Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Most People Challenge The gluten-free Diet?


zus888

Recommended Posts

zus888 Contributor

I'm wondering if I should do this, and if I do, how do I go about doing it? I mean, should I just take a little bite of wheat bread and continue on with my gluten-free diet to challenge it? It would give me some idea as to my sensitivity if I only have a little bit. Or should I go whole hog and eat gads of gluten-filled foods? I don't want to choose foods high in fat or sugar because I don't want to confuse what might be causing any GI issues, should I have any. I want to be sure I know that it's gluten I'm reacting to, and not an overdose of fats and sugars. My gluten-free diet will likely consist of more natural foods, as opposed to processed ones.

And, how long should I wait to do the challenge? 3 months? 6 months?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If you have been gluten free long enough to heal a bit and see some resolution in your symptoms the best way to challenge is with a single ingredient item. My doctor had me challenge by eating the food 3 times a day for a week or until symptoms reappear whichever comes sooner. I used cream of wheat, plain.

T.H. Community Regular

We challenged my son. Did it after 1 year gluten free, for a little under 2 weeks only, because he started having symptoms pretty quickly.

Yeah, I'd say go with a single food if you do challenge - a single food that has nothing you haven't been eating before the challenge.

But my son was the only one we had diagnosed by symptoms, too. The rest of us had tests that were positive, and we didn't challenge.

eatmeat4good Enthusiast

I didn't have to challenge gluten because gluten "challenged" me. I knew I got sick from cross contamination and every time I accidentally ate something with gluten (think of newbie mistakes) I got very ill.

If you are like me one bite of anything with wheat will do it.

Let us know how it goes.

Emilushka Contributor

I have no desire to challenge with gluten because I had a positive antibody test and a great response to the gluten-free diet. Plus, I had an unofficial challenge by accidentally eating wheat pasta at a restaurant, so I can verify that symptoms come back if I eat gluten. I don't think everyone challenges with gluten.

sa1937 Community Regular

I went gluten-free the day of my biopsy. You couldn't pay me enough to challenge it!

love2travel Mentor

I confess to being thrilled with the challenge! ;) I have had no symptoms that I have noticed (which may change, of course, as I am off gluten longer) so I was pleased to eat tons of gluten for three months although I knew at the same time that internal damage was being done, whether I could feel it or not. I had lots of gluten and did not feel any worse whatsoever so I was saddened to find post biopsy that celiac disease was indeed confirmed. (I had been gluten-free for five months prior to this and was incredibly stringent, avoiding going out to eat for the most part, calling and emailing companies, changing toothpaste and lipstick, and so on. Our house was gluten-free to avoid CC as well.) What a shock it was feeling so good on gluten, pigging out on lovely breads and such, to go off gluten and feeling no different. Yet. But I still know that I am preventing future problems. It still could be saving my life! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

I confess to being thrilled with the challenge! ;) I have had no symptoms that I have noticed (which may change, of course, as I am off gluten longer) so I was pleased to eat tons of gluten for three months although I knew at the same time that internal damage was being done, whether I could feel it or not. I had lots of gluten and did not feel any worse whatsoever so I was saddened to find post biopsy that celiac disease was indeed confirmed. (I had been gluten-free for five months prior to this and was incredibly stringent, avoiding going out to eat for the most part, calling and emailing companies, changing toothpaste and lipstick, and so on. Our house was gluten-free to avoid CC as well.) What a shock it was feeling so good on gluten, pigging out on lovely breads and such, to go off gluten and feeling no different. Yet. But I still know that I am preventing future problems. It still could be saving my life! :D

I actually fear not being able to tell the difference. I want to notice a huge difference in energy at the very least. On the other hand, it is nice to not have such harsh reactions if cross-contaminated or otherwise glutened. I am not so sure I would be able to be so stringent without some physical reason for doing so. If I don't notice a difference, I can't imagine not just having one little sweet roll. Unfortunately, it's a VERY slippery slope. If I give in to one little sweet roll, it'll turn into a gluten-filled diet in no time.

love2travel Mentor

I actually fear not being able to tell the difference. I want to notice a huge difference in energy at the very least. On the other hand, it is nice to not have such harsh reactions if cross-contaminated or otherwise glutened. I am not so sure I would be able to be so stringent without some physical reason for doing so. If I don't notice a difference, I can't imagine not just having one little sweet roll. Unfortunately, it's a VERY slippery slope. If I give in to one little sweet roll, it'll turn into a gluten-filled diet in no time.

I can totally relate. I fear it, too, especially when eating out. It is one reason I avoid eating out much (thankfully I LOVE cooking!) because I just do not know. Because I generally feel so well it almost seems silly to avoid gluten in one tiny corner of my brain but of course I imagine my scope pictures the surgeon showed to me with all the flat villi. It is difficult psychologically for me. :(

shopgirl Contributor

No. Symptoms or no. I have a disease that requires me to not eat gluten for the rest of my life. In my eyes, it's really just that simple. Cheating isn't an option.

Darn210 Enthusiast

The doctor that we saw for a second opinion when my daughter was first diagnosed wanted us to challenge her after she had been gluten free for 6 months. He wanted us to challenge her for two months (with a repeat blood test) or until symptoms came back, which ever was shortest. I was planning on challenging because I was in major denial about the whole diagnosis. I was going to wait longer than the 6 months though.

Like some of the others above, we had an accidental challenge. At school she use to be able to get their (corn) tortilla chips but the vendor changed and they were no longer just corn. Both wheat and oat flour were in the ingredient list which I found out by visiting the school after she got off the bus looking like something the cat dragged in. Challenge over. It took one item at one meal.

love2travel Mentor

No. Symptoms or no. I have a disease that requires me to not eat gluten for the rest of my life. In my eyes, it's really just that simple. Cheating isn't an option.

Although as I mentioned above I have no symptoms I will never, ever cheat. Ever. Even though I like what I see out and about. I am absolutely adamant on that point. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    2. - Aretaeus Cappadocia replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      13

      Finding gluten free ingredients

    3. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,902
    • Most Online (within 30 mins)
      7,748

    WOLINM
    Newest Member
    WOLINM
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.