Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feeling Discouraged


TooManyHats

Recommended Posts

TooManyHats Rookie

I've managed to gluten myself twice in one week. Once with Old El Paso enchilada sauce and the other time with La Choy soy sauce. Neither of these items had anything in the ingredients list that looked like gluten to me and neither listed an allergen other than soy. My stomach hurts and I have D back. I feel like planning a menu takes forever and I really am not fond of cooking. I'm having a pity party, would anyone like to come?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient

Sounds like soy should go to the top of the suspect list :o

txplowgirl Enthusiast

Soy does that to me too. When in doubt, kick it out! :D Hope you get to feeling better.

aedixon Newbie

Was there corn involved with either of those? I've been doing much better since getting rid of major corn-based items like corn tortillas even. I seem to do okay with a few gluten-free corn tortilla chips in a small quantity. I don't cook much either since it's usually just me around the house. I know how you feel. It will get easier.

domesticactivist Collaborator

:( that sux. And what they said. It'll get easier.

You say you're not into cooking... the prepackaged stuff has been problematic. Maybe once a month cooking or big annual canning projects could work for you? That way you could have safe foods stocked up. Or maybe you could make double or triple batches of dishes you like when you do cook and freeze them so you have things to eat ready to reheat.

TooManyHats Rookie

I ate Polenta for the first time today. I wonder if that's it for today? I'm sure it was the Old El Paso enchilada sauce on Wednesday, not on an approved list, I should have known better.

wahmmy Apprentice

I ate Polenta for the first time today. I wonder if that's it for today? I'm sure it was the Old El Paso enchilada sauce on Wednesday, not on an approved list, I should have known better.

Not sure about the Old El Paso brand of enchilada sauce, I make my own now and it's so much better than anything out of a can. Very easy, too. My recipe is below. Hope you feel better soon!

Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

I ate Polenta for the first time today. I wonder if that's it for today? I'm sure it was the Old El Paso enchilada sauce on Wednesday, not on an approved list, I should have known better.

Safety Information According to the Manufacturer:

Contains wheat and soy ingredients. Refrigerate Any Unused Sauce.

Ingredients

Water, Tomato Puree (Water, Tomato Paste), Modified Corn Starch, Dried Red Chiles, Soybean Oil, Sugar, Salt, Monosodium Glutamate, Citric Acid, Hydrolyzed Corn Gluten, Soy Protein and Wheat Gluten, Onion Powder, Autolyzed Yeast Extract, Garlic Powder, Spice, Red Pepper, Natural Flavor.

Not so good...

TooManyHats Rookie

Not sure about the Old El Paso brand of enchilada sauce, I make my own now and it's so much better than anything out of a can. Very easy, too. My recipe is below. Hope you feel better soon!

Open Original Shared Link

Thank you! This looks good. I figure the El Paso sauce wasn't my best choice to date. I've read on another board where someone said they had been glutened by La Choy soy sauce. I'll be picking up the tammari (SP?) sauce to try for next time.

Monklady123 Collaborator

Thank you! This looks good. I figure the El Paso sauce wasn't my best choice to date. I've read on another board where someone said they had been glutened by La Choy soy sauce. I'll be picking up the tammari (SP?) sauce to try for next time.

It sounds more like maybe it's the soy. I know La Choy is listed as gluten-free and that's the only kind I eat, with no problems at all. And I'm becoming increasingly sensitive to even small amounts of gluten which is why I'm sure about La Choy. Just ate a stir fry last night and woke up feeling fine this morning.

I hope you find the culprit. It is discouraging to have to pay such close attention to everything that goes in our mouths. :unsure:

wahmmy Apprentice

We use Bragg's Liquid Aminos in place of soy sauce. It's great! But, if you are sensitive to soy then that would also be a problem.

sa1937 Community Regular

Safety Information According to the Manufacturer:

Contains wheat and soy ingredients. Refrigerate Any Unused Sauce.

Ingredients

Water, Tomato Puree (Water, Tomato Paste), Modified Corn Starch, Dried Red Chiles, Soybean Oil, Sugar, Salt, Monosodium Glutamate, Citric Acid, Hydrolyzed Corn Gluten, Soy Protein and Wheat Gluten, Onion Powder, Autolyzed Yeast Extract, Garlic Powder, Spice, Red Pepper, Natural Flavor.

Not so good...

I'm looking at a can of Old ElPaso Mild Enchilada Sauce I have in my pantry and it does not contain wheat. It does, however, say it contains soy ingredients. So does it depend on the type (mild vs. whatever other kinds they have)???

TooManyHats Rookie

That Old El Paso stuff is just way too questionable for me. I like the recipe for the home-made one and will try that.

I really don't want to hear that I'm sensitive to soy too. What will be left? I've never had a problem with soy before and have eaten soy icecream before. This has me very depressed. I'm going to buy that tamari stuff and try that on Friday to see how it goes. Why do these sensitivities crop up all of a sudden?

GFinDC Veteran

The tamari is kind of expensive from w2hat I recall. You could get some other soy containing food to try, like Chex Chocolate cereal ( pretty sure it has soy), or some soy nuts, or some frozen edamme.

I saw a study not long ago where they said infants who are casein intolerant and are switch to soy milk are then more likely to develop additional food intolerances/allergies. Soy, good for your body, not! Sorry, I don't remember where I saw that info.

cap6 Enthusiast

I cut out soy when I read about how we have genetically modified it to the point of where it is actually harmful for us. Ever feel like just planting your own food so that you know it's natural??

TooManyHats Rookie

The tamari is kind of expensive from w2hat I recall. You could get some other soy containing food to try, like Chex Chocolate cereal ( pretty sure it has soy), or some soy nuts, or some frozen edamme.

I saw a study not long ago where they said infants who are casein intolerant and are switch to soy milk are then more likely to develop additional food intolerances/allergies. Soy, good for your body, not! Sorry, I don't remember where I saw that info.

You've identified the source of today's problem, the chocolate rice chex. Dang, I really like that too! Plain rice chex for me from now on. I couldn't imagine what I had done wrong today and at least I know now. Thank you for pointing that out.

sa1937 Community Regular

That Old El Paso stuff is just way too questionable for me. I like the recipe for the home-made one and will try that.

I think homemade anything is always better than something out of a can. I also printed out some recipes for enchilada sauce...very easy to make.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      2

      Related issues

    2. - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

    3. - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

    4. - knitty kitty replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,244
    • Most Online (within 30 mins)
      7,748

    tmperrella
    Newest Member
    tmperrella
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
    • Scott Adams
      This article may be helpful:  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.