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Parents, Friends and Loved Ones of Celiacs
Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.
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Recent Activity
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- Aretaeus Cappadocia commented on Amiah's blog entry in Amiah2
Help!!
I agree with Trents' reply. In addition ... Your post does not say what you did with your child's diet after the blood test and prior to the endoscopy. Usually the Dr advises a "gluten challenge" prior to the test so that the inflammation is more pronounced and easier to see. On the other hand, if they didn't mention this, you may have reasonably restricted... -
- knitty kitty replied to Jmartes71's topic in Doctors12
Second chance
@Jmartes71, I understand how frustrated you feel. I have been disappointed with the medical system myself. Have you read my story in my blog? What can we do to help you get better? Nutritional deficiencies are common in Celiac disease. Have you been checked for vitamin and mineral deficiencies? Which supplements are you taking? -
- Mari replied to Jmartes71's topic in Doctors12
Second chance
hi jmartes This is a link you can click on to see a form to fill out to obtain medical records from Kaiser. If you have already submitted this form you could send in another one. . The form asks for your MR# and please remember to put in the name you were using before you were married. How to Request Copies of Medical Record from Kaiser Permanente... -
- trents replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Test interpretations
It would seem then that your next step should be a biopsy to check for damage to the villous lining of the small bowel. But you must not reduce gluten intake until that is performed else healing will take place in that area of the intestines and the biopsy results would be invalidated. -
- knitty kitty replied to anya22's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms4
Test interpretations
Welcome, @anya22, Can you tell us more about your diet? How much gluten containing foods did you eat? What kinds of gluten containing foods did you eat? What has your high calorie diet consisted of? Some gluten containing foods contain less gluten than others. Cakes and cookies may have less gluten than something like deep dish...
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