem to bother me.

cahill Collaborator

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

yep, me too

cap6 Enthusiast

I am avoiding as I have read several articles on how bad it really is for you as we have genetically mutated soybeans to the point where they are no longer good for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    2. - MicG posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Test interpretations

    3. - catnapt posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      how long does it take for the genetic blood test for celiac to come back?

    4. - DebD5 commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

    5. - Scott Adams commented on Scott Adams's article in Spring 2026 Issue
      3

      The Dark Side of Gluten-Free: Counterfeit Labels and Global Food Safety Failures

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,655
    • Most Online (within 30 mins)
      7,748

    Murdy3
    Newest Member
    Murdy3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Possibly. Your total IGA (Immunoglobulin A, Qn, Serum) is actually high so you are not IGA deficient. In the absence of IGA deficiency, the most reliable celiac antibody test would be the t-Transglutaminase (tTG) IgA for which your score is within normal range. There are other things besides celiac disease that might cause an elevated DGP-IGA (Deamidated Gliadin Abs, lgA) for which you do have a positive score. It might also be of concern that your total IGA is elevated as that can indicate some other health problems, some of which are serious.  Had you been practicing a gluten free or a reduced gluten free diet prior to the blood draw? Talk to your physician about these things. I would also seek an endoscopy/biopsy of the small bowel to check for damage to the villous lining, which is the gold standard diagnostic test for celiac disease.
    • MicG
      Test results as follows: Deamidated Gliadin Abs, lgA 40 H (normal range 0-19) Deamidated Gliadin Abs, IgG 4 (0-19) t-Transglutaminase (tTG) IgA <2 (0-3) t-Transglutaminase (tTG) IgG <2 (0-5) Endomysial Antibody IgA Negative (Negative) Immunoglobulin A, Qn, Serum 535 H (87-352) Do I have celiac?
    • catnapt
      how long does it take for the genetic blood test for celiac to come back? I saw the GI today, she was great. She says I def have an issue with gluten and that my symptoms align more with celiac disease than NCGS, so she's doing the genetic testing, Ordered a test for SIBO but said that's just to cover all bases, she doesn't think I have that. If the blood work comes back negative for the genes, then I will cancel the endoscopy. If positive, I will try the 2 week gluten challenge and get the endoscopy done. If I can't manage the gluten challenge (I had HORRIBLE symptoms last time and quit after 12 days) then we'll just assume it's celiac disease and go from there. She says she does a full nutrient panel on all her pts every year, that was nice to hear.I'm on so many supplements it would be nice to only have to get the ones I truly need! so yeh, really anxious about the test results for the genes!! I have an identical twin sister so I'd need to tell her if it's positive, she'd prob want to get tested too. *interesting note: when I said if the blood work comes back that I don't have the genes, then I'm in the clear - she said, well,,,,,,not necessarily. But she didn't want to go into as we had a lot to go over. I did make a  mental note of that comment and will ask her when I see her next time.   she was very thorough! I was impressed! she even checked- up on some lab work I had done that my Endo ordered. I like her, I am looking forward to seeing her again. I think I'll get some good advice and info from her she also complimented me on my diet.   said it was a very gut friendly and healthy diet 
    • Scott Adams
      I'm not sure why "colonoscopy" keeps coming up for you, again it would be an endoscopy to diagnose celiac disease, but it seems that Kaiser should still have your records. If you were diagnosed by them in the 1990's using a blood test and endoscopy, then you definitely have celiac disease, and hopefully you've been gluten-free since that time. You should be able to contact Kaiser for those records.
    • Russ H
      This sounds like a GP who is ignorant regarding coeliac disease. The risk with consuming gluten for several days is that it triggers the coeliac immune response, leading to raised auto-antibodies and active disease for several months. People may not even be aware of symptoms during this process, but it is causing damage to the body. As trents has said, the gut lining normally recovers on a strict gluten-free diet, and this happens much faster in children than in adults.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.