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GFinDC

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by GFinDC

  1. GFinDC
    Hi SarahC, What you are describing is known as gluten ataxia. Gluten ataxia impacts the brain. We do have members who have had gluten ataxia and recovered substantially. You can try a search of the forum to find their posts, or maybe they will see your thread and reply. Welcome to the forum SarahC
  2. GFinDC
    The problem with lotions and shampoo etc is that once it is on your skin/hands, it is easy for it to get in your mouth.
  3. GFinDC
    I suggest cutting the oats out for a month or two. some celiacs do react to oats like they do wheat, rye, and barley. So unless you cut them out, you won't know if they are a problem or not. The estimates vary but it could be up to 10% of celiacs who react to oats. If you are part of that 10%, you won't get completely better without ditching the oats...
  4. GFinDC
    Hi WW, It makes sense to try and identify problem foods that could be causing reactions. However, you may be jumping the gun a little. I wonder if you've ever had a broken bone? If you have, you know it can take quite a bit longer than 6 weeks to heal and even longer to stop hurting. These healing things do take some time. Healing is also somewhat...
  5. GFinDC

    celiac disease "Kait"

    GFinDC commented on Kait and Kimi's blog entry in Kim

    Hi Kait, You'll probably get more responses in the forum than a blog. Post diagnosis or the Coping With Celiac forum sections would be good to post in. https://www.celiac.com/forums/forum/12-celiac-disease-post-diagnosis-recoverytreatments/
  6. GFinDC
  7. GFinDC
    Hi Patrick, Welcome to the forum! What you are describing is not unusual for celiacs new to the gluten-free diet IMHO. The problem with celiac disease is it is an immune response by the body. The immune system does not stop making antibodies instantly when we stop eating gluten. That would be nice, but it doesn't work that way. Instead the...
  8. GFinDC
    Hi AshMarBorr, It's a good idea to review everything you are eating to see if any gluten could be slipping into your diet. The first thing though would be a new blood antibodies test to verify if your gliaden antibodies are raised. Being cold could be a symptom of low thyroid hormone. Welcome to the forum!
  9. GFinDC
    Hi Kurasz, Are you still taking the antibiotic? Or can you get a different one prescribed from the wonderful and very unhelpful doctor? A sharp pain could be from various things. A twisted bowel could cause it, or a gall bladder problem. or kidney stones. Sometimes Crohn's patients have blockages caused by narrowing of the intestine due to scar...
  10. GFinDC
    Hi Jm34. You got some really bad advice from your doctor. Celiac disease doesn't go away. Celiac disease is a chronic, incurable, AI (auto-immune) disease. Once you have it, you always have it. We do know the trigger for the auto-immune reaction though, which is gluten. So we can get the antibodies to decline by stopping eating gluten. But that...
  11. GFinDC
    I agree, JM34, you would probably benefit from simplifying your diet. It's up to you to make diet changes that will help your body. You can blame your mother and doctors but they aren't forcing you to eat foods that make you sick, right? It may be you have other medical issues besides gluten, but it still makes sense to treat your gluten issue anyway....
  12. GFinDC
    Hi Jm34, If it is a celiac reaction you are having you can't expect it to resolve in a couple days. The immune system response is not going to stop that fast. Generally it will take weeks to months for the immune response to slow down or stop.
  13. GFinDC
    Hi Jerry, We try and encourage people to get tested for celiac disease before starting the GF diet because it is much easier to be tested then. Going off gluten reduces the antibodie levels in the blood stream so testing won't be accurate after being gf. Some people don't want to bother with testing though or have some reasons they don't want to do...
  14. GFinDC
    @Jm34It doesn't really make sense to take PPI's and antacids while also taking Betaine HCL. They are directly conflicting with each other. PPI's and antacids reduce stomach acid, while Betaine HCL increases stomach acid. So making a choice on which direction you want to move your stomach acid level is the first thing to do IMHO. No point wasting your...
  15. GFinDC
    @JMG, I think I did something like 5 separate elimination diets over the first few years gluten-free. And usually the problem was something I had added to my diet without careful consideration, or a food that I had developed a new intolerance to. Elimination diets are our friends JMG, just the kind of friends we don't like to see often. Those...
  16. GFinDC
    Hi, I am not sure what you are talking about in regards to not worrying about this? Anyway, we are here to help, so any questions are ok. We all had questions when we started the gluten-free diet too. But no, you shouldn't have to worry about kissing until you are 30 or so. That Karen is too lax. Joking aside, it is good you are trying...
  17. GFinDC
    Welcome to the forum Sharlotta! If you are trying to learn gluten-free eating, you came to the right place. We do have a thread for beginners called Newbie 101 in the "Coping With" forum section that might help. Also, we have plenty of helpful members who can steer you forward. Feel free to fire away with questions! P.S. If you click the...
  18. GFinDC
    Hi Splishsplashy, There is nothing unhealthy about going gluten-free for 2 weeks, or any amount of time for that matter. The only precaution would be that a person who is planning to be tested for celiac disease should not go gluten-free until the testing is completed. Being gluten-free before testing would make the antibody tests inaccurate. Also...
  19. GFinDC
    Hi JMG, There is plenty of ways gluten can sneak into our diets. My plan when I didn't know what was making me sick was to drop back to a very basic diet for a while and see if that helped. Just eating a few foods that I knew were safe. And not taking any vitamin pills etc while troubleshooting. If things get better after a week then add foods back...
  20. GFinDC
    Ack, I think we may have a cat lover on the forum! I can definitely help you out with that though. Just pm me your address and I can shoot a box of 20 or so cats at you to enjoy! Yay! 1% of the population is still a pretty big number out of over 300 million. So there are quite of few of us around. More than 20, that's for sure. It's normal...
  21. GFinDC
    Hi Roxy, Ceramic should be fine, as long as it is cleaned well. Welcome to the forum!
  22. GFinDC
    @egs1707 Getting better from celiac damage isn't as simple as taking a bunch of pills (drugs) and following the latest exercise craze, whatever that might be. To recover from celiac you actually have to expend some personal effort and make some changes to your diet that many people may not even consider under usual circumstances. Yeah, lots of people...
  23. GFinDC
    Hi Jm34, Recovery from celiac damage can take a 1 to a year and 1/2 or more. We are talking about a stubbed toe or something minor like that. The immune system doesn't stop attacking your gut and body just a couple hours after stopping gluten. The immune reaction can keep going for weeks or months. It takes time and a clean, gluten-free diet to stop...
  24. GFinDC
    Hi EGS1707, You could try some avocado for protein. And peanut butter. Maybe not together though, ewww! It's pretty easy to make guacamole, and it goes well with corn chips if you can eat them, or on sandwiches etc. I don't know what kind of sport you are doing, but it might be wise to reduce strenuous exercize for a while. Your body is...
  25. GFinDC
    Hi Courtl, If you think you have sibo, you can try changing your diet to make it harder for the bacteria to multiply. What you could do is avoid all sugar and carbs. Bacteria love that stuff and multiply like crazy when they have lot of it to eat. Instead eat meats, veggies, nuts and eggs. Rice is very carby and so are potatoes, so avoid them. ...
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