Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Did It Take You To Feel Better?


Sieben

  

12 members have voted

You do not have permission to vote in this poll, or see the poll results. Please sign in or register to vote in this poll.

Recommended Posts

Sieben Rookie

People seem willing to volunteer this information, but it would be cool to have it all in one place.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
Smith & Truslow



Celiac.com Sponsor (A8-M):
Food for Life


ravenwoodglass Mentor

For some of us this will be a hard poll to answer. My D, depression and migraines were gone within about a week but joint pain and stiffness, muscle pain, ataxia took much longer to resolve. Like closer to six months. I would still have occasional issues when I thought I might be glutened but it turned out to be a sensitivity to soy. I do have some damage that will never resolve completely because I took so long to get a diagnosis. Most days though I am pain free at least gut wise.

IrishHeart Veteran

I was very ill for quite some time and I had dozens of symptoms, so this question is very difficult to answer without clarification.

Some symptoms resolved within 10-11 months, (most of the gastro and dermatological issues resolved by then as well as the anemias (B-12, folate, iron) and blurry vision, burning mouth and burning GI tract, etc. stopped.

I was also soy and dairy free --except for using ghee-- and I used digestive enzymes and probiotics religiously.

More symptoms resolved with 18 months (the neurological (ataxia, parasthesia, burning nerve pain) and endocrine system symptoms are mostly gone. Thyroid is functioning normally, blood sugars are normal. No more bladder, kidney or liver issues. Vitamin levels (D, K) are restored. ) Long term insomnia has resolved for the most part. Hair is growing back in. I gained weight (I had lost 90 lbs.) I have more energy. I feel "like me" again.

But I still suffer significant joint, muscle and tendon pain, some parasthesia and weakness. I am in Physical and massage therapy and work hard at rehabbing. Bone density was affected. We'll see what happens.

I am patient. It will come. :)

KMMO320 Contributor

I am only 4 days in to being gluten-free and of course I don't expect to feel 100% already, but I did vote for 1-2 days because my biggest symptom complaint is gone already.

My biggest troubles were/are stomach issues, brain fog, watery and itchy eyes, runny nose, nasal/ear/jaw aches, headaches and irritability. So far, my brain fog and sinus/head issues are non-existant, but thats because I feel those pains within 20-30 mins of eating gluten and it takes several hours to "clear" for me. Since I havent eaten any, I havent had problems.

My stomach is still wonky, but I expect that to take a little while.

I wasn't someone who was seriously ill, and I feel for the people who are. I think I happened to catch it before I DID get very ill, as my symptoms got progressivly worse over the last 2 years. I think had I waited, I would have ended up really, really sick before I knew what was wrong.

GF Lover Rising Star

All of my GI issues resolved in 3 weeks. All other issues are on "wait and see" status.

Adalaide Mentor

I noticed after about a month that my GI symptoms had more or less cleared up. I also realized I could think again. I never told my doctor that I felt like the whole world was surreal or that I felt detatched from it because I didn't want to end up in a psych ward somewhere. Anyway, that's what got better.

I have noticed as time goes on I have more days where I wake up feeling like I was hit by a truck than by a train, which is technically an improvement. It is certainly no way to live. Some days I'm still so physically sensitive that the lightest touch will having me wincing in pain and sometimes even crying. I have muscle spasms and tics that are annoying and cramps that can be debilitating. I get migrating pain with no known cause. I still have significant and very painful swelling in my left leg made worse by any type of activity.

Sure, I feel a lot better. Sadly that hasn't gotten me far and I still generally feel like crap, although I do now realize there is a light at the end of the tunnel even if I can't see it yet.

I'm also exclusively gluten free. Frankly, if it weren't for a confirmed diagnosis I doubt I would have even considered trying gluten free. I've cut my dairy consupmtion considerably, I do about 1/4 or maybe 1/3 of what I used to and am counting that as a win so far. The more time passes the more I suspect an issue with it but am sort of just hoping at this point that it'll pass as I heal and keep slowing scaling back.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,007
    • Most Online (within 30 mins)
      7,748

    Ellen Watts
    Newest Member
    Ellen Watts
    Joined

  • Celiac.com Sponsor (A20):
    Authentic Foods


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Lakefront Brewery



  • Upcoming Events

  • Posts

    • wellthatsfun
      i am australian. we do have plenty of substitutes, but most are very expensive compared to the originals. i believe i'll just stick to home cooked meals and not have many treats at all. it's sad but it's just so much easier. also, ive heard far too many horror stories of people ordering gluten free food from restaurants and cafés, explicitly telling servers and kitchen staff that cross contamination is a strict no go, and they still get very sick. until i find a reasonably priced fully gluten free kitchen somewhere, i am not eating out for my safety and sanity.
    • wellthatsfun
      thank you all for the kind words and support. it truly means a lot. i know i will adapt, it really just is a grieving process right now though. looking forward to feeling healthier!
    • The Logician
      To Trent’s, yes, from what i’ve read it is not uncommon for digestive systems to become less tolerant to gluten over time. Many types of sensitivity or allergies arise in older people who never had a problem. I don’t see why you are focusing on anything but the fact that after years of my sensitivity to gluten, for whatever reason , it has disappeared after a bout of antibiotics. What i’ve read is antibiotics can make gluten sensitivity worse. In any event, in my case, if I can still eat all the wheat products I want with no reaction after a month or more since my hospital stay this is something that should be investigated. Time will tell.
    • The Logician
      I had a UTI, blood cultures are standard to insure that the infection does not get in the bloodstream which can lead to sepsis and death. In my case there was bacteria in my blood which necessitated 48 hours of antibiotic IV
    • Wends
      Hi Cameo674. just read your post. Well wishes to a correct diagnosis so that you can get on track to healing and feeling better. Personally I know it’s good to have the eosinophilic disorder ruled out too, as this can show anti-ttg igA antibodies too. But usually without the anti-gliadin antibodies unless gliadin is an allergen for you. Thanks for posting the link to look up SNPs rs… numbers on another post. Was useful. Looking at your result, ”Celiac Associated HLD-DQ Typing: DQA1* Value: 05; DQA1*DQA11 Value: 05; DQB1* Value: 02; DQB1-DQB11 Value: 02; Celiac Gene Pairs Present Value: Yes; Celiac HLA Interpretation Value: These genes are permissive for celiac disease.  However, these genes can also be present in the normal population. Testing performed by SSOP.  So google failed me.  I think these results basically say I have genes, but everybody has these genes so this test was just to confirm that there is a vague possibility?  Maybe this test result explains why I do not have the horrible symptoms most individuals with celiac have?  I told the GI my assumption is that I am just gluten intolerant since I do not have the pain? So maybe this test explains why I have antibodies?” To me it reads.that you carry the high risk HLADQ2.5 haplotype.      
×
×
  • Create New...