Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Also Avoid Soybean Products?


GlutenFreeManna

Are you gluten free and also avoiding soy?  

43 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

GlutenFreeManna Rising Star

With Betty Crocker adding soy flour to their gluten-free mixes I was just curious how many celiacs/gluten intolerant people here also have to avoid soybeans in any form. It's a pretty straight forward poll, but just to clarify choose yes if you avoid any gluten-free type of soy, even if you don't avoid soybean oil or soy lectin. Choose no if you use gluten-free soy sauce and don't worry about soy in other forms at all. Obviously we ALL should be avoiding the non-gluten free soy sauce. :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I think there are quite a few of us, at least from what I have read here on the board. It did take me quite a while to realize it was an issue for me. I thought for a long time that I was getting CC'd until I started keeping a food and reaction diary. Enterolab then confirmed my suspicions.

jerseyangel Proficient

I voted a quick "yes" yesterday but had to run. I react to soy (even the oil) with cramping and D. I've also noticed that a soy sensitivity doesn't seem to be unusual amongst Celiacs.

sa1937 Community Regular

While I voted no, I have no idea if I have a problem with soy or not. I do still have some issues and am still trying to figure out how sensitive I might be to a lot of ingredients.

But if given a choice among products, I would choose the one without soy just knowing it causes a lot of problems for many. For example, Earth Balance, which comes in both versions. Damn, our local Wal-Marts have quit carrying it.

shopgirl Contributor

Sort of. I haven't eaten any soy in about a month as a trial. No change so I assume I'm okay with it. There's nothing I particularly want to eat right now that actually contains soy so I'm just carrying on as I am. At some point, I'll reintroduce it but I want to finish my soy-free Earth Balance first. :P

chasbari Apprentice

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

lisa25 Rookie

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Pac Apprentice

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

RideAllWays Enthusiast

I voted no but with the exception of soy lecitin and soy sauce I rarely eat any. (there's one candy made with soy flour I eat). I do avoid soy oil but that's not because of the soy. All these "modern" oils like soy, corn or canola make me sick.

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

julandjo Explorer

My soy reaction is just as bad as a gluten reaction. No soy oil or soy lecithin for me. I also have to watch for products that are produced on the same lines as soy containing products.

Ditto!

Pac Apprentice

When you say you eat soy sauce, it's the gluten-free kind right? Regular soy sauce contains wheat ;)

I use Tamari - one that doesn't have any warning about cc (took me long time to find it). There's not many meals left that I can eat with soy sauce anyway - I'm crossreacting to rice so it's hard to get noodles for my stir-fry. (there are one in vietnamese shop that say arrowroot in english, rice in czech and tapioca or something else in slovak, not brave enough to try those. :ph34r: They look quite yummy though.)

Estella Newbie

Have Hashimoto's so soy was out of my diet long before gluten. Several years later I found dairy gave me problems so dropped that. Then a number of years later gluten reared it's ugly head. So far I'm not noticing any other things causing issues...fingers crossed!

Cypressmyst Explorer

I've been sort of avoiding soy for years because it interferes with my thyroid meds. But now I avoid it because I read up on it and the processing makes me want to :blink: in addition to the thyroid issue.

Marz Enthusiast

I avoid soy - bad stomach pain, nausea, running to the loo for a whole day afterward - it's just no good for me :( Thank goodness I don't react to soy lecithin!

I realised it was soy after eating gluten-free "Ensure" - it's a powder mix with milk, soy and maize/corn proteins. Upset my stomach so badly... and I know I'm fine with milk and maize.

Then I tried soy milk that should have also been gluten-free, immediate sore stomach - I call it a "gut-punched" feeling, because I hunch over like I've been punched from the pain, hehe.

GlutenFreeManna Rising Star

Wow, the number of people on this board avoiding soy is much higher than I was expecting. I avoid soy because hypothyroidism runs in my family and I have noticed when I eat soy my joints hurt more and I feel run down. Also soybean oil gives me migrains sometimes. I only cheat with soy lecthin in chocolate and when I go out to a restaurant. I don't worry too much about whether they cook with soybean oil--gluten free is much more important than soy free to me, but I will ask if I'm getting something like a gluten free pizza crust if it has soy flour and I won't get it. I found out the hard way that Uno's gluten-free crust has soy flour in it and so I won't get pizza there anymore. The soy flour really does me in. I'll hurt for a week after having soy flour.

Skylark Collaborator

I am looking suspiciously at corn right now, but soy does not seem to be a problem for me.

wheeleezdryver Community Regular

I try to avoid soy when I can, but can eat it (at least in small doses) with no apparent issues. Yes, I have thyroid problems, but none of the 'bad' thyroid foods ever seem to bother me.

cahill Collaborator

My first exposure to soy after going rigorously gluten free/soy free was almost worse than a glutening. I avoid it like the plague.

yep, me too

cap6 Enthusiast

I am avoiding as I have read several articles on how bad it really is for you as we have genetically mutated soybeans to the point where they are no longer good for you.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Lkg5 replied to Charlie1946's topic in Related Issues & Disorders
      44

      Severe severe mouth pain

    2. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      44

      Severe severe mouth pain

    3. - Aretaeus Cappadocia posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Brown Rice Vinegar (organic) from Eden Foods is likely gluten free

    4. - Scott Adams replied to wellthatsfun's topic in Gluten-Free Recipes & Cooking Tips
      1

      heaps of hope!

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,095
    • Most Online (within 30 mins)
      7,748

    Will Smart
    Newest Member
    Will Smart
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Lkg5
      My sebaceous hyperplasia and thrush disappeared when I stopped all dairy.
    • Charlie1946
      @knitty kitty Thank you so much for all that information! I will be sure to check it out and ask my doctor.  I am just at a loss, I am on my 2nd round of miracle mouthwash and I brush and scrape my tongue and (sorry this is gross) it's still coated in the middle 
    • Aretaeus Cappadocia
      Traditional brown rice vinegars are made by fermenting brown rice and water with koji (Kōji 麹). The gluten risk comes from the method of preparing the koji: rice, wheat or barley may be used. Regardless of the starting grain, "koji" typically will be listed as an ingredient, and that term alone does not indicate gluten status. I called Eden Foods regarding their product "Organic Brown Rice Vinegar" (product of Japan) to ask how their product is made. They gave me a clear answer that they >do< use rice and they >do not< use wheat or barley in preparing their koji. FWIW, the product itself does not contain any labeling about gluten, gluten risk, or gluten safety. Based on Eden's statement, I am going to trust that this product is gluten safe and use it.
    • Scott Adams
      Your post nails the practical reality of living well with a celiac diagnosis. The shift from feeling restricted to discovering a new world of cooking—whether through a supportive partner making gluten-free spanakopita and gravy, or learning to cook for yourself—is exactly how many people find their footing. It turns a medical necessity into a chance to build kitchen skills, eat more whole foods, and actually enjoy the process. Your point that the basics—knife skills, food safety, and experimenting with spices—are all you really need is solid, helpful advice. It’s a good reminder that the diagnosis, while a pain, doesn’t have to stop you from eating well or having fun with food.
    • Scott Adams
      You are experiencing a remarkable recovery by addressing core nutrient deficiencies, yet you've uncovered a deeper, lifelong intolerance to fruits and vegetables that appears to be a distinct issue from celiac disease. Your experience points strongly toward a separate condition, likely Oral Allergy Syndrome (OAS) or a non-IgE food intolerance, such as salicylate or histamine intolerance. The instant burning, heart palpitations, and anxiety you describe are classic systemic reactions to food chemicals, not typical celiac reactions. It makes perfect sense that your body rejected these foods from birth; the gagging was likely a neurological reflex to a perceived toxin. Now that your gut has healed, you're feeling the inflammatory response internally instead. The path forward involves targeted elimination: try cooking fruits and vegetables (which often breaks down the problematic proteins/chemicals), focus on low-histamine and low-salicylate options (e.g., peeled pears, zucchini), and consider working with an allergist or dietitian specializing in food chemical intolerances. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.