
Scott Adams
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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995
Everything posted by Scott Adams
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Your interpretation is on the right track! Based on your results, you do have one of the genetic markers associated with celiac risk—HLA-DQ8—which means you inherited DQA1*03 from one parent and DQB1*0302 from the other. These two alleles together form the HLA-DQ8 haplotype, so having both confirms the DQ8 positivity (not just one alone). Since you’re ...
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gluten-free in Wilmington, DE
Scott Adams replied to NoGlutenCooties's topic in Gluten-Free Restaurants
A quick Google search turns up lots of options, but be careful eating out, as cross-contamination is common--even in restaurants that offer a gluten-free menu: https://www.google.com/search?q=gluten-free+in+Wilmington%2C+DE&rlz=1C1CHBF_enUS981US983&oq=gluten-free+in+Wilmington%2C+DE -
Can Celiac flares affect my eyes?
Scott Adams replied to jeriM's topic in Related Issues & Disorders
It’s absolutely possible for celiac flares to affect your eyes—many people with celiac disease or gluten sensitivity report eye inflammation (like uveitis or dry eyes) during systemic reactions. Since celiac is an autoimmune condition, the inflammation isn’t limited to just your gut; it can trigger immune responses elsewhere, including the eyes. The fact ... -
I must be NCGS
Scott Adams replied to Emdoller's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
Your journey sounds incredibly frustrating—dealing with mysterious symptoms for years, only to piece together the puzzle yourself, is both impressive and exhausting. It’s wild how something as routine as antibiotics can seemingly trigger such a cascade of issues, and it must’ve been scary to deal with the hives and swollen tongue without clear answers. The ... -
Welcome to the forum @drewsmom01, it’s frustrating how much trial and error goes into managing chronic digestive issues, especially when diagnoses seem to change or contradict your lived experience. It sounds like you’ve been through so much over the years, from the initial diabetes and gastroparesis diagnoses to the recent confusion after your upper GI/...
- 14 replies
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- diagnosed celiac
- gastroparesis
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Thank you, and be sure to check out these categories: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/depression-and-celiac-disease/ https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/ataxia-nerve-disease-neuropathy-brain-damage-and-celiac-disease/ https://www.celiac...
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Gluten challenge and Hashimoto's Thyroiditis
Scott Adams replied to Zuma888's topic in Related Issues & Disorders
I’m so sorry you’re going through this—it sounds like your body is sending a clear signal that gluten is a major trigger for your Hashimoto’s. The dramatic spike in your anti-TPO (from 50 to 799!) and the severe symptoms you’re experiencing suggest a strong immune reaction, even if celiac testing wasn’t done earlier. While a formal diagnosis would clarify cro... -
Symptoms - Ulcers & Cough
Scott Adams replied to BlakeAlex's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
Swelling of the throat sounds more like an allergic reaction (IgE), rather than a reaction related to celiac disease. You may try antihistamines, and consider getting food allergy testing done to identify the culprit. -
Your frustration is completely understandable—after 13 years of strict gluten-free living and mostly normal antibody levels, it’s disheartening to still see biopsy evidence of lingering damage, especially without clear guidance from your GI. The subtle improvements (like "focal" vs. "patchy" changes) might suggest some healing, but the persistent villous blu...
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Airbourne products in same living house hold .
Scott Adams replied to Rebeccaj's topic in Coping with Celiac Disease
Navigating a gluten-filled household when you're the only one with celiac can be tough—especially with airborne flour or cross-contamination risks. Here are some strategies that help: Dedicated GF Zones: Keep a separate prep area, toaster, and utensils just for you. Some families even use color-coded kitchen tools to avoid mix-ups. Cook First: ... -
Symptoms - Ulcers & Cough
Scott Adams replied to BlakeAlex's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
It sounds like you’re taking proactive steps toward healing, which is great—but it’s frustrating when symptoms like mouth ulcers and throat irritation flare up again despite your efforts. Those sores and cough can definitely be linked to celiac, often from accidental gluten exposure or lingering inflammation. Even tiny amounts of gluten can trigger them,... -
Inflammation and Menier’s disease link?
Scott Adams replied to MagsM's topic in Related Issues & Disorders
In silent celiac disease there is damage, but your doctor does not seem to realize that many people have silent celiac disease with little or no obvious symptoms. For those with this condition the health risks are the same as those who have "classic" celiac disease. -
Your journey with gluten sensitivity and celiac disease sounds incredibly challenging, especially after decades of managing symptoms that were misunderstood or overlooked. It’s frustrating how long it took for proper awareness and diagnosis to emerge, leaving you to deal with the physical and emotional toll of dermatitis herpetiformis and other severe reactions. ...
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Gluten-Free Chicken Enchiladas with Homemade Corn Tortillas
Scott Adams posted an article in Mexican & Spanish
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- enchiladas
- gluten-free
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Pepsid alternative
Scott Adams replied to milana's topic in Gluten-Free Foods, Products, Shopping & Medications
It seems crazy to me that even when you call a manufacturer they can't, in this day and age, answer the simple question about what exactly is in their product!! -
Your gluten-free journey sounds like a lot of trial and error—especially working in a deli where gluten exposure is constant! The eye-watering issue could be an airborne gluten sensitivity (like flour dust irritating your eyes) or even a mild wheat allergy, since you’re around it daily. A daily antihistamine (like Claritin or Zyrtec) might help if it’s a...
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It’s scary how hidden gluten can be—even in non-food products like hair care! Your experience is a great reminder that topical products with gluten can cause systemic reactions in some people with celiac disease, especially if they’re accidentally ingested (like when shampoo runs down your face). While not everyone reacts to external exposure, your sympt...
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It’s possible—though not extremely common—to develop a wheat allergy in addition to celiac disease. While celiac is an autoimmune reaction to gluten, a wheat allergy is an IgE-mediated response to wheat proteins, which can cause allergic symptoms like hives, swelling, or even anaphylaxis. Your recent anaphylactic reaction strongly suggests a true wheat aller...
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It sounds like you’re being incredibly diligent with your gluten-free routine, and I understand how stressful it can be—especially when you’re asymptomatic and have no clear way to confirm exposure. The uncertainty is tough to manage, but you’re doing the right thing by being cautious. Your concern about cross-contamination from the fridge handle or chee...
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- asymptomatic
- asymptomatic celiac
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I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disea...