Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Disability, Can't Work...


thleensd

Recommended Posts

thleensd Enthusiast

I know some of you have shared similar experiences, what did you do?

I'm too weak for a normal job. I have a couple good hours in me per day, but have a few more than that if I can be at home and work on and off (like on my computer). I tried to work for a while, but was running myself into the ground, getting worse instead of better. It seems that rest and LOTS of food is the best remedy for me. (And, I'm getting better... just not very fast)

Long story short, when I was working, I thought I was paying into disability, but I wasn't. So, I can't have state disability. I meet the criteria for federal disability, but in order to qualify, you have to have been disabled and not working (not working, not collecting unemployment) for an ENTIRE YEAR! I can't afford to do that, and I'm running out of money. It's frustrating, because I've been very responsible with money in my life, but am now whittling away my savings.

I know there are plenty of disabled (for lack of a better word?) people that figure out how to make enough money to live.... but I don't even know where to start! I am college educated/masters degree, but not in a computer friendly field (music/teaching).

Now that my brain fog is lifting, I've had a million ideas of home based businesses run through my head, but none of them actually seem feasible without either a tremendous amount of energy or start up funds. For sale: gluten-free cupcakes, $25 each. ;) What a bargain!

Any brain cells firing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

If you are a music teacher, can you give instrument or voice lessons? Substitute teach. That's all day probably, but one day at a time might not be bad.

ravenwoodglass Mentor

With your education what about tutoring? Contact your local schools and see if they can send some students your way and stick an add in your local paper. Perhaps even add music lessons in there.

Something that kept me off the dole for years was online selling. If you have a good eye for antiques or collectables or have some stuff lying around that you don't use or need listing on an online auction site might bring in a little cash.

If your well versed in all we need to know about being gluten free you could also put up an advertisement at a local health food store offering to educate others.

Looking for answers Contributor

My music teacher friend partnered up with a local music store and does lessons part-time, on her own terms. Would something like that work?

Jestgar Rising Star

Accompanist for local choirs / music groups / churches. Lessons in your house, or maybe in a local church choir practice room. Tutoring of your subject at higher level, or any subject at the grade school level.

Do you knit, paint, make jewelry, anything that can be shown in small restaurants or shops? (The restaurants here display local art work on their walls with a price attached - free decor for them, free studio showing for artists.)

chasbari Apprentice

I can only say I relate to your plight. I have started to grow my studio again but the one on one teaching is rather intense as to energy and I have all I can handle and it isn't enough. I wish I had some suggestions for you but I am looking for solutions as well. I currently have 24 students and it is almost too much.

T.H. Community Regular

in the music lessons area, you can make offers for lessons in the homeschooling community, too - many homeschoolers have more flexible hours than kids in school, so if your 'good' hours are during school hours, they can still take lessons. They also tend to pass the word around, so you'll have to do less advertising. You can do small groups that way, too.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



thleensd Enthusiast

Something like online sales would be perfect... just need to find a niche. My friend makes a living on ebay that way (records), but I just don't know much about any one thing.

There's no way I could get through a whole day subbing. I'd be walking dead. The money is pretty bad, too. I also need to eat a meal every two hours, and I'm trying not to burn too many calories (trust me, it's not as fun as it sounds!)

Lessons are certainly a possibility, but hooking up with a store is generally minimum wage. Can't live on that. I can make a good hourly wage as a clinician, but there are only so many bands and choirs in town (that can afford to bring someone in). I'm exploring that route, certainly. Teaching from home might be ok... that's a lot of kids that will know my address though.

I'd love to do something like teach group *something* ... ten of them could come in for an hour and pay ten bucks each... bam, $100/hr. I could handle teaching for an hour. I can't play, though. My back is wrecked from malnutrition (in weekly therapy) and last time I picked up an instrument I was on my back for a week+.

I've considered creating something to sell... but once again it seems like such little return for a lot of work. Need to think smarter than that. =) Even something like composing/arranging music just isn't that lucrative unless you're John Williams. :D If I had a nice camera, I could do photography... but I don't. The thought of losing my home over this is eating me up.

Maybe the gentleman from Africa with the 1,000,000 dollars that promised me an inheritance (if I only provide him with all of my personal contact and bank info) will come through. That sounds like easy money. You think?? :P

ravenwoodglass Mentor

Have you sat down and talked with the SSI folks? It is my understanding that you don't have to have been disabled for a full year, you just have to be expected to be disabled for a year. Your doctors have to back you up of course. Almost everyone is turned down the first time they apply so if you are turned down apply again. If you do get disability it will be effective for when you first applied and you will get a lump sum from the time you became disabled. Also as a last resort do go to social services. At the very least you should qualify for food stamps and perhaps some financial assistance. There are also programs to retrain folks that can no longer, for health reasons, do the job they were previously doing. I know that no one really wants to have to go on welfare but your tax dollars have been paying into the system for years. There is no shame in accepting temporary help until you can get back on your feet.

Cinnamongirl Rookie

Just a thought. I gather that you own your own home and wondered whether you would consider taking in a renter/ boarder? I boarded with a family for 6 mos when I was doing a 6 month internship after college and it worked out really well for me. I got a room, meals and companionship and I still keep in touch with the family.

Another possibility is perhaps you could rent out any instruments you may own that aren't being used. Just about any asset you own can be put to work somehow.

missy'smom Collaborator

I teach ESL/tutor/homework help from my home. Have a friend who teaches piano and other types of music lessons from her home. Those I know in the Korean and Japanese communities are always looking for English and music lessons. How to connect with these communities-advertize in the asian markets. No need to speak their language. Parents are usually able to read and speak at a basic/intermediate level-just keep chit chat to a minimum, simple direct instructions and a good smile and patience.

thleensd Enthusiast

I teach ESL/tutor/homework help from my home. Have a friend who teaches piano and other types of music lessons from her home. Those I know in the Korean and Japanese communities are always looking for English and music lessons. How to connect with these communities-advertize in the asian markets. No need to speak their language. Parents are usually able to read and speak at a basic/intermediate level-just keep chit chat to a minimum, simple direct instructions and a good smile and patience.

I like that idea =) It's nice to talk to people and all, but chatty parents can drive you insane. Language barrier might help there. lol

GlutenFreeManna Rising Star

I can relate to your situation a bit. Mostly I have lived off my husband's income for the past 4 years and when I was really bad and he was working two jobs to make ends meet, we racked up quite a bit of debt due to the hospital bills. I am better now and always looking for little ways to bring in more money or save money. Some ideas for you I haven't seen mentioned yet:

Mystery shopping--hard to break into and really make money, but at least you can choose which jobs to take and you get free goodies out of it sometimes.

Selling used books on Amazon or Half dot com--good if you have access to a lot of thrift shops and can take the time to go there for the good condition books. I used to go in to the thrift store, pick out the books that were in great condition, write down the ISBN number, then go to the nearest library and see if I could make anything on the book (you can look it up on half dot com by ISBN #). Then I went back and purchased the books that were worth more and .75. This was years ago before smart phones were big and we were too poor to have internet at home. If you have a phone with internet the process would be much faster/cheaper.

Coupons--using them and/or having a "clipping service". I save quite a bit by using coupons despite all my food sensitivities/allergies. Most coupons are for non-food items anyway. If you are willing to take some time looking around coupon websites you can save BIG on your non-food items (and a few food item staples that are gluten free naturally like canned tomatoes or corn tortillas). Some things I have gotten free with coupons include: deodorant, shampoo, Tooth Paste, Tooth brushes, Toilet paper...These are things everyone (or most everyone) needs so you might as well get them as cheaply as possible, especially when you have very little income. Another idea if you get into coupons and find that you can get the inserts free in your area you may be able to start a coupon clipping business. It's technically not legal to sell coupons, but you can sell your time to cut them out for other people. I don't really know about the in's and outs of that kind of business and it would take a lot of work, however, you could at least sit most of the time while clipping the coupons.

thleensd Enthusiast

I haven't looked into books. That sounds interesting. Thanks =)

I can relate to your situation a bit. Mostly I have lived off my husband's income for the past 4 years and when I was really bad and he was working two jobs to make ends meet, we racked up quite a bit of debt due to the hospital bills. I am better now and always looking for little ways to bring in more money or save money. Some ideas for you I haven't seen mentioned yet:

Mystery shopping--hard to break into and really make money, but at least you can choose which jobs to take and you get free goodies out of it sometimes.

Selling used books on Amazon or Half dot com--good if you have access to a lot of thrift shops and can take the time to go there for the good condition books. I used to go in to the thrift store, pick out the books that were in great condition, write down the ISBN number, then go to the nearest library and see if I could make anything on the book (you can look it up on half dot com by ISBN #). Then I went back and purchased the books that were worth more and .75. This was years ago before smart phones were big and we were too poor to have internet at home. If you have a phone with internet the process would be much faster/cheaper.

Coupons--using them and/or having a "clipping service". I save quite a bit by using coupons despite all my food sensitivities/allergies. Most coupons are for non-food items anyway. If you are willing to take some time looking around coupon websites you can save BIG on your non-food items (and a few food item staples that are gluten free naturally like canned tomatoes or corn tortillas). Some things I have gotten free with coupons include: deodorant, shampoo, Tooth Paste, Tooth brushes, Toilet paper...These are things everyone (or most everyone) needs so you might as well get them as cheaply as possible, especially when you have very little income. Another idea if you get into coupons and find that you can get the inserts free in your area you may be able to start a coupon clipping business. It's technically not legal to sell coupons, but you can sell your time to cut them out for other people. I don't really know about the in's and outs of that kind of business and it would take a lot of work, however, you could at least sit most of the time while clipping the coupons.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    2. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

    3. - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

    4. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,420
    • Most Online (within 30 mins)
      7,748

    maggie23
    Newest Member
    maggie23
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.