Get email alerts Get Celiac.com E-mail Alerts  




Celiac.com Sponsor:
Celiac.com Sponsor:




Ads by Google:






   Get email alerts  Subscribe to FREE Celiac.com email alerts

I Feel Like I Am Going To Die....:(
0

49 posts in this topic

I was diagnosed in August via biopsy (total fluke....I went into for a colonoscopy and endo for reflux). I was floored when I was told about celiac disease. Though, for the past few years, I had been been vitamin D deficient and Iron deficient, so it makes sense.

It took nearly a month before I was able to attempt gluten-free...it was very overwhelming. I made it one week gluten-free and I had enough. I was so hungry that I just couldn't hack it.

That was maybe second week of October when I gave it up.

But, my "symptoms" seem to be getting worse and I don't know if this is related to gluten or not...thought I would run it by here.

Problem one: My sleep. This is probably my BIGGEST issue. When I sleep, I never get enough. EVER. Earlier this week, I had slept 16 of 24 hours. SIXTEEN. That is just not acceptable to me. I have an 8 year old and a five year old. :(

This is pretty common for me, though. I have a hard time getting to sleep at night but when I do, I never want to get up. I will drag out and take my kids to school......go back home and sleep until my husband calls to wake me up so I can pick them up. It's impacting every single thing of my life. I don't go anywhere, anymore....I don't even have energy to grocery shop!

Problem two (amongst numerous): I HURT. I can't decide if my leg symptomatic of restless leg or of a siatic nerve, but I need weight on it at night to make it stop feeling weird. On top of that, it is not uncommon for my hands/fingers to be STIFF. My arms (upper arms) will be sore, joints stiff...... my blood tests for rheumatoid issues came back negative (but so did the tests for celiac via blood tests).

Problem 3: dizzy/"out of it"/zombied........ this doesn't happen as frequently, but my aura is just indescribable. today, I was out with my mother and I just had to leave where we were. My head felt funny and it was almost a derealization feeling. My legs felt like they were going to give out underneath me at any moment...they were weak and I just wanted to die.......it's THAT bad.

SO........is this typical of Celiac Disease or are there other things going on? I have got to get to the bottom of this because I am THAT debilitated by all of this....and my kids are suffering. I am missing out on so much.

For the record...I've been gluten-free (again) for two days...but I am eating one meal a day because that is all I can really do given my lack of energy to prepare/shop/etc.

Thanks in advance for any insight:)

0

Share this post


Link to post
Share on other sites


Ads by Google:

You just do not seem to understand that you have Celiac Disease---- and the only treatment for it is a gluten free diet. You are debilitated because you are not doing what needs to be done to heal the villi in your intestines.

You feel like you are going to die because you KEEP EATING GLUTEN. You need to be strictly gluten free--for the rest of your life.

You need to read about Celiac and understand that as long as you keep consuming gluten---you will never feel better. (And you very well may die).

This is a serious autoimmune disease hon, and it's time to come to grips with your diagnosis. Going gluten free is not optional.

Did you read anything about this disease you are dealing with---because from the sound of it, you haven't.

please read Celiac Disease:the Hidden Epidemic by Dr. Peter Green.

and please read this:

http://www.celiac.co...ewbie-info-101/

You say you are hungry because "there is nothing to eat" but that is simply not true.

You are not looking at food the right way.

It's not about what we cannot have--it's about what we can have! I am not hungry at all.

I know you feel overwhelmed, but it's time to get serious, dump the gluten and get healing.

And I say this all the compassion there is--you need to commit to this right now and save your own life.

1

Share this post


Link to post
Share on other sites

This might seem harsh - please understand I am not trying to be so.

You have Celiac Disease. If you consume any gluten, the symptoms you have will worsen and many more will join them. I have no doubt you feel bad now, but it can get much worse and likely will if you don't remove ALL sources of gluten.

For now simplify - eating one meal a day is not going to improve your health. Try eating small things throughout the day. Stick to whole foods, nothing processed and you will get better, but it does take time.

Keep it simple for now -

Eggs scrambled right in the pan with a handful of spinach, asparugus or zucchini thrown in for breakfast

Handful of nuts or a piece of fruit for snacking several times a day

Soup or salad for lunch

More munching on nuts, fruit or carrots during the afternoon.

Baked chicken, rice and a veggie for dinner

Drink LOTS of water

Take some time to learn how to eat gluten free - think about shopping from the perimeter of the grocery store - where all the whole, naturally gluten-free foods are kept - no processed foods to start.

As you start to feel better you will have the energy to shop and prepare wonderful gluten-free meals, but for now keep it simple.

Hang in there - I hope you start to feel better very soon - but understand it took quite awhile for your body to get to this state - it may take time to heal.

0

Share this post


Link to post
Share on other sites

I am sorry you are having such a hard time with your diagnosis. You feel like you are dieing because you are continueing to poison yourself. You have children. They need you and need you to be healthy. As hard as it is on you it is just as hard on them to see you in the condition you are in. I wasn't diagnosed when my kids were young. They grew up watching their mother die slowly. It is not something any child should have to go through. Please get back on the diet. If you can't do it for yourself do it for them and their father. It is hard but you can do it. Read as much here as you can and we will help you in any way we can.

Go with simple easy to cook meals at first. Steak or ground beef and potatoes. A fresh chicken rubbed with salt and butter and tossed in the oven with some baked potatoes or rice. gluten-free soups over rice. Dinty Moore beef stew with some peas or green beans tossed in while it heats. Those are just a few examples of easy to fix meals that are gluten free. There are many more of course. Do check out the recipe section of the board for more ideas.

0

Share this post


Link to post
Share on other sites

Harsh reality is you have a debilitating disease if left untreated and you are allowing it to win. The simple answer is it's just food. Period. Eat the right stuff and feel better or continue on that path to worse health, possibly cancerous later. And it does NOT have to be expensive. I eat fruit, nuts and some candy (M&M's for a small snack) every day during the day instead of big meals. It's portable and just makes the day easy. I eat throughout the day that way. You can have many cereals for breakfast, eggs, bacon, sausage, gluten-free pancakes, fruit. For lunch, deli meats (not processed) but there are also processed that are gluten-free (Carl Budding I believe is one), gluten-free bread (Udi's white is good!) but it's a bit expensive, potato chips (Lay's is gluten-free and I think Frito's are too), leftovers from dinner, salad with gluten-free dressing (tons of them are naturally gluten-free), peanut butters (many are gluten-free naturally), jelly. For dinners any meat is fine, fish, chicken, shrimp, lobster, and on and on. Every vegetable is ok that I can think of. Apple sauce, gluten-free noodles from Target or other stores for spaghetti, spaghetti sauces are usually gluten-free, and the list just keeps going. Tons of candy bars are already gluten-free.

Don't fall for the gluten free hype. Many foods just don't have it anyway. Those that do often have easy alternatives. But yes, you do have to give up some foods. No alternative to that and if you don't, especially long term, you could lose your life to food. Why gamble? Why pay that price and stay bedridden all day? Why let the kids and hubby suffer because you aren't doing what you need to do to manage YOUR disease? They can help. Let them. Teach them and teach yourself. Take the bull by the horns, take charge of your body and your diet, and make the changes. Make them your teammates to stand guard when you have to eat out or shop for food. You need their support and they need you. Be a family and get everyone on board with you.

I hope you can fix this. Right now it's a mess and nobody deserves it to be that way, including husband and family. You owe yourself better than continuing to eat foods that are poisonous to your body. It's not that difficult to protect yourself and let your body heal, but failing to put it all into trying is just setting yourself up for far worse problems later when your body turns on you and deteriorates to its end. Many prayers for your recovery.

2

Share this post


Link to post
Share on other sites




My diagnosis was a surprise as well. I had my gallbladder out and the following day had to have an endoscopy to remove a stone that was stuck. I didn't even know a biopsy had been done. A week after I was released from the hospital I got a phone call saying they had my biopsy results. Biopsy? What? Cancer? I'm dying? No no, they assured me, it's just celiac. Oh... what a relief. Then I found out what celiac is. I cried, sobbed like a child. I made bargains with God. I wondered if cancer wouldn't be better, then they could just cut it out and I'd be better. Give up wheat? IT IS IN EVERYTHING!!!!! This is too hard, I thought. I can't do this, I thought. This was a Friday. Monday I saw my doctor. I spent all the time in between doing research. By that afternoon I was so exhausted I couldn't think straight. My birthday was that Wednesday, I went out with a bang. Friday I was gluten free. I have not intentionally consumed a single gluten molecule since January 6 of this year.

Why did I share this? Because I know exactly what a "SURPRISE!!! You have celiac." diagnosis feels like. Especially when you didn't even know what celiac was before. I know how emotionally hard it is. And I'm going to verbally give you the kick in the pants you need.

Problem one? I suffered from insomnia and extreme fatigue. I would never be able to fall asleep unless I was so exhausted I was ready to fall over. Then I would sleep for 16 to 20 hours a day for days at a time. This has not resolved yet, but is so much better. I now get up and stay awake for whole days. I still have trouble falling asleep. I push through when it is rough with caffeine. But for the first time in years I am at a point where I can carry on a normal life. Leave my house. Have hobbies. Just feel like a person again. These are both symptoms of untreated celiac.

Problem two? Many here, myself included have been diagnosed with fibromyalgia. We hurt. There is no explanation. We are simply in pain, every moment, every day. This has improved gluten free. I am not 100% better, but it is bearable now. It was not before. This is a symptom of untreated celiac.

Problem three? I never discussed with anyone how I felt disconnected from the world. How I felt slightly out of phase. Like everything was sort of surreal. I didn't want to end up in the loony bin. This is gluten head, another symptom of untreated celiac. This has completely resolved gluten free.

Check out the newbie thread, there is a lot of good info there to help you get started. But you HAVE TO get started. Your children deserve a mother and right now they don't have one. People die of celiac. Not the dozens of other autoimmune diseases you can get by not going gluten free. Just the celiac itself. Your children may also have celiac. If you don't get it together now, you'll never be able to help them if/when they are diagnosed.

I'm very sorry to be so harsh, but you've sulked for three months. Your life is on the line. It's time to step up. (((hugs))) We're here for you. It is hard, but it gets easier. After eleven months I don't consider myself different, deprived or weird. Being diagnosed as celiac is the best thing that ever happened to me. It gave me my life back.

1

Share this post


Link to post
Share on other sites

What you are feeling is EXACTLY what celiac feels like- though some get the bonus of constant diarrhea and vomiting too. I was like you, I slept, and slept, and slept, and yet never felt anything but exhausted. I only got off the couch when I absolutely had to, and I missed out on the majority of my childrens' childhood because of it. I ached constantly, and felt drugged always. Someone on here described it as having vaseline behind their eyelids- I couldn't explain it better!

The good news is, all of that WILL go away on the gluten free diet.

The bad news is, you HAVE to do the diet, 100%, all the time, no cheating, ever, or far worse things WILL happen to you. If you think you feel bad now, wait until you have ataxia and lose your motor coordination and ability to walk. Wait until you develop artritis, and the pain is so bad you want to die. Wait until you have to have your intestines resected becaUse of bowel cancer, and you poop in a bag the rest of your life. Those are just a few of the realities of untreated celiac- there are many many more.

None of us here want this. But we have learned to adjust, and the longer you are gluten free, the better you will feel, and the more energy you will have to cook. Its a tough road in the beginning, and very overwhelming.

But it isn't one you can just refuse to walk down. You have children who need you alive and well. And who also need to be tested, celiac is genetic. Even if they have no symptoms, they need testing every 3 years. Both my kids also have celiac, and it is pretty common to have several in the family affected.

So take a deep breath, say a prayer to accept this, because its a done deal. And then start your life over, tomorrow. I promise, a year from now, you will hardly believe you went through life feeling so lousy!

0

Share this post


Link to post
Share on other sites

One needs to take the GREAT Advice above. One also needs to start watching for signs of Celiac or other Gluten related issues with your 8 & 5 year olds.

0

Share this post


Link to post
Share on other sites

While I totally agree with the other responses about needing to take your celiac diagnosis seriously, I would like to add another perspective on how to move forward: Dealing with Celiac requires a change of mindset. As awful as it seems right now, you are fortunate to have discovered the cause of your misery. And you have the incredible blessing of having an illness that can be managed by eating right - no surgery, chemo, or other nasty pharmaceuticals.

When you can embrace these positives, the practical tasks of selecting and preparing healing foods becomes much easier. Keeping it simple as you start out will help with both food preparation and your healing. As you start to feel better, you can explore more food options. Over time, this truly will get easier. Hang in there.

Good luck!

4

Share this post


Link to post
Share on other sites

Dear, you cannot cheat or stop the diet at all. You are opening yourself up to a whole risk factor of other things (such as but not limited too cancer, permanent damage to the vili, etc).

There is no cheating.

What you experienced before was a gluten withdrawl. We have all went through it (i have no doubt i was a little bit of a brat during mine, whining and crying for it).

Furthermore, you have two children who need to be checked. Celiac is a genetic disease.

0

Share this post


Link to post
Share on other sites

Hi,

Your symptoms and more can be caused by celiac. It doesn't go away. The autoimmune reactions can last 2 weeks or more every time you have a little bit of gluten. That is two weeks of continual damage to your gut. The damage to your gut (villi destruction) causes malabsorbtion of nutrients inlcuding vitamins and minerals. Without the vitamins and minerals your body needs it can't heal properly. Children with celiac can be short and skinny but have a large stomach from digestive issues. They also may have trouble at school and paying attention.

Some people have an actual withdrawal reaction to eliminating lguten. That doesn't last very long and can pass after a week or two. You may have that reaction or may not.

Eating is a habit for many people. A habit that can be changed. Once you get used to eating different foods, the gluten-free diet is not hard to follow. But starting off can be confusing and frustrating, Confusing because you aren't sure what is safe to eat. And frustrating becasue yuo have to learn new foods to eat and possibly new ways of cooking. Sometimes it may seem like there is nothing you can eat, but that is not correct. There are many foods that celiacs can eat. After you have learned to eat those other foods (many of which are things you ate for years) you won't miss the gluteny foods all the time. Adn teh gluten-free diet is not a weight loss diet, it is a medical diet. You can eat as much of the gluten-free foods as you want, there is no need to be hungry. You may have cravings at first, and those may be due to gluten withdrawal or vitamin deficiencies. Your doctor should test you for vitamin dificiences so you know what kind of supplements you may need.

Here is some ilght reading for you to help fill your mind with all things gluten-free. :D The meal idea threads can help with deciding what is ok to eat. We tend to talk a lot about what to eat on the forum. :)

Don't worry about being perfect at the gluten-free diet right away, but spend some time reading the threads and FAQ info here. Check out the threads on breakfast ideas or dinner ideas or even snack ideas (if that kind of thing appeals to you). :) There even threads on safe candy for Halloween and other holidays. And a recipe area for lots of great things to eat.

Some starting the gluten-free diet tips for the first 6 months:

Get tested before starting the gluten-free diet.

Get your vitamin/mineral levels tested also.

Don't eat in restaurants

Eat only whole foods not processed foods.

Eat only food you cook yourself, think simple foods, not gourmet meals.

Take probiotics.

Take gluten-free vitamins.

Take digestive enzymes.

Avoid dairy.

Avoid sugars and starchy foods.

Avoid alcohol.

FAQ Celiac com

http://www.celiac.com/gluten-free/forum-7/announcement-3-frequently-asked-questions-about-celiac-disease/

Newbie Info 101

What's For Breakfast Today?

What Did You Have For Lunch Today?

What Are You Cooking Tonight?

Dessert thread

Easy yummy bread in minutes

How bad is cheating?

Short temper thread

Non celiac wheat sensitivity article

http://www.celiac.com/articles/23033/1/Non-Celiac-Wheat-Sensitivity-It-Exists/Page1.html

2

Share this post


Link to post
Share on other sites

Yes...I have read so much about Celiac disease. I know it included fatigue, but not aware of the AMOUNT of sleep that would fall into this.

Our lifestyle is a bit strange and I know I have to find a way to change it NOW. Because I am exhausted all of the time and my husband works 40 hours a week and tries to make up at home what I can't do, we do quick stuff..be it very simple shake and bake meals, etc.....I don't even know if I could hack following a recipe at this point in time. We are very strapped for cash being a one-income household. My husband's income dropped when the economy started going into the can...he lost many incentives and bonus opportunities.

I was in Whole Foods Thursday (it is an hour away from us...we don't have one where I am) and I was in awe at all fo the options, HOWEVER, there is no way I could spend $5 for a loaf of bread....or 2.50 for a can of soup......$4 for a microwave meal...etc.

The other option for shopping where I am in Meijer. And Meijer as many things, but they are just as expensive.

I puchased these crackers once made by Diamond thinking they have to be good...it's a company that's known! WRONG. They were hard and horrible and they weren't cheap. SO....that is another thing I face: how do I know what is good and what isn't? Very hard to drop the extra money on the unknown:(

My family isn't gluten free. There are no separate toasters.....dishes.....and I will be straight out and honest: I cannot buy new pots and pans and dishes. A $10 toaster I could probably swing...but not pots and pans.

But, perhaps the biggest obstacle is getting the energy to going to the grocery store PERIOD. Even when I do get up, I have no energy to go to do the store. I rarely leave the house unless it is to take the kids to school or pick them up. I don't even do any of my crafts, anymore. I don't see my friends....and it's depressing me.

I'm not looking to make excuses because,

As I said, I've been gluten free for 2 days now..mainly doing "gluten-free" ordering out from restaurants. So far, I've had no major symptoms like I've had (Gut burning, diarrhea, etc). I am just trying to figure out HOW to do this based on the circumstances given. How do I do this when I am sleeping so much and in pain...at least until I can overcome many of these symptoms?

I am downright scared. I truly am. I miss my kids and they are starting to prefer their dad over me (I've noticed the excessive tiredness for over a year and it's gotten worse since September).

I really do appreciate the input. Without it, I'd be lost!

0

Share this post


Link to post
Share on other sites

Here is the dilemma: You need to feel better to get going, and you need to get going in order to feel better.

Oh dear, do you have anyone that can come in and support you during this time? Well, if you don't, I imagine that you are like most of us that just have to muddle through. . Meal by meal you can get it done. Your children are old enough to help some. My 6 year old learned how to cook when I would lay on the counter and tell her what to do. I would probably never have taught her to cook if it weren't for this. Concentrate on children care and meals as you recooperate. Someday when you are feeling more energetic again you can do something extra.

I find poached eggs are easy for breakfast. Heat water to boiling and turn heat down to Medium. Toss in eggs. Cook about 5 minutes while busy in the kitchen. They are quick and easy and have the protein your body needs. I combine mine with a muffin or pancake made with almond, buckwheat, or coconut flour. I spread good fat like coconut oil, or butter on it. Fat gives you energy and you need it.

I use to fall asleep between my children's spelling words, but I don't anymore. Hang in there and fight hard. I often feel my worse when a new high is just a head. One never knows.

Here are some get well flowers. *** I want to send flowers to celiacs.

Diana

0

Share this post


Link to post
Share on other sites

I posted something just a bit ago and it doesn't seem to have gone through?? GRRR! Frustrating.

0

Share this post


Link to post
Share on other sites

I posted something just a bit ago and it doesn't seem to have gone through?? GRRR! Frustrating.

All new members have their first 10 posts approved in order to protect us all from spam.

Hang in there :)

0

Share this post


Link to post
Share on other sites

I am crying here, for you and for me - I had actually FORGOTTEN how bad I was with this disease. I was dragging myself about, no idea how I would get the energy to go and pick up the kids, poor husband shattered from all the extra work. Feeling bad about not playing with my kids enough.

It will get better once you STOP THE GLUTEN.

I found that though my vitamin levels were in the normal range several were low. I now have sublingual b12, good gluten-free multivitamin and probiotics. You can end up not absorbing because of gut damage. Many have aneamia or vit d low. Many of these are associated with converting food to energy and releasing it.

For now find simple foods, and have some nearby before husband goes out. I use rice or sweet potato a lot. Sometimes just cold, bit of grated cheese on. Avocado is good, with tinned tuna. Dont worry if it doesn't look like a normal meal!

I am now back to being able to cook, clean, look after kids, and even have fun for myself :)

Be aware too that the illness itself can also cause anxiety, depression etc. Which can also improve with the gluten-free diet.

Hang in there and hang out here. We understand.

Welcome and good luck x

2

Share this post


Link to post
Share on other sites

You can do it. Take it from a college student.

I buy whole foods generally (sans my chex and my corn tortillas and pasta). I spend about $30 on food per week.

Crock pots, i've heard, are lovely to have. Pop some meat and veggies in it and you'll have a good dinner. Rice is rather inexpensive as well.

You will learn how to do this, you have no choice but to. Some of your post does kind of sound like an excuse (no offense intended here). At this point in time, there is no need for you to eat the $5 bread as the best you can do at the moment is avoid all proccessed foods.

It is an adjustment, there is no doubt about that. Since you have children, you need to be extra careful about Cross contamination (aka CC). So no sharing of anything. This includes drinks, peanut butter jars, mayo stuffs, etc. Squeeze bottles are lovely for this reason.

As for the pots and pans, as long as they aren't scratched, they should be fine. Wooden spoons are easily replaceable as are colenders.

Corn starch is also good in palce of flour in gravys (though mix it with something cold before adding to avoid the bugger like clumping!).

Energy is a big deal. I understand that well. I just tell myself "I'm going to do this, get it over with, and come home and take a nap".

1

Share this post


Link to post
Share on other sites

The cost isn't so bad. I thought at first that the cost would kill me. Then I just stopped buying "gluten free" foods. You don't need bread, crackers and all that junk, because it is JUNK! Eat fruits, vegetables, meats and gluten free grains like rice. Once I realized I can change the way I eat entirely, and do it almost with no effort, it changed everything for me. Crock pots are one of God's greatest gifts. If you don't have one, this is a great time of year to pick one up at a Wal-Mart for a really great deal. Add meat, potatoes, or whatever vegetables, let cook all day and you have dinner. You didn't even have to DO anything! This can help you get through for a few weeks until you gain enough strength to learn your way around gluten free cooking for yourself, although it really is simple. Once spring rolls around again, find the closest farmer's market or some such and make use of the cheap fresh veggies and fruits you can get. I promise, once you give up that crap people market to us as if our lives aren't worth living without shoveling so much refined carbs into ourselves we could vomit, it really isn't expensive at all. And all you really need is non-scratched pans. One good large frying pan and one large pot should be sufficient for you, I bought stainless steel so they will never need to be replaced. (Although I also have a good non-stick because I can't live without one.)

Oh, and I should have thought of this but didn't but looking up at shadow made me think of it. Tacos. Just use Mission brand corn tortillas instead of flour tortillas for soft tacos. And watch that taco seasoning, I can not figure out what the hell people need wheat in tacos for but omg, they put wheat in taco seasoning in a few brands. I just know tacos were a favorite in my house for my kids and they're relatively cheap. Then you can use the leftovers to make quesadillas the next night so it's different, but nearly effortless because it is leftovers and best of all... cheap!

1

Share this post


Link to post
Share on other sites

Lot"s of good info in this thread, i think i read my first post on this forum about 100 times. I suggest you read over this one quiet a few also. Maby even get hubby to read over it. The food labeled gluten free is expensive, lucky for you that you don"t need to be trying to eat any of that right now!! It will take a couple of weeks to get over eating gluten then you should start seeing a big differance. At that point you will start the healing process. No need to be hungry, eat all the fresh fruit, ,veggies, an meat you want. Stay away from packaged food for a while, no canned or packaged food an you"ll get off to a good start. If there"s something you absutley must have just ask an we will point you in the right direction so you don"t get glutened. Going gluten free is not easy, you have a lot to learn, the results will be amazing when you get it figured out. Until then there"s great support right here on this forum. Feel free to complain, whine, vent, thats what were here for. You can do this, because you have no choice. Focus on how good your going to feel an think of all the food you can eat. Avoid thinking about what you can"t eat, an don"t get hungry. That only makes you want something you can"t have!!

1

Share this post


Link to post
Share on other sites

Fatigue is a problem, I had plenty of fatigue for a long time too. It does make doing things harder. Your fatigue coud be due to vitamin defiiciencies, or a thyroid problem (Hashimoto's thyroiditis). Both are things that happen to celiacs more than other people.

Here are a couple more meal idea threads. There are also lots of snack threads on the forum if you use the search feature on top right of the pages. The crock pot is a nice way to make a dinner without much effort. No need to watch it or check it just turn it on and leave.

Gluten-free should be less expensive than regular food, if you do it by eating whole foods. Processed foods have the extra cost of packaging and marketing and the chemicals they add to make it look and taste better and be shelf stable beyond what it's natural useability would be. You don't need to eat bread at all. Or you can make the microwave buns in the thead above in 90 seconds if you want to. I used to make those and then slice them in half and grill them in a hot pan for a little bit. They were too thick for the toaster. Now I just eat Mission corn tortillas or taco shells if I want bread like things.

if you like peanuts Planters labels their nuts for gluten containing ingredients. As of now their cocktail peanuts are gluten-free. But always check labels when you buy a product, even if you have bought it before. Ingredients can change.

It will probably take some time before you get over the fatigue, but everyone is different and you may recover quickly. Hard to tell. But the more you stick to a whole foods simple diet at the beginning, the less junk there is for your body to work on eliminating and processing. You don't have to shop at Whole Foods Market, there is plenty of gluten-free food at regular groceries. Think about eating the way people did 60 or 100 years ago, without all the modern packaged food-like substances. Those people survived just fine on real foods.And they did it without microwaves! :) A pressure cooker is another way to cook things fast, and is great for making soups or roasts, beans etc.

Super Easy Meal Ideas Anyone?

http://www.celiac.co...l-ideas-anyone/

Thread For gluten-free, Dairy, Soy, Corn And Nightshade Free Recipes

http://www.celiac.co...e-free-recipes/

0

Share this post


Link to post
Share on other sites

My neighbour had some sound advice, especially for newbies. Don't eat anything that's been through a factory. No grains , no milk, no sugar.

2

Share this post


Link to post
Share on other sites

Chex cereals- gluten free and cheap. Beans and rice in corn tortillas. Scrambled eggs. Fresh fruit, peanut butter with apples, celery or bananas is a good quick go to snack. Stick to boring and basic for right now, aFter a few weeks, you will start to feel a bit better and you can get more creative. Just avoid bread for right now. I have tried making my own, and honestly, gluten-free flour is so expensive that my loaves aren't any cheaper anyway, so we just don't eat a lot of it.

There are a lot of mainstream foods that are Already gluten-free, and you will learn which ones they are. You don't necessarily haVe to spend a lot on specialty products. Flour is the only must, and the cheapest solution is to seriously linit your amount of baked goods. Not really good for you anyway.

You can do this, we have all been there before. That's why this is a SUPPORT group!

0

Share this post


Link to post
Share on other sites

I love my rice and potatoes, but my insulin resistance certainly does not. I also have to watch many fruits.

My big joke now : I might as well just go graze in the yard.

How does this work when there is a sugar issue?

Appreciate the support!

0

Share this post


Link to post
Share on other sites

You graze in the refrigerator. You eat enough of the stuff without sugar that you are full.

0

Share this post


Link to post
Share on other sites

Chances are good your insulin resistance may go away when you have been gluten-free for awhile. In the meantime, you are going to be more limited, for sure, and have to stick more heavily to the veggies than the fruits. There isn't an easy solution for most of us, and this is something that we had to learn to deal with. You will too.

0

Share this post


Link to post
Share on other sites

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!


Register a new account

Sign in

Already have an account? Sign in here.


Sign In Now
0

  • Forum Statistics

    • Total Topics
      104,144
    • Total Posts
      919,568
  • Topics

  • Posts

    • I think the posters above have given you very good information and I will throw in my 2 cents worth.  I am surprised that they did not test her DGP IgA also.  I am sure that would have been positive.  They switched off with antibody classes and usually they do both tests for both antibodies.  IgA is more specific to Celiac but the IgG is also useful.  The testing shows your daughter is producing antibodies to the gluten in her diet. (DGP IGG). THe tTg shows positive for some damage or inflammation. You know........your daughter is only 4.  She hasn't been on the planet or eating gluten that long. It can take years for enough damage to occur for it to be able to be found on biopsy.  I would say it is highly likely that this is Celiac, especially with her symptoms. But because the damage hasn't graduated to bad enough yet, they won't diagnose her. I think you need to do what others have said and get all copies of testing and find someone else who will take a look and give a diagnosis, especially if they have you do a dietary trial and her symptoms go away.  That might be the only recourse if you want faster proof. I know I would want faster.  I would not really be happy if I thought I had to keep feeding her something that was making her sick.  If you keep her on gluten long enough, the diarrhea will probably show up. BTW.........the criteria mentioned regarding diagnosis does not apply to kids.  I know it's silly and stupid but most leading Celiac specialists do not go by this criteria for kids.......adults only.  Keep that in mind because it might come up.  You could recognize it but they might not. Have you considered gene testing, to help bolster a diagnosis? As far as false positives go, it's the other way around. False negatives happen more frequently than many people think.  It's a recurring theme here.  With her symptoms, which is what I had, a bloated belly and tummy aches are telling.  Have they tested her for lactose intolerance?  That can cause similar symptoms, although it sure won't raise those 2 blood tests.  Keep looking for Celiac because there are many red flags here.
    • This 4 out of 5 criteria does not apply to children. I was never given a reason why, but it isn't.     That said, you may try to get a second opinion from another GI who may be willing to give her a firm dx.  We were in your boat 6 years ago and while I'm sure I'll get slammed for it, I wish we had kept gluten in our kiddos diet till he scoped positive for a variety of reasons.  Again, even family is different and you have to find what is best for you!
    • Mnoosh, I had swollen lymph nodes prior to celiac dx and for a while after going gluten free. My neck as well as groin. The groin ones were the worst. Guess what? All gone! It's hard to recall a time line & consider that everyone is different but I think mine completely resolved within a year.  You've been given great information. Just breathe and then again, breathe. You're going to be fine. 
    • It is the only thing you have eaten, so it can't be anything else?  I eat it with no issues so I am not sure how you can be certain that is the problem.  All I am saying is that its sort of "your word against mine and the company's word".  
    • Thanks cyclinglady & manasota! I appreciate it. I came to give an update...... I'm still 99% itch free. I get a "place" like a bug bite once in a while that itches and I just use the prescription steroid cream on it & that takes care of the itch. My rash is healing up rapidly everywhere. Almost clear skin now! Yaaaaayyyyyyyyyy! Now for a rundown of the "treatment". For 20 days I took a 100mg doxycycline twice a day. Then we upped it to two 100mg doxy twice per day. I took those for 5 days & made rapid progress and the itching stopped. The doxy was getting my tummy though. It was getting really rough despite my eating yogurt. So on day 6 and day 7, I took two 100mg doxy in the am but in the pm I just took 1 of them. On day 7, I was nauseous for hours on end. So since I was still doing well without itching and the rash was healing everywhere, I decided to cut back some more. On days 8, 9, & 10 I have only taken two 100mg doxy in the am and none at night. I'm doing good and my tummy is much, much happier! No more nausea!  I'll update as things go along.
  • Upcoming Events

  • Blog Entries

  • Recent Status Updates

  • Who's Online (See full list)

  • Member Statistics

    • Total Members
      61,176
    • Most Online
      1,763

    Newest Member
    Red Butt in hemet
    Joined