Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Outrageous Things I Have Said And Done!

1desperateladysaved

Recommended Posts

1desperateladysaved Proficient
1desperateladysaved
Posted

Just for a moment imagine you were the healthy one and you heard or saw these things:

I accidentally licked an envelope, charged to the bathroom with my tongue out. Rinsed my tongue. Then I spent two days with fatigue.

Would you believe that?

I was in the same room where someone was using barley flour. I irritably complained that it made me dizzy and swollen.

Would you believe that?

I caught a wiff of vinegar and got dizzy, nauseated, and felt weak.

Yeah, right. Would you believe that? Doesn't it sound strange?

I planted the barley, which I could no longer mill and eat, in the garden for cover crop. Now each time I weed the garden my arms come in full of allergic rash.

Be honest would you believe this stuff?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


kareng Grand Master
kareng
Posted

Envelope glue does not contain gluten. It is one of those myths spread on the internet.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

My family has seen my many reactions. It's hard to understand, but reactions are real.

Things we used to do and not suffer from are suddenly making us very ill. I can't believe it myself sometimes! :o

It seems like some bad dream that we can't wake up from.

How about the avoiding kisses? Constant counter/stove wiping, hand washing, label reading(of eveythng!), wanting your own tv remote because the other one has orange Cheetos dust on it? :lol:

kareng Grand Master
kareng
Posted

My family has seen my many reactions. It's hard to understand, but reactions are real.

Things we used to do and not suffer from are suddenly making us very ill. I can't believe it myself sometimes! :o

It seems like some bad dream that we can't wake up from.

How about the avoiding kisses? Constant counter/stove wiping, hand washing, label reading(of eveythng!), wanting your own tv remote because the other one has orange Cheetos dust on it? :lol:

Cheezit dust at my house! The ceiling fan remote has a strangely familiar orange stain on it.

GlutenFreeAustinite Contributor
GlutenFreeAustinite
Posted

I know the envelopes don't have gluten, but they always make me feel a bit queasy if I lick too many. That and they just taste nasty.

GF Lover Rising Star
GF Lover
Posted

I have my husband lick the envelopes just because I can. Hehe.

LauraB0927 Apprentice
LauraB0927
Posted

My favorite that I've had to say is.....

(To weight trainer)

"I'm sorry, by mistake I ate oats today and now my knees are swollen and can't move...so I'm going to have to take it easy today..."

(Blank stare and crickets chirping) :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

The envelopes may not have gluten in the glue, but we all know from watching Seinfeld they aren't safe to lick. A sponge is safer and and easier too.

gluten-free with celiac is very different from other people though. They don't have to read labels on everything they eat, or be careful of what restaurant they eat at, or avoid minute bits of gluten in their home etc. Shoot, they don't have to be careful of what kind of beer they drink for that matter.

I think at first it is easy to be maybe a little too concerned with possible gluten contamination, but that is a good thing when learning about avoiding it for the first time. It helps keep people alert to the possibiltiy of gluten being around. So they probalby do a better job of avoiding it. And when people are new to the gluten-free diet, they often have reactions to many foods because their GI system is in a state of change/healing. So it may seem like they are being glutened when it is perhaps a bit of adjustment turmoil. Not that hat is pleasant or easy to deal with or anything. It can be tough.

codetalker Contributor
codetalker
Posted

The envelopes may not have gluten in the glue, but we all know from watching Seinfeld they aren't safe to lick. A sponge is safer and and easier too.

Sponges can be used...but only if you are worthy. :)

ravenwoodglass Mentor
ravenwoodglass
Posted

Sponges can be used...but only if you are worthy. :)

:D:D:D

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

I have my husband lick the envelopes just because I can. Hehe.

Lol I lick my own envelopes, but I will slobber all over every finger on my hands just to spread it on the strip! EWww yucky! Maybe I should wear gloves when opening mail :unsure: you know just in case other people think like me...And yet I am such a germaphobe I wash my hands every time I touch anything in the kitchen for example. Only makes cooking gluten free in a gluten filled house even slower.

Does anyone else wash their hands after each cracked egg? Just wondering

ravenwoodglass Mentor
ravenwoodglass
Posted

Does anyone else wash their hands after each cracked egg? Just wondering

Yep and with any ingredient change in the recipe and when I first get home and before I start cooking and when I am done. For me it doesn't have anything to do with gluten though as that was how my Mom taught me to cook.

Adalaide Mentor
Adalaide
Posted

I know that it's outrageous and crazy, but I won't shake hands with anyone or touch anything at church before the sacrament. If I'm going to touch something that is going in my mouth, I wash my hands then touch NOTHING. Everyone at church probably things I'm just a little bit nuts. :lol:

GFinDC Veteran
GFinDC
Posted

Sponges can be used...but only if you are worthy. :)

:D:D:D

Dang it, I knew there was a catch! Maybe next year then.. :)

love2travel Mentor
love2travel
Posted

Sponges can be used...but only if you are worthy. :)

Speaking of the source of that, I had a real-life "can you spare a square?" thing happen to me while in an airport bathroom. The woman in the next stall asked, "Do you have a square to spare?" I said, "No. I have no square to spare." But I really did. We went on and on. We had no idea who each other was but it was amusing to us as well as others who were sniggering in the bathroom. :)

Sorry - nothing to do with the topic at hand. :rolleyes:

squirmingitch Veteran
squirmingitch
Posted

I buy the envelopes that self seal. You know, they have that peel off strip. They really don't cost much more & I don't get glue all over a sponge nor have that awful taste on my tongue.

I have been enjoying the repartee but back to the OP's questions as I know it is truly a concern for her.

1D, I will admit that the things you proposed would sound weird to me if I didn't have celiac disease myself. I'll go one further & say that they would sound more than weird to me. I would call them over the top. All except for the last one --- the barley which gets your arms when you weed. That one would not sound odd to me at all.

However, if you were a family member or a dear friend & you explained things to me about the disease then they would not seem so weird. In fact I could understand them all except maybe the whiff of vinegar.

I think you have to have this disease or an anaphylactic reaction to some food or substance in order to truly understand how severely it can affect us. I think that's something we are just going to have to learn to live with.

1desperateladysaved Proficient
1desperateladysaved
Posted
  • Author

"Does anyone else wash their hands after each cracked egg? Just wondering"

WOw! If I did that I would wash my hands 24 times just to make breakfast! :unsure: I wash mine before I start and when they get sloppy. My home-grown eggs are washed before they end up in the kitchen.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

Yep and with any ingredient change in the recipe and when I first get home and before I start cooking and when I am done. For me it doesn't have anything to do with gluten though as that was how my Mom taught me to cook.

I mean like press the bake button, wash my hands, open the oven, wash my hands touch raw meat, wash my hands, put food on foil wash my hands put in oven, wash my hands...open a cabinet, wash my hands! It is just that ppl put their gluten glutenous fingers all over everything!

I know that it's outrageous and crazy, but I won't shake hands with anyone or touch anything at church before the sacrament. If I'm going to touch something that is going in my mouth, I wash my hands then touch NOTHING. Everyone at church probably things I'm just a little bit nuts. :lol:

You keep sacrament! How do you do that? Isn't that like wine and crackers? Please forgive my ignorance and don't let the question offend you. I was thinking about Passover the other day. We usually do unleavened bread and all that but I will just be a sinner I guess b/c I am not so sure about suffering later. I don't think God would want that. I think it is mostly symbolic anyway. I guess I need guidance on that subject.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

"Does anyone else wash their hands after each cracked egg? Just wondering"

WOw! If I did that I would wash my hands 24 times just to make breakfast! :unsure: I wash mine before I start and when they get sloppy. My home-grown eggs are washed before they end up in the kitchen.

I suppose it would be easier if i was the only one who cooked in the kitchen. It wouldn't be saturated in gluten.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

Just for a moment imagine you were the healthy one and you heard or saw these things:

I accidentally licked an envelope, charged to the bathroom with my tongue out. Rinsed my tongue. Then I spent two days with fatigue.

Would you believe that?

I was in the same room where someone was using barley flour. I irritably complained that it made me dizzy and swollen.

Would you believe that?

I caught a wiff of vinegar and got dizzy, nauseated, and felt weak.

Yeah, right. Would you believe that? Doesn't it sound strange?

I planted the barley, which I could no longer mill and eat, in the garden for cover crop. Now each time I weed the garden my arms come in full of allergic rash.

Be honest would you believe this stuff?

I walked past the flour aisle at the store the other day and started choking and dry coughing uncontrolleably in the middle of the store. I could hardly breathe and took off running (okay maybe just fast walking) away from that area. It happens! Certainly believable.

Jestgar Rising Star
Jestgar
Posted

My home-grown eggs are washed before they end up in the kitchen.

Really? I don't wash mine unless they are really nasty.

Razzle Dazzle Brazell Enthusiast
Razzle Dazzle Brazell
Posted

Really? I don't wash mine unless they are really nasty.

I never thought about that but it kinda makes sense if we wash our pans to protect from cross contamination why not an egg shell that may have been sitting on hay or something idk. I guess it shows I don't have a basic knowledge in farming even though I live in the country. tee hee

Jestgar Rising Star
Jestgar
Posted

My eggs are sitting on pine shavings. I only wash them if it's been a while since I cleaned the coop, and the eggs are also siting on poop.

cavernio Enthusiast
cavernio
Posted

Pretending I didn't know about celiac disease, or before I heard/knew about it really, I'll try to answer as best I can.

Just for a moment imagine you were the healthy one and you heard or saw these things:

I accidentally licked an envelope, charged to the bathroom with my tongue out. Rinsed my tongue. Then I spent two days with fatigue.

I'd believe you had fatigue all weekend, I'd be highly dubious as to the cause. I'd think that something else made you tired in conjuction with you thinking you'd be tired.

I was in the same room where someone was using barley flour. I irritably complained that it made me dizzy and swollen.

Would you believe that?

Swollen, I would've been dubious, dizzy, would believe. I have some very strong reactions to smells myself, dizziness has been one of those reactions, and inhaling particulates in the air seems to go hand in hand with smelling them.

I caught a wiff of vinegar and got dizzy, nauseated, and felt weak.

I'd believe it, again, due to my own seemingly lifelong sensitivities to smells, that I still think it separate from my celiac disease.

I planted the barley, which I could no longer mill and eat, in the garden for cover crop. Now each time I weed the garden my arms come in full of allergic rash.

Very believable, sounds like a 'regular' allergy, the type that I've known about all my life.

Bubba's Mom Enthusiast
Bubba's Mom
Posted

I walked past the flour aisle at the store the other day and started choking and dry coughing uncontrolleably in the middle of the store. I could hardly breathe and took off running (okay maybe just fast walking) away from that area. It happens! Certainly believable.

I've had this happen too. I got choken up when I passed through the bakery dept. (they were making bread) on my way to the seafood dept.

Another thing that my family thinks is crazy is..I won't go barefoot in the house. The gluten eaters drop crumbs all over, but more importantly, my whole house may be contaminated from straw that my hubby spread out all over in the back yard when it got muddy early in the Spring? He said as he was pulling the bale apart he noticed a lot of seed heads. If there was gluten, it got all over the soil. The dogs tromping through it and back and forth into the house..well who knows? I wish it would glow under black light or something!

It laid there for about a week before he said something about the seed heads. I freaked out and he and my son raked it up and burned it. The dogs walked through it a lot, and continue to walk through the area several times every day. :o

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,857
    • Most Online (within 30 mins)
      7,748
    LowellFrancis
    Newest Member
    LowellFrancis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rogol72
      Ibuprofen

      By Rogol72 · Posted

      Some interesting articles regarding the use of Zinc Carnosine to help heal gastric ulcers, gastritis and intestinal permeability. I would consult a medical professional about it's use. https://www.nature.com/articles/ncpgasthep0778 https://www.rupahealth.com/post/clinical-applications-of-zinc-carnosine---evidence-review https://pmc.ncbi.nlm.nih.gov/articles/PMC7146259/ https://www.fallbrookmedicalcenter.com/zinc-l-carnosine-benefits-dosage-and-safety/
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
      Celiac and dermatitis herpetiformis has taken Me from Me

      By trents · Posted

      Is this man the father of your children?
    • Jillian83
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Jillian83 · Posted

      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      Ibuprofen

      By cristiana · Posted

      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.