Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do Most People Challenge The gluten-free Diet?


zus888

Recommended Posts

zus888 Contributor

I'm wondering if I should do this, and if I do, how do I go about doing it? I mean, should I just take a little bite of wheat bread and continue on with my gluten-free diet to challenge it? It would give me some idea as to my sensitivity if I only have a little bit. Or should I go whole hog and eat gads of gluten-filled foods? I don't want to choose foods high in fat or sugar because I don't want to confuse what might be causing any GI issues, should I have any. I want to be sure I know that it's gluten I'm reacting to, and not an overdose of fats and sugars. My gluten-free diet will likely consist of more natural foods, as opposed to processed ones.

And, how long should I wait to do the challenge? 3 months? 6 months?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

If you have been gluten free long enough to heal a bit and see some resolution in your symptoms the best way to challenge is with a single ingredient item. My doctor had me challenge by eating the food 3 times a day for a week or until symptoms reappear whichever comes sooner. I used cream of wheat, plain.

T.H. Community Regular

We challenged my son. Did it after 1 year gluten free, for a little under 2 weeks only, because he started having symptoms pretty quickly.

Yeah, I'd say go with a single food if you do challenge - a single food that has nothing you haven't been eating before the challenge.

But my son was the only one we had diagnosed by symptoms, too. The rest of us had tests that were positive, and we didn't challenge.

eatmeat4good Enthusiast

I didn't have to challenge gluten because gluten "challenged" me. I knew I got sick from cross contamination and every time I accidentally ate something with gluten (think of newbie mistakes) I got very ill.

If you are like me one bite of anything with wheat will do it.

Let us know how it goes.

Emilushka Contributor

I have no desire to challenge with gluten because I had a positive antibody test and a great response to the gluten-free diet. Plus, I had an unofficial challenge by accidentally eating wheat pasta at a restaurant, so I can verify that symptoms come back if I eat gluten. I don't think everyone challenges with gluten.

sa1937 Community Regular

I went gluten-free the day of my biopsy. You couldn't pay me enough to challenge it!

love2travel Mentor

I confess to being thrilled with the challenge! ;) I have had no symptoms that I have noticed (which may change, of course, as I am off gluten longer) so I was pleased to eat tons of gluten for three months although I knew at the same time that internal damage was being done, whether I could feel it or not. I had lots of gluten and did not feel any worse whatsoever so I was saddened to find post biopsy that celiac disease was indeed confirmed. (I had been gluten-free for five months prior to this and was incredibly stringent, avoiding going out to eat for the most part, calling and emailing companies, changing toothpaste and lipstick, and so on. Our house was gluten-free to avoid CC as well.) What a shock it was feeling so good on gluten, pigging out on lovely breads and such, to go off gluten and feeling no different. Yet. But I still know that I am preventing future problems. It still could be saving my life! :D


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



zus888 Contributor

I confess to being thrilled with the challenge! ;) I have had no symptoms that I have noticed (which may change, of course, as I am off gluten longer) so I was pleased to eat tons of gluten for three months although I knew at the same time that internal damage was being done, whether I could feel it or not. I had lots of gluten and did not feel any worse whatsoever so I was saddened to find post biopsy that celiac disease was indeed confirmed. (I had been gluten-free for five months prior to this and was incredibly stringent, avoiding going out to eat for the most part, calling and emailing companies, changing toothpaste and lipstick, and so on. Our house was gluten-free to avoid CC as well.) What a shock it was feeling so good on gluten, pigging out on lovely breads and such, to go off gluten and feeling no different. Yet. But I still know that I am preventing future problems. It still could be saving my life! :D

I actually fear not being able to tell the difference. I want to notice a huge difference in energy at the very least. On the other hand, it is nice to not have such harsh reactions if cross-contaminated or otherwise glutened. I am not so sure I would be able to be so stringent without some physical reason for doing so. If I don't notice a difference, I can't imagine not just having one little sweet roll. Unfortunately, it's a VERY slippery slope. If I give in to one little sweet roll, it'll turn into a gluten-filled diet in no time.

love2travel Mentor

I actually fear not being able to tell the difference. I want to notice a huge difference in energy at the very least. On the other hand, it is nice to not have such harsh reactions if cross-contaminated or otherwise glutened. I am not so sure I would be able to be so stringent without some physical reason for doing so. If I don't notice a difference, I can't imagine not just having one little sweet roll. Unfortunately, it's a VERY slippery slope. If I give in to one little sweet roll, it'll turn into a gluten-filled diet in no time.

I can totally relate. I fear it, too, especially when eating out. It is one reason I avoid eating out much (thankfully I LOVE cooking!) because I just do not know. Because I generally feel so well it almost seems silly to avoid gluten in one tiny corner of my brain but of course I imagine my scope pictures the surgeon showed to me with all the flat villi. It is difficult psychologically for me. :(

shopgirl Contributor

No. Symptoms or no. I have a disease that requires me to not eat gluten for the rest of my life. In my eyes, it's really just that simple. Cheating isn't an option.

Darn210 Enthusiast

The doctor that we saw for a second opinion when my daughter was first diagnosed wanted us to challenge her after she had been gluten free for 6 months. He wanted us to challenge her for two months (with a repeat blood test) or until symptoms came back, which ever was shortest. I was planning on challenging because I was in major denial about the whole diagnosis. I was going to wait longer than the 6 months though.

Like some of the others above, we had an accidental challenge. At school she use to be able to get their (corn) tortilla chips but the vendor changed and they were no longer just corn. Both wheat and oat flour were in the ingredient list which I found out by visiting the school after she got off the bus looking like something the cat dragged in. Challenge over. It took one item at one meal.

love2travel Mentor

No. Symptoms or no. I have a disease that requires me to not eat gluten for the rest of my life. In my eyes, it's really just that simple. Cheating isn't an option.

Although as I mentioned above I have no symptoms I will never, ever cheat. Ever. Even though I like what I see out and about. I am absolutely adamant on that point. :D

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,370
    • Most Online (within 30 mins)
      7,748

    Redred1
    Newest Member
    Redred1
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):




  • Who's Online (See full list)


  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...