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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    I become lactose intolerant after a gluten exposure. ?. Takes about three months to resolve. I use lactose enzyme supplements (I purchase certfied gluten-free) when ice cream is calling my name. Once healed, I am okay with lactose. I do buy lactose free milk. I have yet to test a big frothy glass of cold milk that is NOT lactose free. I was allergic...
  2. cyclinglady
    Celiac disease links with pancreatic insufficiency is REAL. It is one of the reasons for Non-responsive celiac disease (most often this is due to gluten exposure). Read this study: Open Original Shared Link Consider pancreatic enzymes supplements. Be sure they are gluten free. Make sure your diet is gluten free too and causing your pancreas...
  3. cyclinglady
    This is article is oddly timely..... Open Original Shared Link I definitely would discuss this with your PED GI and set your mind at ease. The other members have given you excellent advice!
  4. cyclinglady
    Yeah, like what is wrong with me? ? Seriously, you can ask for many things: 1) re-run the panel 2) ask for the gene test (helps to rule out celiac disease) 3) then go on a gluten-free diet for six months to a year to look for symptom reduction and follow-up with another biopsy. 4) if that fails, check for other things like milk, parasites...
  5. cyclinglady
    It is possible to test negative on the blood tests and positive on the biopsies. Doctors will confirm with Gene testing and a gluten-free diet. Open Original Shared Link If it not celiac disease, there are many other things than can cause villi damage and your doctor needs to identify the cause. Keep advocating for your health! Do not give...
  6. cyclinglady
    Here is more information about a challenge. But keep in mind that DH (celiac rash) often will be negative on blood tests. Read more on how to biosy the rash in our DH section. Open Original Shared Link
  7. cyclinglady
    When were you last tested for celiac antibodies (if you have celiac disease)? My bet is that your gluteny toddler could be making you sick. One of our members who is a PED MD and has celiac disease found that she was getting glutened by her small children. It could be lasctose intolerance if you have active celiac disease, but that will not resolve if...
  8. cyclinglady
    Welcome! Experts have various opinions, but here is one from the University of Chicago: Open Original Shared Link I would go for the maximum 6 weeks before the biopsy since you tested negative on the blood tests. By the way, which ones did you take? I ask because I tested negative to the most commonly used TTG. I am sorry that your...
  9. cyclinglady
    Welcome! Exactly what blood tests were taken? Was it a complete celiac panel? Often, doctors order just the TTG. For the past decade, the TTG was a great test for screening (cheap and effective), but they found that it did not catch all celiacs (like me who tests negative to the TTG tests). Only one of the tests needs to be positive -- not all!...
  10. cyclinglady
    No problem. I would ask that a full celiac panel be run. For the past five years or more, the experts recommended the TTG tests as the first-line screening test because it was pretty accurate and cheaper than the full panel. But they found it still did not catch all celiacs (like me who tests positive only to only one of the DGP tests). My Mom has Graves...
  11. cyclinglady
    No specific advice. Just.....hugs!
  12. cyclinglady
    It means there is a chance of celiac disease. One positive or two, the next step is an endoscopy. I know that sounds scary, but it is the "Gold Standard" still in formalizing a celiac disease diagnosis. Some doctors in Europe are just using the celiac disease blood tests and six months of the gluten-free diet to diagnose. I wish there was an easier way...
  13. cyclinglady

    ARCHIVED Dr NYC who takes HealthFirst

    cyclinglady replied to Elli-'s topic in Doctors

    You are like my hubby. He has been gluten-free for 15 years per the poor advice of his GP and my allergist (I was formally diagnosed 3 years ago). Does hubby have celiac disease? We will NEVER know because he refuses to do a gluten challenge. I can not blame him. Eating three months of gluten for the blood tests would make him very sick and he is the...
  14. cyclinglady
    Here is more information about cross contamination. The author, Jane Anderson, has celiac disease. She has written several great articles. Open Original Shared Link
  15. cyclinglady
    I am sorry that you are sick. There is a steep learning curve to the gluten free diet. Please read the Newbie 101 thread located under the coping section of the forum. Gluten free food is not expensive. It is best that until you feel better, to avoid processed gluten-free foods. Learn about cross contamination. Do not eat out for a while. I hope...
  16. cyclinglady
    You have your solution -- do not buy chicken!!!! I think you should consider consulting an allergist. You may have a chicken or poultry allergy or intolerance. I have never seen chicken in the grocery store that is either whole or cut in pieces that contains gluten and is packaged by the chicken factory (or whatever you call it). I personally do...
  17. cyclinglady
    Sorry to hear that! I purchase mulch (cocoa bean shells or bark) or rocks (succulents/cacti) for a nicer look in my decorative beds, but for my veggie garden, I use compost from my own composters. It is great for trash reduction and terrific for my soil. I let the leaves fall under my fruit trees too. It is messy looking, but my backyard is productive...
  18. cyclinglady
    Please do not bump a topic. You got an excellent response from gluten-free in DC who really understands celiac disease and testing. Here are the specific tests: Open Original Shared Link Do you have a specific question?
  19. cyclinglady
    I know nothing about celiac genetic testing except that some 30% of the poulation carries them. That means they have the ability to develop celiac disease but only a very few do. Genetic testing for celiac disease can help a doctor rule out -- not diagnose celiac disease. Jane Anderson, a celiac herself, writes and publishes accurate celiac information...
  20. cyclinglady
    I tested positive ONLY to the DGP IgA, like you except I had been on a gluten diet at the time of my endoscopy/biopsies which revealed a Marsh Stage IIIB. My GI only orders the DGP IGA now to monitor progress as it is is the only that will be elevated (saves insurance money!). Raven is right. Go by symptoms. It can take years for antibodies to go...
  21. cyclinglady
    That is horrible! Time to dump those "so-called friends"!
  22. cyclinglady
    I have been really active on this forum for three years. Probably, (no way to prove this) but at least 20% of all posters post once despite getting good responses from other members. Maybe they got the information they needed or said what they needed to say. Who knows?
  23. cyclinglady
    One of the best investments we made (not necessarily financial) was getting an RV. We travel all over and bring our gluten-free kitchen with us. We have also traveled internationally successfully. I can highly recommend Italy! You and your wife deserve a vacation!
  24. cyclinglady
    I have to disagree. I don't think that Rik is a troll. I think he was trying to let you know that there are far more worse illnesses to have than celiac disease. He is right (though blunt). celiac disease is the only AI that has a known trigger -- gluten. I only wish my young niece had celiac disease. Instead she is dealing with Crohn's and had no idea...
  25. cyclinglady
    Welcome! This is a really old post, so I am going to respond as the other members have not been active for a while. Many celiacs (due to intestinal damage) are intolerant to many foods other than gluten (wheat, barley and rye). Rice is not a gluten cross reactor, but you could be allergic or intolerant to it. If so, you should probably avoid all...
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