
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Managing iodine levels due to DH. How much is too much?
Scott Adams replied to TheDHhurts's topic in Dermatitis Herpetiformis
If you have DH you probably should not be supplementing iodine at all. Because it is add to most salt that is consumed in the USA (and other industrialized countries), you should be able to get plenty of iodine without supplementation. -
Many people who are sensitive to cow's milk (casein), can tolerate sheep's or goat's milk. I am included in this. After I was first diagnosed I could not eat any diary for about two years, but could have sheep and goat milk. After a couple of years being gluten-free I could again consume cow's milk.
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Sorry it took so long for you to get a reply! Six weeks should be enough, did you get your results? If your symptoms got better when gluten-free, then got worse during your challenge, that is a good sign that you are on the right track and it is DH. If you have DH, even tiny amounts of gluten could trigger it for days or weeks.
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I believe it is normal to take the biopsies the way your doctor did, and it sounds like you have an official diagnosis. This means you need to be 100% gluten-free. If you are not yet gluten-free perhaps ask your doctor to do a follow up blood test for celiac disease as well. DH is difficult because even the smallest amount of gluten can trigger it for...
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Safe beverages for a dairy-free DH sufferer?
Scott Adams replied to NoGlutensToday's topic in Dermatitis Herpetiformis
Have you tried soy milk? I know much of it is GMO, but I believe you can find non-GMO brands, perhaps Silk? Green tea won't add calories but is also great and includes antioxidants. -
Around 44% of first degree relatives also have celiac disease, and the rate is even higher among women. I've not seen studies on how many first degree relatives have non-celiac gluten sensitivity, but it is likely even higher. The old saying is true: You can lead a horse to water, but you can't make it drink!
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He's correct that many in the medical field still know far too little about celiac disease, testing, treatment, etc. You may want to go with a full B-Complex multivitamin, as well as mineral supplementation (get your iron levels checked before supplementing with iron). The average time for a celiac to heal is 2 years.
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To me it sounds like you are in the non-celiac gluten sensitive category, which may make up to ~10% of the population. The good news is that you don't have gut damage, but the bad news is that it means that you should still be 100% gluten-free, as some believe that it can develop into full blown celiac disease at some point.
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why would anyone trust gluten free store products
Scott Adams replied to DJFL77I's topic in Coping with Celiac Disease
Although they are not required to test, they are legally bound by what they put on their labels. So in general if they put "gluten-free" on their label, they do test regularly for gluten, and most batch test. A product recall would be very expensive, and potential lawsuits even worse, thus compliance with the labeling law has been very good. Given that thousands... -
I've been taking Magnesium Citrate from Costco and for the first few days it gave me digestive discomfort. I had to quit twice for a few days when this happened, but then my body seemed to adjust to it. I always take it after I eat.
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This isn't fully true. I believe that the FDA does a minimal amount of random testing for compliance, and they also follow up on complaints filed by those who might report a gluten reaction to a food market "gluten-free." Canada seems to do a better job than the FDA though, and here is an article we did recently on that:
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gliadinx ???
Scott Adams replied to DJFL77I's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
This topic covers this in more detail: -
Severe upper abdominal pains
Scott Adams replied to Katie71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Gluten exposure in restaurants, even if they have a gluten-free menu, is very common. Just have a look at the articles below. If you do eat outside your home, like my family does, I recommend AN-PEP enzymes like those in GliadinX (full disclosure, they are a Celiac.com advertiser--but do not pay me to promote them in my forum--I run their ad because I have... -
If it has "gluten-free" on the label, no matter if it is at Walmart of Whole Foods, it is gluten-free and must test below 20 ppm or a very expensive food recall could be issued. Also, Barilla GF pasta is at Target and probably Walmart, which is excellent. Kraft just announced a new GF Mac n Cheese (ok, I know, not the most health choice!), as well as Nabisco...
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By the way I'm sorry to hear your last parrot died. I am surprised that they put gluten in parrot food, but I guess I shouldn't be. We don't two product reviews recently on gluten-free dog foods (and one also makes gluten-free cat foods), so the gluten-free trend is finally also catching on for pet foods. I wonder if you could do some homework on the nutritional...
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Also, avoiding sugar and soft drinks would be recommended, mainly because they throw off your healthy gut flora.
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Two things come to my mind, and you've covered them both. Either it's cross-contamination, or certainly dairy products like cheese can go bad and cause food poisoning if not properly stored. Leaving it outside and unrefrigerated is probably not a good idea, especially if they do this for more than a day.
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I don't have much experience with MCS, but it sounds like it's difficult to deal with. Chemicals are in many things we put on our skin each day. Many people on this forum have spent years to get their celiac disease diagnosis, and I am no exception...it took my doctors several years to figure it out, even though I had pretty classic symptoms. In the...
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Severe Bloating
Scott Adams replied to mikemcm22's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Many have reported similar issues. You mention the fructose issue and you have focused on this some, but many celiacs also need to go on a low FODMAP diet to fully recover. Have you tried this? Here is some research on it: -
Symptoms Reappearing
Scott Adams replied to codyf's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
The average time to heal is 2 years. Is there any chance you've gotten any cross-contamination? If you eat out regularly, this possibility is high.