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When You First Went Gluten Free, Did You Lose Weight?


Prezwilson15

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Prezwilson15 Newbie

I notice I've still been losing weight and am wondering if when you went gluten free if you lost weight?

I would guess it's from not eating empty calories from breads, bars, cakes etc.

If you lost, how much did you lose? How long before it started normalizing?

Paula


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rachbomb Rookie

I lost weight after I switched to a gluten-free diet. My doctor was pretty upset with me but I wrote it off that I was now eating all whole foods and basically no carbs (except for occasional rice and corn chips). He did have me start tracking calories though and I figured out that while I was full I was not consuming as much as I should be but it has now stabilized. In all, I lost 15 lbs since starting the diet (5-10 was ok by me!) and I stopped dropping after 2-3 months.

sleer Contributor

Did you start losing weight immediately?

alex11602 Collaborator

It took me about 3 months to stop losing too and I lost about 40 lbs, my weight has pretty much stabilized in the last month. That may be because I mostly lived on pasta and crackers before because I thought bland food would be good for my belly :lol:

GlutenFreeManna Rising Star

I lost 20 lbs my first month. I had it to lose however, as gluten makes me gain weight instead of wasting away. My weightloss stopped when I added carbs back into my diet (I had cut out all grains and all sugar as part of my elimation diet).

txplowgirl Enthusiast

I have always been overweight and couldn't lose it no matter what I did. When I went gluten free it wasn't to lose weight but get rid of all the other problems I had. D, migraines, tingling, depression, stomach pain, anxiety, etc.

Losing weight was a shock. I went from 235 to 160 and it has stabilized. That's 75 pounds and I wasn't even trying. Took almost 2 years. But that's because I realized I was super sensitive. Can't really eat any of the gluten free processed foods. I have to stay with mainly whole foods. Plus finding out I have other food intolerances might have helped to.

Gfreeatx Apprentice

I lost about 10lbs in the first few months, but gained about half of it back once I started to figure out everything I could eat.


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julandjo Explorer

Like others mentioned, I started out overweight. I couldn't lose weight no matter what I did. Once I went gluten free I still ate the same # of calories (I'd been tracking for a while and continued when I went gluten-free), but the weight started dropping off. Quickly at first, then slower. I'm 17 months in and have lost 55 pounds. I went from a size 16 to a size 6. I'm at a great weight now. My body was hanging on to every calorie I ate because the Celiac damage had left me malnourished. Now that I can absorb nutrients I'm so much healthier. Who would have ever guessed I was fat due to malnourishment?! :P

stellinpa Newbie

I notice I've still been losing weight and am wondering if when you went gluten free if you lost weight?

I would guess it's from not eating empty calories from breads, bars, cakes etc.

If you lost, how much did you lose? How long before it started normalizing?

Paula

I lost weight as soon as I eliminated Gluten. I figured it was because I was eating more regularly. I lost 10lbs in the first month and have kept it off.

I did read somewhere that some people lose wt. and some gain wt. I'm glad I'm on the 'losing side'

Menic Apprentice

I've lost about 30 lbs. (which I had to lose) over the course of a year. I think this is mostly attributable in my case to no beer and no fast food anymore. Cooking non-processed foods and making my own healthy meals has mostly been the culprate of my loss.

jemms Apprentice

since being off dairy and gluten I have lost 40 lbs. I still want to (need to) lose about 50 lbs. right now my weight has bee at a standstill...I hope the weight loss will kick in again.

angel9165 Newbie

I thought I might but gee, I found enough really good gluten-free food that I haven't. B)

shadowicewolf Proficient

i lost 25ish before i started and am still loosing weight and not even trying :/

love2travel Mentor

When I first went gluten-free (prior to my gluten challenge) I gained weight as I was in panic mode and ate weird processed things I normally would not such as potato chips. Then I went back on gluten for my challenge and after my celiac diagnosis in February have lost a few pounds but need to lose more. I do not eat processed junk and must work hard to lose weight. I guess it does not help that I love to bake! In fact, I bake more now than I ever did before (and I have always loved baking). Must put a stop to this madness. :lol:

BaldurBen Newbie

About six months after I was diagnosed (Nov. 2006) I had lost fifteen pounds. Now that my diet is more varied, I've probably gained about five of those back and stabilized there.

Poppi Enthusiast

I lost 10 pounds in the first 2 weeks and then stabilized at 129. After years and years of my weight swinging wildly between 125 and 150 it hasn't budged in 3 months now.

deinanthe Newbie

Yes, I lost weight after being diagnosed last year. Anyway, I'm down about 20 and still losing gradually, which is great because I have it to spare and am very happy to lose a healthy pound or two a week. Back when I was still having gluten and unaware of the whole celiac thing, I think the biggest thing that brought on my weight gain was that I would get nauseous if I got hungry. The hungrier I was, the more nauseous I was, to the point of getting sick to my stomach. Needless to say, I didn't let myself get hungry if I could help it. And for some reason, that made me gain weight. ;)

Bubba's Mom Enthusiast

Losing weight without trying was the first symptom my PCP took as real. I had lost 20 lbs. in just a few months.

I was diagnosed on June 28th of this year and have been trying to eat things that are healthy. I'm still losing weight. I didn't know if was due to malabsorption..or lack of breads/cookies/ etc. in my diet? I mostly eat fruits and veggies, and meat, some rice.

T.H. Community Regular

I always think I lost more than I did (keep messing up my actual weight with how much I lost, LOL), but looking to make sure I'm not screwing up...

I lost 50 pounds in the first 6 months (I was about 50 pounds overweight, though). Over the next few months, it fluctuated between about 5 pounds, up or down, and then finally dropped another 10 pounds within 5 months.

Since then, we think we've figured out the pattern. If I get glutened frequently, my weight starts to climb, no matter what I eat or how many calories. If I don't eat gluten, my weight drops rapidly into 'woo hoo skinny!' and stabilizes there. But if I eat any of the foods we realized I am allergic to, then my weight keeps dropping (lots of D) and the weight doesn't stabilize.

I got too skinny, really, until we figured everything out. I've gained a little from my lowest weight, at this point. :-)

mamabear272 Explorer
Who would have ever guessed I was fat due to malnourishment?! :P

I feel the same way! I never would have guessed (nor would anyone else) that I was malnourished!

I re-started Weight Watchers in Jan and from then till my dx in June I lost 7 lbs. When I got dx, I dropped 6 lbs in 3 weeks. I think I've put some on in the last couple of weeks but that's cause I spent some time eating gluten-free junk! I'm starting back today using WW simply filling plan. It consists of "power foods" which are fruits, veggies, lean meats, fat free milk, etc.

Brooksbelle Newbie

3 weeks in and down 7 pounds without even trying. My appetite has stabilized; before going gluten-free I always felt this weird mix of bloating/nausea/hunger all the time. I still need to lose a few pounds too--so I'm happy about the weight loss. =)

CarolinaKip Community Regular

I had lost a lot of weight before going gluten-free. I didn't lose anymore once I went gluten-free. I started to gain 3 months gluten-free and now have gained 10 pounds. I needed to gain some of it back, but now trying to stable my weight. I don't eat a lot of gluten-free replacement foods or junk. I believe in treats every now and then :)

AmyE Newbie

Unfortunately I have lost about 5 lbs which is alot being as I am already about 10lbs underweight. I want to gain some weight. I feel I am wasting away because so many foods cause me pain. It's ironic because I am a recovering anorexic and when I was mentally sick, I didn't want to eat over fear of gaining-----now it's not my mental state, but my physical state. Ain't life one giant irony!!!

okieinalaska Apprentice

Didn't lose a pound! But I was a bit overweight before and still am although weight watchers is now helping with that.

Jungle Rookie

I gained 10 lbs in the first two months (and wasn't trying to gain or lose) Now after 4 months gluten-free we are back to normal again.

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    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
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