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Parents, Friends and Loved Ones of Celiacs

Discussions among parents of kids or babies with CD. Non-celiacs can discuss their experiences dealing with a friend or loved one with the disease.


7,184 topics in this forum

  1. chlobo
    dandelionmom
    • 1 reply
    • 1.6k views
  2. chlobo
    MrsMH
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    • 5.2k views
  3. Virgie
    happygirl
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  5. PattiB
    gfgypsyqueen
    • 1 reply
    • 1.7k views
  6. BemLmom3
    Guest
    • 4 replies
    • 1.5k views
  7. Kara'sMom
    Offthegrid
    • 3 replies
    • 1.5k views
  8. sez
    Electra
    • 8 replies
    • 1.5k views
  9. Electra
    Ursa Major
    • 1 reply
    • 1.7k views
  10. rebeckalyn79
    Tim-n-VA
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  12. carecare
    GFinDC
    • 14 replies
    • 3.5k views
  13. Guest Rosany
    Guest
    • 13 replies
    • 2.4k views
  14. rebeckalyn79
    • 4 replies
    • 1.3k views
  15. Kara'sMom
    shayesmom
    • 9 replies
    • 7.8k views
  16. todzwife
    vanillazeis
    • 11 replies
    • 1.9k views
  17. Guhlia
    gfgypsyqueen
    • 4 replies
    • 2.3k views
  18. LuchoWa
    • 6 replies
    • 4.5k views
  19. bbopper
    Juliet
    • 3 replies
    • 1.5k views
  20. Kara'sMom
    mamaloca2
    • 16 replies
    • 12.8k views
  21. NoSugarShell
    • 7 replies
    • 1.6k views
  22. crittermom
    • 16 replies
    • 2.7k views
  23. Lollie
    happygirl
    • 10 replies
    • 3.6k views
  24. todzwife
    vanillazeis
    • 2 replies
    • 1.3k views
  25. skikat
    hayley3
    • 10 replies
    • 3.6k views
  26. Krystens mummy
    crittermom
    • 2 replies
    • 1.7k views
  27. LuchoWa
    Joyous
    • 1 reply
    • 1.2k views
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    3. - Scott Adams replied to Cecile's topic in Related Issues & Disorders
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    • Scott Adams
      Let us know how things go.
    • Scott Adams
      In the thread I linked to above, one of our sponsors here sells gluten-free nuts, dried fruits, etc (a coupon that might work for you there is GF20) https://www.tierrafarm.com/
    • Scott Adams
    • Scott Adams
      I’m really sorry you’re dealing with this, and what you’re describing is very real—even if other people can’t see it. Many kids and teens with celiac disease or other autoimmune conditions can have chronic joint and body pain, fatigue, and flares that come and go, which is exactly why it can look “fine one day and awful the next.” That doesn’t mean you’re faking anything. You deserve to be believed and supported, especially at school and at home. It may help to talk with a gastroenterologist or rheumatologist who understands autoimmune pain in teens, and to let a trusted adult help advocate for accommodations when you need them. Wanting to feel like a normal kid makes complete sense—and you’re not alone in feeling this way.
    • Scott Adams
      Don't  let one bad apple spoil the bunch,. as they say. Many health care professionals are doing their jobs the best they can, so it's important to try to work with them in a respectful manner, if when they might be wrong about something.
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