Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Problem

Googles

By Googles
in Coping with Celiac Disease

Recommended Posts

Googles Community Regular
Googles
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

I have been having a new problem. It's really hard to describe. I have had heart burn intermittently in the past, but the last week it has been almost constant. I have been taking tums which usually works in the past, but it just keeps coming back. I haven't changed anything I eat. Then yesterday and today it feels like food is trying to claw its way out of my chest. Like burp and it feels like food is trying to come out (not up). They've also been painful at the bottom of my diaphragm. My chest feels raw on the inside. I don't know how to better describe it. Any ideas?

I have a hiatal hernia and I experience similar symptoms, sporadically. Hope you are not taking Tums Smoothies, they are not gluten free (as my last check). Regular Tums are gluten-free to my current knowledge.

You could also have developed an ulcer, or an inflamed esophagus. Maybe time to see a doctor. Acid can do some damage too.

jerseyangel Proficient
jerseyangel
Posted

I have a hiatal hernia and I experience similar symptoms, sporadically.

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Lisa Mentor
Lisa
Posted

I do too, and for me there doesn't seem to be any set food or pattern that sets it off. I get the pressure, belching, and also coughing and hiccups (both at the same time <_< ).

I don't take anything for it, as I find that otc antacids make it worse. Walking helps, as does drinking water, and elevating the head of the bed. I second Lisa's suggestion that you check with your doctor on this one so you know what you're dealing with.

Patti, I have noticed also that antacids don't seem to help much. Tums don't help much but I was told it's good calcium.

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

jerseyangel Proficient
jerseyangel
Posted

Regarding the hernia..when resting or beginning sleep, turning to the left or flat side helps. Right side at rest finds the discomfort.

Interesting--I'll try that. Thanks :)

cassP Contributor
cassP
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

cahill Collaborator
cahill
Posted

Dont tums/most over the counter antacids have soy in them??? Do you have issues with soy?

Do you have issues with your gallbladder ??

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Googles Community Regular
Googles
Posted
  • Author

I have a doctor's appointment with student health services for tomorrow. I hate going to the doctor. I'm worried they are going to tell me they don't know what is wrong and to just go away. Ugh.

GFinDC Veteran
GFinDC
Posted

if it's an acid reflux that's nonstop and you're not getting relief like before- it could very well be an ulcer. If it's convenient for you- you should think about seeing your doctor to see if you've got H.Pylori... And in the future- all of us with reoccuring reflux should get endos to check our esophagus.

I have crappy insurance and hate going on antibiotics- so last year when i thought i had an ulcer - i pounded ionized silver and grapefruit seed extract (*always follow instructions on bottle). These are natural antibiotics without the awful side effects. I also took pepto, tums, and occasional zantac. By the 3rd week i felt practically all better.

Garlic is supposed to be a good anti-bacterial too. I have been wondering what the GSE was for. Thanks for that.

Salax Contributor
Salax
Posted

I have the same. I higly recommend George's Aloe Vera juice twice a day. Once in the AM and once before bed. About 1/2 of a shot glass full. More than that can give you D. I have the herna as well, my doc started me on this for 3 weeks, symptoms gone, it heals the herna and the throat, etc.. When or if they start again, go back on the aloe. You should be able to find this in most health food stores or online. I hope you feel better. B)

Googles Community Regular
Googles
Posted
  • Author

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

GFinDC Veteran
GFinDC
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Maybe you can switch to decaf in the afternoons. And later decaf in the mornings.

Wolicki Enthusiast
Wolicki
Posted

I have had similar problems in the past, and it turned out to be hyporchlorydia- low stomach acid. The effects are similar to GERD. Problem is I was prescibed acid blockers for over 20 years, so now I have no stomach acid or enzymes. So I take Betaine HCL and enzymes and the problems were resolved.

dilettantesteph Collaborator
dilettantesteph
Posted

I get GERD as a sign of glutening. It helped me to cut down on processed foods.

Juliebove Rising Star
Juliebove
Posted

So I went to the doctor today and they said I have GERD and should take antacids. So I will start doing that. They also said I should give up spicy food, and caffeine, and maybe tomatoes.Ugh. Within the last few months I just added tomatoes back in. I don't want to have to give them up again, but I guess I need to. I don't know how giving up caffeine is going to work. I might just cut back to start.

Everyone is different. I know people with GERD who also can not have onions and peppers. None of those things bother me. What does bother me is dark chocolate. The pain! Oh mama!

You should also invest in a GERD wedge pillow to sleep on. Or failing that, put some blocks under the head of your bed to raise it up a couple of inches.

Googles Community Regular
Googles
Posted
  • Author

Contrary to most people with GERD, for me it is not at all problematic when I lie down. It is actually better then. My doctor thinks it might be stress related, and so when I lie down, I usually am able to relax. So hopefully I wont have to adjust my sleeping position (I love sleeping on my stomach). I started the meds today. I hope that after being on them a couple of weeks it will all go away and then I can stop taking them. (wishful thinking probably, but I can hope.)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,939
    • Most Online (within 30 mins)
      7,748
    Michelle C.
    Newest Member
    Michelle C.
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Wheatwacked
      Is this celiac?

      By Wheatwacked · Posted

      Marsh 3b is the Gold Standard of diagnosis for Celiac Disease.  Until recently, regardless of antibody tests, positive or negative, you had to have Marsh 3 damage to be awarded the diagnosis of Celiac. As I understand you,  you were having constant symptoms..  Your symptoms improved on GFD, with occassional flare ups. Did your doctor say you do and you are questioning the diagnosis? Regarding your increasing severity when you get glutened it is "normal.  Gluten acts on the Opiod receptors to numb your body.  Some report withdrawal symptoms on GFD.  I was an alcoholic for 30 years, about 1/2 pint of voda a day. Each time I identified a trigger and dealt with it, a new trigger would pop up.  Even a 30 day rehab stint, with a low fat diet (severe pancreatis) during which I rarely had cravings.  Stopped at a Wendys on the way home and the next day I was drinking again.  20 years later, sick as a dog, bedridden on Thanksgiving, after months of reasearch, I realized that gluten free was my Hail Mary.  Back in 1976 my son was diagnosed at weaning with Celiac Disease and his doctor suggested my wife and I should also be gluten free because it is genetic.  At 25 years old I felt no gastro problems and promised if I ever did I would try gluten free.  Well, I forgot that promise until I was 63.  Three days of gluten and alcohol free, I could no longer tolerate alcohol. Eleven years gluten and alcohol free, with no regrets. Improvement was quick, but always two steps forward and one back.  Over time I found nineteen symptoms that I had been living with for my entire life, that doctors had said, "We don't know why, but that is normal for some people". Celiac Disease causes multiple vitamin and mineral deficiency.  It is an autoimmune disease, meaning your immune system B and T cells create antibodies against ttg(2) the small intestin in Celiac Disease and sometimes ttg(3) in skin in Dermatitis Herpetiformus.  Why is poorly understood.  In fact, it wasn't even know that wheat, barley and rye gluten was the cause.  Celiac Disease was also called Infantilism, because it was deadly, and believed to only be a childhood disease. So as part of your symptoms you must deal with those deficiencies.  Especially vitamin D because it contols your immune system.  Virtually all newly diagnosed Celiacs have vitamin D deficiency.  There are about 30 vitamin and minerals that are absorbed in the small intestine.  With Marsh 3 damage you may be eating the amount everyone else does, but you are not absorbing them into your system, so you will display symptoms of their deficiency.   As time passes and you replenish your deficiencies you may notice other symptoms improve, some you did not even know were sypmptos. Our western diet has many deficiencies build into it.   That is the reason foods with gluten are fortified.  Gluten free processed food are not required to fortify.  Vitamin D, Iodine, choline.  The B vitamins, especially Thiamine (B1) run deficient quickly.  We only store enough thiamine for 2 weeks for symptoms can come on quickly.  Magnesium, zinc, etc. each having its own symptoms affecting multiple systems.  High homocystene, and indicator of vascular inflamation can be cause by deficient Choline, folate, B6 and or B12.  Brain fog, deficient choline, iodine, thiamine. Dietary intake of choline and phosphatidylcholine and risk of type 2 diabetes in men: The Kuopio Ischaemic Heart Disease Risk Factor Study    
    • Rogol72
      Help I’m cross contaminating myself,

      By Rogol72 · Posted

      I cut out the rice because it was affecting my stomach at the time ... not necessarily dermatitis herpetiformis. It was Tilda Basmati Rice, sometimes wholegrain rice. I was willing to do whatever it took to heal. Too much fiber also disagrees with me as I have UC.
    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.