Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2Nd Round Of Chemo, Done!

bonnie blue

By bonnie blue
in Coping with Celiac Disease

Recommended Posts

bonnie blue Explorer
bonnie blue
Posted

Hello to all my friends,

Well the 2nd round of cocktails are done and I am happy to report that this time was much easier, mainly fatigue but nothing I couldn't handle. I have one more round the 28th then surgery to remove my stomach in February. Ok so that is freaking me out a little I am doing all I can to get my body ready, physically, mentally, and spiritually so that my healing process will be easier. I just want everyone to know that I am doing well the doctors are very pleased with my progress, they actually thought by this point I would need a feeding tube, but I fooled them all and I am actually gaining weight!!! So I have this break now to enjoy Christmas with my family, so for now the words, Cancer, surgery, and chemotherapy are banned in my house. I just want to enjoy this next week and only have some fun!!! Have a wonderful day my friends and thank you again for all your support. B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sa1937 Community Regular
sa1937
Posted

I'm so glad you're doing well, Bonnie...there's nothing quite as sweet as fooling your doctors!!! I hope you and your family have a wonderful holiday season!

Thoughts and prayers are with you as you undergo the challenges of the new year!

kareng Grand Master
kareng
Posted

Sounds like " the thing that shall not be named "went well. Keep your head warm & Have a great holiday!

sahm-i-am Apprentice
sahm-i-am
Posted

Thanks for the update and hope you and your family have a very happy Holiday!!!

IrishHeart Veteran
IrishHeart
Posted

Best wishes for a wonderful holiday season. Rest up, recharge and bask in the love of your family. You're one courageous chick, and don't you forget it! ;) Defying the doctors has made me feel pretty good---you should too!

You're a warrior princess!

My thoughts and prayers,

IH

GFinDC Veteran
GFinDC
Posted

Good news Bonnie! Take care and have a great Christmas season! :D

Skylark Collaborator
Skylark
Posted

Thanks so much for taking the time to come and share the update. I'm glad to hear you're handling everything so well. Merry Christmas!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Booghead Contributor
Booghead
Posted

Glad to here it went better, I was worried that it would go worse. Have a very Merry Christmas. B)

AVR1962 Collaborator
AVR1962
Posted

YAY! Wonderful news!!!!! Best to you and enjoy the holidays!

mushroom Proficient
mushroom
Posted

Bonnie Blue, you are one strong lass. Wishing you and your family a joyous Christmas full of love and happiness :)

Bubba's Mom Enthusiast
Bubba's Mom
Posted

So glad to hear you're faring well. A positive outlook is so helpful to healing.

You get extra bonus points for showing the Docs wrong! :D

HAPPY HOLIDAYS

Googles Community Regular
Googles
Posted

I'm glad that things are going well for you. I hope you have a wonderful holiday and enjoy being with your family.

Roda Rising Star
Roda
Posted

Glad this time went better. Have a great time with your family. Merry Christmas!!

lynnelise Apprentice
lynnelise
Posted

Merry Christmas and enjoy your holiday! Glad you are feeling well!

lucky28 Explorer
lucky28
Posted

Great to hear from you! I hope you and your family enjoy a very merry Christmas!

PS: I work with doctors almost every day, it's good to prove them wrong! :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    2. Roses8721
      - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Neg for HLA dq8 and dq2
    3. knitty kitty
      - knitty kitty replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      How can you be negative for HLA? What markers did you have here? Curiouser and curiouser...
    4. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      My journey is it gluten or fiber?

      Yes, I have noticed a big difference. I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me. At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university. I went gluten free. I...
    5. Wheatwacked
      - Wheatwacked replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      GI DX celiac despite neg serology and no biopsy

      Yes, I would be good with the diagnosis. While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels. Recovery from either disease requires avoiding gluten. celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,746
    • Most Online (within 30 mins)
      7,748
    CarlyRenee
    Newest Member
    CarlyRenee
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      Thanks very interesting I have to see if I should take these 2 vitamins along with my multi and super Vit B complex or if its too much or would hurt me. I don't have any other health issues but would love to see if this improves anything especially to feel stronger build muscle.
    • Roses8721
      GI DX celiac despite neg serology and no biopsy

      By Roses8721 · Posted

      Neg for HLA dq8 and dq2
    • knitty kitty
      GI DX celiac despite neg serology and no biopsy

      By knitty kitty · Posted

      How can you be negative for HLA?   What markers did you have here? Curiouser and curiouser...  
    • knitty kitty
      My journey is it gluten or fiber?

      By knitty kitty · Posted

      Yes, I have noticed a big difference.  I had serious malnutrition symptoms that my doctors couldn't figure out, so they blamed me, said I was "depressed" and washed their hands of me.  At home, I could feel myself dying, and, with nothing left to lose, I relied on knowledge from my microbiology and nutrition classes at university.  I went gluten free.  I started taking vitamins according to my nutritional deficiency symptoms.  Vitamins worked.  My health improved.  Now I'm here to help others.  Celiac disease causes malabsorption which results in malnutrition.  Doctors don't recognize the symptoms of Celiac disease and malnutrition. Benfotiamine has been shown to promote intestinal healing and digestion, improves diabetes and neuropathy and much more.  TTFD (Thiamax or TTFD-B1 Max) helps with brain function, neuropathy and lots more.  Every cell in the body needs thiamine to make energy so the cell can function.  Without sufficient thiamine, mitochondria die.  Every cell also needs thiamine and the other B vitamins to make life sustaining enzymes.  Thiamine has antiviral and antibacterial properties.   We may not be getting sufficient thiamine from our diets if we eat a lot of carbohydrates.  The more carbs one eats the more thiamine is needed to process them into energy.  If there's insufficient thiamine, the body stores the carbs as fat. This is called high calorie malnutrition.   We may not be getting sufficient thiamine from our diets if we eat a gluten free diet.  Gluten free flours and processed foods are not required to be enriched nor fortified with vitamins and minerals like their gluten containing counterparts.  Meats are the best sources of thiamine, but some veggies (beans, potatoes, squash) and fruits (citrus and berries) contain some thiamine.    Explore thiamine more here: https://hormonesmatter.com/thiamine-deficiency-causes-problems/
    • Wheatwacked
      GI DX celiac despite neg serology and no biopsy

      By Wheatwacked · Posted

      Yes, I would be good with the diagnosis.  While NCGS isn't a malabsorptive disease like celiac disease, inflammation and restricted diets can impact Vitamin D levels.  Recovery from either disease requires avoiding gluten.  celiac disease may take a longer recovery than NCGS because in celiac disease there is intestional damage to the cilia that has to self repair in addition to the nutritional deficiencies.   Nonceliac Gluten Sensitivity Dr. Weston Price's research in the 1930s showed that diets rich in minerals and fat-soluble vitamins (A, D3, K2) promoted well-mineralized teeth, while deficiencies led to weaker enamel. Fatty liver, Intermittent diarrhea, Severe abdominal distension Choline deficiency causes abnormal deposition of fat in the liver, which results in a condition called nonalcoholic fatty liver disease. In some people, choline deficiency causes muscle damage. https://lpi.oregonstate.edu/mic/other-nutrients/choline    Choline is a large part if the bile salts for fat digestion, Acetycholine, a neural transmitter, mitochondria membrane structure, and along with folate, B12, and B6 recycles homocysteine  High homocysteine can damage artery linings. Low vitamin D levels are associated with increased symptoms of depression and anxiety,  autoimmune diseases and most of your symptoms.    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.