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RMJ

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Latest Celiac Disease News & Research:

Everything posted by RMJ

  1. RMJ
    Country Life vitamins are certified gluten free (see their FAQs). https://www.countrylifevitamins.com
  2. RMJ
    Tums can cause acid rebound, so although it may give short term relief, it could make things worse in the long run.
  3. RMJ
    I’m the first, and so far only, person in my family to be diagnosed with celiac disease.
  4. RMJ
    RAST allergy tests are usually for IgE, so a true allergy, and are pretty accurate.
  5. RMJ
    The stool tests for antibodies have not been found to be very accurate. Unfortunately, due to a loophole in FDA regulations, that doesn’t mean that labs can’t sell them. https://www.bmj.com/content/332/7535/213 https://www.cureceliacdisease.org/faq/why-dont-you-recognize-tests-stool-tests-or-otherwise-for-gluten-sensitivity-that-are-currently-ava...
  6. RMJ
    The FDA website does not include the package insert, and I couldn't find it on the Dr. Reddy website, either. Sorry. I hope you can get the ingredient information directly from Dr. Reddy.
  7. RMJ
    I’m trying to find the official prescribing information that would list the ingredients. Are you in the US? And is the manufacturer Sandoz or Dr Reddy? I can’t find prescribing information for Dr Reddy’s tablets on their website but maybe I can find it on the FDA website if it is a US drug. I found it for Canadian Sandoz tablets which includes lactose (whic...
  8. RMJ
    It looks like there are several formulations, oral, intranasal and injectable. About which one are you concerned?
  9. RMJ
    I didn’t say it should be withheld, I just disagreed with worst case.
  10. RMJ
    I think the worst case is that someone will think that taking the enzyme means they can be less careful, and they eat more gluten which harms them.
  11. RMJ
    My story is similar. I showed my 23andMe results, which included elevated celiac risk, to my doctor, she knew I had migraines, and she suggested that I be tested for celiac.
  12. RMJ
    Smooth stainless steel pans can be cleaned. The concern is mainly scratched nonstick pans or other pans where gluten could remain in scratches or other rough spots.
  13. RMJ
    There is still a chance that when the biopsies are examined under a microscope the pathologist will diagnose celiac disease. Some newer endoscopes have better magnification than others and can see the villi during the endoscopy.
  14. RMJ
    It is quite possible for the intestine to look normal visually but show celiac when the pathology is done and looked at under a microscope.
  15. RMJ
    The National Celiac Association has some support groups in New Jersey. https://nationalceliac.org/celiac-disease-support-groups/
  16. RMJ
    Good! You should get an answer from those! Let us know how it turns out.
  17. RMJ
    Sounds like it could be celiac, especially when you have relatives that have it. What blood test(s) did you order?
  18. RMJ
    “To be clear, he’s not doing ANYTHING wrong by eating what he wants, but I’m angry and resentful about it despite my best efforts.” I’m not sure I agree. If he knows it really bothers you, he may be doing something wrong. Does he know it bothers you a lot? Is this a lot of foods, and thus a big imposition for him to avoid them? Or just a few thi...
  19. RMJ
    I was high positive on TTG IgA and IgG and DGP IgA and IgG. The one that took longest to get to normal was the DGP IgA. My doctor is stingy with ordering the tests so I was only tested once a year. DGP IgA started in the 140s (normal 0 to 19). After 1 year of reading labels and avoiding gluten ingredients DGP IgA was in the 50s. The rest were...
  20. RMJ
    I am also without symptoms, but my antibody levels didn’t come down to the normal range until I was super careful about possible contamination.
  21. RMJ
    Sounds like a good plan. I hope you can get a definitive answer one way or the other.
  22. RMJ
    You are right to be confused over those results. It is possible that your doctor is wrong and doesn’t know how to interpret the tests correctly, especially the total IgA. Can you ask “why do you say I have celiac when the only celiac specific test was normal?” I think you need a second opinion, preferably from a gastroenterologist. I wouldn’t want yo...
  23. RMJ
    I would go back on gluten and get further testing. Something about the results and your doctor’s interpretation doesn’t add up.
  24. RMJ
    That (46-287) is for the total IgA test, wasn’t there also a normal range listed for the Transglutaminase test?
  25. RMJ
    What is the normal range for your Transglutaminase result? Normal varies from lab to lab.
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