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      Frequently Asked Questions About Celiac Disease   09/30/2015

      This Celiac.com FAQ on celiac disease will guide you to all of the basic information you will need to know about the disease, its diagnosis, testing methods, a gluten-free diet, etc.   Subscribe to FREE Celiac.com email alerts What are the major symptoms of celiac disease? Celiac Disease Symptoms What testing is available for celiac disease? - list blood tests, endo with biopsy, genetic test and enterolab (not diagnostic) Celiac Disease Screening Interpretation of Celiac Disease Blood Test Results Can I be tested even though I am eating gluten free? How long must gluten be taken for the serological tests to be meaningful? The Gluten-Free Diet 101 - A Beginner's Guide to Going Gluten-Free Is celiac inherited? Should my children be tested? Ten Facts About Celiac Disease Genetic Testing Is there a link between celiac and other autoimmune diseases? Celiac Disease Research: Associated Diseases and Disorders Is there a list of gluten foods to avoid? Unsafe Gluten-Free Food List (Unsafe Ingredients) Is there a list of gluten free foods? Safe Gluten-Free Food List (Safe Ingredients) Gluten-Free Alcoholic Beverages Distilled Spirits (Grain Alcohols) and Vinegar: Are they Gluten-Free? Where does gluten hide? Additional Things to Beware of to Maintain a 100% Gluten-Free Diet Free recipes: Gluten-Free Recipes Where can I buy gluten-free stuff? Support this site by shopping at The Celiac.com Store.


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ravenwoodglass last won the day on April 29

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  1. Yes steroids will give a false negative on the DH tests. In addition many doctors will biopsy the lesions when they need to look for antibodies in the intact skin next to active lesions. There are also some times when folks with DH will have negative blood work. Don't know why. After all celiac related testing is done do give the diet a good strict try. At the top of the Coping section is the 'Newbie 101' thread that has a lot of info for you on what you need to do when you are either diagnosed or giving the gluten free diet a try.
  2. Wish I could give you a hug. Unfortunately I know how that feels with Neurologists, Internists, Endocrinologists, Rheumatologists, GIs..... I got so tired of crying my drive home after refusing yet another script for Prozac. I do hope your GI can give you some answers even if it is just to rule out other possible issues. Keep on the gluten and we are here for you.
  3. It is too bad that so often a full panel isn't done. Glad your appointment got moved up and hopefully you will get a clearer answer from the GI. Do keep eating gluten until the celiac testing is done. Once the testing is done do give the diet a good strict try. Hang in there.
  4. I have 2 copies of DQ9. One from each parent.
  5. I was diagnosed in 2002 and I think I have had maybe 2 actual colds since then. I figured the same as you that with my immune system not having to try and 'save' me from gluten that it now is able to fight off the occasional virus. The only thing it hasn't been able to fight off is shingles. Thankfully those are clearing and I blame myself for that with lack of sleep and a very poor diet for a bit. Lesson learned, one does not live off crackers and cheese alone.
  6. Welcome to the board. I agree with the previous posters that you are very likely looking at celiac. Please do keep her on gluten until all celiac related testing is finsihed. After that do give the diet a good strict try even if the biopsies are negative. Also keep in mind that celiac is genetic so it would be a good idea to screen others in the family even if they don't seem to have symptoms.
  7. Make sure that you ask the doctor how long she has to stop the supplements before you have her levels tested and be sure to take them all with you when you have the appointment so the doctor knows what she is taking.
  8. Talk to your doctor. With your family history and symptoms he/she may be able to diagnose based on resolution of your symptoms and family history. Also check with your local hospital if it has it's own lab. Mine covered any labs at a greatly reduced cost based on a sliding fee scale. Did you have an MRI before they did the spinal? Celiacs with neuro impact will have white spots on an MRI that resemble the lesions found with MS. Many neuro doctors don't know this. I went through what you did and they did a spinal on me also based on the MRI results. If my doctor had know what the UBOs (unidentified bright objects) were I would have been diagnosed a couple years sooner than I was. Make sure if you supplement that you ask your doctor which ones you need to stop taking and for how long before they do a blood test to check levels. Sublingual B12 is a good idea when we have nervous system issues, but needs to be stopped for at least a week for an accurate blood level on testing. I hope you get some answers and feel better soon.
  9. You don't need to worry about work as far as hugs, hand shaking, feeding others etc as long as you wash your own hands before you eat. The concern with the make-up and your wife being a gluten eater is more intamite contact like kissing on the lips etc.
  10. Why would that make you homebound? Your pets will likely be healthier, there are a lot of gluten free makeups and toiletries available and you may discover many that you are using already are safe. It is possible to become more sensitive and there are a lot of pain in the butt precautions we have to take but it is worth it in the end to get our health back. Hopefully you will be able to figure out what is going on soon. If any folks know what a misery daily D is we do here!
  11. You really need to go with the celiac panel rather than just genetic testing. However you mention being on a number of drugs so do be aware that if you are taking any form of steroid like prednisone that will impact the celiac panel and DH biopsy. You may want to have your Mom get a celiac screening also. After seeing lots of doctors before diagnosis I ended up at an allergists also. Out of 99 things they did skin prick testing for the only thing I didn't react to was beech trees. I thought I would have to live in a bubble. The allergist suspected celiac so he guided me through an elimination diet. My reaction to wheat was confirmation to him and he referred me back to a GI doctor who confirmed celiac after a very unpleasent gluten challenge (the allergist had told me to go gluten free and never touch it again, big mistake). Incidenttally I did genetic testing 5 years after diagnosis and I don't have either of the two most common celiac associated genes. I have a double copy of a gene that has only in the last few years been recognized as associated with celiac. If I had gene testing done before diagnosis they would have said I couldn't be celiac and frankly I would be dead by now.
  12. Celiac put me into a premature menapause and after being gluten free for a couple months I did start spotting. I did get scared and made an appointment with my OB/GYN. In my case it was nothing and hopefully that will be the case for you also. Celiac can really mess with our reproductive systems and stress or illness can mess us up also. I hope the nurse gets back to you soon and is able to set your mind at ease or set you up with a quick appointment. Will keep my fingers crossed that it isn't another cyst acting up.
  13. You are definately not alone. I spend a good 24 hours suicidal after a glutening. Thankfully it lifts within a day but the foggy and forgetful confusion lasts a bit longer. I was hoping this effect would lessen after a few years gluten free but it hasn't. I do take comfort in the fact that I know now what causes it and that it will lift and just try to not be too self critical until it does.
  14. You may want to start your gluten challenge after your finals are over so you can get tested over the summer. If you need to be gluten free the challenge may not be a pleasent experience but diagnosis is rather important not just for you but for family members and any future children you may have. Do be sure to read the Newbie 101 thread during the meantime. Gluten can be sneaky as far as CC goes. I never would have thought a gluten eating/drinking significant other could make me sick from just a kiss as one example.
  15. Thanks everyone. I hope this is over soon. Wouldn't wish it on my worst enemy. Cool compresses seem to help the most of anything. Hope I don't end up with bald spots. Just cut my hair short a little while ago so nothing left to hide any bare places.