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dilettantesteph

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Everything posted by dilettantesteph

  1. dilettantesteph
    It is easy to say in hindsight, but it is best to only add one new food a week, and keep track with a food/symptom journal. It could be either. Did you sort and wash the beans? That is a good idea.
  2. dilettantesteph
    I am sensitive to very low levels of gluten and have problems with coffee. The way I solved it was to buy organic coffee beans and then do a 3 times wash cycle with soap, rinse well, grind and make coffee. No reaction! I don't know if you are very sensitive like me, or if you just have problems with coffee, but maybe it's worth a try.
  3. dilettantesteph
    I get terrible back pain from gluten. Also body, joint and all over. Stretching and strengthening exercises help. Of course, the best thing is to stop eating gluten. Easier said than done.
  4. dilettantesteph
    What you need to do is use each flour separately for a period of at least a week before you try another one. That way you can figure out which ones bother you and which ones you can eat. In general it is a good idea to keep track of new food items and symptoms in a food diary. I react to gluten free oats and Bob's products. Lots of gluten free food...
  5. dilettantesteph
    Some people, like me, react to some things that say gluten free on them. It can be from another ingredient or from cc. Keep a food diary of what you eat and when you have reactions. Stop eating things which you react to. Only eat one new thing a week as it can take that long to notice a reaction. Good luck.
  6. dilettantesteph
    The year my son was diagnosed he was in 5th grade and he missed a third of school. I think about half of that was before diagnosis and half after. It took us a long time to figure out the diet because he reacted to so many of the gluten free foods that were available at that time. They also exposed him to gluten in the classroom against doctors written...
  7. dilettantesteph
    I wonder too about the biopsy for villi damage being used to determine reaction. Surely there is other damage that occurs before the villi are damaged enough to be seen with a biopsy.
  8. dilettantesteph
    Thank you for posting. I would very much like to stay away from adult products containing hydrolyzed oat protein. Please report more when you find out more.
  9. dilettantesteph
    I am very sensitive so I avoid things like that. Could your issues come from cc of some other thing that you are eating? Have you tried keeping a food journal? Trying elimination/challenge diets?
  10. dilettantesteph
    I would go on a diet of whole foods. That means produce and meat. Avoid all packaged items. My reactions are delayed too. Initially I couldn't notice a reaction until the next day. Over time I have gotten better at noticing things and I can tell within a few hours now. Keep a food/symptom diary so that you can figure this out. When I started training...
  11. dilettantesteph
    My reactions differ depending on how much gluten I ingest, whether it is a small amount over a few days, or one bigger one time dose. My reactions also differ depending on how long it is since I last had a reaction, or, how healed I am. My reactions seem worse around the time of my period, or with strenuous exercise, or if I'm under a lot of stress. There...
  12. dilettantesteph
    I have been where you are. I had uncontrollable D for years. My idiot doc told me it was IBS and didn't even give me a blood test for celiac. After I finally found out I had celiac and went gluten free, things got a bit better but I still had problems from time to time. What worked for me was to get off processed foods. I think that cc was getting...
  13. dilettantesteph
    I found that I could introduce homegrown ones. It might be something used in production that bothered me.
  14. dilettantesteph
    The gluten free diet cured my depression. Therapy and anti depression drugs did not. You don't need permission to stop eating gluten.
  15. dilettantesteph
    Congrats! I did a mini triathlon (a bit longer than their sprint, but I don't know how that would compare to yours) last summer. It felt like such a big accomplishment. This was especially so since before diagnosis it used to take me four days just to mow the lawn because I was so weak and fatigued. The best part was the training, especially taking 2...
  16. dilettantesteph
    I used to use it a lot, but started having problems as I seemed to get sensitive to lower levels. Now I make my own from pasture raised chicken. It's really easy, overnight in the crock pot. I seem to be sensitive to very low levels of cc.
  17. dilettantesteph
    I was in your shoes. Gluten can make you crazy, or really seem like you are anyway. You don't need anyone's permission to not eat gluten. Some doctors will accept a response to diet diagnosis. You will be able to make more sense talking to them once you get your head straightened out. Just realize that once you stop eating gluten you won't want to go...
  18. dilettantesteph
    I had to give up eating processed grain containing foods because of apparent gluten reactions. I started buying my grains whole and sorting them. I have found gluten grains in just about all samples. It has taken a lot of sorting, but ppm means parts per million and a million grains is a lot to look through. Since I highly doubt that companies which...
  19. dilettantesteph
    My son's dermatologist said that you need an active lesion. We have an order for a drop in appointment for when he gets one.
  20. dilettantesteph
    I know that I have reacted to gluten free food that tested by the company to less than 20 ppm, even less than 5 ppm. Some of us do and call ourselves super sensitive celiacs. You and your daughter may be in this group.
  21. dilettantesteph
    You aren't stupid. Some of us are sensitive to lower levels of gluten than others. I am one of these super sensitive celiacs. It takes us longer to figure out the gluten free diet since there are more precautions which we have to take. Keeping a food diary will help. Also try not to change more than one thing per week because it can take a few days to...
  22. dilettantesteph
    It sounds to me like they mixed up glycerine and gluten.
  23. dilettantesteph
    That happened to me about twice a week before diagnosis. It would happen even if I stayed home just a few yards from the toilet. I wouldn't just go a little bit either. I hope you didn't stain up the car. Go gluten free now. The accidents became very rare for me after that, and now it's been over a year, I think. Why wait for a diagnosis? Stopping...
  24. dilettantesteph
    It is possible that it is gluten cc and not food sensitivities. The foods you mentioned are ones I have found to be cc'ed. For nuts, I buy in the shell, shell and wash and then I can eat them. With grains, I buy whole, sort (to remove gluten grains), wash and then eat and I'm fine. You might try some washing to see if that reduces the reaction. You could...
  25. dilettantesteph
    This is what I've been doing with buckwheat lately. I put the groats in a mesh bag and wash them and then leave them in a colander to sprout for about 4 days. Then I whisk a couple of eggs and stir the sprouted buckwheat around in that, then brown on the stove. It's good plain or mixed with some veggies. Even my picky eater son likes it.
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