Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Giving Lip-Service To Eating Gluten Free Makes Me Sad

BethM55

By BethM55
in Coping with Celiac Disease

Recommended Posts

BethM55 Enthusiast
BethM55
Posted

At at party at a friend's house last night, among people I don't know well, the subject of eating gluten free came up. I don't know why, might have been my explanation of why I really couldn't eat much of the available snacks and why was I asking about ingredients? Innocent enough, right? No one gave me a hard time, but a couple of people proclaimed their gluten free status as well. Ok, a bit of camaraderie, no problem.

But it ticks me off when these same people snacked on pot stickers, and taquitos, and brownies, and drinking beer... One woman said to me, "Oh, I avoid wheat, but can't resist these!" Good for her, for trying to improve her health, but she shouldn't call herself gluten free! Don't get me wrong, I was quite happy with the fresh berries and the Lays potato chips (which said gluten free on the package!), although I was a bit worried about gluteny hands dipping into the berry bowl.

I don't expect answers here, but why do people do that? It just makes it harder for those of us who truly are gluten free, and work hard at being so, and who pay the consequences of failure. I don't mind talking about being gluten intolerant, figure it educates people, but I don't like having the issue diluted by people who think it's a fun thing to do.

Sorry for the rant, but the experience irritated me. I try to avoid being labeled as the odd one of the group, generally just quietly manage my needs as best I can. But if gluten free is going to be spotlighted by others, then they ought to honor the code. At least IMHO, anyway.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


K8ling Enthusiast
K8ling
Posted

I TOTALLY understand, it makes me so mad! Or, my favorite is "Oh, there's no wheat in there so I can eat it" by the people who are supposed to be gluten-free..and then they totally just eat it.

CELIAC IS WHEAT, BARLEY and RYE. Idiots. Then people look at ME like *I'M* being overly picky and snarky about my food because the fake gluten-free eater is like "Oh a little bit won't hurt me!"

Excuse me, but I am 6 months pregnant and DO NOT need a reaction right now. THATS why I am so careful!!!

lizard00 Enthusiast
lizard00
Posted

It does make things difficult. I was in a two week class with someone who also had celiac and was supposed to be gluten-free. But she ate the sausage biscuits someone brought one morning, the pasta that someone brought for lunch one afternoon, etc, because she just couldn't resist.

She was also telling ANY and EVERYONE who would listen that she had celiac and how sick she had been, blah blah blah. Then she told me she couldn't believe that I was so strong to not eat the stuff around us. I told her I couldn't afford to be sick, so there was no bite that was worth it to me. I really didn't care what she ate, but it made it hard for me to decline food that someone had obviously spent a lot of time on (someone made a cake), when she told the same story as me but ate just a tiny piece.

I feel your pain! <_<

Poppi Enthusiast
Poppi
Posted

I was at a potluck with two other "gluten free" people. Both had hot dogs with buns and finished off with birthday cake. :blink:

The only reason people like that bother me is that they cause other people not to take us seriously. Oh well, it doesn't matter too much in the grand scheme of things. Only once a month or so do I even eat food I didn't prepare with my own hands and then I do my best to ensure it's safety. At least the fakey-gluten-free people have caused the gluten free market to expand somewhat.

IrishHeart Veteran
IrishHeart
Posted

My issue is with people who call eating gluten-free a "fad"....fad? :blink: Celiac disease almost killed me :blink:

As I often say...there needs to be a better understanding of what 'gluten intolerant' really means. I always cringe when someone says it's an "allergy"....sigh...

I suppose it's easier than explaining "It's an autoimmune response to the...." by then, their eyes have glazed over like a donut... :lol: :lol: :lol:

No.Wheat.For.Me Newbie
No.Wheat.For.Me
Posted

....then they ought to honor the code

I'm new here and have a question. You refererd to a code. Can you tell me what the code is?

Thanks!

kareng Grand Master
kareng
Posted

I'm new here and have a question. You refererd to a code. Can you tell me what the code is?

Thanks!

I think she just means if you say you are gluten-free then demonstrate gluten-free. don't say it while munching on a wheat-filled cookie.

I think we are still working on the secret code and handshake. ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lizard00 Enthusiast
lizard00
Posted

It means that if people are going to proclaim that they're gluten-free, then they need to be gluten-free. In public, anyway. <_<

Poppi Enthusiast
Poppi
Posted

My issue is with people who call eating gluten-free a "fad"....fad? :blink: Celiac disease almost killed me :blink:

Like my chiropractor ... or should I say my ex-chiropractor. Last time I was there I commented that I was really sore from accidentally eating some gluten. He went off on this tangent about how his wife has gone on this gluten-free kick so now she only makes their cookies out of barley and spelt and oats .... and this celiac thing is such a fad and next month it'll be something different. Then when I insisted that all those things his wife cooks with have gluten and that celiac is really serious and I can get sick from a few crumbs he called me a freak. :o

Time to shop for a new chiro.

IrishHeart Veteran
IrishHeart
Posted

Like my chiropractor ... or should I say my ex-chiropractor. Last time I was there I commented that I was really sore from accidentally eating some gluten. He went off on this tangent about how his wife has gone on this gluten-free kick so now she only makes their cookies out of barley and spelt and oats .... and this celiac thing is such a fad and next month it'll be something different. Then when I insisted that all those things his wife cooks with have gluten and that celiac is really serious and I can get sick from a few crumbs he called me a freak. :o

Time to shop for a new chiro.

I saw a recipe in a magazine where the cook said she was cooking for gluten-free people and she used spelt instead of wheat...um, hullo??? :blink:

he called you a freak?!! :huh: well, he's a (fill in the blank)...... :D

IrishHeart Veteran
IrishHeart
Posted

I think we are still working on the secret code and handshake. ;)

gosh, we're STILL working on that handshake??? who's in charge!!?? :lol:

maximoo Enthusiast
maximoo
Posted

Is a fist bump OK?

Jungle Rookie
Jungle
Posted

A fist bump followed by the dusting of imaginary crumbs.

ElseB Contributor
ElseB
Posted

I have a colleague who is also celiac and I've watched her more than once just scrape the toppings off a sandwich. And she's confessed to me that she drinks beer every once and while. And then she'll look to me for sympathy on those days when she's not feeling well because she thinks that as a celiac, I can relate. Um no, I can't. I NEVER cheat, so I really have no sympathy for someone who makes themselves sick!

kareng Grand Master
kareng
Posted

A fist bump followed by the dusting of imaginary crumbs.

I think you may have it! Do we swipe our hands, flat palmed? You know that sort of " Good riddance" sort of thing?

mushroom Proficient
mushroom
Posted

Or we may have to do a palm reading :blink:

Monklady123 Collaborator
Monklady123
Posted

Oh yes, I can TOTALLY relate. I call these people "gluten lite". Really what some of them are trying to do is to cut down on carbs. Pasta, white bread, etc. Which isn't a bad thing in itself. Just don't call yourself a celiac! And don't say you're gluten free! :angry:

I went to a church meeting/social event on Friday night (social part first, meeting following, lol). The host got food from a local restaurant and asked for things specifically gluten free because there are two of us in the group. We got there and she announced that she's decided to go gluten free also because after talking to a friend she's thinking that some of her symptoms sound like gluten (fatigue, body aches, bloating).

So in the course of the conversation she said that she always "kind of rolled my eyes at people who said they needed to stop gluten, but then I've been reading..." um.. :blink: So that means I've been just making it up all this time? And the other woman in our group who was 100% better within a week -- that was all in her head?

Well, I really think that this woman will be one of the "gluten lite" ones, but we will see...

What bothers me the most about these people is that there might be waiters in restaurants who see them asking for gluten free, but then see them eating a salad with croutons, or just taking the croutons out, or getting a burger and removing the bun. Then the waiter might get the wrong idea about what "gluten free" really means for those of us who HAVE to be truly gluten free.

Yeah, I hear you. :blink:

On the other hand, as someone said in this thread, it has caused more and more gluten free products to be available. I'm thinking especially of the baking stuff, which for me is the most problematic. Everything else I cook is easily made gluten free (most of it is already anyway), but those chocolate chip cookies... lol. :lol:

No.Wheat.For.Me Newbie
No.Wheat.For.Me
Posted

Like my chiropractor ... or should I say my ex-chiropractor. Last time I was there I commented that I was really sore from accidentally eating some gluten. He went off on this tangent about how his wife has gone on this gluten-free kick so now she only makes their cookies out of barley and spelt and oats .... and this celiac thing is such a fad and next month it'll be something different. Then when I insisted that all those things his wife cooks with have gluten and that celiac is really serious and I can get sick from a few crumbs he called me a freak. :o

Time to shop for a new chiro.

My daughter was diagonosed with Diabetes and I was talking to the diabetic dietician about how I had gone gluten free and how much better I was feeling, and thought that my daughter also had problems with gluten grains. She said gluten-free eating was just a fad and the chances of me or her having it were almost zero. She said that Celiac Disease was very, very, very rare. They fed her wheat while she was in there, not even bothering to check to see if she had celiac disease. It seems like hospitals are so far behind the times.

IrishHeart Veteran
IrishHeart
Posted

My daughter was diagonosed with Diabetes and I was talking to the diabetic dietician about how I had gone gluten free and how much better I was feeling, and thought that my daughter also had problems with gluten grains. She said gluten-free eating was just a fad and the chances of me or her having it were almost zero. She said that Celiac Disease was very, very, very rare. They fed her wheat while she was in there, not even bothering to check to see if she had celiac disease. It seems like hospitals are so far behind the times.

It's just appalling that people in the medical profession still think celiac disease (or gluten intolerance) is rare!!! :angry::blink: for pete's sake. Read a medical journal once and a while...stay current!! OMG--this makes me nutz!! :blink:

BethM55 Enthusiast
BethM55
Posted
  • Author

Thanks for the moral support! And yes, when I referred to "the code", it's sort of like honor among thieves, or at least among gluten free folk. I do like the idea of the secret hand shake, though, with the dusting off of hands.

I appreciate having a place to vent my frustrations, among people who understand!

gfreecollegegirl Newbie
gfreecollegegirl
Posted

I don't know how many times I've dealt with similar issues in the past year of going gluten free. No matter how many times I've explained to people what Celiac and gluten intolerance (and wheat allergy) are, people just can't seem to wrap their minds around it! Even my own mom doesn't quite get it yet, even though I've shared everything I've learned with her. I've had my aunt, who was inspired to go gluten free by my example, insist that she can have spelt flour because it "doesn't bother her" and "it's a distant cousin of wheat"...and supposedly some lady wrote in a book that it's okay for most gluten intolerant people! :rolleyes: This same aunt also does not have her own dedicated toaster or condiments. I love her to death, but sadly, she lets her daughter do all the research instead of doing it herself. What is also frustrating is my own sister's attitude. She has been showing many symptoms of a gluten intolerance or Celiac for a long time, but refuses to change her diet. Every time she makes something like cookies, she gets sick. Her stomach is super sensitive like mine. We're both lactose, dairy intolerant. Yet, she thinks she's fine because she "eats a lot of bread". I don't think she knows how miserable she really is. :huh:

alex11602 Collaborator
alex11602
Posted

I don't know how many times I've dealt with similar issues in the past year of going gluten free. No matter how many times I've explained to people what Celiac and gluten intolerance (and wheat allergy) are, people just can't seem to wrap their minds around it! Even my own mom doesn't quite get it yet, even though I've shared everything I've learned with her. I've had my aunt, who was inspired to go gluten free by my example, insist that she can have spelt flour because it "doesn't bother her" and "it's a distant cousin of wheat"...and supposedly some lady wrote in a book that it's okay for most gluten intolerant people! :rolleyes: This same aunt also does not have her own dedicated toaster or condiments. I love her to death, but sadly, she lets her daughter do all the research instead of doing it herself. What is also frustrating is my own sister's attitude. She has been showing many symptoms of a gluten intolerance or Celiac for a long time, but refuses to change her diet. Every time she makes something like cookies, she gets sick. Her stomach is super sensitive like mine. We're both lactose, dairy intolerant. Yet, she thinks she's fine because she "eats a lot of bread". I don't think she knows how miserable she really is. :huh:

I don't know how old your sister is, but mine is like that too and I think that feeling bad after just ends up being normal. It's sad to see that, but I'm not sure there is really anything we can do.

And by the way I took my daughter to the local hospital and the triage nurse did not know what celiac or gluten was, I had to tell her how to spell it for the chart and the one doctor we saw wasn't much better. I don't think it helps that we don't have test results though, our doctor actually diagnosed us originally over the phone based on symptoms and dietary response, not worth going back on gluten for tests though.

angel9165 Newbie
angel9165
Posted

What gets me the most is hearing "Oh, I wonder if that's what I have cuz I'm always bloated, etc?" Really, people??? What I always say is "if you suspect you may have intolerance to wheat, I suggest you see a GI doctor and if that's not possible, cut it completely out of your diet and if it makes a difference, you most likely do have an issue". At first it felt good that I wasn't instantly labeled a freak and someone could relate..now it just irritates me.

We celebrated my (non-celiac) son's 15th birthday this weekend with a yummy gluten-free chocolate cake and cupcakes. Not one single crumb was left over! B)

Judy3 Contributor
Judy3
Posted

My issue is with people who call eating gluten-free a "fad"....fad? :blink: Celiac disease almost killed me :blink:

As I often say...there needs to be a better understanding of what 'gluten intolerant' really means. I always cringe when someone says it's an "allergy"....sigh...

I suppose it's easier than explaining "It's an autoimmune response to the...." by then, their eyes have glazed over like a donut... :lol: :lol: :lol:

Oh yeah I know what you mean about the glazed over look.. lol I've run across several people that are 'fake gluten free' Why would anyone do this if they didn't have to? That's all I wonder.

I've learned to make chocolate cupcakes and other goodies and I bring them to get togethers and no one knows the difference until I pick one up and take a bite and then I get the 'You can't have that...' I just laugh and say 'yes I can, I made them and they're gluten free' Surprised looks from all because they couldn't tell the difference.. heehee

Two can play at this game!!! LOL LOL LOL

Judy3 Contributor
Judy3
Posted

I have a colleague who is also celiac and I've watched her more than once just scrape the toppings off a sandwich. And she's confessed to me that she drinks beer every once and while. And then she'll look to me for sympathy on those days when she's not feeling well because she thinks that as a celiac, I can relate. Um no, I can't. I NEVER cheat, so I really have no sympathy for someone who makes themselves sick!

Same with me, no patience for that at all. My doctor's nurse asked me if I ever cheat and I said 'Absolutely not!!, the pain I experienced for the last three years and the nausea I had for my entire life is not worth it whatsoever' She just looked at me and smiled.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later. The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied...
    2. knitty kitty
      - knitty kitty replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too. I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy). Niacin has been used since the 1950's to improve dermatitis herpetiformis. I try to balance my iodine intake (which will cause flairs...
    3. suek54
      - suek54 replied to suek54's topic in Dermatitis Herpetiformis
      7

      Awaiting dermatitis herpetiformis confirmation following biopsy

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when...
    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      how much gluten do I need to eat before blood tests?

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt. I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,258
    • Most Online (within 30 mins)
      7,748
    Tdodge
    Newest Member
    Tdodge
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Wow KK, thank you so much for all your attached info. I had a very quick scan but will read more in depth later.  The one concerning corticosteroid use is very interesting. That would relate to secondary adrenal insufficiency I think , ie AI caused by steroids such as taken long term for eg asthma. I have primary autoimmune AI, my adrenals are atrophied, no chance if recovery there. But I am in touch with some secondaries, so something to bear in mind. .  Niacin B3 Very interesting too. Must have a good read about that.  Im sure lots of questions will arise as I progress with dermatitis herpetiformis. In the mean time, thanks for your help.
    • knitty kitty
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By knitty kitty · Posted

      Welcome to the forum, @suek54, I have Dermatitis Herpetiformis, too.  I found taking Niacin B3 very helpful in clearing my skin from blisters as well as improving the itchies-without-rash (peripheral neuropathy).  Niacin has been used since the 1950's to improve dermatitis herpetiformis.   I try to balance my iodine intake (which will cause flairs) with Selenium which improves thyroid function.   Interesting Reading: Dermatitis herpetiformis effectively treated with heparin, tetracycline and nicotinamide https://pubmed.ncbi.nlm.nih.gov/10844495/   Experience with selenium used to recover adrenocortical function in patients taking glucocorticosteroids long https://pubmed.ncbi.nlm.nih.gov/24437222/   Two Cases of Dermatitis Herpetiformis Successfully Treated with Tetracycline and Niacinamide https://pubmed.ncbi.nlm.nih.gov/30390734/   Steroid-Resistant Rash With Neuropsychiatric Deterioration and Weight Loss: A Modern-Day Case of Pellagra https://pmc.ncbi.nlm.nih.gov/articles/PMC12532421/#:~:text=Figure 2.,(right panel) upper limbs.&text=The distribution of the rash,patient's substantial response to treatment.   Nicotinic acid therapy of dermatitis herpetiformis (1950) https://pubmed.ncbi.nlm.nih.gov/15412276/
    • suek54
      Awaiting dermatitis herpetiformis confirmation following biopsy

      By suek54 · Posted

      Thank you all for your advice and the dermatitis herpetiformis article. The latter made me realise I had stopped taking my antihistamine, which I will restart today. The Dapsone has cleared the rash entirely but I still get quite a bit itching, absolutely nothing to see though. I know its notoriously hard to clear and its still relatively early days for me.  The iodine issue is very interesting. I do eat quite a bit of salt because I have Addison's disease and sodium retention is an issue. I also have autoimmune hypothyroidism, not sure how a low iodine diet would play into that? Because of my Addison's I am totally steroid dependent, I take steroids 4 x daily and cannot mount any defence against inflammation. I need to increase my meds for that. Now that I know what is wrong I can do just that if Im having a bad day. Life is very sweet, just so damn complicated sometimes! Hey ho, onwards. Thank you again for your advice.  
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      So, essentially all of the nutrition in the food we eat is absorbed through the villous lining of the small bowel. This is the section of the intestinal track that is damaged by celiac disease. This villous lining is composed of billions of finger-like projections that create a huge amount of surface area for absorbing nutrients. For the celiac person, when gluten is consumed, it triggers an autoimmune reaction in this area which, of course, generates inflammation. The antibodies connected with this inflammation is what the celiac blood tests are designed to detect but this inflammation, over time, wears down the finger-like projections of the villous lining. Of course, when this proceeds for an extended period of time, greatly reduces the absorption efficiency of the villous lining and often results in many and various nutrient deficiency-related health issues. Classic examples would be osteoporosis and iron deficiency. But there are many more. Low D3 levels is a well-known celiac-caused nutritional deficiency. So is low B12. All the B vitamins in fact. Magnesium, zinc, etc.  Celiac disease can also cause liver inflammation. You mention elevated ALP levels. Elevated liver enzymes over a period of 13 years was what led to my celiac diagnosis. Within three months of going gluten free my liver enzymes normalized. I had elevated AST and ALT. The development of sensitivities to other food proteins is very common in the celiac population. Most common cross reactive foods are dairy and oats but eggs, soy and corn are also relatively common offenders. Lactose intolerance is also common in the celiac population because of damage to the SB lining.  Eggs when they are scrambled or fried give me a gut ache. But when I poach them, they do not. The steam and heat of poaching causes a hydrolysis process that alters the protein in the egg. They don't bother me in baked goods either so I assume the same process is at work. I bought a plastic poacher on Amazon to make poaching very easy. All this to say that many of the issues you describe could be caused by celiac disease. 
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      thank you so much for your detailed and extremely helpful reply!! I can say with absolute certainty that the less gluten containing products I've eaten over the past several years, the better I've felt.   I wasn't avoiding gluten, I was avoiding refined grains (and most processed foods) as well as anything that made me feel bad when I ate it. It's the same reason I gave up dairy and eggs- they make me feel ill.  I do have a bit of a sugar addiction lol so a lot of times I wasn't sure if it was the refined grains that I was eating - or the sugar. So from time to time I might have a cookie or something but I've learned how to make wonderful cookies and golden brownies with BEANS!! and no refined sugar - I use date paste instead. Pizza made me so ill- but I thought it was probably the cheese. I gave up pizza and haven't missed it. the one time I tried a slice I felt so bad I knew I'd never touch it again. I stopped eating wheat pasta at least 3 yrs ago- just didn't feel well after eating it. I tried chick pea pasta and a few others and discovered I like the brown rice pasta. I still don't eat a lot of pasta but it's nice for a change when I want something easy. TBH over the years I've wondered sometimes if I might be gluten intolerant but really believed it was not possible for me to have celiac disease. NOW I need to know for sure- because I'm in the middle of a long process of trying to find out why I have a high parathyroid level (NOT the thyroid- but rather the 4 glands that control the calcium balance in your body) I have had a hard time getting my vit D level up, my serum calcium has run on the low side of normal for many years... and now I am losing calcium from my bones and excreting it in my urine (some sort of renal calcium leak) Also have a high ALP since 2014. And now rapidly worsening bone density.  I still do not have a firm diagnosis. Could be secondary HPT (but secondary to what? we need to know) It could be early primary HPT. I am spilling calcium in my urine but is that caused by the high parathyroid hormone or is it the reason my PTH is high>? there are multiple feedback loops for this condition.    so I will keep eating the bread and some wheat germ that does not seem to bother me too much (it hasn't got enough gluten to use just wheat germ)    but I'm curious- if you don't have a strong reaction to a product- like me and wheat germ- does that mean it's ok to eat or is it still causing harm even if you don't have any obvious symptoms? I guess what you are saying about silent celiac makes it likely that you can have no symptoms and still have the harm... but geez! you'd think they'd come up with a way to test for this that didn't require you to consume something that makes you sick! I worry about the complications I've been reading about- different kinds of cancers etc. also wondering- are there degrees of celiac disease?  is there any correlation between symptoms and the amnt of damage to your intestines? I also need a firm diagnosis because I have an identical twin sister ... so if I have celiac, she has it too- or at least the genetic make up for having it. I did have a VERY major stress to my body in 2014-2016 time frame .. lost 50lbs in a short period of time and had severe symptoms from acute protracted withdrawal off an SSRI drug (that I'd been given an unethically high dose of, by a dr who has since lost his license)  Going off the drug was a good thing and in many ways my health improved dramatically- just losing 50lbs was helpful but I also went  off almost a dozen different medications, totally changed my diet and have been doing pretty well except for the past 3-4 yrs when the symptoms related to the parathyroid issue cropped up. It is likely that I had low vit D for some time and that caused me a lot of symptoms. The endo now tells me that low vit D can be caused by celiac disease so I need to know for sure! thank you for all that great and useful information!!! 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.