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cyclinglady

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Celiac.com - Celiac Disease & Gluten-Free Diet Support Since 1995

Everything posted by cyclinglady

  1. cyclinglady
    Benadryl does cross the blood brain barrier (why it can make you sleepy) and some recent studies say this can lead to some serious side effects. Consider an antihistamine like Zyrtec or Claritin that can used daily with fewer side effects. I save Benadryl for a big allergy attack. https://www.medicalnewstoday.com/articles/325169#side-effects
  2. cyclinglady
    Are you using a dishwasher? If not, keeping separate sponges (like one dedicated for gluten) for cleaning is recommended. Pots and pans that are porous or could scratched (cast iron or non-stick) should not be shared as gluten can get into cracks and scratches and be hard to keep clean. My house is gluten free, but when visiting my family, I use...
  3. cyclinglady
    Hi! I think the compost would be just fine. She is not eating the stuff. It should not go airborne either. Besides, wheat straw is mostly used. Grain is expensive. I would imagine not much is found in it, just a few that managed to escape harvest. I would not worry about it. Good luck on starting your garden and new compost heap. I...
  4. cyclinglady
    It is hard to really know if you have had a gluten exposure as symptoms can be attributed to several illnesses. For example, you could have food poisoning or intestinal flu. Some celiacs are super sensitive though. Just look through the DH (Dermatitis Herpetiformis) section of the forum. Their gluten exposures are very visible. Most avoid processed...
  5. cyclinglady
    You have been given great advice. I do not consume oats. That is because “back in the day” it was advised that all celiacs avoid oats because 1) a few celiacs react to them and 2) cross contamination from field and processing was an issue. Now, some oats are being grown in dedicated fields. This has allowed the rules to be relaxed a bit. It is ...
  6. cyclinglady
    Yes! White Rice lasts a very long time (like almost 20 years) if stored in a container. Brown rice goes raced fast. https://extension.usu.edu/foodstorage/howdoi/white_rice But....Elaine asked about buckwheat. It does not last as long as white rice. Closer to wheat or brown rice. More oils, I think. What form of buckwheat? That makes...
  7. cyclinglady
    Please be patient. Anemia was my main symptom. It took a few months for that to resolve (hemoglobin and ferritin) taking iron supplements prescribed by my GI. It was a good sign that I was healing from celiac disease. I did have an advantage. My husband had been gluten-free for 12 years prior to my diagnosis. So, I knew the diet well. But I made...
  8. cyclinglady
    Ah, my broth smells like chicken broth. It tastes slightly different, but that is because of the apple cider which helps to leech the minerals etc. from the bones. I just add a celery stalk or two and two carrots, salt and pepper (I can not do garlic or onion) with a tablespoon of vinegar. You can toss in other herbs too. I am a big user of dill weed...
  9. cyclinglady
    What about the sun? I live in Southern California. My Vitamin D levels never go below normal even in winter. Even if you live in Northern areas, consider getting in the sun daily as weather permits. If you need to supplement and are worried about gluten, consider a certified gluten free brand like Country Life. Here are some other recommendations...
  10. cyclinglady
    Because you have recent health issues besides celiac disease, I would not risk going out for food. Please quarantine yourself. Ask a family member or friend to shop for you or consider Insta-cart which my elderly parents are using. For health issues that are non life-threatening, consult your doctor via tele-med or email. Why take chances? Stay...
  11. cyclinglady
    Eggs do not contain gluten. You can have allergies or intolerances to eggs. I did. But with healing, I was able to introduce eggs back into my diet. I consume an average of at least a egg a day. Every single day. That does not count baking either. There is a possibility of a gluten exposure of you are raising chickens and if the feed contains gluten...
  12. cyclinglady
    @Corinne D., I am sorry that you lost the ability to consume fish. Thinking of you! @NNowak — bone broth is very good. I make it all the time in my Instant Pot. The broth you buy seems very expensive, plus it contains garlic and onion which I still can not tolerate (e.g. activates my Rosacea). I can buy a chicken and get two meals and a batch of b...
  13. cyclinglady
    I read that you have DH (Dermatitis Herpetiformis). Those who have DH (based on Celiac.com members) say they must be super strict and they often suspect that 20 ppm might be too much for them. They tend to avoid even gluten-free labeled products and certainly products that do not contain gluten ingredients. If I had DH, I would not even risk using...
  14. cyclinglady
    I am sorry that you are unwell during this COVID-19 crisis. You can have more than one autoimmune disorder as Ennis mentioned. Frankly, I think medical should stop labeling autoimmune disorders. Maybe just call it Autoimmune with a current emphasis on say, the thyroid or small intestine. Of course, treatment will vary depending on which body...
  15. cyclinglady
    Some doctors need to review and sign off the lab results. If the doctors are slammed, it could take a week or more. The EMA test is a manual type test and it can take longer. But since our healthcare workers are planning and caring for COVID-19 patients at this moment, it could take even longer. You might want to call and ask your healthcare provider...
  16. cyclinglady
    Beans and rice. Just sort the beans on a cookie sheet. Wash, rinse, and soak over night before cooking. Nutritious and cheap. Corn tortillas. Frozen veggies ( no sauces) are good and cheap. Gluten free does not have to be expensive!
  17. cyclinglady
    You can order food online using Instacart. I ordered some things for same day delivery from Costco. I wanted to test it out for my parents who are in their 80s and shopping is not necessarily a good thing for them to do right now. I got my food within five hours. Paid more, but no line. This will work well for my parents who actually can use Uber! ...
  18. cyclinglady
    There must be some fruit and veggies. What about rice? Brown or white? gluten-free pasta? Classico spaghetti sauce? Frozen plain veggies. Tuna packed in oil, canned chicken (one is labeled gluten-free), canned salmon, chicken, some deli meats. The list is endless. I think you just need to take a deep breath and relax. Make a list. Start shopping...
  19. cyclinglady
    Hi! No worries about obtaining gluten free products. Think simple non-processed foods. Like veggies, fruit, meats, fish, rice, dairy, nuts, etc. all found at your local grocery store. Save processed gluten-free foods for treats or when you are feeling better (those too can be found at your local grocery store. A damaged gut can have issues digesting...
  20. cyclinglady
    Know that some celiacs are seronegative or maybe you do not test positive to the standard screening TTG tests. Glad you have your diagnosis. Sorry to hear about your having SIBO. With plenty of time, you can heal. Hang in there!
  21. cyclinglady
    I am sorry that you have SIBO as well. Know that it can take a year or longer for most celiacs to heal. Maybe longer if you are dealing with other illnesses. You might need to work with your GI to resolve your SIBO, but Ennis has good advice about reducing carbs for now. I know I felt much better eliminating grains until I healed. For example, I could...
  22. cyclinglady
    The link you provided was pretty old (published in 2005). It did not mention the newer DGP tests which have replaced the AGA tests which were not that accurate. I test positive to only the DGP IgA. I have never had a positive on the EMA or TTG tests and I had them run many times. My biopsies revealed a Marsh Stage IIIB at diagnosis. Five years...
  23. cyclinglady
    I am sorry that you are struggling with this diagnosis. Is this the second GI to diagnose you with refractory celiac disease? I think I am a little confused. Could you clarify? If so, it might be a good idea to trial the medication, if two GIs gave you a diagnose of refractory celiac disease. Were other conditions ruled out (e.g. Crohn’s...
  24. cyclinglady
    False. Cross reactions with gluten is untrue. Look what the celiac Disease research Center at the University of Chicago has to say: https://www.cureceliacdisease.org/faq/whats-with-all-the-talk-about-certain-types-of-food-causing-cross-reactivity/ I am a healed celiac (repeated endoscopy) and I consume many of those foods on the chart. Living...
  25. cyclinglady
    You will feel better soon! I know your recovery will be speedy. Hugs!
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